((DEE)) My thoughts are with you and your DS today. I K N O W how you feel and I havent even took my son yet. I am sending my best vibes to you both
give yourself this week to recover and next week, start something for yourself.
kate
i don't know what else to say right apart from i am terrified i have to hand him over in a taxi to someone i have met once and this is the futherest he will have been from me all prayers gratefully recieved today Dee thanks guys it went really well i feel totally drained now but jack coped really well i think we may hit a blip when he realises that this is going to happen everyday but for now i'm just glad the first day is over and he was ok Dee YES YES YES!!!! Otherwise, as things continue to happen...they'll just say "well he's been participating all along" I certainly would bring it up that they didn't write it down in the diary...I mean good lord!!! Isn't that what it's for - like everything?!?! Poor baby... ~Lesley thanks for the reply and you are so right to be honest once i read through my own post i gave myself a kick in the behind and i added a note at the bottom of his diary asking what happened and when since he had a seziure at school yesterday too which they told me about but thing is i think(because of the way he must have fallen to mark in the way he has)that there is every possibility the fall was cause by seziure activity grrrrrrrrr and it was going so well
thanks for your reply hun Dee ok huston we have a problem (sigh) Jack came home with both knees really bashed up today no mention in his home school diary really concerned because he told me he fell while running a race now this is a kid with serious physical limitaions and he needs constant support and supervision so i guess my question is where the hell was the teacher? should i make a issue out of this?
Here's an example, because I just screwed up on Friday...our "diary" came home with a *%$@ happy face in it...NO mention of his headache and trip to the nurse for an ice pack. Now, my son suffers from both migraines and something called Cyclic Vomiting Syndrome. A headache is a sure sign that an episode is coming. If I'd have KNOWN he had a headache, I would have been able to administer a medication that might keep him from cycling, but NO, he cycled, which means he started throwing up on Sunday, through Monday...every 10 minutes for 35 hours. He's still in bed today...still not talking or walking.
My mistake was not calling her that afternoon, saying a happy face tells me absolutely NOTHING...did anything else happen? My training session for the nurse staff and teachers was yesterday, but he's had this for 5 years in the school district, all the rest of them know about it...they should have called me. At least now she knows... a headache for him is a bit more than any regular headache...it has serious consequences....for god sakes, his name, my name and phone number is on a sign in the nurse's office...I'm so mad.
Oh god, communication is key....please set them straight!!!
Hoping he has a better tomorrow. :)
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