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Hi, I am new here. I have lurked every now and again. :) My son will be 4 Aug 17th. He is currently in preschool in our school system. They have a pretty good special needs preschool. During the summer, he didn't qualify for Extended School Year program so I have him in a summer program that specializes in speech and socialization, it is not only for autistic children but other special needs as well. He was in this summer program last year too. I have met a number of wonderful moms. Every month we have a mom's night out that is just great. One mother in our group of women has taken her son to this place and she can't say enough about it. Another, took her dd for the preliminary (free) trial run and said that her dd loved it. So they will be starting this in 2 weeks. It is pricey, but we think so worth it. There are no side effects, and there are no invasive procedures. It is intensive therapy and just hearing so many testimonials that their children have improved while still in the process is amazing. Annette's son had 2 words and by the time they left, he had 6 and is eating a larger variety of food. Now, he plays with his older siblings and even gets upset when they leave him in a room. Before, he could care less when they came and went.
This place is about 3 1/2 hours away from our home. Sadly, this means that for the 12 days straight that the therapy is required, that we would have to pay for hotels, my brother is an hour and a half away...but, if it works, I don't care!!!!!!!!!! We aren't doing our vacation this year anyway. But maybe we weren't supposed to because something better was to come our way??? For those interested, here is the website and info about Sensory Learning. It is a pretty short and concise website. Some videos and a blurb on it. http://lebanon.sensorylearning.com/program.php I know that the location in Ohio isn't the only one, has anyone done this or heard of it before? Any information would be helpful. :) Thank you. It just sounds so wonderful! I believe autistic children need to be around others in a positive and appropriate way, even though they act as if they could care less. All this togetherness and touchy feelie thing is just what they need, and they do respond to it in their own way. Now that we no longer live close to family members (and so we don't see them that often), my Mark will carry around their pictures and gaze lovingly at them for hours. And I think back to sometimes when they came over to our house, Mark would say "It's time for them to go home!" even though they had only been there for five minutes. But as he got a little older, he realized how precious they all were, and now he appreciates and cherishes the time we spend with them. Congratulations for making it work, and a good experience for all! I hear sensory learning/therapy can help also. I say try it and you can stop later if you don't see it helping. Thanks, I was hoping that someone had some experience with it. This is a 12 day on site program and 18 days after that, and then never needed again. I probably won't be quitting it considering all the supposed benefits and the cost we will be paying out of pocket.Staycie - We are getting ready to do the sensory learning program in atlanta. My son just turned three last month. Never officially diagnosed as autistic, we went the DAN route with a doctor out of Wisconsin. I really believe that a lot of my son's issues are sensory related, not autism, and I pray that we will see huge results with this program. My son has vaccine damage from the DPT and MMR vaccines, heavy metals, and severe allergies. Things are better than a year ago, but still very difficult for our family. Did you start the program yet? If so, how is it working for you? Valerie Aren't sensory and autism the same, as autism does cause sensory issues? Now that I have retired, I have spent nearly four years of intense therapy with my Mark, who is now 22. People who haven't seen him for a while notice his improvement. He used to not look me in the eye and didn't understand "English" very well, and he didn't know how to work at a project for a period of time (with a little help), or how to perform chores around the house. I have to repeat two or three times when I want Mark to do something, and then he finally (mostly) gets it. He still gets mixed up on the words "on top of, under, to your left (or right), open, close, and so on," but he is improving on everything a little bit more each day. Group therapy and sensory learning as far as I am concerned is "where it's at," for autistic and related children, expecially when they are young. How smart you all are. Mark once met an autistic child at a Thanksgiving dinner and noticed he was "just like I am." I think it is very good for them to realize they are not alone in their disability and others are learning to cope with the same kinds of challenges. It has a tendency to bring them out of their shells, and help them to open up and function as "one of a group," and have some fun while they are at it. Thanks Marge for the post. It really helps to hear other people's stories. This is my first time on this board. I have heard great thing about the sensory learning program. I hope it works well for us. I really research everything. As far as SID and autism being the same thing, they aren't. About 85% of autistic kids have some kind of sensory issues, but SID is a totally different diagnosis. I think people think it's the same thing, as most autistic kids have major sensory issues. There are completely regular kids that just have the sensory problems alone. A lot of the time they are wrongly diagnosed as ADD or mildly autistic, depending on the severity of the sensory issues. Some kids have mild sensory issues, like not eating mushy foods or being uncomfortable in a musical concert. They still have SID, just mild forms. Then there is my son's kind of sensory issues, mostly hyposensitive: constanly seeking sensory stimulation by touching everything in sight, runs around the room non-stop, very hyperactive (at times only). Some hypersensitive traits too: withdraws from touch (only occassionally), fingers in ears with loud noises (sometimes), very picky eater..won't eat orange or green foods, but will eat ANYTHING red! LOL. :-) The thing is that he can be "hell on wheels" one minute with all the typical autistic behaviors, then a completely normal child the next. Do autistic kids do that? Are there periods of complete normalcy? We do these things called "locationals" on him when he starts freaking out, and he will snap right back into normal behavior again. It's amazing to watch. That's why I suspect that his main issues are sensory b/c I think he gets overloaded with stimuli, and then freaks out. Once he finally calms down, he acts very normal again. We have windows of what I call "greatness." And things continue to improve too as he dumps large amounts of heavy metals (using glutathione nebulizer alone...no chelation). We just wrapped up cranial sacral as well this week, and have had good success with that too. We have done a lot more of the holistic things, and have had great success. He's very verbal and repeats everthing. It confuses the heck out of me. Well I'm hoping that we are just dealing with bad SID, and not autism. I guess we will know after the program ends. He does have leaky gut, neurotransmitter disorder, severe allergies (on c/f and g/f diet, feingold diet, benzoates/sulfates-restricted diet), heavy metals. Our son started having major sensory "autistic type" problems after the 18 month booster of DTaP. Looking back, we had earlier signs of DTaP problems at 2,5 and 7 month shots. Same illnesses 10-14 days after the vaccines (7-14 day incubation period for pertussis). The health problems were much worse after the MMR at 14 months. We have gotten some really terrible advice from the peds we've seen. It seems that they know enough to be dangerous when it comes to vaccinating immune compromised kids (our ds screamed until he was 5 months with colic, milk/soy allergy, eczema, projectile vomiting/reflux until 9 months old). So many regrets. We are working with a lawfirm as we speak for the vaccine injury. Not easy times. Valerie
Sounds like you're pretty much on top of it to me. I really admire that! I think it is very hard to deal with a child who has autism or related "brain damage" origins. The glutathione nebulizer sounds interesting as does the "holistic things." Could you tell me more about these treatments? I'm not into the chelation also as I think it is somewhat dangerous. Good luck with your lawsuit! If we were smart, we would all get together and do a class action lawsuit. But, it's my understanding that now you cannot sue the "pharmaceuticals" anymore but have to go through federal "sanctioned" programs for compensation and that it's quite $$ limiting. It is my understanding that the autism and related brain damage creates a pocket(s) of areas in their brain wherein they slip in and out of the (related) world of autism and the normal world. This happens when they are overly stressed or tired and is very scarey say when they wake up and are in the "autism-related world." I sort of know what this is as (now that I am older) when I am very tired (like when I've been driving for a while), I sometimes slip into another part of my brain where nothing is familiar and I have a word like (where is) "Idaho" which is my neighboring state and then I can easily get my bearings back and everything is familiar again. This happened once when I was about 18 and it was late at night and I was very tired and had been doing dishes (as per my mother's wishes) for about two hours. I think it was really interesting (and still do) to go into this other part of my brain. I possibly have some issues resulting from my childhood vaccinations. Possibly we all do and just don't know it! With my Mark, he is mostly in the "here and now" but doesn't really ever totally act "normal." But he is really smart (in some areas) and healthy and tall and strong, and has a "sixth sense" that sometimes astounds me. And he is so loyal (to his bootstraps) to me and is so attentive when I need some help that it's a joy to have him around--autism and all. I found some fascinating websites that you'all might be interested in. There are quite of few of them and have some good information on health, vaccines, and autism. I am really impressed with their content, and may help with some of the adverse health problems of your autistic-related child, or the health problems of someone you know. The first one is entitled, "Why You Should Avoid Taking Vaccines" at http://www.newswithviews.com/Howenstine/james.htm Next: "Why you Probably Have Hypothyroidism" at http://newswithviews.com/Howenstine/james5.htm Plus: "The Use of Natural Therapies for Hypertension" at http://www.newswithviews.com/Howenstine/james6.htm Plus: "The Overlooked Relationship between Infectious Diseases and Mental Symptoms" at http://www.newswithviews.com/Howenstine/james16.htm Plus: "Decrease your Risk of Heart Attack by 70%" at http://www.newswithviews.com/Howenstine/james17.htm Plus: "Would you like to Recover from Colds and Influenza in 3 hours?" at http://www.newswithviews.com/Howenstine/james18.htm Plus: "Solved the Riddle of Eclampsia and Birth Defects in Newborns" at http://www.newswithviews.com/Howenstine/James20.htm Plus: "The Truth about Cholesterol" at http://www.newswithviews.com/Howenstine/james23.htm Plus: "Chronic Illness Can Be Cured with Raw Foods" at http://www.newswithviews.com/Howenstine/james25.htm Plus: "Superb Probiotic Substitute from Russia" at http://www.newswithviews.com/Howenstine/james28.htm And Finally: "Vaccines: How deadly are they?" at http://www.proliberty.com/observer/20060801.htm Corrected website for "Solved the Riddle of Eclampsia and Birth Defects in Newborns is: http://newswithviews.com/Howenstine/james20.htm Hi Marge - So sorry for the delay in responding to your post! It's been pretty crazy here lately. We started the sensory learning program this week. Ben has had a hard time adjusting to wearing the headphones, and to the color RED, but he has done much better since yesterday, AND we are starting to see some promising changes too...things he has never done before, and non-stop chatter now, but the kind that you can actually understand much better! I'm keeping my fingers crossed! ;-) The glutathione that we use with a nebulizer is called L-Glutathione Inhalation, 60mg/ml. It is compounded by Apothe'Cure Inc in Dallas, TX. 800.969.6601. You can contact them for more information. We use 1/2 vial per week. Ben has really been dumping BIG time, as we got back another heavy metals test with large amounts of mercury and arsenic (pesticides and lawn fertilizers, which people DUMP large amounts of here in Georgia, with no thought whatsoever!) I hate Georgia. I have lived here my entire life, and we are considering moving to Colorado (Denver, Boulder areas) possibly, as I can't stand the humidity, heat, use of chemicals/pesticides (especially in schools..once a month!), and horrible air quality. A move would be hard with Ben, but are really considering it. I talked to Autism society out there today, and they said that they have great resources for autistic/sensory kids (sensory learning program headquarters in Boulder). Great holisitic city, and great place to raise kids. I guess we'll see... Know anyone who has lived there, or has anything to say about it? Valerie :-)))) Dear Valerie: Thanks for the information. Glutathion somes to be really helpful. Sounds like you have a pretty good handle on your situation. One thing I think is really important is to make sure you have purified air and filtered water in your home. No I sure don't know anyone from Boulder, although I have been through Boulder and thought it was really neat with its preponderence of homes/exteriors made of boulders. Georgia sounds terrible. I cannot deal with high humidity/heat or pollution--it really does a number on my body--and Mark is miserable in it also. Using pesticides in schools should be illegal. I would certainly move (or change some things that you don't like in your son's school). I think the move would be good for your Ben. It's hard to know where to move. I guess wherever you can find a good job and the air is good--probably North a little and maybe West. You might check out the autism posts and see where people are happy about the area and services their autistic (and related) children are receiving and how their children are getting along in the various communities (and then contact them). A lot of people like the areas around Seattle--but that would be too wet for me. I wouldn't recommend where I live because of the isolation and limited resources--but then my Mark is 22 years old now and did receive some pretty good help while he was in school. I think socialization is the main key for those with autism-related disabilities. It is good for them to get with others with disabilities (or those who are compassionate) and learn to enjoy each other's company. It is good that your son is improving and responding well. Best of luck to you! |
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