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So I have heard a lot of different stories, talked to a physician who was against the idea and have found LOADS of info about the potential risks. http://www.chelation.org/side-effects-of-chelation Has anyone found info about this? does anyone have a child that was cured after going thru this because it seems like an awful BIG risk to go thru. Please someone enlighten me. I think that sight you referenced pretty much says it all...... an experienced physician to oversee any chelation program is essential. Both myself and my two children are currently chelating and we are fine. Great, in fact. And, the referenced deaths were in the fifties. The only other deaths I know of from chelation were due to physician error and once again, that goes back to researching your Dr. and making sure they know what they are doing. And yes, it is worth the risk. In my mind, it's no more dangerous than chemotherapy, really... not to mention that the side effects of chemotherapy are as bad if not worse. But would you hesitate to put your child through that if a Dr. recommended it for cancer? I don't know of a child who was all-out cured through chelation, but I know of quite a few who have seen huge gains with it. And yes it can be risky, but any medical procedure can if it's not done by a good doctor and with adequate supervision. To my knowledge, there has only been one death in recent years due to a chelation error, and it was most certainly human error, not a problem with the procedure itself. I don't know whether or not we'll chelate my son, but if his tests show metal toxicity and I trust the DAN doc we're seeing later this month, you better believe we'll give it a try. Thanks for clarifying the number of recent deaths Janie.... there really has been only one death from chelation recently and it was definitely the error of the medical staff.You are right. Those were all good views on it. When doing research (frommy own opinion) I don't know that I would take the risk. It is without a doubt a controversial treatment. If you look into it tho no chelation therapy of any form is FDA approved for treating autism. I'm not sure that uncertain benefits are a good enough reason to put a child thru the risks. Have you done regular blood work to see any changes? are you 100% sure that the treatments is whats making the difference? I think all meds, biomed or pharm, have risks. Risperdal is very risky. So are the antidepressants, clonazepam, etc. That is why I am going vitamin route until I can get taylor's weight to go down. I don't know what chalation is but gonna look it up now--I can tell already though, I wont be doing it. Lost one child already. Can't risk it again--I wouldn't make it through another. God Bless, Kelly [QUOTE=Orthodoc]You are right. Those were all good views on it. When doing research (from Of course chelation is not an FDA approved treatment for autism. It is however an FDA approved treatment for heavy metal toxicity and the children with autism who are being chelated have heavy metal toxicity. Let's say that you were exposed tomorrow to a very toxic level of lead while you were scraping paint at your (hypothetical job). Let's also hypothetically say that you have a heart murmur. What would you do if your Dr. said.... Oops! Sorry, chelation is not an FDA approved treatment for a heart murmur. I'll tell you what you'd probably say..... What the h*ll does one have to do with the other??? Well, that's exactly what I say.... How come everybody else who has heavy metal toxicty is FDA approved for chelation treatment if they have heavy metal toxicity but not kids with autism? Huh? Maybe because if the FDA approved chelation therapy for kids with autism they would have to explain WHY so many large numbers of kids with autism need to be chelated!!! Ever think about it from that angle? As far as I'm concerned, when it comes to my kids and the amounts of mercury, lead, cadmium, arsenic, etc., floating around in their bodies....one has nothing to do with the other. Chelation IS an FDA approved treatment for heavy metal toxicity, and my kids are heavy metal toxic. The autism doesn't even come into play. I am not a fan of the FDA either--cuz they take too long to approve anything and don't agree with hardly anything that is alternative. It isn't chel. that I am afraid of. It is all the heavy drugs the docs keep throwing her way. I just worry about reactions--I should be named MURPHY--I live by murphy's law--if it is gonna happen, it will happen to me..so trying to be overly cautious with pharm stuff. [QUOTE=Janie]I don't know of a child who was all-out cured through chelation, but I know of quite a few who have seen huge gains with it. And yes it can be risky, but any medical procedure can if it's not done by a good doctor and with adequate supervision. To my knowledge, there has only been one death in recent years due to a chelation error, and it was most certainly human error, not a problem with the procedure itself. I don't know whether or not we'll chelate my son, but if his tests show metal toxicity and I trust the DAN doc we're seeing later this month, you better believe we'll give it a try. [/QUOTE] When my 4th child died, I started a website (now gone but it was childloss.com). I allowed links to every form of death for children. I gotta tell ya, it helped thousands but--it made me paranoid. Reading all the deaths and how they died--I am glad, now I put it down and just let that site go. Maybe that sounds selfish but, the season's changed and I had to just let go. So, I am afraid of the medical community. I admit it. I have 3 kids that were messed up by docs making bad dx's and, possibly one that was made worse by a surgery that he bled out too much from. And this surgeon was one of the top in the country so--I am afraid to try anything and put my trust in a doc. It's awful to say but, I research and talk/read other parents and then, go by my own pros and cons, checking my own statistics to see what has worked and what has not. I don't think I can trust a doc fully--and, that might be a bad thing cuz, my kid is probably very heavily metal toxic--I know the thermisol is in there somewhere, to name just one.l Please keep posting about it. Maybe I will find one that I can trust enough to try it, if it seems to help. I will be seeing a DAN doctor in a few months, and I have opted to do the heavy metals testing. Depending on the test results, I will have to weigh the pros and cons, but since I believe that the Rhogam shots I took with my first child and second (they are only 15 months apart) is what caused my son to be autistic I would definitely consider it. Julie, you make a very good point, that if they admit that chelation should be used for Autistic kids that then they would have to admit that they poisoned our kids. I hate the fact that we are told that we have to immunize our kids but then they don't take any of the responsibility. Just my personal opinion. How do they test for metal toxicity?? Is it through blood tests? Or maybe hair analysis? Something else?I'm very curious about this because we had DAN Dr. and ds blood was tested for practically everything (so I thought?) 17 vials of blood. It all came back ok. The next thing suggested was allergy treatments. Dr. never said anything about chelation route. I guessed that was because his blood looked okay? We don't see this Dr. anymore, so I really can't call and ask these questions. Anyone know? From what I heard is that it is done either by hair analysis or a blood test. We have not done it yet and don't have much information yet. The best most reliable method of testing is a urinary porphyrin test that will show the bodys heavy metal burden that has built up in the kidneys. A blood test is not reliable as heavy metals will only hang out in the blood for a month or so and then they settle into tissues and organs so unless there has been a very recent exposure a blood test will come up negative. Likewise, a hair test is typically not reliable as there are very, very few physicians, or even labratories who know how to read them accurately so they tell you the sample is okay, when really it is not.... A urinary porphyrin test can be ordered without a Dr.'s signature from This lab is in France, but they basically pioneered this urine test and they are the most reliable lab to do it at this time. The cost is about $125, plus the cost to ship it over there, which is just a few bucks if you ship it regular US mail. |
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