Precoporyphyrin Test for mercury
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Laboratoire Philippe Auguste 119 Avenue Philippe Auguste 75011 Paris France e-mail: contact@labbio.net Tel: 0033143721398 This test is a urine test. It cost around 80 Euro (about 120 USD). First morning urine is the best. What sets the porphryin tests from the Lab in France apart from the porphryin tests that are performed in the U.S. is that they can test for a specific porphyrin called precoproporphyrin. This specific biomarker indicates mercury toxicity. I do not believe as of yet we have a US Lab that is doing testing for that specific biomarker - precopro. There is more info on the autism NCD site. - Like waaaaaay more ... Man we really are blazing a whole new trail it looks like. Every site out there is cutting edge ... we need to actually visit them all round robin looks like ... Autism-mercury has always been great, now autism NCD is fast catching up. I feel like I am getting left behind ... and guess what ... that is some serious compliment to the parents that drive this. We ordered this test last week! Hopefully it will come in soon and we'll have results in a couple of weeks. -Crystal My name is Mellie. My son Noah was diagnosed on Tuesday of the 18th This is how my life changed forever. I felt as though my skin was ripped of and i was left in the sun. I hurt for him. For what he was to be (in my heart and mind) yet never will be. I am very sad. I am in mourning. I know that GOd has given this little boy to me because it was meant to be. I can sit and do the "what if i hadn't vaccinated...what if i....." for the rest of my life, but it won't change my son. I have a 4 month old, Luke. I can see a difference in him. His eye contact..they way he responds to me. These things I have never seen in Noah. Its as though my 4 month old is ahead of Noah. I know that God loves me. i don't know why this is the way it is. I would give my life to change this for my Noah. It is going to take sometime. But what gives me comfort is that he hasn't changed. He is the same boy he was the day before I found out it was PDD. Its not as scary when i spend extra time next to him, because i see his strengths and it makes me think "we are going to be alright" "I am gonna be alright too...its just going to take sometime. For now, I am not alright. If you are hurt..terribly hurt and frightened..you are not alone. Mellie <>< Mellie,You didn't mention Noah's age. I know this is a difficult time right now but you will get through it. Just keep your focus on one thing at a time and don't try to overwhelm yourself with too many things right now. Thankfully, there is a lot of support available and at least you do have this resource. So take a deep breath and be still in the moment. After your anger and grief, you'll need all your energy to "get busy" for Noah. There are worse things than this and my kids have improved so much since their DX. They CAN live up to their potential and have a wonderful life. Dr Geier looks at these to put or take my son off DMSA. I believe these show the body mercury. Not brain. DMSA has the nasty little habit of moving body to brain ... on occasion. Hence the regressions. DMPS doesn't do that. Body mercury goes out and slowly the brain mercury gets leeched out. Which is one reason why we may go to DMPS next. Of course ALA too can get brain mercury out, but body mercury being high = no ALA.Srinath, I didn't think metals could move to the brain after the BBB is formed. I may ask our Dr to switch back to DMPS. I think doing the NCD with the DMSA is working well to "mop up" all the metals. I did want to mention to you that it hasn't been officially determined if the NCD crosses the BBB. I know you asked about that on AW and I told you it did. But you may've already read this on the yahoo group. Very educated,informed, brilliant parents on that group. I'm waiting for our urine tests to arrive from Paris as well. Can't wait send it off! Mercury can enter the brain as an organic compound after BBB I believe. There organic mercury does so much damage ... the brain converts it back to metallic mercury and drops it where it does the least damage ... problem is, it cannot cross back out as a metal and it does do pretty good damage anyway. That is what they dont chelate with ALA in the begining, Body to brain transfer is possible. BBB I should say is just for metallic mercury or maybe its good at stopping a large quantity ... but not tiny quantities of organic mercury. I am not sure ... check with a DAN. NCD is on the back burner till we drop DMSA for us. Dr Geier told us not to run 2-3-4 chelators all the same time. I may go to NCD after DMSA. DMPS will probably work great for high body burden, but remember its profile of pull is narrower than DMSA. Your biggest problem if its some other metal, DMPS may not affect it at all. Dunno if it does antimony well or not. I think its related to food issues so much, removing it will make the biggest difference in that aspect. Hey Srianth, let me borrow your thread for a moment... Mellie, I don't know how to do this on this board or exactly where to refer you... I'm usually on autismweb.com. But post in one of the support areas and you will get more attention to your post. I think it's the top category on this board. This particular thread is interesting but it is very specialized and not really pertaining to general support. Your skin metaphor is amazing. Truly amazing and so spot-on. Your post touched something in me and reminded me of my first day. I don't remember driving away from the office where the A-word was first said to me by someone who knew enough to say it. I am lucky I didn't kill someone on the road. I shouldn't have been operating a car. It's all a blur. After that, that night, I stood staring at my son's crib, just heaving with sobs, trying not to wake him. I wanted to rip out my vocal chords and give them to my precious baby boy, and at that point, if I could have, I would have. I was completely numb and would have felt no pain. I had been told at one point I'd be lucky if he'd ever speak. Now two years later he speaks close to fluently. I just want you to know two things: lots of us feel that pain you feel, and there is a lot you can do to help your child. We are the trailblazers for our kids in this point in history; their prognosis has not been determined or achieved by any other generation with this diagnosis before, I believe. What Srianth wrote at the beginning of this thread is so, so true. I've only been on this particular board for a couple months, but people on this board are very kind, and again, there's a support forum on autismweb where there is a lot of kindness and support too (if you stay away from the controversy, LOL.) Look at tacanow.com, too. It's awesome. A generation is 20 years ... I'll say its been about a 1/4th ... You see all the older kids cases ... biomed or disillusioned by biomed ... all they talk about is secretin and how expensive it was and how much promise it had and how it disappointed them ... You see that and promptly its a sign that says ... I am too old for any bio therapy ... Of course we may talk that way about DMSA in 5 years saying this other thing man ... it knocked dmsa out the park ... |
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