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stem cell therapy

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Would you do this to hope and cure you or your asd child? I wouldn't cause it would change Daniel for who he is today. I would. I want Payne to not feel so overwhelmed in being who he is...to be able to communicate more freely and not have to take 4 different medications 4 times a day to make that possible. To each their own.

I just had this coversation with my mother and we both think stem cell therapy will be hugely beneficial to ASD children. If it can help those with perm. mobility disorders and alzheimer's , imagine what it could do for ASD! I pray our next president will see the importance of this. I wish some far off Country would also do a research study on possible benefits, given the rise in autism!

 

We may never "prove" the exact cause, but if we could find a direct cure then children would have hope, as well as parents!

Paynes mom and mercurial- YES YES YES!!!!!!!!!!!!! I agree!!!!!!!!!!!! I know I am not supposed to bring up politics, but a certain candidate(HC) is proposing a HUGE autism bill- I think 70 mill????? HMMMM.....I know who Im voting for Sorry Cam, I know, NO POLITICSHi! I have been searching for a blog like this all day. I am currently holding community fundraisers to take my son for stem cell transplant. Just trying to gather some input from others. I watched some before/after videos, and spoke to parents who took their kids for treatment, however, their children had other issues-not autism. My son has gone through 1 1/2 years of biomedical interventions with some great results, but I feel he is still physically ill. Anyone have comments for me? Am I allowed to post our website here so you can see my personal story? Not sure of the rules...Oh, yeah. I, too, banked cord blood at birth for my son. There is not a doctor in this country who will touch him. If he had any other childhood disorder, he could have his blood. I have to go to Mexico with an American doctor.hmmm... I do recall the stem cell debait in collage biology a few years ago. Stem cells are basicly cells that have yet to be designated a function and will perform a similar function as the other cells around it. From what I understand these cells can be great for replacing a liver, or nerve damage, blindness, altimers, and stuff like that, but autism??? In order for that to work im pretty sure they would have to find in the brain the different areas where the wiring is different and fix all that, that may be quite challenging, if not impossible. Also, that stem cell, assuming it would go into the brain, would turn into a neuron, but the brain would then designate that neurons function, quite possible to repair the damage caused by severing the bad wiring to put in the 'non-autistic' wiring. FInally, we would have to determine that other factors (environmental) are not involved, until we know more, I doubt stem cells would do much of anything to cure autism, maby except for preventing it in embryos.You sound knowledgeable. If there is no evidence that this will heal his brain, can it at least heal the intestinal tract and immune  system? Both systems have taken alot of work to go from train wreck to somewhat functionable. The Stem Cell Company we are using has two autistic patients scheduled before us. They are going to keep me posted on results, and allow me to talk to the families who do this. I will stay updated here.Also, did anyone see the Patricia Cabrera case on youtube? She went into this treatment nonverbal, and came back saying her ABC's. This company was backed by MEDISTEM, the research company. Please, anyone, I need lots of feedback.you would have to go to mexico. cellmedacine.comWell... honestly im not an expert, just discused it in collage brefifly. Aside from the regular stomach ach, i never had any problems like that, as I understood stem cells could only become what the other cells around them are, and then they perform that function in a systematic way working with the other cells. This is awsome for something like nerve damage. If the intestinal tract thing was eather the result of nerve damage or organ/tissue failure then that theripy theoretically will work, but for curing autism???!!!!

They dont even know enough about the brain or the disease? It can be the result of drain bramage ( <------HEHEHE in case you did not catch that) or organ/tissue failure? But stem cells certainly wont fix something like genetic causes or environmental factors that are also suposed to be important.

Just what I thought anyways... But jeeze... decades in the future when my back finally gives out due to years of heavy lifting at work this theripy promisis to also eliminate pain by eather repairing the damaged nerve or rendering it complety inactive, facinating.I understand. The FDA won't let these doctors touch autism. I actually chose Stem Cell Biotherapy in Agoura Hills, Ca. They escort you from Ca. by van, 2 minutes into Mexico, and then immediately escort you back. I feel like we should try this.

So what do they do with the stem cells in order to improve an autistic person's functioning?  What is specifically being done in Mexico?  I have never heard of this and am curious.

Also, I think stem cells need to be coaxed into performing various functions...like heart tissue or skin, for example.  Isn't this done like in a petri dish, then squirted into someone's faulty organ?  The last I heard, they were doing this with mice and it wasn't with brain cells.

As far as my understanding of neurology goes, it is the synapses that are either too interconnected or too underconnected when one has autism.  If there is overconnectivity, I'm just not getting how stem cells would help that.  Seems like they'd accidentally make MORE connections, right?

If you study fetal neurology, you will find that there are millions of connections inside the fetal brain during the second trimester.  During the last trimester, "reductions" occur.  Basically, those connections that are not being used very much dwindle away and dissolve.  Imagine streets being set up in blocks for every two houses in a neighborhood.  Well, when people leave the neighborhood for work, the grocery store, piano practice, whatever ,certain highways will naturally become most used.

The streets that are infrequently used are rather unnecesary, so all the effort to maintain roadways - or neurological connections - goes to the more important ones.

Some people with autism still have gobs of these unnecessary streets, and when signals come in, instead of a strong one shooting down the right path, it gets watered down kinda by running down ALL those myriad streets.  That's why people with autism have to seriously work their butts off to translate incoming information.  Its easy for the rest of us, but their clues are scattered all about instead of being delivered in a big easy packet.

Oh, and on the political front - don't let the stem cell thing sway you one way or another:

a. I'd rather entrust this research to capitalized companies than the government!  Who cares if the government supports embryonic stem cell research???  Shoot, Bill Gates didn't work for the government nor did the people who discovered Ritalin or Tylenol or Viagra.  Government paychecks are abysmal, so who do you think the hotshot researchers are gonna work for?  Not Uncle Sam.

b. one no longer needs embryos to do stem cell work...that technology is passe.  Even the sheep cloning guy (Dolly's creator) has dumped embryonic stem cell stuff and cloning.  Now they take some healthy tissue from the heart and replicate it in the lab, then squirt it back into the damaged heart tissue.

It freaks me out that somebody is doing HUMAN brain work with stem cells!  Dangerous right now.

Thank you for your input! Our opinion in my son's case is that he is not only mercury damaged, but his intestines and immune system are in need of help. We happened to bank his cord blood, rich in undifferentiated stem cells at birth. Not 1 doctor in this country will touch autism. If he had any other childhood disorder, doctors and researchers would be lining up to give him his cord blood to take credit for whatever happens.

I believe the FDA has something to do with this. Their are 2 companies, with American doctors, who are setting up shop in Mexico. They get cord blood, take it to Canada for purification and multiplication, then they fly it to Mexico. We are only going over the border 2-3 minutes, getting the cells in an IV for 1 hour, and then we are escorted back to California. The company's staff stays with us  the whole time.

We chose Stem Cell Biotherapy. Visit their website fo more info. http://www.stemcellbiotherapy.com It explains that stem cells will work to heal the autoimmune/ inflammatory issues in autism, as well as damage from thimerasol. They have been wonderful to us. Also, to watch great informative videos on stem cells, visit http://www.givemeaning.com/project/HelpHealChase

This is our featured site, and if you click on the tab that says "Media", you can watch some before/after videos of children who have had stem cell treatment. You can also see the video of our little angel. Their is also a very scientific video on Stem Cell Biotherapy's website which is helpful.

My husband and I have decided that after almost 2 years of biomedical intervention, "the diet", HBOT, chelation, etc. , my son is so much better. However, he has a long way to go, and he is still nonverbal. We feel this is our answer. We are having Church pancake breakfasts, dances, restaurants are doing certain nights when anyone comes in for Chase, they donate 20% of check. The whole family and community have come together to get Chase treatment. We have to try this!

Very interesting...will have to read their stuff.  So, they just give it to the autistic patient via the bloodstream and wait - right?  Will they do an MRI before hand, then another later and yet another later?  It would be extremely cool to see any changes in a time lapsed way.  Are you expecting gut changes or neurological changes?  It would do people a world of good to see irrefutable proof.

Best of luck on this!

We have cord blood from our second son stored with a company who can replicate it if needed, even for grandparents that match.  Our oldest son, PDD NOS, was an emergency c section at 26 weeks so there was no time to hook up with the cord blood people.  Plus, we were completely shellshocked and I was very, very ill.  Anyway, luckily the boys are the same blood type, so heaven forbid we need to use the cells for cancer, etc, at least there's a decent chance of a match.

We don't do any biomedical intervention, but I'd love to hear wonderful results for your boy.  Keep us posted!

Biomedical Intervention has done wonders, however, we will not quit until the word autism is in our history books. I guess with the company we are using, they remove the red and white blood cells so you do not have to "match", and blood is only taken from type O blood. We are unable to use our own cord blood. Also, there is a concern that my son's own cord blood may not be good for him, for example an autoimmune trigger or high mercury? Donor blood has no chance for contamination due to the fact it does not contain blood cells. Does this make sense? Just the undifferentiated cells for immunity, inflammation, and nervous system. I will keep you posted, and thanks. Right now, we are holding fundraisers for the fee. It's amazing how many people I know, and have never even met are willing to get us there to find out. Thanks!!! http://health.groups.yahoo.com/group/StemCell-for-Autism/mes sages If anyone is interested in stem cells. This has blogs from parents who have gone, and are planning to go. It has videos pictures etc... and was very helpful. We are going for stem cells in Costa Rica in the next few months, thanks to the help from this group. Julie

[QUOTE=StemCellMom] http://health.groups.yahoo.com/group/StemCell-for-Autism/mes sages If anyone is interested in stem cells. This has blogs from parents who have gone, and are planning to go. It has videos pictures etc... and was very helpful. We are going for stem cells in Costa Rica in the next few months, thanks to the help from this group. Julie[/QUOTE]

Did you do the stem cell treatment? How would you rate this treatment vs. others like therapies, biomedical, chelation, and HBOT. I'm curious as it isimportant to select the appropriate treatment path.

I have seen that story on youtube about the girl.  I have been very curious about this treatment.  My son has many other issues than severe autism.  But I think curing those will help.  I went to a DAN once, but too pricey and too far, and other doctors always look at me like I'm crazy.  I kept saying I knew he had it in utero because I was puking the whole 9 months.  He was most recently diagnosed with multiple food allergies and allergic esophagitis, he is almost 9 and regurgitates after eating every time and none of the "traditional meds and treatments" covered by medicaid have not helped in over a year.  I think stem cells might be an answer, but not his, I donated that...Keep us posted StemCellMom, best of luck!I have 4 frozen embryos left over from my fertility clinic. Do you think I can use them??Diane
You couldn't use the embryo, but you might be able to implant them and then use the cord blood from that child to use on your other child.  You would have to find out what the restrictions are. I know of a woman who did this for her child that had Cerebral Palsy, wasn't talking, etc. After the stem cells, the child broke out into sentences!!
We are actually thinking of trying to raise money to take our dd for therapy outside of the country(they won't do it here) They use adult stem cells. I believe it costs about $10,000....A LOT!
Where are you going to get the stem cell treatment? have you considered several different options? And what is your reason behind selecting a certain institute over the others?I very curious about the stemcell issue- anyone have any results at all?  (as in people who posted earlier in this thread and went through with it?)
 
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