He has stopped eating everything!Does he take any other supps, like a probiotic??? I don't know what to do. I am going crazy because my DS who would always eat his pancakes and his chicken nuggets and some other things has began not eating any of his normal foods. He has been on the GFCF diet now for 7 months and it was fine but last week he started not eating his foods. He IS hungry and he will jump with excitement when he sees his food but then when he goes to eat it he will put it back on his plate and start to cry. I have been so desperate that I have started giving him gluten and casein because my stomach is in knots from watching him be so hungry. I feel like it is not intentional to get other food because he will point to his regular food and it looks like he does try to eat it but then cries because (I don't know WHY!!!!). I just can't deal with this and am so upset and crying about this because I know that this will lead to regression as it has before. He does not do good with gluten but it seems right know that it is all he can eat. I have also tried giving him other GFCF foods but the only thing he seems to be ok with is PB&J sandwiches on regular bread and not the GF kind and he will still eat his GFCF pancakes. I guess I am just venting because I hate this. I which he was one of those kids that the GFCF diet did not have such a positive impact on him but it does. He really gets spacey and is not in our world at all and it takes a couple of days of gluten but it eventually happens. I am so upset but I can not watch him starve. What do I do??????? I would suggest trying a probiotic...Jarrow is a good brand....most health food stores carry good ones!!!I use enzymes from a few different co....I use Young Living's products, Thorne, Pure Encapulations, Jarrow, Allergy Research Group....most can be found at Amazon.com.... Or ask for some suggestions at the health food store!!! We use the Houston Nutrceuticals enzymes - AFP Peptizyde and Zyme Prime. Both are available in a chewable that tastes like a Flintstone vitamin. They've both been helpful in getting DS to expand his diet a bit. I would also take him to the dentist to rule out a dental problem, and to the doctor to rule out a medical problem (reflux, etc.). Does he still drink his usual amount? Can you give him a special drink (I don't remember what they're called, special drinks with calories and nutrients). Here are my links on picky eating and autism: http://www.autism-pdd.net/forum/forum_posts.asp?TID=18317&am p;KW=pickiness Hang in there.
Oh lovec55, how I feel your pain. As I was reading your post my stomach just tied up in knots in sympathy. My son is the same way. I just told my DH that it's time to take him back to the feeding clinic. My son will be sooo hungry and tell me 'belly hurts' but wont put the food in his mouth. He'll carry it around the house all day long. And we have 2 dogs, so you can imagine that keeping them from eating his food is difficult. If one of the dogs get a hold of the "carried" food he freaks out. Many times turns into a full meltdown. I know that feeling that you get, right before your child puts the food in his mouth in hopes that he'll take just 1 bite, 1 nibble. If he would only finish 1 entire chix nugget I would do flips for him. That feeling in your stomach is all too familiar to us. I honestly have no idea how he survives on the amount of food he eats. On average I would say he only eats about 1/4 cup of food a day, which only consists of chix nuggets, chips, fruit snacks, pistacios and cookies and occasionally some crackers. We are currently 100% casein free and have been for over a year. We are limited in our gluten, except for those darn nuggets. I have tried time and time again to rid the nuggets. I have made several attempts to master a gluten free recipe that would mimic those da*N Tyson Dinosaur nuggets with no luck. I have even went 10 days without giving him the nuggets and he STILL doesn't eat (except a handful of potato chips a day). I know someone once posted a recipe for GFCF tyson replacements but I've searched and searched and can't find it. I remember even printing it out and have searched my basement in hopes to find it (if ANYONE has this recipe please post it). When Blake was a year old he ate everything! I used to think about how big he was going to be. And at about 14 months it slowly dwindled to practically nothing. He will go through usually a few days in a month where he'll eat what I consider a lot (maybe 4-5 nuggets, chips, and a couple cookies) in a day or two. I'll never forgot one time his teacher at school called me at work so excited to tell me he ate 3 entire chix nuggets! I've stopped telling myself it can't be any worse, cuz I've come to realize every time I think that, it does. A feeding tube - THAT would be worse. Blake will even say "Mmmm...want dat" for things in pictures or for example a pizza box that's across the room. But then I'll show him and he'll practically gag and say "eewww, yuk". We don't even force him to sit at the table with us any more cuz his senses of the food we're eating just seems to get worse and worse. If he wants to join us, he can. The other night, I was thinking about how horrible it was when he was down to 15-20 food items which is when he started going to a feeding clinic, and now we have 5. And even those 5-6 are just a game of roulette. I want to take him back to the clinic but I just dont feel that anyone can do much more for him. I was waiting for my husband to be laid-off for the winter season to start the priobiotics just in case there's a bad reaction. He just got laid off last week, so I guess it's time. Maybe you and I could be "priobiotic buddies" to help keep each other sane?? I haven't bought enzymes yet. Guess I need to get those. I'm just terrified that I'm going to buy this stuff and he'll refuse to take it anyway. We've went through this will protein powder and nutrional supplements. But I guess at this point I have to do what I have to do. Why does it have to be so hard???? Blake is very high functioning, speaking really well, motor skills doing well, even his social deficients are slowly coming along. But I'll tell you his sensory, stimming and OCD issues are so intense that I have a hard time being happy about the other areas. Is this what you were looking for Shandalyn?http://www.autism-pdd.net/forum/forum_posts.asp?TID=33520&am p;PN=0&TPN=2 OH MY GOSH! NorwayMom, you're my hero!!! Why didn't my search come up with this?? Either way, I am unbelievably appreciative!Shandalyn, googling is my specialty. I googled the words Tyson and recipe and limited the search to our forum, and voila. The forum's search function really only works for topic names, so I use google to search within in message content. This is how I phrased my google search: site:www.autism-pdd.net/forum Tyson recipe OMG Shandalyn, I don't know what we are going to do with our kiddos but I feel your pain as well. I have been giving him gluten and casein because I can not just see him starve. I am watching him intensely too to see if any changes occur but I just am so relieved that he is eating. Yesterday I tried giving him some chicken nuggets and fries and he ate 2 of the fries. I also gave his brother a grilled cheese sandwich that I cut in half for him and ds actually grabbed half of his brother's sandwich and ate the entire thing!!! He had only eaten two small pieces of pancake in the morning so I could not stop him from eating it because I was so happy he was eating something. I already ordered some enzymes from kirkman and hope that it will help him and hopefully he will not have to stay on the diet. I have to see about the probiotics because the last time I tried he regressed so much. I might see if he will give the soy yogurt a try, again. He didn't like it last time but who knows, maybe he will this time. Thank you all for your responses and I hope these enzymes get here soon. |
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