what can i do now?????
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Well today i had ds 2nd appointment with the psychartrist, and today we were suppose to get the prescription for the ADHD med. but instead we got the shock of our lives the EKG test that was taken on him was not good. All we were told by Dr. langer was that the dev. ped. said that the EKG was not normal and she will call us to do a referal. well someone from the office just called and said i should call and make an appointment with a ped. cardiologist, I did call but the appt. is not till october 1st. so now I am just crushed and worried sick. for once i do truely feel alone, I really do want to  I just feel really overwhelmed and a mixture of emotions that no one else could understand right now! my hubby just doesnt seem worried at all, he just so calm, so maybe it is just me over reacting but i dont even know how to feel, it just seem so hugh and like the harder i try the harder i fall. i cant even imagine what could be wrong he has no history of any kind of illness, so what could it be?First of all, (((hugs))). Colin and Sean were both "always in hospital" babies, so I know what it is like to get a test result that no one gives you answers to, until you go to the NEXT in line. The EKG can show up abnormal, even when things are normal. That is why they want to confirm it with a cardiologist--just to ensure nothing is wrong. One rule of thumb, USUALLY is that, if it is something they feel is life threatening (like, with Colin, he had all the signs of meningitis and they called an ambulance right there, at my reg. doc appt), they will send him in for immediate attention. The fact that they didn't is, most likely because they just want you to consult a pedi cardiologist to go over the results. I am not a medical professional at all but hoping to ease your anxiety a little. In most cases, an immediate referral or telling you that the hospital will be waiting for you when you get there is more severe. Please keep us up to date. Also, you can call the cardi and ask them to put you on a list that, if there are any cancellations, you would liked to be called so you can get in sooner. They will put you on a list to be called in the event someone calls and reschedules, earlier than when you are due. God bless and praying, Kelly It could be seizures. But seizures are often controlled by medication. Seizures are commong with ASD kids, tho certainly not universal.My 19yo was having what turned out to be anxiety attacks at uni, but when we went to our doctor she did an ecg and it showed something abnormal.We then had a three month wait to see the cardiologist who said that what showed up was normal for a healthy young man. That was a huge relief for him as his dad had a stroke at 47. And is very disabled as a result. So I think that doctor's just like to be sure there is nothing to worry about so they send you to the specialist. It's a shame that the doctor didn't explain why he was concerned as at least you would have had some idea of what is going on. tzoya, I thought seizures was something i would have seen or know of by now! but the whole EKG thing was stresfull for him he did not want to sit still or anthing he was fighting and we had to hold him?restrain him. I was wondering if that could have contribute to it and if so why the 2 helping with him did not know or say something. Also they were finished in less than 30 seconds and the technicians actually remarked that was the fastest they ever saw the machine printout. So now i really dont know what to think ! I am struggling to hold it to gether it has been a while since i Some seizures are so fleeting that they go unnoticed. Also, they can manifest as staring into space, which many kids with autism do a lot anyway. I'm sure if there is anything there, the EKG will show it.We actually has something similar to this with my daughter. She was just diagnosed with ADHD at this point, and her Dr. put her on ritalin. After the first three months my daughter had two episodes of her heart "kicking" her. He said I need to get an EKG done, just as a precaution. We get the ekg done at a local hospital, they say "oh, this will only take a second". She was hooked up for about 15 minutes, and then they said they were going to admit her. She had an abnormal heart rate. So, 5 hours later we go home with a referral to see the pediatric cardiologist, in three weeks. Its really hard to get appointments... After three years we still have to get ekg's twice a year, and a 24 hour heart moniter. She has a regularlly, Irregular heart beat... so as long as she isn't on any meds like ritalin, or that work like ritalin that tend to increase her heart rate she is ok. The medicine just happened to make us aware of the situation, but she has been perfectly ok. The Cardio Dr. we use normally takes 3-4 months to give us results on 24 hour heart moniters, so results can be very slow, and its extremely frustrating, but I know you can hang in there! Tzoya-- I think you're thinking EEG---the brain. EKG--the heart. even if his heart is fine and he is put on the adhd medication it can cause him to have a seizure, there are all kinds of risks i think the risk of heart problems is very low compared to a risk of seizure. even though i have hypertension i am not worried about bloodpressure i am worried about getting a seizure though.You're right -- type! EEG My son was sick with an ear infection and i took him to ER,the doc there was listening to his chest and said has he always had this heart murmur ,I said I wasn't aware of it ,he said not to worry but to take him to his family doc,she checked and recommended we go for a cardiac ultrasound,said it could be a bad valve or something. It took a week to get him in,and his heart was fine,but is scared us terribly. Keep the faith,you said your child is healthy and thriving,so you wouldn't think it could be to serious. Linda The Ped probably wanted a cardiologist to okay the Ritalin, so he is CYA-ing. Timely -- we are taking DS to the ped today for the same screening! I feel beter for having read this thread -- more prepared. |
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