mb12 injectionsDoes anyone use or ever tried mb12 injections? I just received ours in the mail today from Matthew's DAN Dr. Was wondering what sort of benefits others have had with this. And what sort of advise you could give me about it...ie: what time is better to give it (morning or night?) I had read somewhere that it can cause some hyperactivity so I thought maybe I should give it in the morning but then I thought well maybe it takes a few hours to "kick in" so I should give it at night. I just don't know. Never had to give injections before and certainly not to my own child. Ruth Matthew does fairly ok with speaking. He messes up his pronouns often and he is difficult to understand at times. It is easy to think he's saying one word when in reality he is saying something else. His dad has to ask me what he is saying a bit of the time. But mostly he is easily understood. However, he does not participate in things. Such as at circle time in school when they are singing songs he just stares off. Or if I try to get him to sing songs with me (like itsy bitsy spider) he will just smile at me. Although he loves to echo his favorite tv shows and disney movies. He cannot have conversations yet although if you ask him a simple question (what do you want? where is the cat? what are you doing?) he can answer. The answers are almost always one word except for the "what do you want" then he will say "I want ____ please" The other day though it was just great. We had picked him up from school and the teacher told us that she caught him singing along a couple times in circle time and she was very pleased. (we had not told her about the injections). Then the next day on the way home from his cousins he suddenly started to sing along with the radio. My dh and I looked at each other with our jaws dropped. He was singing along perfectly to country music (thats my boy We are very very hopeful about these injections. I am NOT saying they will cure him or anything. But I do think they are going to help take him on a road to recovery. Maybe a road that won't be as hilly as before. DH and I are amazed at Matthew's achievements, especially after using the injections. You mentioned that he started singing the words to a song on the drive home ... I wondered how much he normally talks. I couldn't remember from other posts you've written. Did he have a big advancement in language with the injections? \o/ very good news, ruth.. Hello, I am newcomer to the forum. Great to see other parents sharing their experience. My son was diagnosed when he was 3.5 years old. Recently I found very good center - Pfeiffer Treatment Center in IL to help children and adults with biochemical imbalances. We went to their otreach center in MD and they took hair, urine and blood analyses from Benjamin. In September I got the results and prescribtions for his treatment. The individual treatment includes in specific dosages: Vitamin C, Vitamin B6, Pyridoxal -5-Phosphate, Biotin, Magnesium, Chromium Polynicotinate, DMG 125 gr, Zinc, Vitamin E, Cod liver oil and I was prescribed these B 12 shots. I'll have to start these shots in 1 month after the main treatmant starts. After reading these posts (and many thanks for the video) I'll surely do these shots for my son.
Dilya, I am so glad you are going to give it a try. Just remember things can get worse before they get better. Please keep us posted I have seen Dr Neubrander's videos and wondered about it, but never read anyone on here mention the shots until now. Amazing! I am SOO thrilled for you and Matthew. I'm wondering how in God's green earth I could ever give a shot to Luke. Like, without him completely flipping out. Maybe we could hire some nursing student to come in and do it? 
Oh believe me it is NOT easy. Matthew is a VERY strong boy and he fights when he sees me w/that needle cause he knows whats coming. They suggest in the videos to wait till they are sleeping and a friend of mine actually does give her daughter the shots when she's sleeping. But I know Matthew and he is such a light sleeper if you breath on him wrong he wakes up so I'm not chancing that. My dh has to help me hold Matthew down and I give them to him that way. Its over quickly and Matthew actually likes the fact that it gives him an excuse to have a batman band-aid. Ruth, I find this very interesting....and I'm SO glad that you're seeing positive changes in Matthew already!
Matthew has been on multi-vitamins (super nu-thera), cod liver oil, and chelation since early August. At the same time we put him on the gluten free diet. However, since then we have taken him off the diet as we did not see any benefits and frankly because he stopped eating almost completely. I know alot of people will say that this was because he was going into withdrawal from the gluten but I think after 2 months he should have at least wanted to eat something that was on the diet. Instead he would go all day and not eat except maybe a few bites of bacon. And he was having trouble sleeping again and I really think it was because he was hungry. One day I decided to just let him have a slice of pizza and that night he slept through till morning. So the next day I took him off the diet. He is still on all the suppliments and even if/when we stop the chelation I will continue the vitamins. He usually gets a pretty bad cold after starting back to school and this year even after I ended up w/broncitis all he got was one day of some tiny sniffles and then he was fine. I think it is due to the vitamins. Sorry this was probably more info than you asked for No, not too much info! We didn't have any pos. results from the GFCF either, I think it just works for some kids and not others - don't ask me why!?! Well in case anyone was curious I did the injection 3 days ago. No side effects at all. As a matter of fact it seems like he is sleeping better at night, no tossing and turning like before. And the really great thing is we didn't tell his teacher about it and today when she put Matthew in the car she said it was strange but that for the last 3 days Matthew has done GREAT in class. Not just good but great. This can't be a coincindence right? I mean this teacher is really critical. She wouldn't say he's done great if he hasn't. And for it to be the exact time frame of the injection gives me hope that we've hit on something big. Ruth
Wow, this is very encouraging! I'm so happy for Matthew (and you!) and hope that he continues to flourish...it sure makes you wonder, can it really be that easy??? Oh I just want to say I know there are ALOT of videos on the website to watch so here are a few that stuck out in my mind. The ones titled: Jackson, Oral, Sublingual, SubQ? February 2005 Matthew Meets Mickey and Quality Of Life, February 2005 Max, The scariest decision I ever made, February 2005 Colin, The Butt Made The Difference, February 2005 Johnny, I don't wanna do this, but you gotta hear me, February 2005 Michael, MB12 Fails!, March 2005
Ok I am just ever so hopeful about these shots. I mean there are just too many great things happening with my son in the last 4 days since starting the shots for it to not be a good thing. We just got back from a trip down to Ft. Lauderdale earlier today and on the way home the radio was on to keep me awake while driving. All of a sudden Matthew starts singing along to the radio. WORD FOR WORD. Not just humming or pretending he's singing the right words but actually singing along. (Now I know Matthew really likes the country music I listen to So...I'm gonna give some info to parents out there that are interested. I will be giving Matthew his shots every 3 days (gave him his 1st one on Tues. and then his 2nd today..friday). The shots are 25 mg's a piece and I give them to him in his upper buttock (thats a real struggle believe me). Here is a website that shows alot of videos of mothers (and the kids) talking about giving their children the mb12 injections. This is just one dr who can give the shots, we actually got ours from Matthews DAN dr. After watching the video's with tears running down my face I called Matthews dr and asked her to prescribe the shots for Matthew. I am soooo glad I did. http://www.drneubrander.com/pageHistory.html I also want to add that I also really liked the fact that in his video the doctor says absolutely that this is not a "cure all" for autism. But states that it has helped 94% of the kids he's treated in some way. And I really liked that he also had a couple mothers on there that said the mb12 injection did not help their child for whatever reason. Good to hear you find our videos helpful. As a side note, Jim will be talking about the mb12 protocol on BioChat Thursday Nov 3 at 9:00pm EST. BioChat can be downloaded from our website from the Chat/Forum Tab Also, I answer questions about the mb12 injections at the autism web forum.
Rick Neubrander Danyasdad: You asked about lead poisoning. Your child's regular pediatrician should be able to steer you in the direction for that. Either they'll draw blood or they'll direct you to a lab that draws blood to be tested for lead. Good luck!We did ... son was within normal limits on lead. Ummm ok how can I put this w/out offending anyone. I do NOT mean to sound like I am superior or anything. Because believe me I have soooo much to learn. I just want to say that I have always said that I would do ANYTHING...anything at all (except for something that would be a danger to him) to make Matthew better. And that is still so completely true. To me if shots are whats going to make him better then I would give him a shot every single day not just every 3 days. Now that I've said that I will also say that most parents give the shots while their child is asleep. I don't b/c I know Matthew and he wakes up if you breathe on him wrong. Also their is a numbing cream that you apply about 45 minutes before the shot and then you give it. It completely numbs the skin so they don't feel the needle. [QUOTE=kaviar]Danyasdad: You asked about lead poisoning. Your child's regular pediatrician should be able to steer you in the direction for that. Either they'll draw blood or they'll direct you to a lab that draws blood to be tested for lead. Good luck! Thank you. Did everybody here have their children checked for lead posioning after starting to suspect autism? You should look at the posts on this message board: http://www.autismweb.com/forum/viewforum.php?f=4 There are lots of parents on there that are doing the mb12 injections and they give some really good advise and some wonderfully hopeful stories about their own experiences. I am happy to hear that your son is doing sooo much better! I am sure you are all living a happier life now. I just don't think I could give AJ shots..not to mention every 3 days! I had one heck of a time trying to get a sliver outta his heel..i even held him down so hubby could try. Hubby got it opened up and I just kept giving him baths and putting peroxide on it. finally it came out. I am rather squemish when it comes to needles. Cheers to you for being able to do something like this. I hope your child continues having great success. Please keep us posted on how well he progresses. :)Ruth, I wanted to thank you so much for taking us on this B-12 journey with you. It is very enlightening. I watched Dr. N.'s videos about 6 months ago, but hadn't decided yet if this was for us or not. I still don't know for sure, but knowing that somebody I "know" is using it is very reassuring. Many Mahalos Renee I'm not sure I understand exactly what you're asking. My son gets his shot every 3 days. This is an ongoing thing, it is not like a medication you get for an infection where you only take it for a couple weeks. Someday he may be able to stop but that is usually very very far down the lane. And sometimes they have to take it forever.[QUOTE=momtoMatthew]I'm not sure I understand exactly what you're asking. My son gets his shot every 3 days. This is an ongoing thing, it is not like a medication you get for an infection where you only take it for a couple weeks.[/QUOTE] Ohh, I didn't know that, I was hoping that this treatment would someday end. [QUOTE=momtoMatthew]Someday he may be able to stop but that is usually very very far down the lane. And sometimes they have to take it forever.[/QUOTE] What do you mean by usually? Do you know of cases where the children were more or less cured and the injections were stopped? I live in NJ so I may actually call this Doctor soon. Sorry for my questions if they are annoying you. I am not a native speaker of english and unfortunately my 2.2 yo son will be most probably diagnosed with autism spectrum in two weeks. We have an appointment with a neurologist. By the way, Does anybody here know where I can have him checked for lead poisoning? It looks like I will be spending a lot of time on this board in the next few years. I know our lives are going to be tough but we should never stop having faith and hopes for a miracle cure someday.
I don't like to say "cured" but I think "recovered" is a good word. Meaning the symptoms get to be less obvious. There are children who recover enough that they seem to have no symptoms of autism. And that is what I hope and pray for with my son. As in the videos the dr describes the shots as similiar to a diabetic needing insulin. If you stop the shots they could regress and go back to having the symptoms. But that is not to say that someday they may be able to stop taking the shots but that could take years. You are definetely NOT annoying me. We are all in this together and although I'm only a "mom" if I can help in anyway I am glad to. I am jealous about where you live. I would absolutely love to be able to visit Dr. Neubrander. But unfortunately right now we just cannot afford to pay to fly up there and pay for the dr's visit. Please don't hesitate to ask if you have more questions. Does anybody know how many shots will have to be made as part of this treatment?
I am really excited about the B12 shots. DH and I decided to wait till our dd got the results of her labwork back before administering it to her. We will start injections the end of this month. All the parents I know of locally who gave their kids the shots noticed a difference. The differences varied, but in the end their child's social and communication seemed to increase.Jenni, please keep us posted when you start the shots. Will love being able to talk with someone who is doing it too.  \o/ thank God for Matthew!Ok just to update: Matthew seems to be doing better and better a little at a time. I think its a combination of mb12 and other suppliments we have him on. He is calmer (still hyper but just a little relaxed about it now), he is answering slightly more complicated questions, and giving more in depth answers, he is more affectionate towards daddy (used to have to beg to hug daddy), he is screaming less, and seeming to focus more. Overall we are very happy with his progress since beginning all the suppliments (b12 included). I can hardly wait till this time next year, I just know we will continue to be amazed.Numbing cream? Did your doc prescribe it or do you get it over the counter? We have started giving Helon hermb-12 shots early in the morning cause it seems to wake her up. A numbing cream would be great. I have to agree that the mb-12 has definately made my Helon much more focused/ engaged to her surroundings and verbal. I know of several other children who have had the same experience when given the mb-12 shots. You can read about the mb-12 shot here: http://www.tacanow.com/Methyl_B12_Treatments.htm [QUOTE=momtoMatthew] Ummm ok how can I put this w/out offending anyone. I do NOT mean to sound like I am superior or anything. Because believe me I have soooo much to learn. I just want to say that I have always said that I would do ANYTHING...anything at all (except for something that would be a danger to him) to make Matthew better. And that is still so completely true. To me if shots are whats going to make him better then I would give him a shot every single day not just every 3 days. Now that I've said that I will also say that most parents give the shots while their child is asleep. I don't b/c I know Matthew and he wakes up if you breathe on him wrong. Also their is a numbing cream that you apply about 45 minutes before the shot and then you give it. It completely numbs the skin so they don't feel the needle. [/QUOTE] Would love to hear an update regarding Matthew's progress!!!! |
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) then he follows me around the house while I look for it. Last night I said "where is it" and he pointed to a bag he had put it in and said "there it is"
I probably know this from other posts, but it's hard to keep every body straight. Is Matthew also on any other supplements / diets like Super-Nu-Thera or GFCF - Or has he been on them in the past?