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Neuro Dev Appointment

Rita,
I also thought that you have been doing everything including very early
intervention. Remember this though, she has only stated what your
daughters current levels are, that can change over time especially with
intense early intervention. Everytime I get an assessment done, I have to
distance myself and my feelings about my sons delays, that is the only way
that I can address and help remediate these delays. You are a very good and
a solid Mom, please stay strong.The wait is over and you got a diagnosis from a doctor you trust.   Grieving
is normal and is also part of acceptance.
You have been proactive and that is the most important thing.
Having a level attached to the diagnosis does not mean much. These levels
change with intervention. And don't forget, a child behaves differently in a
familiar environment than with strangers.
My best wishes.

After 7 months of a waiting, I finally had the neuro dev evaluate my dd - she agreed with the neurologist's dx. Dd is defi on the spectrum! Its funny, if this doc had said anything other than that, I would have called her bluff! I liked this neuro - VERY detailed and patient - she spent 1.5 hrs with us and played with my dd testing and observing her every action.

Talked abt varous therapies, books to read, alternative... and finally "complimented" us on having started on those already! All in all nothing new learned. I did ask her abt the MR part - she said that it was too early to tell.. 5 yrs would be a more definitve answer. So I asked her what she thougth was dd's level on the spectrum - again, she told me her gut which UNFORTUNATLY did not belie mine.. she thinks dd is moderate (not mild)....she also hinted at aparaxia.. i knew that!(the speech therapist STRONGLY FEELS DD HAS APRAXIA)....

I was pretty ok yesterday bec I didn't learn anything new/different than what I thought... but the conviction of the doc puts a rather doleful twist on the already dreary mood.

 

I think it's an unwritten step in the grieving process.  To hear once again what we already knew.  It does help clear up some of the doubts we might have.  It's a lot easier doing all the therapies etc knowing that this is because it is real.  You were doing great by already starting therapies and educating yourself.  Be proud of yourself and stay strong.  Hugs.I am glad that the appt. went well and you liked the doctor.. 

Rita

Glad it is over with and now you know ~apraxia is treatable as well as autism so dont worry about the levels given because they def. change..some more than others but they really do improve with intense therapy. Best of luck:)

  hi, I can deffinatly relate !  tommorrow i have my first dev. ped appt for my 5yr old ds. neuro was awaste of time not sure what i expect anymore so i guess i will have to wait till tommorrow and see what this is going to be about. well i will let you know how it all turns out.

                     sonia!

 

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