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My Recovery Story

It is hard to afford, these, too. Sometimes I work with food instead of the supplements. They are costly. You are great moms to do this. Mine was all into health food when I was little, long before I dxed., and I think it is one reason I was able to do as well as I have- though I am still on ssi

Dear Sorenna123:

I have studied much, and I have come across several reports by doctors and individuals who sell herbs that Samento actually works a little over half the time, making significant reductions in symptoms when using no other thing.  In other words, a little over half can get significant symptom reduction by just using Samento alone.  This is what is recommended to those on a budget.   There is a guy named Derek at www.myherbs.net  that says this, and they may have the cheapest prices.  Now know that a bottle will last quite a while.  You can contact Derek and ask him about it.  I have also seen doctors say this.  Doctors that follow Dr. Lee Cowden's protocol say that they often try the Samento alone first before going into the multi-supplement protocol, since its cheaper and simpler.   I know all this stuff is expensive.  I remember a time when I could not even afford $10  a month it cost to try certain herbs. 

Thus, this is the cheapest, most successful, simplest remedy out there, in my opinion from my research.  Now note that I also have had great results using Ginger Root, Gingo Biloba, and Turmeric from Walmart.  These are cheap as well, but as far as remission from symptoms to the point of not having to take supplements forever, Samento's the best shot.  I use Ginger Root, Turmeric and Samento together at the same time.  I have also bought digestive enzymes from the local health food store, very cheap Now brand, and they worked very well.  Thus, there are cheap things.  I know that even $5.00 can be difficult, but there are times when you get inceome tax and all that you might can afford a few things.  I know its difficult, just trying to help.

Love and prayers,

Heidi N

I never heard of Samento. I will look it up!

I also use gingko, too and ginger. I love Ginger.

I am leaning a lot on here. :-)

Summary of Recovery Knowledge
Due to the many requests for information I have been getting, I put this together. Know that your requests actually make me happy. I am happy to know that you care and are seeking to help these children who are totally dependent upon us to help them. When I tell people I recovered my children, and they don't make requests, I must admit, it bothers me because I feel so passionate about recovery I guess, and wish everyone else did as well. But we each have the right to make our own choices, and I understand that there are other reasons. Love and success to all of you!

My children are recovered, but currently still dependent upon supplements. It took a year for them to be able to do regular school with no modifications. I have 5 (one was adopted). They all had different symptoms/diagnoses. Some were the same. I did it by researching my butt off. This is my current view on autism causes and treatment. Know that these are my beliefs, I am not stating them as fact because I don't want to be sued, and I may change my mind in the future because this is a learn-as-you-go thing.

I believe that Autism is caused by a starving brain from a damaged GI tract from a damaged immune system from pathogens and toxins. Getting nutrition into my children was foremost in relieving symptoms, and ridding the pathgens and toxins is where I am concentrating as well. There are so many different ways, products, practitioners, and choices. I believe its best to get them nutrition right away (digestive enzymes, cod liver oil, vitamins, colloidal minerals, organic foods, remove MSG, remove preservatives, remove artificial junk, remove dairy and wheat or casein and gluten, remove sugar substitutes, remove GMO foods, give probiotics to absorb the nutrients, etc.). I then worked on getting the GI tract in working order with mild detoxers, anti-inflammatories (can be gentle herbs like Turmeric), bile-stimulating supplements, probiotics, yeast and bad bacteria inhibitors (can be from mild herbs or various supplements, or alkalizing supplements), and now I am in the process of going after toxins and pathogens. I believe in treating for ALL pathogens (yeast, worms, protozoa, viruses, bad bacteria), in that order.

I believe that most people are lyme carriers. I don't know the exacts on how its transmitted, but have read that it may be transmitted from any biting insect or animal, including mosquitos. I also read that it can be transmitted via sex and in pregnancy. I have surmised from what I read that Lyme damages the immune system, allowing pathogens and toxins to stock-pile. I further surmise from what I have read that vaccines, electrosmog, toxins, and other things further this damage, allowing the lyme to flourish. I have read that Lyme is very difficult to test positive for because it lives inside of cells and destroys your body's ability to make antibodies to it. I further read that these same antibodies are also not killing the other pathogens the person is coming into contact with. I believe from what I read that mercury, vaccines, and other things add to this same damage in the same area of the immune system. This could explain why parents are reporting that they believe the vaccines bring out the autism. I have also read that bad bacteria and viruses may be able to live inside of the worms and protozoa, that's why I read its recommended to treat the worms and protozoa first.

I used the DAN methods. www.autismresearchinstitute.com and www.lymeinducedautism.com are my favorite websites for knowledge and references. Go to "you tube" as well, and type in subjects like lyme, autism, etc. Please don't ask me what diagnoses, how severe my kids were, how old they were, etc. because I believe that all things are possible -- in that all kids can benefit no matter what. All my children have different symptoms. They all responded to all treatments I implemented. Sometimes the same symptoms would go away with the same treatment, and sometimes different symptoms would go away with the same treatments. One of my children was 14 when I startred treatment. I did not use ABA. I did use a DAN for one child for a brief moment in time. I feel he was helpful, but not necessary to recover my children.

I know many talk about using a certain supplement to rid a certain symptom, and many just want to do one thing at a time, but its more than that.  I found that the gluten-free/casein-free diet did not work if they drank a soda or were exposed to gmo and/or processed food. Thus, I feel too many do it incorrectly. Also note that sometimes it takes months to see an improvement for a treatment. I feel digestive enzymes are the most basic key to getting nutrients in. Know that also, all these supplements and diet making my children live as normals do not work if they are around environmental toxins. My kids return to symptoms around carpetting, magic-marker smells used at school (when the whole class uses them at the same time), fluorescent lighting, etc. Thus, I also have no carpetting, and use organic/natural hygiene/cleaners in my home. There are so many variables. I think people fail when they don't understand that die-off reactions come often when something is going to work, and that something like eating chocolate can sabotage gf-cf diet improvements. Thus, know its not just a matter of doing something, its a matter of doing it correctly. I believe you can only do it correctly if you research it, and understand how it works. I would even research foods and how they correlate with children with autism. Such as eggs are heralded as very beneficial, whereas dioxin used on NON-organic apples, is heralded as very toxic to children with autism.

There is much to learn. I know everyone wants the easy, fast way, and that it is very time-consuming and expensive. I never did any expensive things other than some blood and stool tests. I do admit that giving 5 children supplements everyday is expensive. I also take everything I give my children, myself. everything. And I do it for a few days or weeks before I give it to my children, and then I keep taking it as long as my children are. My health also went from very bad to very good. I know some are looking for the one thing to do or matching symptoms to products, but its not about that to me, its about getting the body working well, and ridding pathogens and toxins.

Here is what I am doing:

diet (as I previously mentioned)
digestive enzymes, Multi-enzyme by www.kirkmanlabs.com
cod liver oil by Nordic Naturals
methyl B12 powder by kirkman's
niacin (flush-type only)
buffered C by Thorne Research
Turmeric by Rexall
Ginger Root (only some of my children) by Rexall
milk thistle by Source Naturals
multivitamin, Everyday by Kirkman's
chewable folic acid by Kirkman's
lithium orotate by Ortho Molecular
epsom-salt (mg.-sulphate) cream by Kirkman's
colloidal minerals
Mellatonin, sublingual (chewable) by Kirkman
Pectasol Chelation complex by EcoNugenics
probiotics by Mindlinx or Culturelle (sometimes)
Resveratrol by Paradise Herbs

Burbur by Nutramedix

Cat's Claw (Samento) by Raintree

I have used other supplements here and there.

Know that a couple of these aforementioned products are sold only to practioners on some websites, yet on other websites, the same products are sold to anyone. So don't give up if you get a website that sells only to practioners.

I am now in the process of starting to use herbs to kill lyme. Know that many of the treatments that are being given to children with autism, also kill lyme.

We did have lyme testing. We tested positive for lyme coinfections and have low CD-57 white blood cell count, which is reportedly indicative of lyme disease. Know that I only believed in the lyme theory after several docs started reporting that nearly all of their children with autism were testing positive for it. For further information, see www.lymeinducedautism.com and the Yahoo Group "BorreliaMultipleInfectionsAndAutism".   You can also google Dr. Lee Cowden Lyme treatment information.  I believe him to be the most knowledgeable, and he is actually legendary in treating autism and lyme.

I fully believe that when toxins and pathogens are rid and the GI tract is restored that my children will then be able to live as normals without special diets, and having to avoid toxins, or be dependent upon supplements. I have read many stories on this, and this is why I believe. So far, this faith has done very well for me. Know that I also pray for guidance from Jesus.

Its important to study everything you give your child. Such as buffered C should not be given at the same time as many other supplements. Know also that brand can make a big difference or all the difference.  Some are contaminated, some use imposter herbs or substandard varieties.  Thus, study the brand, make sure they don't use gmo products. etc.   Know also that things like Mellatonin can be made from very different sources, some that are knows to work much better than others.  Also, know that certain supplements and herbs won't work unless other supplements or herbs are given.  For example, Cat's Claw needs stomach acid to work, and contratry to popular belief, its actually deficient in most.  Turmeric increases stomach acid, and I take it at the exact same time as Cat's Claw.  Also, know that getting the right dose can make all the difference. Thus, take the time to study to know all about everything you do, and of course, ask on forums as well.

If I had to do it all over again, and I was poor, I guess I would use Samento by Nutramedix or Cat's Claw by Raintree.  Along with turmeric by Rexall, and digestive enzymes.  I feel Resveratrol by Paradise Herbs to be very important.  There are also other herbs that kill lyme and coinfections.  The key is to rid germs and do some detoxing.  The rest will fix itself as these germs and toxins are rid.  These are my personal beliefs from my research from other people's knowledge.   Germs are the number one problem, and its the lyme germ that damages the immune system, allowing other pathogens and toxins to stock-pile and destroy digestion.  

For the record:  I do not sell any of the products mentioned.

May Jesus guide you to healing,

Heidi N

Heidi
Thanks for the post Heidi, I am very interested in your information.  We already do a lot of it for 4 of our children.  Could you share *why* you use these products?




methyl B12 powder by kirkman's

niacin (flush-type only)

Turmeric by Rexall

Ginger Root (only some of my children) by Rexall

milk thistle by Source Naturals  (for liver?)

chewable folic acid by Kirkman's

lithium orotate by Ortho Molecular

epsom-salt (mg.-sulphate) cream by Kirkman's

colloidal minerals  (do you make your own? or buy them?)

Pectasol Chelation complex by EcoNugenics

probiotics by Mindlinx or Culturelle (are these casien free?)

Resveratrol by Paradise Herbs


To Sevenup:

As per your questions.

Methyl B12:  two reasons: 1.  Google "Dr. Neurbrander B12" ;  2.  tons of reports that many people with "supposedly" chronic illnesses are benefiting from B12 shots.

niacin:  Google "niacin lyme".  I use it to flush out germs to where the immune system can better find them.  I do not use a high dose, just enough to flush slightly.

Turmeric:  I have used other brands, and they did not work as well.  Also, some brands have lead, as turmeric attracts it since it is known to keep rats from getting brain damage from lead.  Turmeric also increases stomach acid so the germ-killing herbs will be absorbed.

milk thistle:  very popular amongst the autism biomedical community.  People with Hepatitis C take gobs of it because it noticeably helps them.  It decreases symptoms a little, and helps with numerous things, such as detoxing and increasing glutathione.

chewable folic acid:  This is deficient in many, causing many symptoms.  Chewable is always better since their gastro-intestinal tract is so damaged, it has limited absoption.

lithium orotate:  protects nerves from toxins, like toxins from pathogen wastes; really helps with mood swings, nausea, and other die-off symptoms.

magnesium-sulphate cream.  It has sulphate which is deficient in many, and needed for detoxing; magnesium is deficient in almost everyone, healthy or not.  Extreme deficiency causes many symptoms. 

colloidal minerals:  many symptoms come from mineral deficiency, which almost everyone has, some severely.  Colloidal trace minerals of 60 or more minerals, have a natural balance so you don't have to worry about unbalanced mineral levels.

Pectasol Chelation Complex:  Supposedly removes toxins and heavy metals and boosts the immune system.  Google "abstract modified citrus pectin" to find the scientific studies on it.

Mindlinx.  This is the only probiotic that worked permanently or semi-permanently for us.  The rest only worked a little while we were taking them.  This one eliminated OCD symptoms after giving it only one month, even though we no longer took it after that due to my feeling it was working too well, causing an overgrowth of good bacteria. 

Resveratrol.  As per Stephen Buhner from the Healing Lyme book, it kills many germs, including Bartonella.  Bartonella may be the most common germ causing symptoms today.  Its awful.  Google about it.

Now know that for every good website, there is an waste-of-your-time website.  Stick the ones that talk about what is really going on.  In other words, you will find webites that say lyme is rare and curable in two weeks, and others that say that over half the world is at least a lyme carrier, and those with the disease symptoms can have so much difficulty at trying to treat it that some die.  Thus, obviously both theories can't be correct.  If you want to know the truth, go to forums and ask people, because they aren't lying to make a profit or get a promotion.

Love and prayers,

Heidi N 

 

 

 

 

 

To Sevenup:

For seizures, google "Klinghardt magnesium B6".  He talks about how most seizures can be controlled by magnesium and Vitamin B6.

Heidi N

Heidi,

The biggest question - how the heck do you get the kids to take all those vitamins, etc.?  I have a hard enough time getting a multivitamin and probiotic in him.  It would probably take me at least half the day to get him to eat/drink all those things.

What is the secret to that?  Mine is an extremely picky eater, and doesn't even like to drink much.  Also, will not swallow or chew a pill.

I do appreciate all the info.  Thanks.

To Casey107:

Since, I have many kids, I can help with that.  My littlest ones, even though they are 4, I still have them on sippy cups because they are just not going to take medicine unless its from a sippy cup.  I open the capsules and crush the pills and put it in organic apple juice (absolutely no unorganic apple juice because it will have dioxin which is very toxic) and put a little bit of organic sugar in it as well.

Another child, I open all the capsules and crush the pills and put it in a cup with a little bit of water and lots of organic sugar (absolutely no artificial sweetner junk).  He drinks it.

Sometimes, I wait till my littlest ones are asleep and put crushed, chewable stuff in their mouth while they sleep, like Melatonin and methyl B12 powder.  Just a small amount of course.

If you can get your kids to drink water, which I can not, you can get drops like what Nutramedix sells.   You can google "Cowden Lyme" for a good protocol or just use Nutramedix Samento.  Its a liguid that has to be put in water or mouth, not juice.  Legendary Dr. Lee Cowden says that often chidren treated for lyme then lose their autism.  Plus, since autism is caused by pathogens and toxins, its really the same treatment.  The only real difference is that there are little vitamin, mineral, etc. tricks to treat certain autism symptoms to get a quicker reduction in symptoms while waiting for the germs and toxins to leave. 

Maybe I will put the drops in while they sleep, who knows, this stuff is quite difficult.  Once you put your protocol together, you have to just find a way.  Keep asking for ideas and keep trying things until you figure something out.

Heidi N

I, too, give my almost four year old a loooonnnnngggg list of supplements lol and most of them are either liquid, or crushed or opened up capsules in organic juices with natural sweeteners.  My sweetener of choice right now is erythritol, but he sucks it right down and it is working well for us.  It took a long time to figure out what worked for him but we kept plugging at it.  Some of his supps I put in his rice milk, but most get divided between two juice cups a day.... but we use straw cups.Excellent story! Would you mind if I used it on my Website? How R ur children doing now?
 

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