Anyone else doing DMSA currently?We are in the midst of it (actually up to round 7) and recently had a Doctor's Data Toxic Metal Challenge urine test (our second one). Lauren's levels of tin are coming down and now her lead is sky high. I was told to expect this as the lighter metals are decreasing but it is just frightening that my child is at a level of 66 for lead when the average is less than 5. Truly lead poisoning and yet insurance is still not covering this. Anyone else experience this? It makes me sick to my stomach seeing the levels of metals in her little body and wishing I could snap my fingers and make them just go away. I just think of all the damage that is occuring while we are trying to get rid of it. I am so glad that we are doing this. She is now at the point that she takes the oral syringe like a champ. I can't even get tylenol into her most times but she will drink this up for me! I asked the pharmacist about this and he said that he's seen a lot of this behavior...it's almost like they know that the DMSA is making them feel better so they want to take it. Anyway, just wanted to share a positive story. YEAST/METALS NOT FDA PPROVED IS WHY INS WON'T PAY THIS. IT IS BELIEVED TO BE A MEDICAL SCAM. A LADY i HAVE MET HER CHILD WAS FOUND TO BE BRAIN INJURYED NOT ASD. He sees a dr. in Mexico. To those who may find the member "srinath" to be credible. Please be aware. Last evening, he was banned from the parents' forum on autismweb. He posted the following message to an adult with autism who had been commenting on the forum for only a couple of weeks. I apologize in advance for the offensive nature of the post, but it helps to see what type of person you are dealing with, and the type of attitude he displays toward individuals with autism.
Again, I apologize for this man. He is not to be trusted or believed. THIS IS NO WAY TO TALK TO ANYONE AT ALL. THIS IDIOT DOESN'T GET DISABILITY PEOPLE AT ALL.Especially considering that his own son has autism. It is truly shameful behavior and should not be tolerated.
Slow down there Judge Judy. Do you know what it was in response to??? I responded to someone - supposedly an adult with autism who said I am trying to kill my son or prevent him from growing up with my treatment. I guess having autism gives her Carte Blanche to say whatever. That would be a Nice world then. We should change the world to work that way. Its all well and good to just post what I say, its like blaming the jury is to blame for imposing a death sentence on a serial killer. Cool. Srinath. [QUOTE=Punky Brewster]<snip> Again, I apologize for this man. He is not to be trusted or believed. [/QUOTE] And no you dont have to apologise for me, and what does it have to do with trusting or believing me. I use my real name everywhere and stand behind anything I post ... its you who is twisting my words by partially quoting my post, and making it look like what you want to say. I dont apologise for this and I dont believe in holding autistic people to a lower standard of behavior. I guess I am going to get banned here too ... thanks, been nice even though I posted very little here. Good luck to y'all and your children. Cool. Srinath. We were told we had to pay for the urine testing upfront. Can't afford this. The Labs they use are ins. doesn't cover. Already called and asked. This is with UHC. We were told had to pay ourselves then send to ins. Know what we do now we will get a waiver with the allergie excuse for refusal of future shots. Both kids.We are doing DMSA and lupron. We also are on NDF, B12, DMG and all the other suppliments. Yes my son also will take DMSA and dmg and CLO etc ... literally ask for it and eat it, and sometimes will ask for it right after eating it ... and if he doesn't get it, he will cry. He almost shows his butt for shots. And yes getting tylenol into him will be a near impossible task, but tylenol is bad for him, it kills liver function, maybe he knows that instinctively. Open the capsule and eat DMSA from a spoon. Yes he does that. We have seen great results from them all. We have 5 1/2 weeks of Lupron DMSA and its already been a sharp improvement. I am not sure if anyone else here gets the Shaefer Autism Report, but from the latest report I recieved via email yesterday: Heavy Metals May Be Implicated In Autism Oh Diane- I just like to save stuff that might come in handy some day. I saved it for PROOF. You wouldn't believe the stuff I've saved, so don't bother racing for that beloved "edit" button.... As your good friend, the filth-spewing reject would say: BOO-YAH!!!
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Strange ... people who dont have anything to say ... are good at saving. Waaaaay back in 1994 in the days of the usenet - we an my old timer friend opened up and fixed a honda cam chain tensioner. I sold the honda later in 94 and forgot about it. I posted it on the old usenet and what not ... but I forgot. Then forward to 1998 when I bought my second nighthawk, and that article is still floating around ... and I see it and go ... what the ... and its still almost intact ... and guess what ... if I needed it ... it was there ... Yea saving stuff is important ... [QUOTE=Punky Brewster]Oh Diane- I just like to save stuff that might come in handy some day. I saved it for PROOF. You wouldn't believe the stuff I've saved, so don't bother racing for that beloved "edit" button.... As your good friend, the filth-spewing reject would say: BOO-YAH!!!
In case you didn't know, the EDIT ability hasn't been available for quite some time on the AW forum. Although, lately I've noticed it is sporadically there, most of the time it's not. Keep trying though, good job! Atta girl! Pat, Pat, on your head. Good doggy.  I love it when the anti biomed group thinks its some kind of therapy democracy. You're doing that ... I vote against it. You're not going to stop ... but I voted against it. Yea right ... sure ... [QUOTE=Punky Brewster]To those who may find the member "srinath" to be credible. Please be aware. Last evening, he was banned from the parents' forum on autismweb. He posted the following message to an adult with autism who had been commenting on the forum for only a couple of weeks. I apologize in advance for the offensive nature of the post, but it helps to see what type of person you are dealing with, and the type of attitude he displays toward individuals with autism. Again, I apologize for this man. He is not to be trusted or believed. [/QUOTE]For someone presumably so appaulled and offended for this post, what was the reason you just had to copy and save it? And not only did you copy and save it but you had to post it here for some reason. Oh right, to save us all from this man who can't be trusted. Sure Oh Diane- I just like to save stuff that might come in handy some day. I saved it for PROOF. You wouldn't believe the stuff I've saved, so don't bother racing for that beloved "edit" button.... As your good friend, the filth-spewing reject would say: BOO-YAH!!!
Michele, I am the mother of an autistic 6 year old and will be starting the 2nd DMSA challenge in a few days. My physician has prescribed 550 mg in capsule form. I read your message and your child is taking it in liquid form, correct? If so, where can I get it in liquid form? My son will not take capsules/pills. I am not looking forward to having my husband hold him down while I break open the capsules to administer it orally. Any comments would be greatly appreciated. Faith-filled Mom...Malanna [QUOTE=little byrd]<snip> That is why it is sometimes better to join a yahoo group. To bad AutismWeb can't have restricted membership. <snip> Hey Little Byrd, I have a question. Is autismweb even pretending to be neutral really. Or are they blatantly on one of the many (really only 3 sides) sides of the issue. Because I seem to have some definite indicators that they are very strongly on one of the 3 sides. Or atleast one of the moderators is ... Cool. Srinath. Thanks for saying that Little Byrd - the welcome part that is. The thing about me, I never bothered to cover my tracks ... I am Srinath everywhere, and my last name is Seshadri. I am easy to find, search for seshadri_srinath and there'd be 1000's of hits all of which are ... me. Autismweb is good, but there have too much of everything and everyone that doesn't agree with any thing else ... will fight. I have not tried serious ST/OT/ABA types and I never post anything (except how much it costs in my town) on that topic. Same with the book reviews. I stick with what I am doing, have done and intend to do, of course I am abrasive and not shy about speaking my mind. But there are however people there that haven't done any bio med and never intend to, who'd just keep asking empty questions ... and dismissing all the answers. Of course none of those have their own identity ... they all disappear into this air if it gets tough. Of course I cannot ignore it. Why ??? I lost 6+ months last year when I believed the media releases about that kid's death from IV EDTA chelation and how its got no proven benifits for autism. Finally I stumbled into Generation rescue and it had me looking at it again. Then of course I saw AutismDiva and kevinleitch and oracknows and I knew by then it will work. I dont want that same thing to happen to anyone else, and new parents do get misled easy. I want everyone's child to get better with biomed so that when I have to do ABA or ST or OT for mine, I dont have the years of waiting lists to deal with in addition to exorbitant fees. Anyway my son - He is on DMSA and its oral, kiddo is acutely aware of what is good for him. We will open the capsule and tip it onto a spoon and kiddo will lick it up. Like its manna from heaven. He also is on good doses of yogurt, bifido (only one he tested low in) Culture-L and he has never had yeast issues. I think we got extremely lucky. We aren't even GFCF, he'd avoid straight milk ... but all else is great. He's had good poop all his life and never had much in the way of excema or anything. He's shown some signs of seizures ... rolling eyes etc, but has slept through the night in most cases and has generally very good. He was very high in testosterone and we have him on lupron. Its been over 2 months and he's still registering high in Testosterone. As in, we've not gotten it out yet. he has been excreting metals and has been improving, and isn't showing too many side effects ... but still has a way to go. Evidently he has excreted the easy mercury (stomach, intestines etc) and hopefully is getting the brain and harder to excrete mercury out as of now. I guess I'll post here how he's progressing. but we have stopped B12 for now and not seen much of a loss in language. We may restart and see if there is a jump. The first time we started it was huge. But stopping it made no negative. maybe he doesn't need it now ... or maybe he still does but isn't that severe. We'll know. He had Pneumonia for atleast 6 weeks that went undetected by 5 different doctors. That was right about 2 weeks after starting Lupron DMSA. We put him on zithromax, and it made no difference in him (except for the pneumonia) making me sure he's not loaded with bacteria and yeast. We fed him yogurt and probiotics through and after the Zithromax, and I am certain we now have a better gut than he did before. With lots of good bacteria. Cool. Srinath. Right before the moderator posted the rules, I decided not to really acknowledge the posters who ask empty questions or who are there just to stir up trouble. I have been on boards in the past where we had issues with trolls. You ignore them and eventually they will leave cause there is no mroe excitement. On Webmd, they give you the option to ignore posts from a particular person...wish they had that nifty feature on some of the boards I now frequent. I really like Autismweb because I find a lot of answers the questions I had or had not even thought of yet. There really hasn't been much activity lately...so you aren't missing much. Glad to hear your ds is doing well. I have 2 children on the spectrum (4 yrs and 2.5yrs) that we are treating biomedically. Both have gut issues and viral issues. So it is interesting to see the differences in labwork and treatment with our children. I will start the TD-DMSA w/ my 4 yr old w/in the next 2 weeks. I have them both on the standard supplements, probiotics, nystatin, enzymes, Actos, LDN, 4 yr old has glutathione cream. I am doing the mHBOT with dd, as well. We are only doing the generic therapies (OT, ST, MT), but it has always been understood (under DAN anyway) that those therapies may not be as effective for a child who is not healthy and able to benefit from it. It makes sense. I have noticed that my kids are making much more progess in the therapy sessions than they were prior to the biomed treatments. We tried for months to get my kids to communicate using words or even non-verbal signs. No luck. But as soon as they started the biomed treatments, they started communicating and participating. When this happened w/ my 4 yr old, I just thought maybe it was the therapist. But dd made the improvements. Then here comes my ds who is 18 mos younger. Same exact thing. So I know they are getting much more out of their therapy sessions now and the things learned stays with them and us. Basically...we are getting our monies worth, kwim? [QUOTE=srinath] [QUOTE=little byrd] That is why it is sometimes better to join a yahoo group. To bad AutismWeb can't have restricted membership. <snip> Hey Little Byrd, I have a question. Is autismweb even pretending to be neutral really. Or are they blatantly on one of the many (really only 3 sides) sides of the issue. Because I seem to have some definite indicators that they are very strongly on one of the 3 sides. Or atleast one of the moderators is ... Cool. Srinath. [/QUOTE] He's slowly making a habit of pooping in the potty. This morning he woke up super super cranky ... screamed and trampled in our room and bed, then mommy suggests he go to the potty and he runs there and waits. then mommy opens his diaper and sees he had peed. He still sits on the potty, and pees a little, stays put after that and poops. now we thought ... OK that's why he was cranky ... nope, after pooping, he goes right back to being cranky ... then we get him breakfast, and after she feeds him a bit, he starts to calm down and eat. Then he's ready to go to school ... booya. The autisitic individual srinath personally insulted beyond belief did NOT say that srinath was going to kill his child. Rather, it was brought it to his attention that the Lupron protocol he utilizes with his son has not proven effective (his kid's testosterone levels are actually higher now, on the Lupron, than they were when they began the child's "treatment.") Furthermore, srinath has been chelating the same child for months and months, and chelation is usually effective after only a few months. The "tiny" bit of mercury in his son's system should have been gone long ago. Srinath also has gone on record as sayig that ALL autism is mercury poisoning. FTR, here is the post that prompted srinath's insult that resulted in his being banned. You can sense the individual's frustration and anger, but there was no accusation of murderous intent, only a question of motivation. The "quotes" in the following are from srinath. Also FTR, the other individual was banned from autismweb's forum, as well, which is unfortunate for the many parents on the forum who were glad to have the insight and input from an autistic (young) adult. Very unfortunate, indeed.
Whateva! Testosterone being high ... was not a result anyone ever said as a side effect. So stop claiming that "You told me so" ... you never did, no one ever did. The testosterone spike was to be expected, Its part of the lupron package insert, your body uses up the left over testosterone and that shows as a spike. The duration and height of the spike caught us all by surprise in a 3 1/2 year old 35lb boy. Hitting 91 and dropping to 34, then to the 20's for a few cycles (2 weeks is a cycle) and finally dropping to below detectable limit in the test - while we still have indications of having it ( 10 is the limit for detection he is under that right now, but not 0 - maybe its not even needed to hit 0 ??? ) is just a indication of the size of pent up un-used testosterone he had. Once again, you didn't guess it, you didn't claim it, you didn't even mention it ... all you said was "chemical castration blah blah blah" and by you I mean the entire kit and kaboodle of the NeuroD and ABA/Pharma shill universe - not just you the person. In any case whoever wants an update can post questions here, and the fact is adult males experience a 2-3 week spike in Lupron before it hits 0. This kid was on his spike for 3 months. BTW he also had pneumonia that went undetected for 6+ weeks and was followed by over a week of antibiotics. Who knows if that triggered extra production of testosterone (he was in the 34-20 range during those weeks). BTW we are most likely going off DMSA shortly, his poryphyrins have dropped and that is a sign that we have removed the easy to remove toxins. If it goes back up as we continue biomed, we'll start a chelator again. We may do ALA now since his body mercury and metals level is lower than when we started. Up to his doctors and his lab tests and we'll decide shortly. Or do zeolite or whey isolate or some other lighter and gentler chelator. Its all well and good Punky to follow me from forum to forum, I use my real name - always have and awalys will. With you ... we never know if you are a serial killer sitting in Levinworth serving 17 consecutive life sentences ... and I guess your rare appearances are due to the limited internet priveleges our tax dollars pay for ... we never know now ... do we. Cool. Srinath. I have to add that there have been a few people who go there to specifically debate. It is better to just ignore the posts of those who don't provide any useful to you or who are just there to ruffle your feathers, kwim? That is why it is sometimes better to join a yahoo group. To bad AutismWeb can't have restricted membership. srinath, you indicated that your ds takes DMSA - I am assuming it is orally. Has he had any gut issues, ie yeast overgrowth, as a result? DMSA is sulpher based, right? [QUOTE=srinath] Slow down there Judge Judy. Do you know what it was in response to??? I responded to someone - supposedly an adult with autism who said I am trying to kill my son or prevent him from growing up with my treatment. I guess having autism gives her Carte Blanche to say whatever. That would be a Nice world then. We should change the world to work that way. Its all well and good to just post what I say, its like blaming the jury is to blame for imposing a death sentence on a serial killer. Cool. Srinath. [/QUOTE]You will always be welcomed in the yahoo biomed groups:) [QUOTE=srinath][QUOTE=Punky Brewster] <snip> Again, I apologize for this man. He is not to be trusted or believed. [/QUOTE] And no you dont have to apologise for me, and what does it have to do with trusting or believing me. I use my real name everywhere and stand behind anything I post ... its you who is twisting my words by partially quoting my post, and making it look like what you want to say. I dont apologise for this and I dont believe in holding autistic people to a lower standard of behavior. I guess I am going to get banned here too ... thanks, been nice even though I posted very little here. Good luck to y'all and your children. Cool. Srinath. [/QUOTE]Woo hoo Srinath! We found you! So glad to be back on a board where you are active. We missed you! Michelle, Oral chelation tore my sons tummy up (yeast). We are now doing supposatory DMPS and getting awesome pulls. We're starting IV chelation on July 27th. Good luck! Crystal [QUOTE=Punky Brewster]To those who may find the member "srinath" to be credible. Please be aware. Last evening, he was banned from the parents' forum on autismweb. He posted the following message to an adult with autism who had been commenting on the forum for only a couple of weeks. I apologize in advance for the offensive nature of the post, but it helps to see what type of person you are dealing with, and the type of attitude he displays toward individuals with autism.
Again, I apologize for this man. He is not to be trusted or believed. [/QUOTE] Well if I was told by someone that I was going to kill my child by having them on a medication that was needed due to lab results coming back showing the medication would help then I would get ticked off too. Sometimes going too far is a result of someone making you go too far. [QUOTE=Malanna] Michele, I am the mother of an autistic 6 year old and will be starting the 2nd DMSA challenge in a few days. My physician has prescribed 550 mg in capsule form. I read your message and your child is taking it in liquid form, correct? If so, where can I get it in liquid form? My son will not take capsules/pills. I am not looking forward to having my husband hold him down while I break open the capsules to administer it orally. Any comments would be greatly appreciated. Faith-filled Mom...Malanna [/QUOTE] We are on capsule form. I have heard people mix it in juice. I'll bet its really sulphury even when mixed. The Kid smells like dmsa all the time these days. Cool. Srinath. We recently switched to the DMSA suppositories and I'm using them with NCD. Wow! What a great combination! Getting ready to do another round this weekend. No yeast flare ups and no regressions during the first round. I should've switched from the trans dermal a long time ago. I think the absorbtion is so much better than TD and it's so much easier to do when they're sleeping at night only once a day. No bad odor to rub off on clothes/furniture. It's just better in every way. |
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