Fragile X Syndrome HI my name is Lisa and i have a 6yr old son (Conner) who was diagnosed with Fragile X Syndrome, and im hoping i could find some parents who has a child or children with the same, that i could share any info and/or help each other! Conner also has other dx's like PDD,and im Bipolar so im sure there's a little bit of that in him too! I live in South Amboy New Jersey, so if theres anybody local who would like to get together for a play date or focus group to share any info and help in anyway! i have no life and im trying to get one so help me out if you can im sure you know how hard it is to raise a handicap child! Thank you Welcome Lisa - I think we might have other board members with Fragile X. My son does not (he was tested) but I do have a friend who has fragile x as well as other members of their family. From what I understand the severety of fragile X depends on the number of permutations. My friend's family has a low number and apart from some anxiety and a few minor health concerns (osteoperosis, parkinssons type stuff in older male with fragile X and early menopause for women)- they are all doing very well. It was kind of a fluke that they even found out but it is helpful they did because permutations will increase with each generation. I assume that you and other family members were advised to get tested after your son's diagnosis. How much is your son effected by fragile X? Do the docs feel that all of his pdd -nos is due to fragile x alone? As you already hinted with bipolar also being in the family it is sometimes hard to figure out what is due to what. Anyway -this is good place. Stick around and welcome again!
	Copyright Autism-PDD.net