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hey guys. Brendon has an appointment monday with his regular pediatrician. I'm wanting to talk to her about some things such as vitamin therapy and equipment. Is there anything that you guys can think of that I really need to talk about in this appointment. This is Brendon's first actual appointment with the main pediatrican since his diagnosis was confirmed and we haven't discussed it much with her, just the specialists. Do I need prescriptions from her for Medicaid to pay for items that Brendon needs? I just can't seem to get my thoughts together as to what ot talk about. thank you in advance for your help.RHOSYN, I WISH I HAD THE ANSWERS, BUT I WAS ABOUT TO POST THE SAME QUESTION. I REALLY WANT TO START VITAMIN THERAPY TO, BUT I AM NOT SURE IF MY PED. CAN MAKE THES DECISIONS OR IF I NEED A DAN DR. I AM ON A WAITING LIST FOR DAN DR. A VERY LONG LIST. I HOPR WE BOTH GET SOME ADVICE ON THIS SUBJECT.Make sure you write down everything you want to ask! I always wind up forgetting something unless I do that.  I'd definitely suggest you mention to the pediatrician about the vitamin therapy, but be prepared for the doctor to snub the idea. I haven't found many 'regular' pediatricians who are open-minded to things. Rhosyn, you should mention your child's limitations and ask if the doctor has any suggestions for helpful adaptive equipment. When we transferred to a new pediatrician after Luke's diagnosis, I discussed with him my feelings about vaccinations (he feels they're fine, but understood my concerns), told him about Luke's food allergies and asked for nutritional suggestions, and tried to feel him out about his impressions of Luke at first meeting. Frankly, he was very vague with most of his answers, and felt that since Luke sees a specialist for his autism, then the specialist should respond to many of the questions I had. Hopefully yours will be a bit more forthcoming since you haven't seen the DAN doctor yet. Good luck! Sorry I cannot be of any help as I have never tried any of theses things.Hope the meeting goes well .  We were advised to have the Dr refer us to a nutritonist that can recommend the vitamin therapy. The regional center we go through has nutritionists that are famliar with vitamin therapies that help kids with PDD. Good luck!I asked my son's ped about vitamins to help him focus in school, she said that she didn't think that they would help him any. If you do put your child on any kind of vitamin treatment make sure that you get the ones that don't have any dye in them. I gave my son some children's multivitamins last year and something in them really set him off (I'm guessing it was the dye - because he settled down after I stopped giving him the vitamins).Normal pediatricians specialize in height, weight, disease, temperature and shots. Period. They are like mechanics of the body. They pay as little attention to development as possible. I have yet to meet one who thinks nutritional therapies are anything but hocus pocus. Why depend on a normal pediatrician if you're seeing a specialist in autism? If that specialist is not a medical doctor, try to search out DAN doctors if you're interested in alternative ways of addressing autism. Frankly, nothing we tried (Secretin, some vitamin therapy) did anything but drain our pockets. I have a friend who tried a gluten free diet for years and it did not do anything. The only thing that has clearly helped many children is the proper educational services at as young an age as possible. Best practices recommends 40 hours of ABA per week. That may be too much on the child and too much money for the parents or District, but it has tons of evidence that it works. Sensory integration therapy works for sensory issues, too, but so does simply growing older and allowing the brain to develop itself out of sensory problems. We used sensory integration therapy and I believe it helped. But I don't think the longterm outcome was any different. It just think the sensory issues were kept under better control until DS was able to outgrow them. Education, maturity, parental attention, advocacy and time are what seems to work. |
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