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"update on the journey"

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 well since my last battle with the methlylin. i continued to work with it but had to the last straw when i gave it to him just before family members came over for thanksgiving. but he went off the hook,he was very over stimulated by it ,hugging and squeezing the life out of anyone he could get his hand on and litterally jumping off the highest piece of furniture including counter tops and furniture and that very loud verbal stimming with lots of jumping. well that was it i stoped giving it from then till today.today we had an appointment for follow up and i was sure i want him off it and on something else the doc said she was concerned only because what i told her was not a typical reaction and how usually when the med wears off he should go back to his normal self and he was not but my responce is what if that is his new norm and thats why. so then she sugguest i leave and give him a week to see if he goes back to himself. but then he had a major meltdown, aggression, violent ,danger from climbing on everything in her office . i told her i cant deal with it anymore and i felt like i should drink the methylin !but then out of no wear she saw the light and decided to give us risperidone. so i will start with it in the am.It's not at all unusual for a child on the spectrum to have a negative reaction to ritalin types of drugs.  For some, they are a miracle. For others, they just increase they symptoms.  Is your doctor an expert in autism?  Only doctors with knowledge of  autism and experience in medicating our kids can really do the job properly.  That's because ASD kids often have atypical responses to medication and doctors have to have experience with this. Medicating our kids is more art than science.  My guess is that the doctor has little experience in this areas and has recommended risperdone just because she's heard it works well with kids with asd.  It often does. It's the only drug that is specifically recommended for use with kids with asd. However, I would not give it to a child without the recommendation of an autism expert.  Ideally, a child psychiatrist.  Risperdone might be the perfect solution, but it certainly bothers me that the doctor seemed to recommend it so blithely. Your child might be really helped by the right medications, but I'd choose a doctor who is more hands on and experienced.My son can not take stims. They make him mean and aggressive and he isn't like that.

I updated my thread on our experience, in the Vaccines and medications forum.

Sonia, I hope you can find something to help -- don't give up!  Sometimes the difference is in timing ... or FOOD, or NOT FOOD with the dose, or formulation ... good luck!

 well i gave it to him this morning for the 1st time.it is in liquid form again, I wish someone had warned me that it was so bitter.he got read to guzzle it like the methylin and i saw this shock,digusting look on his face and a dash to the bathroom to rinse out his mouth then i tasted it.he normally dont take meds of anykind and i was able to get him used to the other one but i think this ruined it for tommorow.now i think i will put it in something but the amount is so little just a pinch .25m, i wonder if he got any. well this morning about 7:30 was his first dose and i not sure how much if any went down.

Also the teachers note home stated he slept after lunch and missed snack but would not wake up and they were finally able to wake him by time to go home so i dont know what to make of this i will see. so he did nothing in school after lunch .now he is just eating crakers which is norm.

Try evening primrose oil it could help. Ma in training.
 
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