Thought I would update....The Rice milk, soy milk all terrible. Anybody know of a different type of milk? [/QUOTE] We are weaning him off it now... Soy was a disaster, I know ShelleyR did potato milk (we haven't tried it yet) and we are now using the Vanilla Rice milk. We started really slow, one part rice to 3 parts milk. We are at 3/4 rice 1/4 milk now and he is doing fine - I am surprised. But he will only take the vanilla. Wow! You are making your own Vanilla Rice Milk? I never thought of that! Do you use vanilla that is used in baking? We brought Vanilla Milk, but it was by co. Rice Dream and DAN Dr. said no good. I read ShellyR about potato milk - but couldn't find it anywhere! Maybe on line. Thanks for tip. What about almond milk? They sell it in the grocery store...at least down here they sell it at Publix and our regular grocery stores in addition to the health food stores. You can get the Vance's potato milk at Kirkman labs. Maybe at ASDmarket too. Not sure about that one. Potato, rice (unless you make your own with white rice), nut and soy milks all are high oxalate...if your kiddo has yeast issues (we had to go corn/rice-free to kill the yeast), they probably have oxalate issues (check out http://lowoxalate.info/ )....I think that milk is over-rated...We use coconut milk for recipes, drink lemon juice and distilled water and take a herbal calcium supplement and he loves it...it's from www.drchristopher.com called Kid-e-Calc...it's great and I don't have to find a way to get that yucky powder down him and he hated the chewables.... I also just discovered a GFCF issue with myself...I have lost 10 lbs in 2 wks and I haven't dieted, just drinking lots of water and epsom salt baths to remove the toxins... Good Luck!!!We kinda went full throttle when our dd was diagnosed and did GFCF diet, supplements;DMG, fish oil, nystatin for yeast...glutiothione(?) for high lead...enzymes..plus 30 hours of ABA/wk and 2 hrs. speech/wk so it is really hard to dicipher what made her progress so swiftly and I didnt want to do one at a time and take data...I was in urgency mode:) I noticed within 2 weeks though her constipation was totally gone for the first time and her eye contact and just being more aware of us was noted..she also got ear tubes within a few months of being diagnosed too. Poor baby went through so much that first year but she progressed tremendously:) I am so happy your child is having this kind of results...I have read about so many kids having near cure results from just the diet and cant imagine not at least trying it. We did get her tested and she was positive for protiens for both glutien & casien...high in yeast and lead. She was weaned off a year later and doing well but considering doing it again. It also removed her dark circles:)Giving up the milk was the hardest (and saddest) thing for us. The Rice milk, soy milk all terrible. Anybody know of a different type of milk? I also have seen immense improvements with just diet change. We tried supplements for a couple of weeks, but dd broke out in a rash and we removed everything to figure it out. We finally did...the soy! Most of the GFCF foods have some form of soy in them and it was making her sick, physically and emotionally. It's been a week off of soy and 1 month off of dairy and hidden gluten (allergic to gluten and hasn't had since trial). When I started her on the GFCF she improved a great deal. Started saying words again that she lost at 2 y/o when we intro'd dairy and even was able to go out to dinner on a few occasions without incident. However, as the soy increased in her diet, her mood swings also did. With that said, it's been a week off of soy and I finally have my child back. Yesterday she woke up for the first time and pronounced 'snow' correctly. The prior week it was 'nosees' and now it's actually 'snow' with an S at the beginning. We were shopping and she said 'mouse' and when I looked down there was Mickey on a bag! I asked her if she was sleepy and she said "I sleepy". I almost passed out! Today is even better! She's eating again after 2 weeks of almost no food and fighting to get her to eat. Plus, for the first time ever I was permitted to sing and dance and she even joined in with me! Before she would throw a fit if anyone sang or danced! Out of nowhere she looked at the TV and said "Lola", for Charlie and Lola and she's never said that, nor watched the show! She is also copying everything I do and wants to even play dress-up and wore my hat through the store for an entire hour. Prior to this week I wasn't even able to wash her hair or brush it without a tantrum! She is counting upt to eleven and can say her entire alphabet, except K and F. She's only 28 months old too! When she hurts me now she doesn't laugh and do it again, but rather looks at me oddly out of curiousity and once even looked upset that she hurt me. She had never shown any type of acknowledgement to other's emotions, prior to this week and often other parents didn't let her play with their kids b/c she would hurt them, b/c she didn't really understand pain. She could whack her head, blood and all, and not flinch! It was like she couldn't feel pain or understand the emotions of people in pain or distress either. Last week I cried at the thought I would never have grandchildren, see my dd marry or fall in love, and terrified her entire life would be centered around being on the spectrum. This has brought me new hope for her and stamina to do whatever I have to. I personally feel her gut problems have played a major role in her neurological condition and may be the sole contributing factor. However, she also has Eosinophilic Colitis and has had food issues since birth. I often wondered how many ASd kiddos may have a form of eosinophilic GI conditions, as most doctors in the US don't know what it is and diagnose colic when there are problems. I know this was her diagnoses until I forced a scope and biopsy. In fact, the condition can only be diagnosed through a biopsy of the intestines. It is also misdiagnosed as GERD in children. It's obvious in poop, b/c most kiddos will present mucousy stools and in severe cases blood streaked stools. However, many parents do not investigate their kids poops for these things and so it may be overlooked. They do not know what causes EC or EE, but believe it may be an allergic type reaction to food or environmental allergens, b/c of the white blood cells attacking the digestive system. Her hardcore traditional Ped has even brought up that she may have a severe enzyme defiency and that may be what is causing most of her problems! We are now starting all the supplements and I have hope that it will only improve her social and verbal skills. Sorry for that novel, but so few folks know about EE and EC that I feel the need to inform others in case their children have symptoms they can further investigate the possibility of it. I'm a true advocate of being GFCF and SF that I'm even doing the diet. I've lost 15 lbs in 2 weeks, my skin has cleared, my joints don't hurt anymore and my inflammation has even gone away! I don't know what would have happened if I didn't discover the soy issue for my dd. Those that are not having drastic success with just GFCF, may want to consider trying a SF for at least 2 weeks to see if you have more improvement. I know we did and even her therapist took notice and realized it had to be the diet, since hse's only had 2 therapy sessions! Good luck to you and your son! P.S. She just walked into the room trying to jump properly with the jump-rope, which before she would just drag it around behind herself! It's only been a week since we have had our son on supplements... probiotics, a new vitamin, and fish oil.I did see some stims increase (visual) but I THINK they are tapering off. He's also had some pretty weird poops. BUT!!!! He has started chatting up a storm... Still just single words, but he picked up the signs for more, help and all done (over the course of a couple days) and tries to say them ("muh" and "heh"). And he is saying bizarre things he has never attempted before... Today it was french fries (he had them at lunch), overalls  , and gorilla (it was on his cereal box). Then I caught him holding up crayons one at a time and counting to three. I don't know if it just would have happened anyway, or if it is the supplements. Dh thinks his eye contact has improved considerably, but it is hard for me to tell b/c it is normally pretty good with me. He also waved good-bye, which he never does.HUH???? I have never been one to believe in any sort of dietary or naturalistic remedies.... Guess I am going to rethink my beliefs here. Next I am going casein free (we have been gluten free for a few weeks now). My guy just LOVES milk so I am trying to figure out how! Even dh is excited to do these things... Thought I would share for anyone who is considering it. What fish oil and vitamin is he taking? I am so happy you are seeing some results. Many of these "supplements" are so necessary if someones body does not have normal levels, cannot make it temselves, or if their body cannot process the amounts they need- it can be so beneficial to them! We have been GFCF for almost 2 years and it changed my sons life! Body balance is a liquid so if anyone wants to know look at this cite which tell you all that is it . What is in bodybalance.com Better than all different pills. Charlie, I'm so happy for your son's progress. What a great holiday gift. I also never thought about "alternative approaches" until my son needed help and the doctors we were taking him to didn't have the answers. We've seen great progress with diet changes and supplements. Does your son drink juice? You could give that to him with a calcium supplement instead of milk. Becky We love the almond milk we got it at our health food store localy. We also take trace minerals also. |
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