Just Venting
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This x-mas break has been crazy for my ds and the family. He seems to have regressed a lot and his outbursts have become more violent. Recently he has become obsessed with videos and wants to watch them all the time and will not let his sister watch anything she wants too. Of course we try to redirect him or tell him to be nice and other things, but it hasnt been working. I'm dealing with my own health issues and Dh has been very busy with school and work. I'm getting exhausted and really depressed that he isnt making progress and seems to be getting worse. I know he does well in school because I have witnessed it myself, but at home it's a different story. Were going to make an appointment at the Autism Research Center in Albuquerque and I truly hope they can help us get a dx and help us with the issues we are dealing with. I guess I'm just tired of dealing with a 4 year old that acts like a one to two year old, I feel bad complaining because everyone on this board feels this way or has before. I'm going to have to ask the school to help find a summer prgram for him because during the breaks he has he goes nuts  Thanks for listening I just needed to vent.BIGG HUGGS TO YOU CANDY,SO SORRY ITS BEEN ROUGH.Have you looked into a respite program to help you out.They can come n help you out at home,so you can get somethings done.Im having problems just geting the right fit as a sitter/respite for us.My sons on the REPEATING CYCLE."I WANT TO GO OUTSIDE X'S100.driving me nuts."but cant let him out until all kids are home at 4pm from school.I am trying to get him into school tues n thurs. along w/what he goes mon,wed,fri,b/c I just cant seem to catch a break and get house cleaned, or have meetings w/my resource coordinator.today she came by and he just was like a pingpong ball.THIS IMPULSIVENESS MAKES ME NUTS.SO ALL I CAN SAY IS GOOD LUCK AT THE AUTISM CENTER.hang in there,youve had a rough year.take calgon bath n relax,at least try to. CYNDIEOh candy I know I know...I am tired of my 4 yr old behaving like a 2 yr old too. Trust me I KNOW. And it is harder to deal w/these issues when you are under the weather and feeling run down. I have seen Anna be very cooperative at school and as soon as we walk out the door BAM she is fitting because she didn't get a suprize. I don't have any tips but will enjoy reading the responses from others. I don't understand why schools don't provide the same services all summer. It seems like so much could be lost or compromised during the summer break. CHildren can and do get services over the summer if you can show that the child regresses. So keep a log. Even write down what happens on Mondays after a weekend. If there is regression, the child must be given summer services. They don't call it Developmental Delay for nothing. Our kids' development is way behind the development of their same age peers and it will remain that way. They will progress, but they will never be the same as a typical kid. They are disabled. This disorder is pervasive and permanent. We do ourselves and our kids the best service when we get trained in how to deal with this. I'm really glad you're going for a diagnosis. Many kids on the spectrum act like 2yo's, even when they're 20. Even if they are not retarded. Immaturity comes with the territory. We parents just have to learn what can be asked of our kids and what cannot. Good parent training will help with that. ASD is no picnic, but gets easier on us the more we understand it and its effects on our particular child. |
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