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  • Applied Behavior Analysis

    With Applied Behavior Analysis (ABA), a specific skills are taught by breaking them down into small steps, teaching each step one at a time, building on the previous one. Different methods are used to help the child learn, such as prompting (helping the child by guiding him through the desired response), shaping, and rewarding (for correct responses). ABA has been used for many years to successfully teach individuals of varying abilities, and can be used to teach in all skill areas, including academic, self-help skills, speech and language, and socially appropriate behaviour.

     

    B.F. Skinner is the grandfather of ABA, thanks to his study of ‘operant conditioning’ and his book The Behavior of Organisms published in 1938. ABA is based on the theory that all learned behaviors have an antecedent (what happened before the behavior was exhibited) and a consequence (what happened after the behavior was exhibited) and that all such behavior is shaped by the consequences of our actions, meaning that we are motivated by the consequence to repeat that behavior.

     

    Some of the terms used in ABA include:

     

    Task Analysis: This consists of analyzing a skill or task that needs to be taught, by identifying each step of the skill, and which steps the person needs to learn.

     

    Discrete Trial Teaching (DTT): This is a method of teaching that is very systematic and consists of the teacher’s presentation or request, the child’s response, and the consequence to that response (i.e. a reward if correct)

     

    The Lovaas Method: This is an intensive ABA program developed by Dr O. I. Lovaas at the UCLA Young Autism Project and aimed at pre-school children. In 1987 Lovaas published a study that showed dramatic results on 19 children with autism who had received intensive ABA therapy. In 1993, eight of the nine were still enrolled in mainstream classes and had lost none of their skills.

    Verbal Behavior Therapy: This is ABA therapy as it pertains to language behavior and is based on Skinner’s behavioral analysis of language.

    Errorless Learning   (no mistake learning) :When a new behavior is taught it is important for the student to be successful from the beginning.  Thus, teachers prompt  a successful behavior, hand over hand, if necessary.  The prompts are gradually removed so that the behavior will eventually occur simply to a request or some other cue.

    Care should be taken when choosing ABA providers. For more information on board certified providers, go to http://www.BACB.com/A competent professional will most certainly be a member of the Association for Behavior Analysis, website www.abainternational.org .

  • A Parent’s guide on communicating with special education through letters

          HOME


    Q:What are the parent’s rights?

    REQUESTING
    SERVICES:
    A GUIDE TO
    LETTER WRITING  Q:What do I do to request services?

    Q:How long
    does it take to get ananswer to my letter? 

    Q:To whom do I address my letter? 

    Q:In general, what do I say in my letter?

    Q:What else do I need to say  in my letter? 


    Sample Letter 1: 
    This is a general letter format.Sample Letter 2: 
    Request for an Initial Evaluation
    for Special Education Services

    Sample Letter 3: 
    Request for 
    a Meeting to
    Review the IEP

    Sample Letter 4:
    Request for
    a Change of Placement

    Sample Letter 5: 
    Request for Records

    Sample Letter 6: 
    Request for
    an Independent Evaluation 
    at Public Expense

    Sample Letter 7:
    Request for a Due Process Hearing

    Q:
    What do I do
    when things breakdown?

    Sample Letter 8: Follow-up Letter 

    Sample Letter 9:
    Positive Feedback  Letter


    THE SPECIAL EDUCATION PROCESS 


    This Parent’s Guide presents a general overview of how a child becomes eligible for special education and related services, parents’ rights and responsibilities, and a school’s rights and responsibilities. Because the focus of this issue is on communicating through letter writing, we have identified points in the process when writing a letter is necessary or useful. The term “parent” is used throughout this Parent’s Guide to include foster parents, legal guardians, or any primary caregiver who is functioning as a parent.


    Throughout your child’s school years, there is always a need to communicate with school: teachers, administrators, and others concerned with your child’s education. There are also times when the school needs to communicate with you, as the parent. Some of this communication is informal, such as phone calls, comments in your child’s notebook, a chat at the bus stop or at a school function.

    Other forms of communication are more formal and will need to be written.Letters provide both you and the school staff with a record of concerns, and suggestions. Putting your thoughts on paper gives you the opportunity to take as long as you need to state your concerns specifically, to think over what you’ve written, to make changes, and perhaps to have someone else read over the letter and make suggestions. Letters also give people the opportunity to go over what’s been “said” several times. A lot of confusion and misunderstanding can be avoided by writing down thoughts and ideas.

    However, writing letters is a skill. Each letter will differ according to the situation,
    the person to whom you are writing, and the issues you are discussing. This Parent’s
    Guide will help you in writing to professionals involved in your child’s education.

    Sample letters are shown for when you want to:

    1. Discuss a problem.
    2. Request an initial evaluation for special education services.
    3. Request a meeting to review the IEP.
    4. Request a change of placement.
    5. Request records.
    6. Request an independent evaluation
    7. Request a due process hearing.
    8. Write a Follow-up letter.
    9. Give positive feedback.

    SOME BACKGROUND INFORMATION

    The Individuals with Disabilities Education Act, (IDEA), Public Law  (P.L.) 101
    -476  (formerly known as the Education of the Handicapped Act,[EHA], P.L. 94- 142 and its amendments), mandates minimum requirements for a free appropriate public education for children and youth with disabilities, including early intervention services, and defines these children’s rights. Each state, using this law as a guideline, develops specific policies for the special education and related services of children with disabilities in that state. Each local public school district follows these guidelines and will base its policies on the federal laws and regulations, as well as on the laws and policies developed by the state.


    Q: How does this really work? 
    A: A flow chart is provided at the end of this Parent’s Guide to show how the
    process works, beginning with “I think my child may have a problem” and leading
    to the provision of special education and related services. The process of identifying that a child may be in need of special education and related services.

    Q: What are my rights as a parent?

    A:Your rights begin with your child’s right to a Free and Appropriate Public Education.This is often referred to as FAPE. Free means that your child’s education
    is at public expense and at no cost to you. Appropriate means that the educational program for your child will be tailored to individual needs. Any change in the
    provision of FAPE to your child should be in writing.You, as a parent, have the right to be fully informed by the school of all rights that are guaranteed to you under the law. Each state, county, and school system has written policies and guidelines that are available to you. Ask your child’s school to send you copies.

    Your rights also include:

    1.The right to be notified, whenever the school wants to evaluate your child, either
    to identify a possible disability or to measure changes in your child’s needs; the
    school wants to change your child’s educational placement; or the school refuses
    your request for an evaluation or a change of placement. The school must notify you
    in writing for all of the above.

    2. The right to request an evaluation of your child if you think your child may need special education and/or related services. It is best that you put this request in writing.

    3. The right to informed consent. For example, if the school is suggesting that your
    child be evaluated for a possible disability, then this means that you sign a form which
    says you understand and agree with the proposed plan to evaluate your child. There
    are other occasions when a family’s written consent will be required.

    4. The right to obtain an independent evaluation from professionals outside the
    school system. The results of these evaluations must be considered in any educational decisions made for your child. You also have the right to request that the school system pay for an independent evaluation if you believe the school’s evaluation was not appropriate.

    5.The right to request a re evaluation to determine if your child’s educational needs have changed. Depending on the results of this re-evaluation, a new Individualized Education Program (IEP) may be developed and a change in placement may be recommended.

    6.The right to have your child tested in the language he or she knows best. For example, if your child’s primary language is Spanish, and he or she is not fluent in English, then you have the right to request that your child be tested in Spanish. If your child is deaf, he or she has the right to an interpreter during testing.

    7. The right to review all your child’s records. You may also obtain copies of these records, although the school may charge you a reasonable fee for making copies. If
    you feel that any of the information contained in your child’s records is inaccurate or misleading or violates the privacy or other rights of your child, you may request that
    the information be changed. If the school refuses your request, you have the right to request a hearing to question the school’s refusal.

    8.The right to participate in the development of your child’s IEP. The school must make every effort to notify you of the IEP meeting and to arrange it at a time and place that is convenient for everyone who will attend.

    9.The right to the least restrictive educational environment for your child. Whenever possible, students should be educated in their neighborhood school with other
    children their age. The specifics of how this will be accomplished is part of the IEP.

    10.The right to a yearly review. The school must review your child’s IEP at least
    once a year and must re-evaluate your child at least once every three years. But you, as parents, can request an IEP review at any time you feel that your child’s needs
    have changed.

    11.The right to a due process hearing. If the school and family cannot come to an agreement on the needs, placement, or program of a student, both parties have the
    right to request a due process hearing to resolve their differences.

    Q: What are the parents’ responsibilities? 

    A: The special education team includes education specialists, therapists, medical
    personnel, the parent(s) or person(s) who have custody of the child, and the child when appropriate. As a full member of this team, the parent has responsibilities. These may not be as clearly defined as your rights, but they are just as important. Your most basic responsibility is to be an active team member, to establish effective communication between home and school, and to share information about your child’s education and development with other members of the team.

    Your specific responsibilities include: 

    1. After finding that your child is eligible for special education and after an IEP has been written, but before placement is determined, try to visit the proposed will help you become familiar with the programs under consideration. Talking to other parents
    is very useful, but seeing programs for yourself is also important.

    2.Before going to visit a school to look at a program, call ahead and ask the principal to schedule a time for you to visit. This is not only polite, but will assure that your visit comes during a regularly scheduled activity. If you also want to talk to the teacher, let the people arranging the observation time know, so that they can schedule a meeting.

    3. Once your child is settled in his or her school class, find time to visit at least once
    or twice a year to see how your child is doing.Often volunteering to help with school
    or classroom activities is an effective way to get involved. Teachers appreciate the
    help, and it gives you the opportunity to see your child in a school situation.

    4. Notify your child’s school, teacher, therapist(s), or nurse of any changes which would affect your child’s participation in school. Examples include: changes in your child’s medical condition or medication; extreme difficulty with homework; boredom with school work; social difficulties; or any other related difficulties the school personnel should be aware of.

    5. Provide the school staff with any relevant information from outside evaluations. Have copies of these reports sent to your child’s school.

    6. If problems arise, you should communicate your concerns about your child’s special education program to the school. Talk to the principal, teachers, therapist(s) etc. to allow everyone involved in your child’s schooling to informally observe the situation and make adjustments before minor problems become major difficulties.

    7. Let school staff know when you observe signs that your child’s current program may need to be changed. The more time the school has to arrange for re-evaluations, the better.

    8. If your child needs any special arrangements for testing, such as assistive technology, an interpreter, or foreign language tester, let  the school know right away. Even if your child’s teacher knows about his or her unique needs, the evaluation staff may not be aware of them and will need time to make the proper arrangements.

    9. If you would like to review and/or obtain copies of your child’s records, make this request, in writing, several weeks before you need to have these records. School secretarial staff may be quite busy, especially at certain times of the year. Also, records from previous years may be kept somewhere other than in the school building, making access more complicated than just opening a file drawer.

    10. It is very important that you attend IEP meetings. These meetings generally occur only once a year and are usually held during the day. If you have a job, talk to your employer or make any necessary child care arrangements so that you will be able to
    attend during the work day. If you have difficulties getting away during these hours, inform your child’s teacher and ask if the school can be of assistance. Sometimes the school can work out child care needs or talk to an employer to help you find the time to attend the IEP meeting.

    11. Any time you have scheduling difficulties with school meetings, tell the school people involved in that meeting. They will want to know that you are interested in your child’s schooling and that you want to be actively involved. There are always situations in which people cannot coordinate their schedules; the more information the school has about your schedule, the more they can work to arrange meetings and school functions at more convenient times for you. All too often, educators interpret poor attendance as lack of interest.

    12. If you are in disagreement with the school on any aspect of your child’s program, try to work out the disagreement before resorting to a due process hearing. Many schools now have formalized methods for mediation or can make such arrangements. Mediation can often bring solutions to light and is less negative than more formal or legal action. In any discussion of rights and responsibilities, it is important to remember the spirit of the law. The goal should always be the same: to provide the best opportunities for success for all children, including those who have differing needs and abilities. To achieve this goal it is important that all people involved in special education planning work together. It’s even part of the law. As team members you will each need to communicate your opinions and concerns constructively.

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    REQUESTING SERVICES: A GUIDE TO LETTER WRITING 
    Q: What do I do to request services? 

    A: Each state and school district has its own guidelines for special education.Again,
    it is important for you to ask your Director of Special Education or your school principal to explain them to you. They will also provide you with written guidelines.

    These guidelines will tell you exactly what you have to do to request services. It’s a good idea to put all your requests in writing, even if  it’s not required by your school district. A letter will avoid confusion and provide everyone-you, the school, and evaluation team — with a record of your request.
    ALWAYS KEEP A COPY OF EACH LETTER YOU SEND.

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    Q: How long does it take to get an answer to my letter? 

    A: It is useful to remember that if you write to a large organization, there may be several people who will handle your letter before it gets to the person to whom it is addressed. Mail is often opened by someone who sorts letters and puts them in the appropriate mail slots at school or in the office. A secretary may collect mail from the boxes and sort through to answer all general requests or other non-personal mail. Then your letter may be moved to the right person’s mail box, and he or she will pick it up within a few days, depending on the time of year and other work in progress. Obviously, smaller offices will have fewer steps and very large offices may have more.(Thus, response time will vary.) Often state or school district guidelines specify the amount of time a school has to respond to your request. Although the federal law states that schools must respond in a “timely manner”or within a “reasonable” period of time, most states and districts actually define this period by days. If you have not heard from the school within 10 working days of sending your letter, it is certainly all right to phone the office to make sure your letter was received and to ask when you can expect an answer. If you have asked for a meeting or other services which may require coordinating with several other people, it may delay the response to your request.

    If you need a letter answered in fewer than 10 working days(for instance if you are moving or if your child’s health suddenly changes), it might be useful to call the office and let them know that you have sent a letter and would like a response as soon as possible (or by a specific date). That way, the staff can speed up the process a bit.

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    Q: To whom do I address my letter? 

    A: This will depend on the type of request you are making in your letter. Call your child’s teacher or school principal, explain the type of request you are making (e.g., request for an initial evaluation of your child or for a meeting to review your child’s IEP), and ask who should get the letter. The principal is responsible for activities inhis or her school, and you can address certain letters to your child’s school principal.
    In some instances, you might find that the letter should be sent to the local Director
    of Special Education. Call to make sure of the spelling of the person’s name and his
    or her correct mailing address. Also, remember to make a copy of your letter to
    send to your child’s teacher, so that he or she will be aware of what is going on
    and know your concerns.

    Q: In general, what do I say in my letter? 

    A: When writing any business letter, it is important to keep it short and to the point. Ask yourself these questions, answer them for yourself, and state them in your letter:** Why am I writing this?

    ** Specifically, what are my concerns?
    ** What would I like the person to whom I’m writing to do about this situation?
    ** What are my questions?
    ** What sort of response do I want: a letter, a meeting, a phone call, or something else?

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    Q: What else do I need to say in my letter? 

    A: Each letter you write should have certain basic information included.** Be sure there is a date on your letter.
    ** Be sure to give your child’s full name and current class placement.
    ** Say what you want, rather than what you don’t want.
    ** Be sure to give an address and/or daytime phone number where you can be reached.
    ** Be sure there is a question or request in the letter, so that the person to whom
    you are writing can answer you.

    The remainder of this Parent’s Guide presents sample letters to help you approach
    this task. The letters address some of the many reasons parents may have for writing, including when you want to:

    1. Discuss a problem.
    2. Request an initial evaluation for special education services.
    3. Request a meeting to review the IEP.
    4. Request a change of placement.
    5. Request records.
    6. Request an independent evaluation.
    7. Request a due process hearing.
    8. Write a follow-up letter.
    9. Give positive feedback.

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    Sample Letter 1: This is a general letter format for discussing a problem.
    ______________________________________________________

    Today’s Date (include month, day, and year)

    Your Street Address
    City, State, Zip Code
    Day time telephone number

    Full Name of Person to whom you’re writing
    Title
    Name of School/Organization
    Street Address
    City, State, Zip Code

    Dear (name of person, use title and last name),

    In this paragraph explain who you are, give the full name of your child and his or her current class placement, and, VERY BRIEFLY, explain the reason you are writing.

    In this paragraph explain what you would like to have happen or what you would like to see changed. You may BRIEFLY say what you would not like, but spend most of this paragraph saying what you want.

    Say what type of response you want. For instance, do you need to meet with
    anyone, do you want a return letter, or a phone call?

    Finally, give your daytime telephone number and let them know that you expect to
    hear from them soon (or give a date, “by the 15th”).

    Sincerely yours,

    Your full name
    ______________________________________________________________

    Q: Can anyone help me with this?

    A: Yes. There are many people who can help you with letter writing and other tasks relating to your child’s special needs. Parents and professionals have discussed similar issues for many years. You can profit from their experience by talking to them and reading what they have written.

    As always, be sure to keep a copy of your letter for your own files.

    There are disability and parent organizations in every state that can help. Local chapters of state, regional, and national organizations also can work with you. Most states have a federally-funded Parent Training and Information Project; the staff there can help explain the laws, policies, and procedures of accessing special education programs. Members of disability organizations are families and professionals who
    are concerned with issues of a specific disability. State offices,like the State Education Agency, Developmental Disability Council, or Mental Health Agency, can also explain procedures. Many states now are funding parent resource centers in local school districts. Ask your Director of Special Education if there’s a local parent resource center in your area.

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    Sample Letter 2: Request for an Initial Evaluation for Special
    Education Services
    ______________________________________________________________

    Today’s Date (include month, day, and year)
    Your Full Return Address
    Name of Principal
    Full Address

    Dear (name of Principal),

    I am writing to request that my son/daughter, (full name), be evaluated for special education services. I have been worried lately that he/she is not doing very well in school and that he/she may need some special help in order to learn. He/she is in
    the (grade level and name of current teacher) at (name of school).

    Specifically, I am worried because (name of your child) does/does not …..(keep
    this paragraph short, but give one or two reasons for your concern about your child).

    I understand that I have to give written permission in order to have (name of child) tested. However, I would first like to know more about the tests, the testing process, and when this can be done. I would be happy to talk with you or another school
    official about my child. You can send me the information or call me during the day
    at (daytime telephone number). Thank you.

    Sincerely yours,
    Your full name
    _______________________________________________________________
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    Sample Letter 3: Request for a Meeting to Review the Individualized Education Program (IEP)

    Note:
    The Individualized Education Program defines your child’s program. As you know, each year there is a regularly scheduled IEP review; however, you can request a
    review whenever you feel changes need to be made in your child’s program.

    Q: What might be some reasons to request an IEP review?
    A: You may want to request a review if:

    ** Your child has met one, or several, of the goals written in the   IEP;
    ** Your child does not seem to be making any progress toward one, or several, the goals written in IEP;
    ** You feel additional services should be added in order for your child to progress;
    ** You feel a service is no longer necessary in order for your child  to succeed;
    ** Your child has experienced major changes, such as illness, surgery, or injury.

    _____________________________________________________________

    Today’s Date (include month, day, and year)
    Your Full Return Address

    Name of Principal
    Full Address

    Dear (name of Principal),

    I am writing to request an IEP review meeting. I would like to discuss making some
    possible changes in (child’s name, grade level, and teacher) IEP as I feel that ….

    I would also like to have (name of specialists) attend. I think his/her/their ideas about
    the changes we may make will be valuable.

    I (or my husband/wife and I) can arrange to meet with you on (days) between (give a range of time, such as between 3:00 and 5:00). Please let me know what time would be best for you.

    I look forward to hearing from you soon. My daytime telephone number is (000) 000-0000. Thank you for your time.

    Sincerely yours,
    Your full name

    _____________________________________________________________
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    Sample Letter 4: Request for a Change of Placement

    Q: What might be some reasons to request a change in your child’s class placement? (Remember placement is based on the IEP, so to request a change in placement means that you are actually requesting an IEP review to discuss a change in your child’s needs.)A: The reasons for requesting a change in your child’s placement would be based
    on concerns that your child’s educational, social, or physical needs are not being appropriately met. A review of your child’s progress, talks with your child’s teacher
    (s) and therapist(s) as well as discussing this with your child, when appropriate,
    would reveal that this placement needs to be reconsidered and the IEP reviewed.

    These placement concerns might include:

    ** Changes in your child’s needs;
    ** Current class size may be too large or too small;
    ** Current class may be too academic or not academic enough;
    ** This class may not provide opportunities for appropriate socialization;
    ** The building may be too difficult for your child to get around;
    ** Or any other reason that this class placement is not working out successfully.
    _______________

    Today’s Date (include month, day, and year)
    Your Full Return Address

    Name of Principal
    Full Address

    Dear (name of Principal),

    I am writing to request a meeting to discuss a change in class placement for (full name of your child). He/she is currently in (grade/school/name of teacher). I feel he/she would do better in (name of alternative placement).

    I am most concerned about …… (Keep this paragraph brief and mention your child’s needs, not problems with people).

    I would also like to have (name of teacher(s) and/or any specialists you would like) attend.

    I (or my husband/wife and I) can arrange to meet with you on (days) between (give a range of time, such as between 3:00 and 5:00). Please let me know what time would be best for you.

    I look forward to hearing from you soon. My daytime telephone number is (000) 000-0000. Thank you for your time.

    Sincerely yours,
    Your full name
    ________________________________________________________________
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    Sample Letter 5: Request for Records

    Q: What might be some reasons to request copies of records?

    A: School records contain valuable information about your child’s strengths and
    areas of need. These records can provide a formal system of communication
    between the professionals at your child’s school and other professionals who need
    this information.

    Here are some reasons that may motivate you to request copies of the records:
    ** It’s always a good idea to review your child’s school records to be sure they are correct and contain all necessary information.
    **When your family is moving to a new school district, records may need to be sent.
    ** When you’re taking your child for an independent evaluation, copies of past records may be useful.
    ** Services or other programs your child attends, like camp, tutors, or in-hospital schools, may find these useful in designing their activities.
    ** Postsecondary programs may need to see copies of your child’s records.
    ** For your home files, especially if your child is finishing school.
    _____________________________________________________________
    Today’s Date (include month, day, and year)
    Your Full Return Address

    Name of Principal
    Full Address

    Dear (name of Principal),

    I am writing to schedule a time to come to school and review all of my child’s records, both cumulative and confidential. My child’s name is…, his/her grade is…, and his/her teacher is … . I will also need copies of all or some of these records.

    Please let me know where and when I can come in to see them. (I need these
    records by …). You can reach me during the day at (your daytime phone number).

    I look forward to hearing from you soon. Thank you for your consideration.

    Sincerely yours,
    Your full name
    ____________________________________________________________
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    Sample Letter 6: Request for an Independent Educational Evaluation at Public Expense

    Q: What might be some reasons for requesting an Independent Educational
    Evaluation (IEE) at public expense?

    A: It is not uncommon for families to feel that their child may need additional tests
    or feel that the school’s testing results did not accurately describe the child. Parents
    may want additional medical examinations or may be interested in areas the school
    staff did not test. You can, therefore, always have your child tested outside the
    school system.

    However, if you expect the school to pay for an IEE, then you will need to request
    this BEFORE any independent testing is done. Some reasons the school may accept
    financial responsibility for an independent evaluation include:

    ** The original evaluation was incorrect;
    ** The original evaluation was not done in your child’s native language;
    ** The original evaluation was incomplete and additional tests are needed;
    ** The evaluation could not be done with the needed accommodations, for example
    in braille or administered by someone who signs.
    ______________________________________________________________
    Today’s Date (include month, day, and year)
    Your Full Return Address

    Name of Director of Special Education
    Full Address

    Dear (name of Director),

    My son/daughter, (give full name), who is currently attending (name of school, grade,
    teacher) was evaluated for special education services (give month and year of this
    evaluation). I am writing to inform you that I disagree with the testing, and I would
    like to have my child re-evaluated. I am requesting an Independent Educational
    Evaluation at public expense, for the following reasons: [briefly list your reason(s), being very specific].

    I would like this Independent Educational Evaluation to be done as soon as possible.
    Please send me copies of the school’s guidelines for this. My daytime telephone
    number is (000) 000-0000.

    Sincerely yours,
    Your full name
    ______________________________________________________________

    The school may disagree with your reasons for wanting additional testing. They may
    feel they have conducted the necessary tests in a proper manner. If the school
    disagrees with your request for an IEE at public expense, and you still feel the IEE is
    necessary and that they should accept financial responsibility, you can request a due
    process hearing.

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    Sample Letter 7: Request for a Due Process Hearing

    Q: When and how should I initiate due process procedures?

    A: While the school system may readily comply with your request to evaluate,
    reevaluate, or meet to review the IEP, that doesn’t necessarily mean that you will
    get the outcome you want. At the meeting you requested to discuss changing your child’s placement the school system may not agree with you. They may feel that
    your child is in the most appropriate placement. Or at the IEP meeting you request
    in order to change the goal(s), add services, the school may not want to make these changes or additions because they believe that they are not in your child’s best
    interest or are not appropriate.

    If the school staff has communicated its thoughts and you have communicated
    yours and you both understand but disagree, you may want to consult with
    specialists, a mediator, or other persons to try to compromise. Remember: The
    goal is to provide an appropriate education for your child. There are many
    options on what is an appropriate education, and some trial and error may be necessary to develop a successful program for each student.

    Sometimes compromise and further discussion do not lead to agreement between
    parties, and you may want to request a due process hearing. A due process hearing
    is a formal proceeding where the differences between you and the school system are
    shared in front of a qualified, impartial hearing officer. The hearing officer’s role, afte
    hearing both your side and the school’s side, is to make a reasonable decision based
    on the information presented.

    Your letter requesting a hearing should be sent to the person in charge of due
    process hearings. This may be the Superintendent of Schools or the Director of Special Education, or another designated school official. Call the Director of Special Education in your school district to find out the name, title, and address of the person responsible and address your request to this individual. Your letter will then be give
    to a selected hearing officer. It is the hearing officer who will be responsible for establishing the date, time, and place of the hearing.

    ______________________________________________________________

    Today’s Date (include month, day, and year)
    Your Full Return Address

    Name and Title of Person you identified
    Title
    Full Address

    Dear (full name),

    I (or We), the parent(s) of (your child’s full name), am (are) writing to request a due process hearing. (Your child’s full name) is (age and date of birth) and is currently attending (name of school). He/she is in the (grade level/special education classroom).

    I (we) have met with (names of school personnel involved in your meeting) in an
    effort to resolve our differences with my child’s (IEP, placement, testing, or whatever) and have been unable to do so. We therefore request that a due process hearing be scheduled with an impartial hearing officer in order to have this disagreement settled.

    Please advise me (us) as soon as possible as to the date and time of this hearing so
    that I (we) can make the necessary arrangements with work (or childcare) and with those people we wish to include in the hearing. My daytime telphone number is
    (000) 000-0000.

    I (we) also request that this hearing be (open/closed) to persons other than those directly involved. (Name of child) will/will not attend the hearing.

    Sincerely yours,
    Your full name

    *cc: (name of Principal)
    (name of your advocate/attorney)
    _______________

    * “cc:” means that you are sending a copy of this letter to the people you list after the “cc:”. Xerox the letter after you have signed it, and send a copy to each person you have listed.

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    Q: What do I do when things break down? 

    A: Hopefully everything will go relatively smoothly and this section can be ignored. Now and then things fall between the cracks or people don’t see eye to eye, and
    then other steps can be taken, if desired.

    Once you have written a letter requesting an evaluation, an independent educational evaluation at public expense, an IEP review, a meeting of any kind, or a hearing, you should get a response from the school system either by telephone or in writing, within
    a reasonable period of time. In some cases, “reasonable” is defined, but in other cases, the timelines are not exact. So be reasonable. But if you feel too much time
    has passed without receiving a response to your letter, then call and ask if your letter of request has been received. If you are sure the school has received your letter (some parents send their letter of request by certified or registered mail), then ask when you can expect to hear from them. More than likely, when you call you will
    talk to a secretary or administrative assistant. Ask that the superintendent, principal, or teacher call you back.

    If your request still goes unanswered then you may want to write again. It would be useful to enclose a copy of the original request with this letter. Be sure not to send
    your only copy; remember, you will always need to have a copy for your records.

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    Sample Letter 8: Follow-up Letter
    _______________

    Today’s Date (include month, day, and year)
    Your Full Return Address

    Name of Person to whom you wrote
    Full Address

    Dear (name),

    I wrote to you on (date) and also called to make sure you had received my letter. I
    left a message for you to call me back, but since I have not heard from you, I thought
    it best to write again.

    I am writing to request …. and have enclosed a copy of my first letter.

    I expect to hear from you within the next few days. My daytime telephone number is (000) 000-0000.

    Sincerely yours,

    Your full name
    _______________

    If problems continue, there are additional steps which can be taken. If you feel your child’s needs are not being met even after the due process hearing, there are very specific ways of addressing this. There are people you can contact to discuss the
    most effective next steps. In many cases, this may involve legal or other professional help and requires more in-depth and individual attention than can be covered in this Parent’s Guide.

    You can contact the Protection and Advocacy Agency for your state or the Parent Training and Information Project for further information.

     


    Writing letters is an important part of communication. As your son or daughter goes through the school years there may be many occasions to send letters. In advocating
    for your child’s needs it is important to be able to say what you want in a short and to-the-point written document.By communicating your thoughts, ideas, and concerns you will be defining your child’s needs. By emphasizing the positive aspects of your child’s educational experience you will develop a good working relationship with the professionals in your child’s life. By being able to express what would work rather than by spending time and energy reviewing what didn’t work, you will become a strong advocate for your child.
    When goals are well defined and needs are clearly stated, success is possible.

    A Final Word:

    Once you’ve begun to write letters, be sure to write when things are going well too!
    If a program, teacher, therapist, or other school staff member has provided an excellent opportunity for your child: Write a letter. We all like compliments and encouragement. Positive feedback is what keeps good programs running well. Just as you want to know “how it’s going” so does the school staff.

    Good communication, good team work, and effective school programs and policies take work. There’s an old saying that states, “Things can go wrong all by themselves, but you have to work to make things go right.”

    Be sure your teacher(s), principal, and superintendent hear from you when things are going right too.

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    Sample Letter 9: Positive Feedback Letter
    _____________

    Today’s Date (include month, day, and year)
    Your Full Return Address

    Name of Teacher, Principal, or Superintendent
    Full Address

    Dear (name of person),

    I am writing to let you know that I am very pleased with (full name of your child’s) special education program.

    (First name of your child) has had great success with (briefly say what went right and name the professionals working with your child).

    We look forward to continuing progress. Thank you for all your efforts on behalf of
    my child. My daytime telephone number is (000) 000-0000.

    Sincerely yours,

    Your full name

    cc: (Be sure the Principal of the school and/or Director of Special Education
    get a copy).

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    _________________

    THE SPECIAL EDUCATION PROCESS

    This chart shows the order of events from identification of a disability through development of an IEP. For a description of each stage, refer to the corresponding numbers following the chart.(1) Referral/Request for an Evaluation

    (2) Evaluation

    (3) Eligibility Meeting

    (4) Not Found Eligible

    Found Eligible

    (5) Individualized Education Program and Placement Meeting

    (6) Parents Disagree

    Parents Agree

    (7) Annual IEP Meeting

    (8) Parents Disagree

    (9) Parents Agree
    The following statements correspond with the numbers represented on the flow
    chart above.

    (1) This can be made by parents or a professional. If a professional requests an evaluation, then the school or service provider must notify parents in writing.

    (2) Parent permission is needed for the initial evaluation. The evaluation must assess
    the child in several areas.

    (3) The results of the evaluation are reviewed by a team of scan begin with the parent or a professional. The attached NICHCY State Resource Sheet lists many of the people involved in special education and disability issues in your state.

    School personnel involved in educating students with special needs.This team usually includes a school psychologist, a teacher, a therapist, a special education supervisor, and/or administrator and others. Parents may be invited to attend this meeting. At the eligibility meeting it is determined whether or not the child is eligible for special services.

    (4) The child will stay in his/her current placement. Parents can disagree with
    the eligibility decision and have the right to take their child for an Independent Educational Evaluation (IEE). They can request the school system to pay for this
    IEE if they feel the initial evaluation was not properly done.

    (5) Parents must be invited to attend this meeting. At this meeting the child’s special education program is written. The IEP includes the goals and objectives of the child’s program, types of specialized services that may be needed, and the amount and time he/she will spend in regular education activities.

    Where the IEP is to be implemented is also determined at this meeting. This is known as the placement. Placement must be in the least restrictive setting appropriate for the child. This is called LRE or Least Restrictive Environment. Placement could be in the regular classroom with needed support services, a resource room for a specified amount of time, a self-contained class, or a separate facility.

    Parents have the right to agree or disagree with the IEP and proposed placement.

    (6) Parents may discuss their concerns with the IEP team and try to work out a compromise. If they still disagree, parents can begin their Due Process Rights.

    (7) At an IEP meeting the child’s progress is reviewed, the IEP is updated, and the child’s placement is discussed. Parents must be invited to attend. Parents can make suggestions for changes, agree or disagree with the IEP goals, and agree or disagree with the placement. This meeting must take place at least once a year. Parents or school personnel can request an IEP and placement review at any time.

    (8) Parents can discuss their concerns with the special education staff and review
    team. There are several options, including additional testing, an independent
    evaluation, or other activities which are in keeping with parents’ Due Process Rights.

    (9) The child will continue in the special education program with the updated IEP.
    There will be an IEP review each year and an in-depth re-evaluation at least every three years.

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    Autism-PDD Resources Network


    National Information Center for Children and Youth with Disabilities

  • Dr. Laura on Autism, Families

    Dr. Laura on Autism: “Something is wrong in the head.”

    We ran into this surprising sequence from radio talk show host Dr. Laura Schlessinger, who advised one of  her 3-minute phone callers, a mother with an autistic son, to “seek placement” for her 8 year old child. She makes a number of outrageous and alarming comments as well. Among them, she describes having a child with autism as “torture”, intimates that parents with such children have no life, that siblings are “losing out/suffering”, and compares taking a child with behavior difficulties in public, to doing the same with a drunk.
    During her short but pointed tirade, Dr. Laura Schlessinger did not even consider the needs of the child, such as the possibility of providing medication, or getting behavior management help, or indirectly, by having the obviously overwhelmed mother join a support group, to help her deal with the stress.
    Read the following, and, if you can, we suggest listening to the entire segment at the link provided.

    If you like to listen to the entire segment go to:
    http://www.broadcast.com/premrad/shows/drlaura/jul.stm
    Click on the July 29 show. If you have Real Player, move the slide on the
    tape player to 1:42 and you’ll be just about at the beginning of the sequence. 


    To contact Dr. Laura Schlessinger:             1-800-DRLAURA       from 12-3 Pacific time.
    or
    Dr. Laura Schlessinger c/o Premiere Radio Networks, 15260 Ventura Blvd.,
    Ste. 500, Sherman Oaks, Ca. 91403


    This is nearly a complete transcript, however, it may miss some words.
    The transcript below was made by Jeff Welch on 7/30/99.

    July 29 show transcript (1:42 sequence only):

    Dr. L: Denise. Welcome to the program.

    Denise: Hi, Dr. Laura. I am my kids’ Mom. I have three children, 6, 8 and 10 and my middle son has autism. He’s a non-verbal autistic child, and we’ve been going through about 10 weeks of some real severe behavior problems with him where he has just gone from doing so well to this complete regression.

    Dr. Laura: Do they have any idea why? Any rhyme or reason to these things.

    Denise: We’re working on it, we have an appointment with doctors and all… And its just so difficult, I just can’t describe it.

    Dr. Laura: Is there much left of you for the 6 and 10 year old?

    Denise: No. They’re right now with my grandparents, my, my in-laws… (Talks about sending other children to the grandparents) … and you know, my parents are worried about me. (Breaks down … “so sorry.”)

    Dr. Laura: Right now, I’m worried about you, too.

    Denise: My father’s birthday is today and he’s having a birthday party tomorrow, and he has invited all the family to a very nice restaurant where right now its just not feasible – and they know that, and they want …

    Dr. Laura: Denise, Denise, I’m going to say something now that you need to hear. You need to have a life aside from this torture. You need to have a life aside from this. Your family needs to have a life aside from this. I suspect you’ve done more than is humanly possible. There are responsible people who are specifically trained to deal with very difficult kids with very serious problems like your son has. Let them baby-sit so you can go out and have a life sometimes.

    Denise: And that’s okay.

    Dr. Laura: No, no, it’s not only okay. Your 6 year old and your 10 year old deserve it. They are losing out because they’re okay. Your husband is losing out because he’s okay. You’re losing out because you’re okay.

    Denise: No, he didn’t want to go. He felt if we couldn’t go some where we all could go …

    Dr. Laura: There is nowhere you can bring this kid. There is no place. And that’s not fair to the family. And this is what I call unreasonable guilt. There is reasonable guilt – you kicked me in the shins, you should say you’re sorry. This is unreasonable guilt.

    Denise: But I feel like we’re leaving him out.

    Dr. Laura: That’s correct. You are. When its appropriate you leave him out. If your husband was a falling down drunk they might ask you to leave him home, too. And I would say, That’s reasonable. Yes, You are reasonably leaving him out so all of you can have a decent life. Everyone is involved and invested. Everyone has spent an inordinate amount of time and an inordinate amount of money, an inordinate amount of stress. I bet you get every bug that goes around.

    Denise: Yes.

    Dr. Laura: Yes, I know. I can hear that. You have to give yourself permission to have a life apart from that. And you know, Denise, this may not be fixable.

    Denise: What’s that?

    Dr. Laura: Your son may not be fixable. In which case you’re going to have to think of some kind of placement. He might even become dangerous to himself or somebody else — and that’s not going to be unreasonable either because he would be in a more controlled environment where there are experts in dealing with him.

    Denise: We just don’t know what happened to him.

    Dr. Laura: Well, you know it has nothing to do with Mommy. You understand that, don’t you. Autism has nothing to do with whether you’re a bitch or too sweet. It’s an error. Something is wrong in the head. Some people with milder versions. Extraordinary things can be done, but some people have serious problems and it compounds, and it can’t be fixed… So at some point you have to think about alternative situations so this family can have a life – and please – that’s fair to everyone.

    Denise: That’s what my family has been saying.

    Dr. Laura: And that’s not abandonment. That’s appropriate placement. There’s a difference. One visits, One does stuff, one takes the kid home sometimes on holidays, you go on little expeditions, bring him little gifts, whatever he’s capable of experiencing and enjoying and functioning in. But don’t
    beat yourself over the head. Buy yourself a nice dress, and have a nice time at dinner tomorrow night, maybe one of the few nice times you’ve had at dinner in 8 years. And that’s fair.

    Denise: Thank you, Dr. Laura.

    Dr. Laura: I’m really sorry. I think you folks have gone above and beyond. Not everything can be fixed.

    Denise: But we’re going to try to help him as much as we possibly can.

    Dr. Laura: That’s right, and that may mean a different setting…

    Denise: I don’t want to go there yet.

    Dr. Laura: Well, don’t forget other kids suffer from lack of attention, and that’s no less serious.

    Denise: It’s such a terrible balance.

    Dr. Laura: Yes . But you understand that these are normal kids who need some semblance of a normal family life. They are going to go out into the world and do the important things in the world. And if they’re not given their best opportunity, then we’re losing three. And its not abandonment, it’s just apportioning the time and effort.

  • FloorTime Therapy

    The FloorTime approach was developed by Dr Stanley I. Greenspan as part of his developmental approach to therapy. Parents and floor-time therapists help children master the emotional milestones needed to develop a foundation for learning. The approach is based on his belief that emotions give meaning to our experiences, as well as a direction to our actions. Floor-time seeks to have the child develop a sense of pleasure in interacting and relating to others, and is done through play, based on the child’s interests, and creating an increasingly large circle of interaction between the child and an adult. Parents and therapists work on four goals: encouraging attention and intimacy; two-way communication; encouraging the expression and use of ideas and feelings; and logical thought.

    The Developmental, Individual Difference, Relationship-based (DIR/Floortime) Model is a framework that helps clinicians, parents and educators conduct a comprehensive assessment and develop an intervention program tailored to the unique challenges and strengths of children and adults with Autism Spectrum Disorders (ASD) and other developmental challenges. The objectives of the DIR/Floortime Model are to build healthy foundations for social, emotional, and intellectual capacities rather than focusing on skills and isolated behaviors. For more information, visit http://www.icdl.com/.

     

  • Verbal Behavior Therapy

    Verbal Behavior Therapy (VB) focuses on teaching verbal behavior through a collection of highly effective teaching procedures taken from the science of behavior analysis, incorporating BF Skinner’s behavioral analysis of language. In his 1957 book, Verbal Behavior, Skinner described language as a behavior and showed how language could be taught using the principles of operant conditioning.

     

    Skinner’s work in this area was largely ignored until Dr. Jack Michael and his students, Mark Sundberg and James Partington, began to apply it many years later.

    It was written by In 1998, Drs. Mark Sundberg and James Partington wrote and published a book entitled, Assessment of Basic Language and Learning Skills (ABLLS). This book is an assessment, curriculum guide, and skills-tracking system for children with autism or other developmental disabilities. VB practitioners utilize the ABLLS to assess a child’s level in 25 different areas of functioning. A parent and/or a teacher who is very familiar with the child can complete this assessment. The ABLLS can be completed every 3 to 6 months after the initial assessment and because of its frequency serves as an excellent tracking system of the child’s progress. Drs. Sundberg and Partington also wrote and published Teaching Language to Children with Autism and Other Developmental Disabilities, which provides an overview of the VB terminology and techniques.

    The Verbal Behavior model of ABA looks first at what the child wants and then teaches the child how to request (ie how to mand). Initially that may involve only the child reaching for the item to indicate interest. The child quickly learns that if they use “verbal behavior,” or reaching in this case, to indicate interest in something, they get the requested item.

     

    For more information and resources on Verbal Behavior Therapy, visit: http://verbalbehaviorapproach.com/faq.html

     

    http://www.vbntraining.com/

     

    http://www.marksundberg.com/

     

     

  • Autism Symptoms Checklist

    Diagnostic Checklist

    Diagnostic Criteria (299.00 Autistic or 299.80 Asperger)

    Medical Tests

    Therapy Evaluations

    Assessments

    Standardized Tests

    Books on Autism

    Autism, which affects thought, perception, and attention, is not just one disorder with a well-defined set of symptoms autism is a broad spectrum of disorders that range from mild to severe. In addition, the behavior usually occurs across many different situations and is consistently inappropriate for their age.

    In the diagnostic manual used to classify disabilities, the DSM-IV (American Psychiatric Association, 1994), “autistic disorder” is listed as a category under the heading of “Pervasive Developmental Disorders.” A diagnosis of autistic disorder is made when an individual displays 6 or more of 12 symptoms listed across three major areas: social interaction, communication, and behavior.

    When children display similar behaviors but do not meet the criteria for autistic disorder, they may receive a diagnosis of Pervasive Developmental Disorder-NOS (PDD not otherwise specified).

    Problems in social relatedness and communication.
    (Difficulty in mixing with other children; prefers to be alone; aloof manner; difficulty in expressing needs; uses gestures or pointing instead of words ).

    Abnormal responses to one or a combination of senses; such as sight, hearing, touch, balance, smell, taste, reaction to pain. 
    Sustained odd play.

    Uneven gross/ fine motor skills.

    Not responsive to verbal cues act as deaf.

    Little or no eye contact.

    Insistence on sameness; resist changes in routine.

    Noticeable physical overactivity or extreme under-activity.

    Tantrums; displays extreme distress for no apparent reason.


    Autism Resources

    Speech and language absence or delays. Inappropriate laughing and giggling.

    Echolalia (repeating words or phrases in place of normal language).
    Abnormal ways of relating to people, objects, and events.

    (Inappropriate attachment to objects; don’t seek cuddling )

    Spins objects.

    An aspect of language that tends to be disturbed in autistic people has to do with knowing how to use language appropriately and in context. That includes knowing how to hold a conversation, thinking about what the other person in a conversation understands and believes, and tuning in to the meta-linguistic signals of the other person, such as facial expression, tone of voice, and body language. It is important to remember that communication is as much nonverbal as it is verbal, and autistic people have great difficulty understanding nonverbal language.
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    The following is from the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM IV):

    DIAGNOSTIC CRITERIA FOR 299.00 AUTISTIC DISORDER

        A. A total of six (or more) items from (1), (2), and (3), with at
    least two from (1), and one each from (2) and (3)

    (1) qualitative impairment in social interaction, as manifested by at least two of the following:

    a) marked impairments in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body posture, and gestures to regulate social interaction

    b) failure to develop peer relationships appropriate to
    developmental level

    c) a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people, (e.g., by a lack of showing,
    bringing, or pointing out objects of interest to other people)

    d) lack of social or emotional reciprocity ( note: in the
    description, it gives the following as examples: not actively
    participating in simple social play or games, preferring solitary
    activities, or involving others in activities only as tools or
    “mechanical” aids )

    (2) qualitative impairments in communication as manifested by at least one of the following:

    a) delay in, or total lack of, the development of spoken language
    (not accompanied by an attempt to compensate through alternative modes of communication such as gesture or mime)

    b) in individuals with adequate speech, marked impairment in the ability to initiate or sustain a conversation with others

    c) stereotyped and repetitive use of language or idiosyncratic
    language

    d) lack of varied, spontaneous make-believe play or social
    imitative play appropriate to developmental level

    (3) restricted repetitive and stereotyped patterns of behavior,
    interests and activities, as manifested by at least two of the
    following:

    a) encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in
    intensity or focus

    b) apparently inflexible adherence to specific, nonfunctional
    routines or rituals

    c) stereotyped and repetitive motor mannerisms (e.g hand or finger flapping or twisting, or complex whole body movements)

    d) persistent preoccupation with parts of objects

    B. Delays or abnormal functioning in at least one of the following areas, with onset prior to age 3 years:

    (1) social interaction

    (2) language as used in social communication

    (3) symbolic or imaginative play

    C. The disturbance is not better accounted for by Rett’s Disorder or Childhood Disintegrative Disorder


    Diagnostic Criteria For 299.80 Asperger’s Disorder


    Diagnosing and Evaluating Autism
    Autism and related disabilities, such as PDD-NOS (Pervasive Developmental Disorder – Not Otherwise Specified), and Asperger’s Syndrome is difficult to diagnose, especially in young children where speech and reasoning skills are still developing.

    It is essential that the process of diagnosing Autism & related disabilities include the assessment and evaluation of a child’s development, communication, and social skills. Evaluation and assessment are ongoing processes. Once a diagnosis has been reached, this process should be repeated periodically. We included brief descriptions of some medical tests and evaluations that may be ordered for children suspected of having autism or a related disability.
    Medical tests
    following medical tests may help with diagnosis and possibly suggest changes in the intervention or treatment strategy.Hearing: Various tests such as an Audio gram and Typanogram can indicate whether a child has a hearing impairment. Audiologists, or hearing specialists, have methods to test the hearing of any individual by measuring responses such as turning their head, blinking, or staring when a sound is presented.Electroencephalogram (EEG): An EEG measures brain waves that can show seizure disorders. In addition, an EEG may indicate tumors or other brain abnormalities. An electroencephalogram (EEG) is a recording which shows the variations in electrical potentials at a number of scalp sites.
    Inside the brain, neurons produce their own electrical fields. The electric fields are measured in units of micro volts. It is thought that an unhealthy brain will have large changes in the electrical potential compared to the potentials produced by a healthy brain.However, in order to observe an unhealthy brain it must be compared to the same brain when it was healthy. So, for example, to measure the difference between a brain undergoing a seizure, the EEG must last long enough for seizure to occur. Often a video EEG is done over a period of a day or a week.This form of measuring brain activity is noninvasive (doesn’t require any surgical cuts) and it is relatively inexpensive. This method gives numerical results. The patterns of the numbers are then used to determine whether or not the brain is healthy. The results can also be used to determine which section of the brain is causing problems. Additional tests will likely be needed to make an accurate diagnosis of these conditions.Metabolic Screening: Blood and urine lab tests measure how a child metabolizes food and its impact on growth and development. Some Autism spectrum disorders can be treated with special diets.Magnetic Resonance Imaging (MRI): An MRI involves using magnetic sensing equipment to create an image of the brain in extremely fine detail. Sometimes children are sedated in order to complete the MRI.Computer Assisted Axial Tomography (CAT SCAN): An X-Ray tube rotates around the child taking thousands of exposures that are sent to a computer where the X-rayed section of the body is reconstructed in great detail. CAT Scans are helpful in diagnosing structural problems with the brain.Genetic Testing: Blood tests look for abnormalities in the genes which could cause a developmental disability.
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    Therapy EvaluationsMany children with Autism and related disabilities require some form of special therapy. Evaluation can help determine the potential benefits of therapy.Speech – Language Therapy: It is recognized that autistic children have difficulties with language, but it is clear that traditional approaches emphasizing mastery of the formal properties of language are largely inappropriate: training children to speak is not going to bring about a transformation of their behavior. The autistic child needs to learn not so much how to speak as how to use language socially to communicate. Some autistic children are nonverbal, and some who are verbal may also have deficiencies or are unable to use language in a meaningful way.A Speech Pathologist who specializes in the diagnosis and treatment of language and speech disorders, can help a child learn how to effectively communicate.Occupational Therapy: Commonly focuses on improving fine motor skills, such as brushing teeth, feeding, and writing, or sensory motor skills that include balance (Vestibular System), awareness of body position (Proprioceptive System), and touch (Tactile System). After a therapist identifies a specific problem, therapy may include sensory integration activities such as: massage, firm touch, ex..Physical Therapy: Specializes in developing strength, coordination and movement. Therapists work on improving gross motor skills. This therapy is concerned with improving function of the body’s larger muscles through physical activities including exercise.
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    Direct ObservationDirect observation, interaction, and interviews assessments: Information about a child’s emotional, social, communication, and cognitive abilities is gathered through child directed interactions, observations in various situations, and interviews of parents and care givers. Parents and family members should be actively involved throughout these assessments. What actually occurs during a specific assessment depends on what information parents and evaluators want to know.Functional assessments: Aim to discover why a challenging behavior (such as head banging) is occurring. Based on the premise that challenging behaviors are a way of communicating, functional assessment involves interviews, direct observations, and interactions to determine what a child with autism or a related disability is trying to communicate through their behavior.Once the purpose of the challenging behavior is determined, an alternative, more acceptable means for achieving that purpose can be developed. This helps eliminate the challenging behavior.Play based assessments: Involve adult observation in structured and unstructured play situations that provide information about a child’s social, emotional, cognitive, and communication development. By determining the child’s learning style and interaction pattern through play based assessments, an individualized treatment plan can be developed.
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    Standardized instrumentsStandardized instruments are formal methods used to determine different levels of cognitive development.Rating Scales & Developmental Inventories: Vineland Adaptive Behavior Scales and Childhood Autism Rating Scale are examples of standardized tests that measure a child’s general developmental skills, including socialization skills and coping skills. Scores are based on parent interviews and evaluator observations.Intelligence Tests (IQ): Stanford-Binet Intelligence Scale and other intelligence tests attempt to determine an individual’s intelligence based on standardized criteria. The results of educational tests are often provided in composite scores.On the Wechsler Intelligence Scale for Children, (WISC-III), three scores are usually provided: Verbal IQ (VIQ)Performance IQ (PIQ), and a Full Scale IQ (FSIQ). Each of these tests provides a composite score. Both the Verbal and Performance IQ scores are composites of five different sub tests. Intelligence Tests (IQ)do not necessarily measure an autistic child true abilities and unique potential to develop.Return to Top
  • Special Education FAQ

    Introduction

    The rules or guidelines for special education in the United States and its territories are outlined in a federal law known as the Individuals with Disabilities Education Act (IDEA), formerly known as the Education of the Handicapped Act (EHA). Each state or territory develops its own policies for carrying out this Act. (You can read more about this law later in this document.) You’ll need to find out what the early intervention or special education guidelines are in your state and area.

     

    The Rehabilitation Act of 1973, Section 504, prohibits discrimination against handicapped people.  This law outlines procedures for providing services to students who have physical or mental impairments. Federal regulations under Section 504 are very similar to those under IDEA. The primary difference between the two federal statutes is that  Section 504 requires reasonable accommodation to ensure non discrimination, while IDEA provides a sortof Affirmative Action for students who qualify under the Act. Regulation under the Section 504:

    1.A district must identify and locate qualified handicapped students residing in the school district  and notify the student’s parents/ guardians of the opportunity for the student to receive a free and appropriate public education

    2. Evaluate any student who, because of a handicap, needs, or is believed to need, accommodation in the regular education classroom setting, or requires related aids and services. Examples of related aids and services are speech or occupational therapy, classroom aides, or technological devices.

    3. Have a 504 Coordinator. Procedures require that a program be created and periodically reviewed for qualified individuals and that parents need to be notified of any such program. Following the evaluation, the school district must utilize a multidisciplinary team  or  persons  knowledgeable about  the  student  to determine the appropriate placement and to develop an educational plan which is designed to meet the needs of the disabled student.  Procedural safeguards are afforded to all 504 students. Examples of 504 students could be students with  ADD, etc. All IDEA students are 504 students, but all 504 students are not necessarily IDEA students. The 504 plan is legally binding.

     


      Special Education Programs and Services  

     

    A federal law known as Public Law (P.L.)102-119 guarantees certain  rights 
    to young children  (ages birth to 5)  with special needs.  This law is the most 
    recent amendment to  Public Law (P.L.)  94-142, The  Education  For  All Handicapped Children’s  Act, now called the Individuals with Disabilities Act (IDEA). 

     


    Q: What are special education programs? 
    A: Special education programs are specially designed programs in public schools offered at no cost to families of children with disabilities. Today, under P.L.102-119, all schools must offer special educational services to eligible 3-21 year old individuals with disabilities.

    Q: What should I do if I think my preschool child needs special education? 
    A: If you think your preschooler needs special educational services you will first need to find out if he/she are eligible for a special education program. Establishing eligibility through an Evaluation is the first step.

    Q: Who do I contact first for help?
    A: The best place to start is your local public elementary school.(In most cases, this would be the school that other children who live near you attend.) Call and ask to speak to the principal or to someone in charge of special education at the school.

    Q: What is an Evaluation?
    A: Evaluation means the procedures used to determine whether a child has a disability and the extend of the special education and related services the child needs. In regards to your child, this information may come from:

    – Your child’s medical history;
    – Developmental tests given to your child;
    – Observations and feedback from all members of the Assessment Team,
    including parents;
    – Any other relevant observations, records, and/or reports about your child.

    Q: Who conducts my child’s evaluation? 
    A: Your child’s evaluation will be conducted by a multidisciplinary team .  Who is involved will depend on the guidelines in your state or school district. Ask your school contact person what the policy is for getting an evaluation for your child.

    Q: Will I have to pay for an evaluation or any services my child may be eligible for? 
    A: Special education services are offered to all eligible 3-21 year old individuals at no cost to parents. The assessment and evaluation process is considered a part of these services.

    Q: I still have a lot of questions. How can I find out more about special education programs and services?
    A: See the section entitled Information About IDEA to learn more about one of the most important special education laws.

     


    Information About Individuals with Disabilities Education Act- IDEA Specific laws have been passed by the U.S.Congress instructing states to provide educational services for children and youth with disabilities. Public Law 94-142, the Education For All Handicapped Children Act(EHA), was passed by Congress and signed into law by President Ford in 1975. This law is well known; it required states to fully educate all children with disabilities.It has been amended several times. In 1986, the EHA was amended  through P.L.99-457 to, among other things, lower the age at which children can receive special services to three years. It also established the Handicapped Infants and Toddlers Program (Part “H”), for children in need of help from birth to their third  birthday.The amendments of 1990 and 1991 brought about more changes, among which was a change in the name. Consolidating the various laws into the Individuals with Disabilities Education Act, IDEA.
    The entire IDEA can be downloaded from the U.S. Department of Education  site.


    Information About Programs for Children Ages 3-21Individuals with Disabilities Education Act, IDEA,  requires all states and territories, to provide a public school education to children with disabilities from ages 3 to 21, regardless how severe their disabilities are. There are several basic rights that this law provides children with disabilities and their parents:

    – The right to a “free appropriate public education” at public expense (in some cases, this may include placing a child in a private school);

    – The right to an educational placement that is based on an assessment and evaluation of each child’s own special needs;

    – The right of children with disabilities to receive teaching or instruction that is designed to meet their needs, these needs must be identified, outlined and included in an Individualized Education Program  (IEP) for each child, with a clear, detailed description, of the specific services the child will receive;

    – The right to a full range of educational services that may include related services. These may include counseling, special transportation, speech/ language, occupational or physical therapy;

    – The right of parents  (or guardians)  to be included in making decisions about their child’s educational needs and to approve the educational plans or their child;

    – The  right  of  parents (or guardians) to appeal any decisions made about the identification,  evaluation,  and  placement of the child through a due process procedure.

    Finally, IDEA requires that children with disabilities be educated in the “Least Restrictive Environment” (LRE),  that is, in a setting with children who have no disabilities, or as near to such setting as possible, with special help and modifications provided to those who need it.


    Information About Programs for Very Young ChildrenUnder the IDEA, early intervention services are to be made available to infants and toddlers with disabilities, ages birth through two years. Services are not the same in all areas. To find out what is available where you live, call the Early Learning Program Administrator in your school system. Congress made funds available to help states and territories plan a comprehensive service system to provide the following services:

    – Early intervention services to infants and toddlers (ages birth through 2 years) with disabilities. If a state chooses to, it can also serve infants and toddlers at risk of developing disabilities;

    – Special education programs and related services to preschoolers(ages 3 through 5 years) who have disabilities; Services for children 3  years of age and older are provided  by  the  state Department of  Education,  however,  programs for children under age 3 are provided by different agencies in different states. Sometimes the Department of Education will handle all these programs; in other states it may be the Health Department or another agency.

    The term “infants and toddlers with disabilities” in the law refers to children (ages birth through 2 years) who need early intervention services in any of the following areas:

    • Physical
    • Cognitive
    • Communicational
    • Social or emotional
    • Adaptive development

    Early intervention services must be provided by people who are qualified to work with infants and toddlers who have disabilities, or who are at risk of developing disabilities. Any services provided must be written into an Individual Family Service Plan (IFSP) that is reviewed every 6 months.

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    Glossary of Terms Used in Special Education 

    adaptive development: 
              development of the child in comparison to other children the same age.
              This might include the child’s ability to dress himself, feed himself, toilet
              training, how he/she plays with other children, how he/she plays alone,
              understanding dangers in crossing the street, how he/she behaves if
              mother leaves the room, etc. 
    advocate:
             someone who takes action to help someone else (as in “educational
             advocate”); also, to take action on someone’s behalf. 
    amendment:
             a change, revision, or addition made to a law. 
    appeal: 
             a written request for a change in a decision; also, to make such a
             request. 
    appropriate:
              able to meet a need; suitable or fitting; in special education, it usually 
              means the most normal situation possible. 
    assessment:
    a collecting and bringing together of information about a child’s needs, which may include social, psychological, and educational evaluations used to determine services; a process using observation, testing, and 
    test analysis to determine an individual’s strengths and weaknesses in order to plan his or her educational services. 
    assessment team:
    a team of people from different backgrounds who observe and test a child to determine his or her strengths and weaknesses. 
    at risk:
    a term used with children who have, or could have, problems with their development that may affect later learning. 
    Child Find:
    a service directed by each state’s Department of Education or lead agency for identifying and diagnosing unserved children with disabilities; while Child Find looks for all unserved children, it makes a special effort to identify children from birth to six years old. 
    cognitive:
    a term that describes the process people use for remembering, reasoning, understanding, and using judgment; in special education terms, a cognitive disability refers to difficulty in learning. 
    comprehensive service system:
    refers to a list of 14 areas each participating state is to provide under early intervention  services. These 14  points range from  definition  of 
    developmentally delayed, to guidelines for identification, assessment, 
    and  provision  of early  intervention  services for the child and family, and include timelines and quality control. 
    counseling:
    advice or help given by someone qualified to give such advice or help (often psychological counseling). 
    developmental:
    having to do with the steps or stages in growth and development before the age of 18 years. 
    developmental history:
    the developmental progress of a child (ages birth to 18 years) in such skills as sitting, walking, talking, or learning. 
    developmental tests:
     standardized tests that measure a child’s development as it compares to the development of all other children at that age. 
    disability:
    the result of any physical or mental condition that affects or prevents one’s ability to develop, achieve, and/or function in an educational setting at a normal rate. 
    due process (procedure):
    action that protects a person’s rights; in special education, this applies to action taken to protect the educational rights of students with disabilities. 
    early interventionist:
    someone who specializes in early childhood development, usually having a Master’s degree or Ph.D. in an area related to the development of infants, toddlers, and preschoolers.
    early intervention services or programs:
    programs or services designed to identify and treat a developmental problem as early as possible, before age 3 (services for 3-5 year olds are referred to as preschool services). 
    eligible:
     able to qualify. 
    evaluation:
    (as applied to children from birth through two years of age) the procedures used to determine if a child is eligible for early intervention services;  ( as applied to preschool and school aged children )  the procedures used to determine whether a child has a disability and the nature and extent of the special education and related services the child needs. 
    free appropriate public education (often referred to as FAPE):
    one of the key requirements of IDEA, which requires that an 
    education program be provided for all school aged children 
    (regardless of  disability) without cost  to  families;  the exact  requirements of “appropriate” are not defined, but other references within the law imply the most “normal” setting available.
    identification:
    the process of locating and identifying children needing special services. 
    Individualized Education Program (IEP):
    a written education plan for a school aged child with disabilities developed 
    by a team of professionals (teachers, therapists, etc.) and the child’s parents; it is reviewed and updated yearly and describes how the child is presently doing, what the child’s learning needs are, and what services the child will need; (For children ages birth through 2 years, the IFSP is used.) 
    Individualized Family Service Plan (IFSP):
    a written statement for an infant or toddler (ages birth through 2 years old) developed by a team of people who have worked with the child and the family; the IFSP must describe the child’s development levels; family information; major outcomes expected to be achieved for the child and family; the services the child will be receiving; when and where the child 
    will receive these services; and the steps to be taken to support the transition of the child to another program;  the  IFSP  will also list the name of the service coordinator assigned to the child and his/her family. 
    lead agency:
    the agency (office) within a state or territory in charge of overseeing and coordinating service systems for children ages birth through 2. 
    Least Restrictive Environment (LRE):
    an educational setting or program that provides a student with disabilities with the chance to work and learn to the best of his or her ability; it also provides the student as much contact as possible with children without disabilities, while meeting all of the child’s learning needs and physical requirements. 
    multidisciplinary:
    a team approach involving specialists in more than one discipline, such as a team made up of a physical therapist, a speech and language
    pathologist, a child development specialist, an occupational therapist, 
    or other specialists as needed. 
    occupational therapy:
    a therapy or treatment provided by an occupational therapist that helps individual developmental or physical skills that will aid in daily living; it focuses on sensory integration, on coordination of movement, and on fine motor and self-help skills, such as dressing, eating with a fork and spoon, etc. 
    parent training and information programs:
    programs that provide information to parents of children with special needs about acquiring services, working with schools and educators to ensure the most effective educational placement for their child, understanding the methods of testing and evaluating a child with special needs, and making informed decisions about their child’s special needs. 
    physical therapy:
    treatment of (physical) disabilities given by a trained physical therapist 
    (under doctor’s orders) that includes the use of massage, exercise, etc. 
    to help the person improve the use of bones, muscles, joints, and nerves. 
    placement:
    the classroom, program, service, and/or therapy that is selected for a student with special needs. 
    policy/policies:
    rules and regulations; as related to early intervention and special education programs, the rules that a state or local school system has for providing services for and educating its students with special needs. 
    private agency:
     a non-public agency which may be receiving public funds to provide services for some children. 
    private therapist:
    any professional (therapist, tutor, psychologist, etc.) not connected with the public school system or with a public agency. 
    program(s):
    in special education, a service, placement, and/or therapy designed to help a child with special needs. 
    psychologist:
    a specialist in the field of psychology, usually having a Master’s degree or Ph.D. in psychology. 
    public agency:
    an agency, office, or organization that is supported by public funds and 
    serves the community at large. 
    Public Law (P.L.) 94-142:
    a law passed in 1975 requiring that public schools provide a “free appropriate public education” to school aged children ages 3-21 (exact ages depend on your state’s mandate), regardless of disabling condition; also called the Education For All Handicapped Children Act, with recent amendments now called the Individuals with Disabilities Education Act (IDEA). 
    Public Law (P.L.) 102-119:
    passed in 1991, this is an amendment to the Individuals with Disabilities Education Act (IDEA), which requires states and territories to provide a “free appropriate public education” to all children ages 3-21; and provides funds for states and territories to plan a comprehensive service system for infants and toddlers (ages birth through 2 years) with disabilities. 
    related services:
    transportation and developmental, corrective, and other support services that a child with disabilities requires in order to benefit from education; examples of related services include: audiology and speech  therapy, psychological services, physical and occupational therapy, recreation, counseling services, interpreters for the hearing impaired, and medical services for diagnostic and evaluation purposes. 
    service coordinator:
     someone who acts as a coordinator of an infant’s or toddler’s services, working in partnership with the family and providers of special programs; service coordinators may be employed by the early intervention agency. 
    services/service delivery:
    the services (therapies, instruction, treatment) given to a child with special needs. 
    special education:
    see special education programs and services. 
    special education coordinator:
    the person in charge of special education programs at the school, district, or state level. 
    special education programs/services:
    programs, services, or specially designed instruction (offered at no cost to families) for children over 3 years old with special needs who are found eligible for such services; these include special learning methods or materials in the regular classroom, and special classes and programs if the learning or physical problems indicate this type of program. 
    special needs:
    (as in “special needs” child) – a term to describe a child who has disabilities or who is at risk of developing disabilities and who, therefore, requires special services or treatment in order to progress. 
    speech/language therapy:
    a planned program to improve and/or correct communication problems.

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    Parent’s Record Keeping

    As you contact different people and organizations, it’s a good idea to keep records of the contacts and the information provided. As time goes by, you will need to add other information to your file, such as:- Letters and notes (from professionals, service providers, etc.);
    – Medical records and reports;
    – Results of tests and evaluations;
    – Notes from meetings about your child;
    – Therapists’ reports;
    – IFSP and IEP records;
    – Your child’s developmental history, including personal notes or diaries on your child’s development;
    – Records of shots and vaccination;
    – Family medical histories.

    Make sure you get copies of all written information about your child(records, reports, etc.). This will help you become an effective coordinator of services and a better advocate for your child. Remember, as time goes by, you’ll have more information to keep track of, it’s a good idea to get organized early on.


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  • Parents Guide to Special Education and Related Services

    This Parent’s Guide presents a general overview of how a child becomes eligible for special education and related services, parents’ rights and responsibilities, and a school’s rights and responsibilities. Because the focus of this issue is on communicating through letter writing,   we have identified points in the process when writing a letter is necessary or useful. 
    The term “parent” is used throughout this Parent’s Guide to include foster parents, legal  guardians, or any primary caregiver who is functioning as a parent. 


    Throughout your child’s school years, there is always a need to communicate with school: teachers, administrators, and others concerned with your child’s education. There are also times when the school needs to communicate with you, as the parent. Some of this communication is informal, such as phone calls, comments in your child’s notebook, a chat
    at the bus stop or at a school function. Other forms of communication are more formal and will need to be written. Letters provide both you and the school staff with a record of concerns, and suggestions. Putting your thoughts on paper gives you the opportunity to take as long as you need to state your concerns specifically, to think over what you’ve written, to make changes, and perhaps to have someone else read over the letter and make suggestions. Letters also give people the opportunity to go over what’s been “said” several times. A lot of confusion and misunderstanding can be avoided by writing down thoughts and ideas. 

    However, writing letters is a skill. Each letter will differ according to the situation, the person to whom you are writing, and the issues you are discussing. This Parent’s Guide  will help you in writing to professionals involved in your child’s education. 

    Sample letters are shown for when you want to: 

    1. Discuss a problem. 
    2. Request an initial evaluation for special education services. 
    3. Request a meeting to review the IEP
    4. Request a change of placement. 
    5. Request records. 
    6. Request an independent evaluation 
    7. Request a due process hearing. 
    8. Write a Follow-up letter. 
    9. Give positive feedback. 

    SOME BACKGROUND INFORMATION 

    The Individuals with Disabilities Education Act, (IDEA), Public Law  (P.L.) 101- 476 
    (formerly known as the Education of the Handicapped Act, [EHA], P.L. 94 -142 and its amendments),  mandates minimum requirements for a free appropriate public education for children and youth with disabilities, including early intervention services, and defines these children’s rights. Each state, using this law as a guideline, develops specific policies for the special education and related services of children with disabilities in that state. Each local public school district follows these guidelines and will base its policies on the federal laws and regulations, as well as on the laws and policies developed by the state. 


    Q: How does this really work? 
    A: A flow chart is provided at the end of this Parent’s Guide to show how the process works, beginning with “I think my child may have a problem” and leading to the provision of special education and related services. The process of identifying that a child may be in need of special education and related services. 

    Q: What are my rights as a parent? 

    A: Your rights begin with your child’s right to a Free and Appropriate Public Education. 
    This is often referred to as FAPE. Free means that your child’s education is at public expense and at no cost to you. Appropriate means that the educational program for your child will be tailored to individual needs. Any change in the provision of FAPE to your child should be in writing. You, as a parent, have the right to be fully informed by the school of all rights that are guaranteed to you under the law. Each state, county, and school system has written policies and guidelines that are available to you. Ask your child’s school to send you copies. 

    Your rights also include:

    1. The right to be notified, whenever the school wants to evaluate your child, either to identify a possible disability or to measure changes in your child’s needs; the school wants to change your child’s educational placement; or the school refuses your request for an evaluation or a change of placement. The school must notify you in writing for all of the above. 

    2. The right to request an evaluation of your child if you think your child may need special education and/or related services. It is best that you put this request in writing. 

    3. The right to informed consent. For example, if the school is suggesting that your child  be evaluated for a possible disability, then this means that you sign a form which says  you understand and agree with the proposed plan to evaluate your child. There are other occasions when a family’s written consent will be required. 

    4. The right to obtain an independent evaluation from professionals outside the school system. The results of these evaluations must be considered in any educational decisions    made for your child. You also have the right to request that the school system pay for an independent evaluation if you believe the school’s evaluation was not appropriate. 

    5. The right to request a re evaluation to determine if your child’s educational needs have changed. Depending on the results of this re-evaluation, a new Individualized Education Program (IEP) may be developed and a change in placement may be recommended. 

    6. The right to have your child tested in the language he or she knows best. For example,  if your child’s primary language is Spanish, and he or she is not fluent in English, then you have the right to request that your child be tested in Spanish. If your child is deaf, he or  she has the right to an interpreter during testing. 

    7. The right to review all your child’s records. You may also obtain copies of these records, although the school may charge you a reasonable fee for making copies. If you feel that any of the information contained in your child’s records is inaccurate or misleading or violates the privacy or other rights of your child, you may request that the information be changed.
    If the school refuses your request, you have the right to request a hearing to question the school’s refusal. 

    8. The right to participate in the development of your child’s IEP. The school must make every effort to notify you of the IEP meeting and to arrange it at a time and place that is convenient for everyone who will attend. 

    9. The right to the least restrictive educational environment for your child. Whenever possible, students should be educated in their neighborhood school with other children  their age. The specifics of how this will be accomplished is part of the IEP. 

    10. The right to a yearly review. The school must review your child’s IEP at least once a  year and must re-evaluate your child at least once every three years. But you, as parents,  can request an IEP review at any time you feel that your child’s needs have changed. 

    11. The right to a due process hearing. If the school and family cannot come to an agreement on the needs, placement, or program of a student, both parties have the right to request a  due process hearing to resolve their differences. 

    Q: What are the parents’ responsibilities? 

    A: The special education team includes education specialists, therapists, medical personnel, the parent(s) or person(s) who have custody of the child, and the child when appropriate. 
    As a full member of this team, the parent has responsibilities. These may not be as clearly defined as your rights, but they are just as important. Your most basic responsibility is to  be an active team member, to establish effective communication between home and school, and to share information about your child’s education and development with other members of the team. 

    Your specific responsibilities include: 

    1. After finding that your child is eligible for special education and after an IEP has been written, but before placement is determined, try to visit the proposed will help you become familiar with the programs under consideration. Talking to other parents is very useful, but seeing programs for yourself is also important. 

    2. Before going to visit a school to look at a program, call ahead and ask the principal to schedule a time for you to visit. This is not only polite, but will assure that your visit comes during a regularly scheduled activity. If you also want to talk to the teacher, let the people arranging the observation time know, so that they can schedule a meeting. 

    3. Once your child is settled in his or her school class, find time to visit at least once or twice a year to see how your child is doing. Often volunteering to help with school or classroom activities is an effective way to get involved. Teachers appreciate the help, and it gives you the opportunity to see your child in a school situation. 

    4. Notify your child’s school, teacher, therapist(s), or nurse of any changes which would affect your child’s participation in school. Examples include: changes in your child’s medical condition or medication; extreme difficulty with homework; boredom with school work; social difficulties; or any other related difficulties the school personnel should be aware of. 

    5. Provide the school staff with any relevant information from outside evaluations. Have copies of these reports sent to your child’s school. 

    6. If problems arise, you should communicate your concerns about your child’s special education program to the school. Talk to the principal, teachers, therapist(s) etc. to allow everyone involved in your child’s schooling to informally observe the situation and make adjustments before minor problems become major difficulties. 

    7. Let school staff know when you observe signs that your child’s current program may  need to be changed. The more time the school has to arrange for re-evaluations, the better. 

    8. If your child needs any special arrangements for testing, such as assistive technology, an interpreter, or foreign language tester, let  the school know right away. Even if your child’s teacher knows about his or her unique needs, the evaluation staff may not be aware of them and will need time to make the proper arrangements. 

    9. If you would like to review and/or obtain copies of your child’s records, make this request, in writing, several weeks before you need to have these records. School secretarial staff may be quite busy, especially at certain times of the year. Also, records from previous years may be kept somewhere other than in the school building, making access more complicated than just opening a file drawer. 

    10. It is very important that you attend IEP meetings. These meetings generally occur only once a year and are usually held during the day. If you have a job, talk to your employer or make any necessary child care arrangements so that you will be able to attend during the 
    work day. If you have difficulties getting away during these hours, inform your child’s 
    teacher and ask if the school can be of assistance. Sometimes the school can work out child care needs or talk to an employer to help you find the time to attend the IEP meeting. 

    11. Any time you have scheduling difficulties with school meetings, tell the school people involved in that meeting. They will want to know that you are interested in your child’s schooling and that you want to be actively involved. There are always situations in which people cannot coordinate their schedules; the more information the school has about your schedule, the more they can work to arrange meetings and school functions at more convenient times for you. All too often, educators interpret poor attendance as lack of interest. 

    12. If you are in disagreement with the school on any aspect of your child’s program, try 
    to work out the disagreement before resorting to a due process hearing. Many schools now 
    have formalized methods for mediation or can make such arrangements. 
    Mediation can often bring solutions to light and is less negative than more formal or legal action. In any discussion of rights and responsibilities, it is important to remember the 
    spirit of the law. 
    The goal should always be the same: to provide the best opportunities for success for all children, including those who have differing needs and abilities. To achieve this goal it is important that all people involved in special education planning work together. It’s even 
    part of the law. As team members you will each need to communicate your opinions and concerns constructively. 

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    REQUESTING SERVICES: A GUIDE TO LETTER WRITING 
    Q: What do I do to request services? 

    A: Each state and school district has its own guidelines for special education. Again, it is important for you to ask your Director of Special Education or your school principal to explain them to you. They will also provide you with written guidelines. 

    These guidelines will tell you exactly what you have to do to request services. It’s a good
    idea to put all your requests in writing, even if  it’s not required by your school district. A letter will avoid confusion and provide everyone you, the school, and evaluation team — 
    with a record of your request. 
    ALWAYS KEEP A COPY OF EACH LETTER YOU SEND. 

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    Q: How long does it take to get an answer to my letter?  

    A: It is useful to remember that if you write to a large organization, there may be several people who will handle your letter before it gets to the person to whom it is addressed. 
    Mail is often opened by someone who sorts letters and puts them in the appropriate mail slots at school or in the office. A secretary may collect mail from the boxes and sort through to answer all general requests or other non personal mail. Then your letter may be moved to the right person’s mail box, and he or she will pick it up within a few days, depending on the time of year and other work in progress. Obviously, smaller offices will have fewer steps 
    and very large offices may have more. (Thus, response time will vary.) Often state or school district guidelines specify the amount of time a school has to respond to your request. Although the federal law states that schools must respond in a “timely manner “or within a “reasonable” period of time, most states and districts actually define this period by days. If you have not heard from the school within 10 working days of sending your letter, it is certainly all right to phone the office to make sure your letter was received and to ask when you can expect an answer. If you have asked for a meeting or other services which may require coordinating with several other people, it may delay the response to your request. 

    If you need a letter answered in fewer than 10 working days (for instance if you are moving or if your child’s health suddenly changes), it might be useful to call the office and let them know that you have sent a letter and would like a response as soon as possible (or by a specific date). That way, the staff can speed up the process a bit. 

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    Q: To whom do I address my letter?  

    A: This will depend on the type of request you are making in your letter. Call your child’s teacher or school principal, explain the type of request you are making (e.g., request for an initial evaluation of your child or for a meeting to review your child’s IEP), and ask who should get the letter. The principal is responsible for activities in his or her school, and you can address certain letters to your child’s school principal. In some instances, you might find that the letter should be sent to the local Director of Special Education. Call to make sure of the spelling of the person’s name and his or her correct mailing address. Also, remember to make a copy of your letter to send to your child’s teacher, so that he or she will be aware of what is going on and know your concerns. 

    Q: In general, what do I say in my letter?  

    A: When writing any business letter, it is important to keep it short and to the point. Ask yourself these questions, answer them for yourself, and state them in your letter: ** Why am I writing this? 
    ** Specifically, what are my concerns? 
    ** What would I like the person to whom I’m writing to do about this situation? 
    ** What are my questions? 
    ** What sort of response do I want: a letter, a meeting, a phone call, or something else? 

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    Q: What else do I need to say in my letter?  

    A: Each letter you write should have certain basic information included. ** Be sure there is a date on your letter. 
    ** Be sure to give your child’s full name and current class placement. 
    ** Say what you want, rather than what you don’t want. 
    ** Be sure to give an address and/or daytime phone number where you can be reached. 
    ** Be sure there is a question or request in the letter, so that the person to whom 
    you are writing can answer you. 

    The remainder of this Parent’s Guide presents sample letters to help you approach 
    this task. The letters address some of the many reasons parents may have for writing, including when you want to: 

    1. Discuss a problem. 
    2. Request an initial evaluation for special education services. 
    3. Request a meeting to review the IEP. 
    4. Request a change of placement. 
    5. Request records. 
    6. Request an independent evaluation. 
    7. Request a due process hearing. 
    8. Write a follow-up letter. 
    9. Give positive feedback. 

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    Sample Letter 1: This is a general letter format for discussing a problem. 
    ______________________________________________________ 

    Today’s Date (include month, day, and year) 

    Your Street Address 
    City, State, Zip Code 
    Day time telephone number 

    Full Name of Person to whom you’re writing 
    Title 
    Name of School/Organization 
    Street Address 
    City, State, Zip Code 

    Dear (name of person, use title and last name), 

    In this paragraph explain who you are, give the full name of your child and his or her current class placement, and, VERY BRIEFLY, explain the reason you are writing. 

    In this paragraph explain what you would like to have happen or what you would like to see changed. You may BRIEFLY say what you would not like, but spend most of this paragraph saying what you want. 

    Say what type of response you want. For instance, do you need to meet with anyone, do you want a return letter, or a phone call? 

    Finally, give your daytime telephone number and let them know that you expect to hear 
    from them soon (or give a date, “by the 15th”). 

    Sincerely yours, 

    Your full name 
    ______________________________________________________________ 

    Q: Can anyone help me with this?

    A: Yes. There are many people who can help you with letter writing and other tasks relating to your child’s special needs. Parents and professionals have discussed similar issues for many years. You can profit from their experience by talking to them and reading what they have written. 

    As always, be sure to keep a copy of your letter for your own files. 

    There are disability and parent organizations in every state that can help. Local chapters of state, regional, and national organizations also can work with you. 
    Most states have a federally funded Parent Training and Information Project; the staff there can help explain the laws, policies, and procedures of accessing special education programs. Members of disability organizations are families and professionals who are concerned with issues of a specific disability. State offices, like the State Education Agency, Developmental Disability Council, or Mental Health Agency, can also explain procedures. Many states now are funding parent resource centers in local school districts. Ask your Director of Special Education if there’s a local parent resource center in your area. 

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    Sample Letter 2: Request for an Initial Evaluation for Special 
    Education Services 
    ______________________________________________________________ 

    Today’s Date (include month, day, and year) 
    Your Full Return Address 
    Name of Principal 
    Full Address 

    Dear (name of Principal), 

    I am writing to request that my son/daughter, (full name), be evaluated for special education services. I have been worried lately that he/she is not doing very well in school and that he/she may need some special help in order to learn. He/she is in the (grade level and name 
    of current teacher) at (name of school). 

    Specifically, I am worried because (name of your child) does/does not …(keep this paragraph short, but give one or two reasons for your concern about your child). 

    I understand that I have to give written permission in order to have (name of child) tested. However, I would first like to know more about the tests, the testing process, and when this can be done. I would be happy to talk with you or another school official about my child. You can send me the information or call me during the day at (daytime telephone number). Thank you. 

    Sincerely yours, 
    Your full name 
    _______________________________________________________________ 
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    Sample Letter 3: Request for a Meeting to Review the Individualized Education Program (IEP) 

    Note: 
    The Individualized Education Program defines your child’s program. As you know, each
    year there is a regularly scheduled IEP review; however, you can request a review whenever you feel changes need to be made in your child’s program. 

    Q: What might be some reasons to request an IEP review? 
    A: You may want to request a review if: 

    ** Your child has met one, or several, of the goals written in the   IEP; 
    ** Your child does not seem to be making any progress toward one, or several, the goals written in IEP; 
    ** You feel additional services should be added in order for your child to progress; 
    ** You feel a service is no longer necessary in order for your child  to succeed; 
    ** Your child has experienced major changes, such as illness, surgery, or injury. 

    _____________________________________________________________ 

    Today’s Date (include month, day, and year) 
    Your Full Return Address 

    Name of Principal 
    Full Address 

    Dear (name of Principal), 

    I am writing to request an IEP review meeting. I would like to discuss making some 
    possible changes in (child’s name, grade level, and teacher) IEP as I feel that …. 

    I would also like to have (name of specialists) attend. I think his/her/their ideas about 
    the changes we may make will be valuable. 

    I (or my husband/wife and I) can arrange to meet with you on (days) between (give a range
    of time, such as between 3:00 and 5:00). Please let me know what time would be best for you. 

    I look forward to hearing from you soon. My daytime telephone number is (000) 000-0000. Thank you for your time. 

    Sincerely yours, 
    Your full name 

    _____________________________________________________________ 
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    Sample Letter 4: Request for a Change of Placement 

    Q: What might be some reasons to request a change in your child’s class placement? 
     (Remember placement is based on the IEP, so to request a change in placement means
    that you are actually requesting an IEP review to discuss a change in your child’s needs.) A: The reasons for requesting a change in your child’s placement would be based 
    on concerns that your child’s educational, social, or physical needs are not being appropriately met. A review of your child’s progress, talks with your child’s teacher 
    (s) and therapist(s) as well as discussing this with your child, when appropriate, 
    would reveal that this placement needs to be reconsidered and the IEP reviewed. 

    These placement concerns might include: 

    ** Changes in your child’s needs; 
    ** Current class size may be too large or too small; 
    ** Current class may be too academic or not academic enough; 
    ** This class may not provide opportunities for appropriate socialization; 
    ** The building may be too difficult for your child to get around; 
    ** Or any other reason that this class placement is not working out successfully. 
    _______________ 

    Today’s Date (include month, day, and year) 
    Your Full Return Address 

    Name of Principal 
    Full Address 

    Dear (name of Principal), 

    I am writing to request a meeting to discuss a change in class placement for (full name of 
    your child). He/she is currently in (grade/school/name of teacher). I feel he/she would do better in (name of alternative placement). 

    I am most concerned about …… (Keep this paragraph brief and mention your child’s needs, not problems with people). 

    I would also like to have (name of teacher(s) and/or any specialists you would like) attend. 

    I (or my husband/wife and I) can arrange to meet with you on (days) between (give a range 
    of time, such as between 3:00 and 5:00). Please let me know what time would be best for you. 

    I look forward to hearing from you soon. My daytime telephone number is (000) 000-0000. Thank you for your time. 

    Sincerely yours, 
    Your full name 
    ________________________________________________________________ 
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    Sample Letter 5: Request for Records 

    Q: What might be some reasons to request copies of records? 

    A: School records contain valuable information about your child’s strengths and areas of need. These records can provide a formal system of communication between the professionals at your child’s school and other professionals who need this information. 

    Here are some reasons that may motivate you to request copies of the records: 
    ** It’s always a good idea to review your child’s school records to be sure they are correct 
    and contain all necessary information. 
    ** When your family is moving to a new school district, records may need to be sent. 
    ** When you’re taking your child for an independent evaluation, copies of past records may be useful. 
    ** Services or other programs your child attends, like camp, tutors, or in-hospital schools, may find these useful in designing their activities. 
    ** Post secondary programs may need to see copies of your child’s records. 
    ** For your home files, especially if your child is finishing school. 
    _____________________________________________________________ 
    Today’s Date (include month, day, and year) 
    Your Full Return Address 

    Name of Principal 
    Full Address 

    Dear (name of Principal), 

    I am writing to schedule a time to come to school and review all of my child’s records, both cumulative and confidential. My child’s name is…, his/her grade is…, and his/her teacher is …
    I will also need copies of all or some of these records. 

    Please let me know where and when I can come in to see them. (I need these records by …). You can reach me during the day at (your daytime phone number). 

    I look forward to hearing from you soon. Thank you for your consideration. 

    Sincerely yours, 
    Your full name 
    ____________________________________________________________ 
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    Sample Letter 6: Request for an Independent Educational Evaluation at Public Expense 

    Q: What might be some reasons for requesting an Independent Educational Evaluation 
    (IEE) at public expense? 

    A: It is not uncommon for families to feel that their child may need additional tests or feel that the school’s testing results did not accurately describe the child. Parents may want additional medical examinations or may be interested in areas the school staff did not test. You can, therefore, always have your child tested outside the school system. 

    However, if you expect the school to pay for an IEE, then you will need to request this BEFORE any independent testing is done. Some reasons the school may accept financial responsibility for an independent evaluation include: 

    ** The original evaluation was incorrect; 
    ** The original evaluation was not done in your child’s native language; 
    ** The original evaluation was incomplete and additional tests are needed; 
    ** The evaluation could not be done with the needed accommodations, for example 
    in braille or administered by someone who signs. 
    ______________________________________________________________ 
    Today’s Date (include month, day, and year) 
    Your Full Return Address 

    Name of Director of Special Education 
    Full Address 

    Dear (name of Director), 

    My son/daughter, (give full name), who is currently attending (name of school, grade, 
    teacher) was evaluated for special education services (give month and year of this evaluation). I am writing to inform you that I disagree with the testing, and I would like to have my child re-evaluated. I am requesting an Independent Educational Evaluation at public expense, for the following reasons: [briefly list your reason(s), being very specific]. 

    I would like this Independent Educational Evaluation to be done as soon as possible. Please send me copies of the school’s guidelines for this. My daytime telephone number is (000) 000-0000. 

    Sincerely yours, 
    Your full name 
    ______________________________________________________________ 

    The school may disagree with your reasons for wanting additional testing. They may feel they have conducted the necessary tests in a proper manner. If the school disagrees with 
    your request for an IEE at public expense, and you still feel the IEE is necessary and that they should accept financial responsibility, you can request a due process hearing. 

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    Sample Letter 7: Request for a Due Process Hearing 

    Q: When and how should I initiate due process procedures? 

    A: While the school system may readily comply with your request to evaluate, reevaluate, 
    or meet to review the IEP, that doesn’t necessarily mean that you will get the outcome you want. At the meeting you requested to discuss changing your child’s placement the school system may not agree with you. They may feel that your child is in the most appropriate placement. Or at the IEP meeting you request in order to change the goal(s), add services, 
    the school may not want to make these changes or additions because they believe that they are not in your child’s best interest or are not appropriate. 

    If the school staff has communicated its thoughts and you have communicated yours and 
    you both understand but disagree, you may want to consult with specialists, a mediator, 
    or other persons to try to compromise. Remember: The goal is to provide an appropriate education for your child. There are many options on what is an appropriate education, and some trial and error may be necessary to develop a successful program for each student. 

    Sometimes compromise and further discussion do not lead to agreement between parties, 
    and you may want to request a due process hearing. A due process hearing is a formal proceeding where the differences between you and the school system are shared in front of
    a qualified, impartial hearing officer. The hearing officer’s role, after hearing both your side and the school’s side, is to make a reasonable decision based on the information presented. 

    Your letter requesting a hearing should be sent to the person in charge of due process hearings. This may be the Superintendent of Schools or the Director of Special Education, 
    or another designated school official. Call the Director of Special Education in your school district to find out the name, title, and address of the person responsible and address your request to this individual. Your letter will then be give to a selected hearing officer. It is the hearing officer who will be responsible for establishing the date, time, and place of the hearing. 

    ______________________________________________________________ 

    Today’s Date (include month, day, and year) 
    Your Full Return Address 

    Name and Title of Person you identified 
    Title 
    Full Address 

    Dear (full name), 

    I (or We), the parent(s) of (your child’s full name), am (are) writing to request a due process hearing. (Your child’s full name) is (age and date of birth) and is currently attending (name of school). He/she is in the (grade level/special education classroom). 

    I (we) have met with (names of school personnel involved in your meeting) in an effort to resolve our differences with my child’s (IEP, placement, testing, or whatever) and have been unable to do so. We therefore request that a due process hearing be scheduled with an impartial hearing officer in order to have this disagreement settled. 

    Please advise me (us) as soon as possible as to the date and time of this hearing so that I 
    (we) can make the necessary arrangements with work (or childcare) and with those people 
    we wish to include in the hearing. My daytime telephone number is (000) 000-0000. 

    I (we) also request that this hearing be (open/closed) to persons other than those directly involved. (Name of child) will/will not attend the hearing. 

    Sincerely yours, 
    Your full name 

    * cc: (name of Principal) 
    (name of your advocate/attorney) 
    _______________ 

    * “cc:” means that you are sending a copy of this letter to the people you list after the “cc:”. Xerox the letter after you have signed it, and send a copy to each person you have listed. 

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    Q: What do I do when things break down? 

    A: Hopefully everything will go relatively smoothly and this section can be ignored. Now 
    and then things fall between the cracks or people don’t see eye to eye, and then other steps can be taken, if desired. 

    Once you have written a letter requesting an evaluation, an independent educational evaluation at public expense, an IEP review, a meeting of any kind, or a hearing, you should get a response from the school system either by telephone or in writing, within a reasonable period of time. In some cases, “reasonable” is defined, but in other cases, the timelines are 
    not exact. So be reasonable. But if you feel too much time has passed without receiving a response to your letter, then call and ask if your letter of request has been received. If you 
    are sure the school has received your letter (some parents send their letter of request by certified or registered mail), then ask when you can expect to hear from them. More than likely, when you call you will talk to a secretary or administrative assistant. Ask that the superintendent, principal, or teacher call you back. 

    If your request still goes unanswered then you may want to write again. It would be useful 
    to enclose a copy of the original request with this letter. Be sure not to send your only copy; remember, you will always need to have a copy for your records. 

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    Sample Letter 8: Follow-up Letter 
    _______________ 

    Today’s Date (include month, day, and year) 
    Your Full Return Address 

    Name of Person to whom you wrote 
    Full Address 

    Dear (name), 

    I wrote to you on (date) and also called to make sure you had received my letter. I left a message for you to call me back, but since I have not heard from you, I thought it best to write again. 

    I am writing to request …. and have enclosed a copy of my first letter. 

    I expect to hear from you within the next few days. My daytime telephone number is (000) 000-0000. 

    Sincerely yours, 

    Your full name 
    _______________ 

    If problems continue, there are additional steps which can be taken. If you feel your child’s needs are not being met even after the due process hearing, there are very specific ways of addressing this. There are people you can contact to discuss the most effective next steps.
    In many cases, this may involve legal or other professional help and requires more in-depth and individual attention than can be covered in this Parent’s Guide. 

    You can contact the Protection and Advocacy Agency for your state or the Parent Training and Information Project for further information. 

     


    Writing letters is an important part of communication. As your son or daughter goes through the school years there may be many occasions to send letters. In advocating for your child’s needs it is important to be able to say what you want in a short and to-the-point written document. By communicating your thoughts, ideas, and concerns you will be defining your child’s needs. By emphasizing the positive aspects of your child’s educational experience you will develop a good working relationship with the professionals in your child’s life. By being able to express what would work rather than by spending time and energy reviewing what didn’t work, you will become a strong advocate for your child. When goals are well defined and needs are clearly stated, success is possible. 

    A Final Word: 

    Once you’ve begun to write letters, be sure to write when things are going well too! If a program, teacher, therapist, or other school staff member has provided an excellent opportunity for your child: Write a letter. We all like compliments and encouragement. Positive feedback is what keeps good programs running well. Just as you want to know 
    “how it’s going” so does the school staff. 

    Good communication, good team work, and effective school programs and policies take 
    work. There’s an old saying that states, “Things can go wrong all by themselves, but you 
    have to work to make things go right.” 

    Be sure your teacher(s), principal, and superintendent hear from you when things are going right too. 

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    Sample Letter 9: Positive Feedback Letter 
    _____________ 

    Today’s Date (include month, day, and year) 
    Your Full Return Address 

    Name of Teacher, Principal, or Superintendent 
    Full Address 

    Dear (name of person), 

    I am writing to let you know that I am very pleased with (full name of your child’s) special education program. 

    (First name of your child) has had great success with (briefly say what went right and name the professionals working with your child). 

    We look forward to continuing progress. Thank you for all your efforts on behalf of my 
    child. My daytime telephone number is (000) 000-0000. 

    Sincerely yours, 

    Your full name 

    cc: (Be sure the Principal of the school and/or Director of Special Education 
    get a copy). 

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    _________________ 

    THE SPECIAL EDUCATION PROCESS 

    This chart shows the order of events from identification of a disability through development of an IEP. For a description of each stage, refer to the corresponding numbers following the chart. (1) Referral/Request for an Evaluation 

    (2) Evaluation 

    (3) Eligibility Meeting 

    (4) Not Found Eligible 

    Found Eligible 

    (5) Individualized Education Program and Placement Meeting 

    (6) Parents Disagree 

    Parents Agree 

    (7) Annual IEP Meeting 

    (8) Parents Disagree 

    (9) Parents Agree 
    The following statements correspond with the numbers represented on the flow 
    chart above. 

    (1) This can be made by parents or a professional. If a professional requests an evaluation, then the school or service provider must notify parents in writing. 

    (2) Parent permission is needed for the initial evaluation. The evaluation must assess 
    the child in several areas. 

    (3) The results of the evaluation are reviewed by a team of scan begin with the parent or a professional. The attached NICHCY State Resource Sheet lists many of the people involved in special education and disability issues in your state. 

    School personnel involved in educating students with special needs. This team usually includes a school psychologist, a teacher, a therapist, a special education supervisor, and/or administrator and others. Parents may be invited to attend this meeting. At the eligibility meeting it is determined whether or not the child is eligible for special services. 

    (4) The child will stay in his/her current placement. Parents can disagree with the eligibility decision and have the right to take their child for an Independent Educational Evaluation (IEE). They can request the school system to pay for this IEE if they feel the initial evaluation was not properly done. 

    (5) Parents must be invited to attend this meeting. At this meeting the child’s special education program is written. The IEP includes the goals and objectives of the child’s program, types of specialized services that may be needed, and the amount and time he/she will spend in regular education activities. 

    Where the IEP is to be implemented is also determined at this meeting. This is known as 
    the placement. Placement must be in the least restrictive setting appropriate for the child. This is called LRE or Least Restrictive Environment. Placement could be in the regular classroom with needed support services, a resource room for a specified amount of time, a self-contained class, or a separate facility. 

    Parents have the right to agree or disagree with the IEP and proposed placement. 

    (6) Parents may discuss their concerns with the IEP team and try to work out a compromise. If they still disagree, parents can begin their Due Process Rights. 

    (7) At an IEP meeting the child’s progress is reviewed, the IEP is updated, and the child’s placement is discussed. Parents must be invited to attend. Parents can make suggestions for changes, agree or disagree with the IEP goals, and agree or disagree with the placement. This meeting must take place at least once a year. Parents or school personnel can request an IEP and placement review at any time. 

    (8) Parents can discuss their concerns with the special education staff and review team. 
    There are several options, including additional testing, an independent evaluation, or other activities which are in keeping with parents’ Due Process Rights. 

    (9) The child will continue in the special education program with the updated IEP. There 
    will be an IEP review each year and an in-depth re-evaluation at least every three years. 

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    Autism-PDD Resources Network 


     

     

     

    Visit these sites for more information
    Early Origins of AutismAsk an Expert on AutismHealth FinderTalk to Autism ExpertNational Institutes of Mental HealthCombined Health Information DatabaseAbstracts on Autism
  • Autism Diagnosis: What you should know

    Asperger syndrome was originally described by Hans Asperger 1944. But this syndrome was not well known for many years.This situation has changed somewhat since Asperger syndrome was made “official” in DSM-IV (APA, 1994) fifty years later, following a large international field trial:

     

     

    From the DSM-IV 
    (Diagnostic And Statistical Manual Of Mental Disorders, 4th edition, 1994)

    Diagnostic Criteria For 299.80 Asperger’s Disorder

     

    A. Qualitative impairment in social interaction, as manifested by at least two of the following:

    1. marked impairments in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction2. failure to develop peer relationships appropriate to developmental level

    3. a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g. by a lack of showing, bringing, or pointing out objects of interest to other people)

    4. lack of social or emotional reciprocity

    B. Restricted repetitive and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following:

    1. encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus2. apparently inflexible adherence to specific, nonfunctional routines or rituals

    3. stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements)

    4. persistent preoccupation with parts of objects

    C. The disturbance causes clinically significant impairments in social, occupational, or other important areas of functioning

    D. There is no clinically significant general delay in language (e.g., single words used by age 2 years, communicative phrases used by age 3 years)

    E. There is no clinically significant delay in cognitive development or in the development of age-appropriate self-help skills, adaptive behavior (other than social interaction), and curiosity about the environment in childhood

    F. Criteria are not met for another specific Pervasive Developmental Disorder or Schizophrenia