muscle biopsy - great news I am happy for you.  Take care. Harriet Frost, that is incredible news. I know that DM suffers have a shortened lifespan, and that this other type is associated with a much longer lifespan. That must feel like the weight of the world off of you. I am so happy for you.That is great news.  Excellent news!   Thanks for posting it! That's amazing, wonderful news!  You must be so relieved! I've found, personally, that diagnosis -- just having a solid reason for why things are the way they are -- brings an amazing amoung of peace.  Breathe deeply! I've got a great update to post. I'm a bit overwhelmed, so this isn't going to be very coherent, but I really want to share this since a lot of people on this board have been very helpful and I feel a sort of a connection with a lot of you. Em was diagnosed with dmd about about a year ago, by genetic testing. The prognosis looked really bad and we were devastated. Still, being on no steroids, the disease progressed a lot slower than we thought it would and according to his doctor he was at the 'mild' end of Duchennes. As it turns out, after loads of tests and a muscle biopsy-Em does not have dmd. He has Becker md. A more 'severe' form of it, but still...it's not dmd. The prognosis for becker md is better. A lot better. Obviously, his symptoms don't get any better because of a different diagnosis, but at least now we can expect the progress of it to be a lot slower than it would be with dmd. I'm not really sure what to feel. That's wonderful news!  I'm so happy for your family! Tiffany Thats great news! You must be somewhat relieved. Thanks for sharing (((hugs)))
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