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I just found your other post about KU in KCK. Yeah, you are right. The KU out my way is a University that has students in the master program that work with Autistic kids. I think you are talking about KU Medical Center, we went there to get the diagnosis but nothing after that. The University does mostly therapies like ABA and gathering information for research but not medical piece, it works for us because we don't have our son on meds (at least not yet). We have seen a DAN doctor a long time ago and we have another appointment with him coming up (he specializes in allergies, but I am going to have Caleb tested for heavy metals). I did not know that KU med or CMH did any type of therapy after the DX is made so that I definitely something to look into, if not for me, for some of the other parents who have autistic kids out my way (the school system has a pretty good autism program out here so we have quite a few families out this way). Thanks, Leslie LG, the KU-Lawrence behavioral science program is the BOMB. B. Smith-Myles is there -- she has written many important papers on autism and is well-respected in the field. KUMed is run by the Child Psychiatry Dept. Thier primary activity as far as I have read is simply diagnosis with a detailed report and in many cases no followup is suggested. We went to KU Med. There is follow up appts made but, as I said, the wait can be anywhere from 1-3 hours to get in. It is for adults with intellectual disabilities AND children so, the waiting area is made up for adults. They have a playroom but, it has nothing in it that is complete--toys are either missing parts or broken and there are very few. They have a chalk board and that is it. They usually do a follow up in about a month to 3 months, depending on the treatment they give. Problem is, most appts run in late morning, when it is the busiest because, that is when the Autism specialist is available--she has staff meetings and conferences before then. By 11 am, the room is jam-packed and they don't have that many interns on staff to do intakes before you meet with the specialist. I will have to find my way out of this area and down to Lawrence to check out if it is worth the ride. With 5 kids, 1 in high school, 2 in middle school and youngest two in elementary, scheduling is the problem. Each school gets out at different times and goes to school at different times. The only one I trust alone here, is my oldest. My house would turn into a jungle if I let Ryan have the house alone for a few hours..lol I am waiting for SRS to get back to me about services, after my little social services visit. So far, all I hear is that, OP is tapped on funding for all services and there are waiting lists. Even the salvation army is out of money. It's ridiculous. Anyway, there it has to get better--doesn't it? Humor me, will ya? God Bless,
foxl, Thanks for the encouragement, I am glad to hear they have a good reputation. Way back in the day, about 9 or 10 years ago ECAP had a program at the dole center that serviced about 4 or 5 kiddos on intensive speech and behavior using the ABA method. We were lucky enough to get my son in this program from 2.5-almost 5, but hadn't been in much contact with that group since then until this new research project came up and the person running it knew the person that runs the autism program at my son's school and recommended us to go there. We are pretty excited to see what is going to happen and how this will help. Thanks, Leslie Sounds like we have all ran parallel courses. We lived in Lansing, KS when my dd was diagnosed at KU /(we were still on a 1 year waiting list at Children's Mercy). This was about 5 years ago and all they did was spout a diagnosis and send us home with little or no information. The school district did not "believe" in autism as a diagnosis, so her IEP and minimal sp-ed preschool was not changed. We searched and searched and found the e-cap program down in Lawrence. It was too far to take her every day, but we managed to get people to write her a program and come up to supervise it. We couldn't have afforded it for too long, but fortunately only did this for 4-5 months before we moved from Kansas. I always prayed that it would get easier to get services in that neck of the woods because services were non existent if the parents weren't persistent. aloha all, Renee |
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