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Ky’s 24 hr VEEG

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Personal Note: If you are going to see a pediatric Neurologist for Autism, I don't recommend CHOP(Philly). I felt as though they dont deal with "official diagnosis" of autism, they push you off onto a developmental ped.
I felt like an autistic child myself because every doctor and nurse that came in the room I had to keep repeating myself and then going over the medical history I'm being told "Well, let's hear about the seizures". EXCUSE ME! I was getting frustrated! The neurologist was a real winner. When I was discussing her other symptoms I felt as though I was totally being blown off(when I was even told down in the Neurology Clinic by her CRNP to bring our list of concerns to the 24 hr) yeah what a help that was. The neurologist told me, that it could be because of Autism and her Noonan Syndrome. When I tried producing her with materials on Noonan Syndrome she was like that's ok, I'll look it up on my time. She also went on to say that alot of kids with Autism have abnormalities on their brains and it could just be just that, she wasnt even going to do the full brain MRI if I didnt push! She didnt sleep at all which isnt surprising and when she would take a cat nap here and there you could see some spikes.
She was able to reproduce those "events" and some other odd behavior while being hooked up . . . the results . . .

NO SEIZURES!!! Everyone that walked into that room saw them. And as much as I dreaded them, I was hoping we could figure some things out. We are not out of the woods yet. The scary thing is, her EEG did show abnormalities(which the neurologist wants to push off on to my daughter's other medical issues like every other specialists does). We have to meet with our pediatrician and also go for a SEDATED FULL BRAIN MRI!! She is now what they say seizure prone because of these abnormalities so we are hopeful the MRI will provide us with results. They are sending her to try and rule out the abnormalities and to rule out Arnold-Chiari Malformation Type 1. Her ped. listened to me more than the neurologist. He told me he wants a copy of that MRI, he also wants to send her for a chest x-ray and a CBC, complete metabolic panel and a sed. rate. He said they didn't do any of this, our answer "nope, we felt blown off" so thank god our ped stepped in and is now helping us instead of us being pushed off on the other specialists.
http://www.onetruemedia.com/otm_site/view_shared?p=7f98bc4ee 749de1d0f4004&skin_id=701&utm_source=otm&utm_med ium=text_url
(((hugs)))) Those Dr's are wacky!

Let us know how the MRI goes!

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	Back to Autism Information >> Next Topic
	Personal Note: If you are going to see a pediatric Neurologist for Autism, I don't recommend CHOP(Philly). I felt as though they dont deal with "official diagnosis" of autism, they push you off onto a developmental ped. I felt like an autistic child myself because every doctor and nurse that came in the room I had to keep repeating myself and then going over the medical history I'm being told "Well, let's hear about the seizures". EXCUSE ME! I was getting frustrated! The neurologist was a real winner. When I was discussing her other symptoms I felt as though I was totally being blown off(when I was even told down in the Neurology Clinic by her CRNP to bring our list of concerns to the 24 hr) yeah what a help that was. The neurologist told me, that it could be because of Autism and her Noonan Syndrome. When I tried producing her with materials on Noonan Syndrome she was like that's ok, I'll look it up on my time. She also went on to say that alot of kids with Autism have abnormalities on their brains and it could just be just that, she wasnt even going to do the full brain MRI if I didnt push! She didnt sleep at all which isnt surprising and when she would take a cat nap here and there you could see some spikes. She was able to reproduce those "events" and some other odd behavior while being hooked up . . . the results . . . NO SEIZURES!!! Everyone that walked into that room saw them. And as much as I dreaded them, I was hoping we could figure some things out. We are not out of the woods yet. The scary thing is, her EEG did show abnormalities(which the neurologist wants to push off on to my daughter's other medical issues like every other specialists does). We have to meet with our pediatrician and also go for a SEDATED FULL BRAIN MRI!! She is now what they say seizure prone because of these abnormalities so we are hopeful the MRI will provide us with results. They are sending her to try and rule out the abnormalities and to rule out Arnold-Chiari Malformation Type 1. Her ped. listened to me more than the neurologist. He told me he wants a copy of that MRI, he also wants to send her for a chest x-ray and a CBC, complete metabolic panel and a sed. rate. He said they didn't do any of this, our answer "nope, we felt blown off" so thank god our ped stepped in and is now helping us instead of us being pushed off on the other specialists. http://www.onetruemedia.com/otm_site/view_shared?p=7f98bc4ee 749de1d0f4004&skin_id=701&utm_source=otm&utm_med ium=text_url (((hugs)))) Those Dr's are wacky! Let us know how the MRI goes!
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