Dev Pedi Appt/EEG/Disability?I think that if your turned down there may be no income limit on Katie Beckett waiver. Income limits for couples who apply for ssi are, 3000.00 (income limit), or 2000.00 per month single. Some states do a waiver, based on income. Others do not. In other words, some states will waive a parents extra income (like, you make 3500.00 instead of 3000.00), but mine doesn't so it depends on state. Also, there is a medicaid buy in which, I would talk to someone versed in the new ssi laws before knowing what to expect. We get ssi for 3 of my 5 kids. Sean was a struggle because his disability is so complex in dx. Colin and Taylor got it immediately. Finally, they just sent their own Psych to evaluate Sean, here in my house and he was approved immediately after her visit. They have their own PAID experts that look at a piece of paper the doc submits, have a chart that they go by and decide, without seeing the person or child, if they DEEM the child disabled. It is best to keep fighting, and even get legal help if you get turned down a second time (which is very common--the laws have changed so much in the past year, disability has been known to be turned down twice). Things are not included in your assets, like your home and ONE car, funeral trusts, etc. Also, when determining your income, they have a formula that deducts things like, your mortgage, your utilities, your monthly expenses for child care, etc. SSI is federal but some states have a "cost of living" amount added in. If you go to www.ssa.gov and click on SSI--apply for benefits, it gives you the guideliines. You can do a preapproval right online which will tell you what benefits you should receive. It also lists the states that give the extra income each month. Mine doesn't. Mass. did. Even if your pre-application says you don't fall under guidelines, apply anyway. There are all sorts of advocasy groups that will help with medicaid buy ins and, I have been TOLD (don't know for sure) by two experts that deal in this that, even if you don't get the SSI check, you should get medicaid. Just talk to a professional. The consultation is free, and autism groups have free advocates on hand to answer all questions. As far as I understand, straight disability is not available until age 18, when the child becomes a legal adult. As I said, I am learning as I have gone along in 14 years and keep up with law changes but, I am not an expert and it is best to consult one that knows every loophole, every law before giving up if you are turned down. Keep pushing! Medicaid pays for things no insurance company will--and is much needed for our kids. Here is the info on KB Waiver: http://www.lgtinc.org/articles/191/1/Katie-Beckett-Waiver-Fo undation Let us know how it turns out!
Good Moring Our Dev Pedi appt went well yesterday. Jack is keeping his primary dx of Mild Autism at this point. The basic Q&A time. Lots of talk about communication, etc. The Dev Pedi did remark that based on reports and a test in the office that Jack is exhibiting some signs of ADHD, and to keep an eye on that. She explained that it can go hand-in-hand with ASD? Jack is currently getting 3x ST and 3x OT per week, plus 10 hours Special Ed PreSchool....which she is happy with. But I told her that I really wanted to get Jack back into Private ST/OT on top of that...but that even after winning 1 past years worth of OT costs from my Company after 2 appeals, and winning 1 past years worth of ST costs after FIVE appeals, that I was worried we couldn't start again in January (only 40 visitis per year anyway, which is less than I want) due to this ongoing battle. She told me to:
Adt that that would cover 1-2 Private ST/OT per week. Anyone ever heard of this? She also said he just MIGHT get disability, and that was great too because we could use that for Private ST/OT. So that's our new project. I'd love to hear from anyone who has done this. She said that income isn't a factor, is that true? Also, the EEG went BETTER than expected! Results back on Monday!!
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