I’m not sure what to think
| Back to Autism Information >> Next Topic | ||
|
So, we finally have been able to do the testing. We have been wanting to do it for a while now, but knew BB would never tolerate having something strapped on and collecting. Now that he it potty trained, having him go in a cup for the day was easy. I guess I don't know what to wish for here. Do I hope that they find evidence of trace metals et al so that we can start a new course of treatment that might be beneficial or do I hope they find nothing? I am really just venting here, but feel free to give me your feedback. I just wanted to know..the unknown was driving me crazy! I did read enough stories of miracles from chelation and diet..to make me get a little anxious to get my dd some help if these toxins were in here asap...turned out she did have lead & yeast and we did treat her for it but never got the miracle results that others got but no regrets either. My peace of mind was at rest and that is one less thing to worry about considering the other million things we worry about:) We had her blood, stool and urine tested...some get hair test too. Hope you get the answers you are looking for:) It was a nightmare getting our dd's samples! Thanks for the response Shelley. So many variables. I know that I want to "know," but where to go from there I guess... Hopefully your son is under the care of a respected DAN doctor that will advise you on what to do...Ours was very well known and still is so we did pretty much what he told us too with the exception of IV chelation and B12 shots....I just couldnt put her through that it at the time. We did the homeopathic stuff and GFCF diet..and nystatin for yeast..nothing that would harm her~the other stuff was a little scary to me.
Where are you having the testing done? Is it a porphyrin test? I definitely understand your mixed feelings...... On the one hand you don't want any toxic junk to be in your kid or have to make the decisions of what to do about it if you do find out it's there. On the other, you have to wonder.... if the results come back positive for mercury, lead, etc., what kind of a difference could that make for him and his future if you get it out of him in time?? It is a scary prospect to know you might have to make a decision like this. When we found out Adam was positive for mercury and lead, my husband had to pick me up off the floor..... and I was the one who insisted on taking him to a DAN and testing, even though I was 100% sure it would come back negative. My husband handled it so much better than I did. What a role reversal I don't know why, but I was under the impression that you guys were already doing biomedical..... No matter.... you have proven time and again that you have a good head on your shoulders and you are a great Dad. When the time comes you will know the right thing to do for your son. You will feel it in your heart, and in your gut. You have to think with them, and don't let anything or anybody else sway you. Through our autism journey, from the very beginning when Adam was so very young and just red flagged, I have let my gut make my decisions and nobody, not even my husband has been able to talk me out of it (except for going GFCF because he feeds food behind my back and there's NOTHING I can do about that). And so far, every decision I have made has been right on, even though some of them have scared the crap out of me and I barely sleep at night anymore. Adam is not four yet and we already know he will be mainstreamed for kindergarten, he is making progress in leaps and bounds and we are just going to start ABA this summer for social skills and chelation..... we still have so many intensive interventions coming. I KNOW that he is going to be okay. And BB will too..... just do what you feel is the right thing and everything will work out. So very sweet the both of you. Yes, we are doing a lot of biomedical stuff. We are doing this through our DAN doctor and I am unsure of exactly what profiles are being run. I think it is a pretty comprehensive workup (they sure have enough urine for one! BB is receiving supplements, he is GF/CF, he is taking biomeds to remove yeast from the system (when he will tolerate it...he hates the taste and I hate the smell so I do not blame him). I know that I want to know it is just I guess I will not know what to do with my rage about how it happened and I will have to see what the treatment entails (My DW is more up on this. I take care of more of the psych/behavior). Anyway...I think we find out in about a week now. I will let you know! Cam we are in the same state you are in - i was 100% sure that he ( R ) did not have heavy metals -he had some regression but it was not huge - specifically he was always engaged with us - but after the porphyrin tests came back really high in Mercury ( his was 23 - normal is 5-9) and the words were written on the paper - "Remarkable mercury toxicity on the body" I can no longer not look at the biomed stuff We are meeting with a DAN doctor- he is a regular MD and is also interested in DAN - one thing that impressed me is that he told me to read the book - and only make an appointment if that made sense to me so I read the book "CHanging the course of Autism" - one of the most sceintific books I've read on Autism so far and it DID made sense to me One of the big things they beleive in is MB 12 shots and they beleive most kids with ASD should try the Mb12 shots for a few weeks and he has already send the prescription to a Pharma who in turn - mailed in the Mb12 shots - they are not that expensive - a months supply with refrigerated shipping is 36 bucks - what a chilll they are striking in my heart everytime I open the refrigerator - Still I know that I need to conquer my fear as maybe R really needs it. I will updare you all on the biomed journey - I am such a skeptic but if it works I want alll the ASD members to know about it We have already been in intervention for a year and R is continuing to make steady progress but its slow Also wanted to add that we did GF CF for 3 months very strictly and saw no change at all - no regression no progression - so we quit on it- Plus R never had any gut issues apart from when on antibiotics - so I have thought the biomed would not work for us ( not that it does not work for many kids who took the biological road into Autism and therefore the biological solution will work to come out of it )
Any updates? I would really like to hear about your results, Camusa, and any updates you have KajoliT... Best of luck to you both Anyone know anything about Culter protocol ? i have been reading about Andy Cutler's protocol, he seems to make a lot of sense to me. he says the preferred test for mercury is the hair test and that one needs to use the counting method to get indication about levels of mercury and that the std. tests may not be accurate since heavy metal toxicity prevents people's systems from removing metals and minerals properly. also the part of his protocol that seems tomake sense to me is the low but frequent dose that maintains dmsa and ala in the system for long stretches of time so that the metals can be removed rather than be re distributed which is what may happen with a start and stop ( high / infrequent dose schedule ). i have no idea about this stuff other than what i have read over the last couple of days and i may have some mis understanding of the details. this seems like an important topic, can be dangerous if done the wrong way and may be very useful if done properly. anyone have any comments on this ??? -dee We are in the same boat. Just met with DAN dr. last month...waiting anyday for the metals test back from France. Dying to know either way. Dr. said that we can't do anything that's not homeopathic at this point, because she has elevated liver enzymes. We are getting ready to start homeopathic yeast supossitories, and have been on b12 shots for about 3 weeks...amazing results with her langauge so far! Not GFCF yet because the girl won't eat. Pretty much gets pediasure. Let us know what you find out! I'm am so nervous waiting for these results..UUGGHH!!Just wanted to comment on the hair test cause it only measures excretion of mercury by the body. Many parents willl do the hair test and it shows that the metals are low, however only a trained practioner would know that you look at other labs to determine if the low metals in the hair could be caused by the body's inability to detox itself. In other words, many children on the spectrum have low metals in their hair, blood and even urine because their body is unable to remove it like a noraml healthy person. The metals just stay in the tissues and can cause many problems in the body. I am not discrediting Cutlers protocol for I am not really familiar with it (we do a different approach); just wanted to offer some clarification about the testing. [QUOTE=dwizzd] Anyone know anything about Culter protocol ? i have been reading about Andy Cutler's protocol, he seems to make a lot of sense to me. he says the preferred test for mercury is the hair test and that one needs to use the counting method to get indication about levels of mercury and that the std. tests may not be accurate since heavy metal toxicity prevents people's systems from removing metals and minerals properly. also the part of his protocol that seems tomake sense to me is the low but frequent dose that maintains dmsa and ala in the system for long stretches of time so that the metals can be removed rather than be re distributed which is what may happen with a start and stop ( high / infrequent dose schedule ). i have no idea about this stuff other than what i have read over the last couple of days and i may have some mis understanding of the details. this seems like an important topic, can be dangerous if done the wrong way and may be very useful if done properly. anyone have any comments on this ??? -dee [/QUOTE]ok i think im finally starting to learn something i guess the " counting method" of hair analysis is supposed to be able to determine ( in some cases ) if there are unacceptable levels of metals present even if the mercury level or other metals are within normal range its all here : http://home.earthlink.net/~moriam/HOW_TO_hair_test.html Disclaimer : **** I am not advocating any test or treatment i am only trying to understand this stuff **** im gonna go out on a limb here and guess that if metal are high you want to get them out but determining if they are there seems like tricky business and i do not buy the whole thing about the challange dose ( at least for now ) what is the best method to dermine if there are high metals ??? and what is the best way to remove them ??? and what is the out look for full recovery if they are removed ??? -d
i just realize i may be hijacking your tread please let me know if i should put it elsewhere sorry im still new to this forum thing : ) i sincerely wish you all the best of luck in what you are doing [QUOTE=furrowed]CAmusa and KajoliT.... Furrowed - I did update in the "other treatment folder on our DAN visit Cam do you have results back for BB [QUOTE=dwizzd]Anyone know anything about Culter protocol ? i have been reading about Andy Cutler's protocol, he seems to make a lot of sense to me. he says the preferred test for mercury is the hair test and that one needs to use the counting method to get indication about levels of mercury and that the std. tests may not be accurate since heavy metal toxicity prevents people's systems from removing metals and minerals properly. also the part of his protocol that seems tomake sense to me is the low but frequent dose that maintains dmsa and ala in the system for long stretches of time so that the metals can be removed rather than be re distributed which is what may happen with a start and stop ( high / infrequent dose schedule ). i have no idea about this stuff other than what i have read over the last couple of days and i may have some mis understanding of the details. this seems like an important topic, can be dangerous if done the wrong way and may be very useful if done properly. anyone have any comments on this ??? -dee [/QUOTE]------------------------------------------------------- I would try zeolite first - if you can do 6 drops 3X a day, then try DMSA 25Mgs once per day with cilantro drops for 2 days on and then 4-5 days off. See how that goes and adjust accordingly. This is in 8-12 months or so once the foundation is strong Hello First, you need to relax and breath deeply - I recommend this CD - http://www.cduniverse.com/search/xx/music/pid/1122939/a/B reathing:+The+Master+Key+To+Self+Healing.htm If you dont have enough oxygen then no healing can occur If a lot of fear then maybe see a homeopath for a few remedies or call these people http://www.elixirs.com/products.cfm?productcode=ST30 Then you can start with digestive enzymes and probiotics to get the mineral and vitamin levels higher. If you are eating a good diet then do not need to supplement, otherwise I recommend http://sequelnaturals.com/vega/products/whole-foo d-smoothie-infusion/features-benefits - very simple with some kelp and dulse for iodine. http://www.nationalnutrition.ca/detail.aspx?ID=783 http://www.nationalnutrition.ca/detail.aspx?ID=1257 I found that krill oil worked wonders -http://products.mercola.com/krill/ Supplement extra bromelain with meals - digest those proteins and get the aminos working for you - strength, foundation building Vitamin D!! - http://www.evitamins.com/product.asp?pid=13834 Natural Vitamin C - 2X a day http://www.evitamins.com/product.asp?pid=3351 Water - non chlorinated, no flouride spring water small glass every 2-3 hours Liver - http://stfrancisherbfarm.com/product.aspx?ID=17&Title=Li ver Always take this - through detox parasites - http://resultsrna.com/products/acs_200_overview.html metals - last - start in 8 months or more once the foundation is strong http://resultsrna.com/products/acz_nano_overview.html Results Rna - have the best products Your will go through many a crisis, which is usually from taking to much. Then take a week or 2 off and start again, slower REMEMBER ONE THING - This will take 12-36 months, not 2 weeks It will take money too - $5,000 Good luck and god bless |
||
|
Copyright Autism-PDD.net
|
)