Clinical Trials - includes chelation
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One study will define differences — both biological and behavioral — in autistic children with diverse developmental histories. In another study, NIMH researchers will examine the use of the antibiotic minocycline to measure its usefulness in treating regressive autism. Past research suggests that autism may be linked to changes in the immune response that cause inflammation in the brain.
A third study addresses the widespread but unproven theory that autism may be treated successfully by chelation therapy, which seeks to remove heavy metals from the blood. Chelation is more commonly used to treat lead toxicity, but many families seek the treatment to try to remove mercury and other metals from their autistic children's blood. This practice is based on the belief that many cases of autism were caused by exposure to thimerosol, a mercury-based preservative previously used in childhood vaccines. If you want to look at other clinical trials, you can click here: http://www.clinicaltrials.gov/ct/show/NCT00376194?order=40 This is the link specific to the chelation clinical trial. I HAVE TALKED WITH PARENTS WHO HAVE DONE CHEALATION AND SAY THEIR CHILD IS BETTER.[QUOTE=Brent]I HAVE TALKED WITH PARENTS WHO HAVE DONE CHELATION AND SAY THEIR CHILD IS BETTER. [/QUOTE] We have been chelating for 14 months. My little girl is doing allot better. She reached all her IEP goals set for for the school this year in less then 4 months. We are redoing them now. If she could talk which she does, but it is limited, you would not be able to tell she had a problem. When we started this process she was DX PDD-NOS . She did nothing but sit in front of a T.V and was not even potty trained. This is at 14 months of TD DMPS
have seen no noticable differences. Our plan is to take him off of it for 6 months, look for any change, then maybe try it again. Trip, Are you using an oral DMSA? Yes - We were using "Nutri-DSMA" and went through a buch of tests andsuppliments to get his digestive issues resolved first to better increase absorption. Our Dan Dr. will not use Oral chelation due to exactly what you said. Absorption rate is the issue. TD-DMPS is a cream that is appled to the skin for absorption and the body then can readely use it. We have seen lots of improvement in our daughter- see graph above to see all she is "dumping". This transdermal is using Dr. Buttar's protocal of one day on, one day off- with mineral replacement on the off day. Let me know if you need more info. I took my sons to have them start the chelation process. I spent over a thousand dollars on blood tests and office visits. They were not started on the process because their zinc was low. I gave them zinc and was ready to start the process, but was told they would need more blood tests (several more hundred dollars). Has this been your experience as well? How did you get your daughter on the process, how costly is it for you and how long did it take to get her started? My twin sons are 6. Also, are there other postings on the benefits on chelation. I am leary with what I have experienced with the doctor I was going to. I hear you when it comes to getting started. We did our first metal test on Gracie when she was 3 years old. Nothing showed up. The Dr. said she was fine. That was the first one. Then I insisted on it again and she said it was a waste of time. I have a friend that came back from the Gulf War and was out sick from work. When they found his Mercury he was at 14 parts per million in his hair and should have been dead at 7-9 parts per million. So I called him and we used his Dr. When we did find the mercury finally ( which is the hardest to find and takes the longest to get out) it took us another 5-6 months to prepare her body for the Chelation med. Overall it took 4-5 test. She was low in several areas and Chelation draws out every metal including essential metals. It is required to test every two months with chelation and you Will want to. Our insurance covers the blood draw and test but not the Dr. consultation. Of course we do many other things with my daughter. Supplements, Waiora, GFDF and looking into the SCD diet now. Organic food no pesticides or fragrances in the home. Special bedding for her sleep that is organic. This is because she is missing a gene called GSTM1. This gene supplies an enzyme in the liver for second stage detox. Wala. Now we know why she never got rid of the thimerasol from the vaccines. And all other environmental insults that come into the house via water and air and food we eat. By the way my daughter has a auto immune disease that is incurable, so the Dr. say! She was dx at 8 months old with Vitiligo. (Michael Jacksons Disease) Loss of pigmentation in skin. We felt that this would be cured as well with the chelation. Why you might ask? Vitiligo is auto immune. When I asked the original Dr. what an Auto Immune was he said it was the Immune system attacking it self. I asked why this happened. He said no one knows. Well as we get out metal there is one coming out that is essential to our need to function. That is Molybdenum, But hers has been high from the get go and now 14 months later it is still high. But as it comes out she re pigments. Hope this helps. [QUOTE=Trip]Yes - We were using "Nutri-DSMA" and went through a buch of tests and Trip, we used the transdermal DMSA for several months. It was pulling some stuff and we did notice some improvement. But nothing was as significant as wehn we switched her to the DMSA suppository. She was pulling a lot of lead and mercury and we saw a tremendous improvement in her receptive and expressive language within 1-2 months. Plus, the supps are significantly cheaper than the transdermal. Just something to consider. What is the DMSA suppository? How much testing was required to get started? My boys are extremely sensitive to things that taste bad. How do you get your child to take the supplements that don't taste very good? How long did you have to do the supplements before you started the therapy? Would you recommend starting the suppository first since you had more success with it? How old is your child? My boys are six. Thanks for any info you have.[QUOTE=Netters64]What is the DMSA suppository? How much testing was required to get started? My boys are extremely sensitive to things that taste bad. How do you get your child to take the supplements that don't taste very good? How long did you have to do the supplements before you started the therapy? Would you recommend starting the suppository first since you had more success with it? How old is your child? My boys are six. Thanks for any info you have. Annette, Typically, many patients will be treated by a doctor for this. We see a DAN (Defeat Autism Now) doctor. If you have a reputable DAN doctor, you are usually taking supplements and doing other noninvasive things (ie dietary changes, medications, probiotics) for at least 7 months before chelation is even performed. The reason for this is that they are trying to make the child very healthy before starting chelation because it can be a burden on the body. They are taking steps to make sure the child has all teh appropriate vitamins and minerals, healing the gut through dietary changes and controling least/ fbacteria and addressing other health issues that child may have. It is a very gradual process that should never be rushed. The reason is if the child is not health then there is a chance for regression. DMSA is used fro extracting heavy metals from the body. It is approved by the FDA for extracting lead from the body. It is also known as a chelating agent. Jenni: I know it is a chelating agent, but is it given orally? Also how do you find a DAN dr.? How old was your child when you started this process? I have read some studies that say after age 6 there is not much benefit. Have you heard this as well?[QUOTE=Netters64]Jenni: I know it is a chelating agent, but is it given orally? Also how do you find a DAN dr.? How old was your child when you started this process? I have read some studies that say after age 6 there is not much benefit. Have you heard this as well? [/QUOTE] YDependingon which chelating agent you use, you can do chelation orally, IV, As a suppository or transdermally. However, not all chelating agents can be administered the same. For instance, one chelating agent there is no way to give orally, but you could administerit by IV or suppository. Many DAN docs avoind the oral method simply because our kids have a lot of gastrointestinal issues and the medication won't get absorded completely and/or it will create some severe gut issues, such as yeast overgrowth. Both of my kids have autism. My daughter started when she was 3 yrs and 4 months and my son started when he was 2.5yrs. It is true that th eearlier y ou start, the higher chances the child has in overcoming some of the issues. However, even if you start if after the child is 6, he or she will still improve and benefit from it. I know parents who start the biomedical process when their kids were 7 or 8 and they have seen good improvements. Go to the chelatingkids2 yahoo group and ask for experiences of parents who started after the age of 6. It is a good place to get info. To find a DAN doc, you go to this website and click on "DAN" https://www.autismwebsite.com/ari/index.htm The only thing is not all of them are reputable so the best thing for you to do is either join various yahoo groups and ask other parents who about the pros and cons of the doc in your area (chelatingkids2, autisminfo) or you can go to the www.generationrescue.org and click on "Find a Rescue Angel" on the left side of the screen when you get past th eintro page. This will connect you parents located in your state and they are actually the best source of info simply because they live in your area and can give you specific info about the resources and the info about the doc. You can also visit some other sites such as www.tacanow.com or http://www.danasview.net/parent3.htm Hope that helps.
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I have called the Dr. that diagnosed this 15 time's to ask if he wants to watch this he says no. I wrote the Vitiligo Society and they are not interested either. She is being cured by a process normal Dr.'s don't want to talk about. Lots more in this story but would take pages to write.