B6 and increased behaviors hello out there, i am writing searching for hope and understanding. 2 days ago i volunteered in my 7 yr. old son's 2nd gr. class, I felt fear and heartbreak, he seemed so seperate from the other kids,in his own world. He started DMG a few months ago w/ improved attention, language. He started B6 last wk. and he is much less focused, increased stimming, harder to reach. has anyone seen this w/ B6, he is only getting 50mg (25 mg of magnesium)?I feel your heartbreak and pain. I have 10 yo daughter who is HFA who does not have a single friend. We have never used B6. There is a book by Jed Baker on teaching social skills. You may also benefit from having social goals in your childs IEP. It is better to start when they are young. Hope this helps.Last year I tried my son on DMG. Now, I know that it is supposed to take 4 to 8 weeks to see results. within 3 days my son was much more aggresive, more tantrums, etc.. I took him off and within 5 to 7 days the negatives were gone.
Let me say that I have tried SSRI's for my son (to my understanding you are looking at the same issues with DMG and SSRI's) and the known fact is that the majority of ASD children have abnormaly elevated levels of seretonin in their blood streams. THe Dr said it will take up to a month in a child to see results, she was srong, the second day my son was WILDLY aggresive and it continued for the 7 days I gave it to him (SSRI), the Dr said well, give it to him every other day slowly decreasing the dose for a week. On the days after he had received the dose, he was WILD. I have it on my calendar, when I spoke with the Psychiatrist and told her his behaviors had improved overall, well he still has the med in his system and will for at least 2 weeks, I dont care, I saw with my own eyes and I recorded it on my kitchen calendar- he reacts within 12 hours to this medication and to the DMG and the symptoms are the same and they are not good. I dont know if you would be willing to try to take him off the DMG, but just wanted to share with you that even though it is safe and natural and many kids have wonderful luck with it, all kids do not. I understand how much it hurts us to see our kids out of their and our comfort zone. ((HUGS)) if ya want em.We use DMG and S-N-T (lots of Vit B6) with Luke and haven't found any aggressiveness, but he sometimes can be a bit hyper with the DMG. Not sure if the DMG or just him! We've found, if anything, increased attentiveness and focus. We discontinued the SNT because of the hyperactivity. It just got to the point where it was WAY TO MUCH ( Connor bounces anyways Eileen Jill, isnt that interesting!?!What is the right 'dosage' for Vitamin B6, DMG, and other nutrients useful in autism? Bernard Rimland, Ph.D. Autism Research Institute 4182 Adams Avenue San Diego, CA 92116 I place quote marks around "dosage" because "dose" typically refers to drugs, and the nutrients to be discussed are definitely not drugs. A drug acts by blocking or interfering with a natural bodily process, while a nutrient permits or enhances these processes. That is why drugs are so often harmful, while nutrients are characteristically not only safe, but beneficial. We are very often asked, "What is the right dosage of this or that for our child?" The answer is, for nutrients as it is for drugs--no one knows. Each person is very different from everyone else, and only by experimenting--trial and error--can it be determined if a substance will be helpful and in what amounts it should be given. Given that as a base fact, here is what I have learned over the last 30 years: Vitamin B6: Vitamin B6 (must be given with magnesium) was found to be helpful in almost half of all autistic children and adults included in 18 consecutive studies between 1965 and 1996. In our own studies, the average amount of B6 found to be beneficial was around 8 mg of B6 per pound of body weight, per day. (This is about 500 mg/day for a 60 pound child.) Gilbert Lelord and his group of researchers in France arrived at an almost identical amount: 17 mg/kg/day. But--this is just an average. In ARRI 9/2 we published a letter from a father whose son did very well on about 40 mg/day. We suggest starting with one-quarter the target amount and increasing slowly over a 10- to 14-day period. If too much is given for that child, or if the dosage is increased too quickly, there may be minor side effects, such as hyperactivity, nausea, or diarrhea--but this is rather rare. In such cases, the dose should be cut back and increased again slowly, to try to find the right levels. We advise the parents to refrain from mentioning the experiment to teachers, therapists, relatives, and neighbors, so they can benefit from unsolicited comments. The upper limits advised for adults or those above 120 pounds is 1,000 mg/day, although some have been on 1,500 mg/day. I added 500 mg/day to my own son's 1,000 mg/day for one year, but saw no improvement beyond the 1,000 mg that he had taken for 20 years, so I reverted to 1,000 mg/day. Last year a Florida mother phoned to tell me that on visiting her adult son's group home she was appalled at his deteriorated behavior. On investigating, she found they had run out of his supply of B6/magnesium, which should have provided 1,000 mg/day of B6. She then ordered three times the usual supply of the powdered B6/magnesium formula, to protect against running out again. On her next visit she was amazed at the improvement in her son. He actually showed affection toward her for the first time! She then learned that her instructions had been misunderstood and her son was now getting 3,000 mg/day of B6--three times the recommended amount. Despite the improvement, the physicians in charge stopped the B6, claiming it was dangerous. He is now on a drug which is dangerous. The only known harm from megadoses of vitamin B6 is peripheral neuropathy--seen as a tingling and numbness in the hands and feet. It is very rare--I have encountered only four cases in 30 years, and the problem went away when the B6 was stopped. A few people are supersensitive to B6. The B6/magnesium will often produce benefits within a few days. If no improvement is seen in about a month, I suggest stopping it. My pediatrician called today to say that 30 milligrams of B-6 is a toxic dose for kids. Yikes! We've been giving Jake 150. 
I have bought some b6, magnesium which I am about to start giving to my 10 year old son. However I am not sure what levels of folic acid to give? Has anyone any experience for a HFA child. Also are adult mega multivit/minerals ok. Cheers Eromi My granddaughter does better on B6 then B12. I heard if you can take one of them you have a more difficult time on the other. Be careful about the magnesium as we uppsed Gia's from 50 to 340 (DAN DR'S IDEA) and she started having poop problems - uncontrolable and she's very good about potty issues. MADE HER NUTS!! The thing is - everyone is different!!!! Good luck!! |
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) That is what is nice about starting each thing seperately, You can see what works and what doesn't. We continue to use the DMG with folic acid.