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OAT tests and any other tests...

Hi,

We've been planning on getting the OAT test for Katelyn for a while now, but just haven't gotten around to it.  Now we finally decided to actually go for it, but since she is already GFCF, I've heard that the testing would not be accurate since she doesn't have casein or gluten in her system now (thanks, JulieA). 

So, what do we do?  I would hate to put her back on gluten just to get the test done, especially given all of her bowel issues as it is.  We wouldn't put her back on casein because we recently found out she is lactose intolerant, so she can't have milk products anyway.

Are there any tests out there that we can do while she is GFCF?  We were hoping to find out if she truly needs to be GF, but now it seems that we can't unless we reintroduce gluten to her system

Thanks for your help!

Hmm, is there a reason you want the test if GFCF is working for you? I have been reading a ton of studies lately, and most are saying if symptoms leave with the diet, you don't really even need the testing. Symptom trumps test result.

You could do a peptide test, but you might want to research if you need to be off the diet for accurate results. We did this with my son.

That's pretty much our developmental pedi's stance.  If you have a symptom change with diet change, then there's a probable relation.

I think I may have confused you.  lol  The OAT test and the urinary peptide test to determine whether your child can't digest gluten or casein are two different things.  The OAT tests for yeast, bacteria, etc.  The urinary peptide test is the one that tests for the intolerance to gluten or casein. So, you can still get the OAT test done, and it will tell you alot.  Make sure you get the full OAT, and not the microbial OAT (tests for not even half as much stuff as the full OAT, and the full OAT is only an extra $70...that's if you pay out of pocket.  They take some insurances). 

I WOULD NOT reintroduce gluten.  First off, it would take several months of gluten in the diet for the peptides to be in the bloodstream again.  Second, if Katelyn has responded well to the diet then it's safe to assume that she does have issues with gluten and casein.

The only reason we did the test was because my husband flat out refused to cooperate with any kind of diet until he had "proof" that it needed to be done.  I would try to pull Adam off of milk, and my husband was feeding him yogurt, pudding, cake, sour cream, etc., behind my back. So, for us it was necessary.  When we had the test results in our hands, my husband finally agreed we had to do it.

Hope this helped, and sorry for confusing you.

Thanks, ladies.

JulieA, that is the thing...DH wants "proof" that she can't have gluten.  We have seen results since starting the diet, but he is thinking it was just the casein and not the gluten since she has a problem with lactose that we didn't know then.  I have attempted a few times to reintroduce gluten (small amount of wheat chex) and within a day or 2, it "seemed" she was acting differently and more stimmy.  But honestly it could be a coincidence since she has been way more stimmy lately anyway without gluten (with the small exception of taking a bite of play-doh the other day, but these symptoms had returned far prior to that)...I'm wondering if it is the Dulcolax or something because I think it has been since adding that that she has had more stimmy.  Again, it could just be a coincidence. 

Will the OAT test tell us anything about foods or would we need to get the peptide test?  Like, what about other foods, corn, rice, etc.?  Is it worth getting a test for the other foods?


edited for content

amie40126.5116666667
 
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