Short Update

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	Had ARC meeting this past Thursday. We now have a BIP in place and are working with Jacob's OT on a sensory diet. I'm not 100% happy with the BIP, am working on it though. Did talk with a Protection and Advocacy attorney over the weekend and she agreed with me on a lot of issues and told me how to go about getting what Jacob needs. She also gave me her card and told me to call her if I need help. Have a doctor's appointment for tomorrow...will be talking about either upping or switching his medicine. Will let ya know how that goes. Good Luck tomorrow, sounds like good news with the BIP and sensory help. I hope you see some improvements when all services are in place.   Doc is not at all happy that the school seems to be trying to push everything to a back burner ( so to speak ). I wouldn't put it past him to get in touch with them...lol. ( his daughter is on the spectrum too...classic autism ) We did up his Risperdal. Now, we wait and see. *sigh* IT's great that you have a doc. who understands! Hooray for an advocate, and i hope he does call...LOL Hope the increased Risperdal helps. me too...lol to all of it... just a quick update.... after a week of increased dosage of Jake's Risperdal....he has improved at least 80% across the board!  This is so GREAT, I am so happy for you and him. thank you Loki. Unfortunately, he's regressed somewhat in his behaviors. I've noticed a lot of mood swings at home and  A LOT more stimming lately. Not sure why...but am trying to figure it out. Slow, slow process though as Jake either can't or won't talk with me about his emotions/sensory needs. So, I wait and I watch and I try to help when and where I can. Talk about a roller coaster ride! We've been up and down so much since my last post that I ready to get off this ride ( haha ).  I've been reading a lot ( A LOT ) on here and am thinking that perhaps Jake's doctor and I need to talk about his meds. Both the Daytrana and the Risperdal, maybe one or both need adjusting or switched? I don't know.  Just seems like we are having more bad days than good here lately. On an up note ( a few of them actually ).... Jake is getting a therapeutic aid this fall. Might be sooner, there is a 3 - 6 month waiting list.  The aid is even going to come to our home and work with both of us. Weekly visits for as long as we need them. I am truly psyched about this. Jake's psychologist at school is doing a referral for a ped. psychiatrist! Can't wait for that to start. And...Jake is going to summer camp this year. It a place in Indiana that works with children with developmental delays, ASD and so on. From all that I've read and been told, it's an awesome place and and an awesome opportunity for Jake. It's called Englishton Park for those who want to know Work with the Risperdal if had shown promise.  It took us a year to get our son on the proper dose for him (6mg/day) and we added Buspar and Tenex.  This was 6 years ago and we have not had to change the dosage since, eventhough he has gotten way bigger.  The minute we got to the optimal dose of Risperdal, his aggressions stopped.  STOPPED.  They have been really nonexistant since.  When meds work, they work. Sounds like you've got a keeper in your doctor.  Stick with him.We are headed back to the doc on the 28th. I want to talk with him about taking him off the Daytrana and trying a non-stimulant med for the ADHD symptoms. Everything I have read on all of them say that they can/may increase aggressive behaviors. Maybe just switching this will help. But, I also know that he is probably going to up the Risperdal. Good Luck, hoping you find something that works well for you soon.
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