What is in regular stores for GFCF diet. | Autism PDD

I'm kinda new to these boards. My name is Danae. My son Tyler was diagnosed with autism in June this year. We just recently started the gluten free casein free diet. I find myself standing at walmart looking at every box of everything trying to figure out what all the ingredients are and hoping that I didn't miss a code word that might mean casein or gluten... So I was thinking lets help each other out. If you know of a product that you can buy at regular stores... What is it.

I know that Frito's are okay.

And I have heard that Hebrew National Hot Dogs are okay.

to anyone that answers this you have know idea how much I appreciate you... all that special food is so expensive... Thanks!

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Tostitos 100% white corn torillas chips

Lays classic potato chips

Hebrew National Hot Dogs

Cereals are tough..you need to get those at a specialty store.

McDonald's french fries

Vans Wheat free Gluten free waffles

These are a few that I can think of. We've been on the diet for almost 2 weeks now. All my daughter eats are hot dogs, fries, chips, eggs and we make our own chicken nuggets. She is drinking Darifree and apple juice, and we have to totally supplement her with vitamens and fatty acids, because her diet is horrible. BUT..we have started seeing some changes for the better already. I heard you need to give it at least a month before you start to see any significant changes...it takes a long time to get all of the gluten out!

Hope that helps!

http://www.talkaboutcuringautism.org/gfcf-diet/foodlist.htm [QUOTE=45GIRLS]

Tostitos 100% white corn torillas chips

Lays classic potato chips

Hebrew National Hot Dogs

Cereals are tough..you need to get those at a specialty store.

McDonald's french fries

Vans Wheat free Gluten free waffles

Hope that helps!

[/QUOTE]

PLEASE NOTE:

According to McDonald's site, their fries contain both MILK and WHEAT:

French Fries:
Potatoes, vegetable oil (partially hydrogenated soybean oil, natural
beef flavor (wheat and milk derivatives)*, citric acid (preservative),
dextrose, sodium acid pyrophosphate (maintain color),
dimethylpolysiloxane (antifoaming agent)), salt. Prepared in vegetable
oil ((may contain one of the following: Canola oil, corn oil, soybean
oil, hydrogenated soybean oil, partially hydrogenated soybean oil,
partially hydrogenated corn oil with TBHQ and citric acid added to
preserve freshness), dimethylpolysiloxane added as an antifoaming
agent). *CONTAINS: WHEAT AND MILK (Natural beef flavor contains
hydrolyzed wheat and hydrolyzed milk as starting ingredients.)

 http://www.mcdonalds.com/app_controller.nutrition.categories .ingredients.index.html#1

You all are Fantastic... You don't know how much your helping me!!! Thanks so much...

If anyone else knows of anything... please add it... Help me expand my sons diet! Thanks

I dont know if you can get them in the U.S but rice cakes are also gluten free (if made of just rice and nothing els) and a great subsitute for bread. Popcorn kernals. Pop them yourself in the microwave or stove top (or even a popcorn maker)- makes a great healthy snack. Also pappadums can be cooked in the microwave or fried in oil. My klds love crunchy snacks. Pain potato crisps with salt and no flavouring, plain corn chips. Sorry I cant give you brands as we live in Australia. Hard lollies(candy) made with corn syrup instead of glucose from wheat. LizThanks for the head's up, Andrew'a aunt! I had read numerous sites that said they were OK. Now I will not chance it. Do you know of any other places who have GF/CF fries? I know a bunch of them that they sell in the regular stores are loaded with gluten. Thanks again!!I know in our grocery store they have Gluten free cookies/crackers in the same section as organic/ diet stuff.

Also, outback has a gluten free diet.

Ians makes a chicken nugget and fish sticks that are GF/CF and soy etc. free. You can find them at Whole foods in the frozen dept. They make two different kinds of each. The ones that are ok say so in large font on the front of the box.

Our walmart has VAN's wheat free gfcf waffles for .67 a box in the freezer section.
We use those for quick toasts with peanut butter.

We also buy quaker rice cakes, in plain, salted, and apple cinnamon.

Most plain corn tortilla and corn (frito) chips are fine.
Between the too, we would go corn tortilla chips because they are healthier.
You can also make a bean dip to eat with it.

Smart Balance Light margarine. (HAS to be light, not regular)

I really encourage you to try (and not give up) to broaden your gfcf kids food horizons! Find a way that eating will be enjoyable. Don't stop trying to get veggies and fruits in there! We pushed and pushed, now I have a 3 yr old that eats salad.
At one time he would only eat bread like products, crackers, cereal and MILK all the time. If you are persistant, they will eventually change their eating habits!

Hi dylansmom,

I didn't see your post before I posted mine (I was interrupted a few times with my little angel's temper tantrums). So my last post was directed to Mabel.

I did want to share with you some of my lunchbox ideas. (of course now I fear they are Feingold horrors) I've been sending cubed ham, sliced orange, dried pineapple, nuts (discovered she likes cashews), sunflower seeds, deli ham or turkey, Gensoy Heart Smarts (heart-shaped snack that resembles Chex mix), Envirokidz Crispy Rice Bars, plain Lays chips (we like the kind in a tube, not the bag), and olives.

That's all I can think of at the moment. Good luck!

Hi everyone! I am brand new here. My son has ASD , was nonverbal and is becoming verbal thanks to sign language bringing out his speech. LOTS of stimming behaviors, gets very overstimulated especially after meals.

I am also trying GF/CF, this is my second time around, I didnt really stick to it last time because I was so overwhelmed with the new diagnosis and because all my doctor's looking at me like I was crazy when I asked about it...

Anyway, thankyou for posting foods you CAN eat, Im just sick of reading all the prohibited ingredients, the list is 20pages long and I get dizzy cross referencing labels with the list !! anymore popular foods you CAN eat??

dylan loves crackers, and I was surprised that he likes "edward &sons" brown rice snaps..unfortunately the ones I bought are CHEESE! thats okay, we will keep looking for other flavors. I bought some brown rice bread, I am going to toast it and see if he will eat it.. he loves sandwiches, anybody have any good bread experiences yet ? they are so expensive, I dont mind buying it if you know of a way to make a good PBJ ?? I did not know he could have fritos!! I am so excited..please keep posting popular foods! I am looking for lunchbox ideas for him for school.

Sounds great. I will give it a try when we get through the trial period of GF/CF. Is there anywhere to get the list of brandname foods/products for the diet? Or is joining the Feingold club the only way to access that info?

And can anyone please tell me which peanut butter is okay? My daughter goes through a jar every two weeks, and it might be a banned one. Oh gosh, what if her favorite snack is the root of her evil?!

Thanks for the input. This makes me glad that we at least have a vegetable garden and buy our beef and pork from local farmers.

I agree! Feingold Diet helped A LOT control the ADHD component of my child. It is easier than the GF/CF to implement. For /yr they give you a lot of information plus book with a list of brand/products that are free of those chemicals (many are hidden or sprayed and the company is not obligated to disclose it), so you just have to look for brand/product and not be like crazy reading and trying to understand all those weird ingredients. For that amount they send I think 11 updates a year and email alerts if one manufacturer changes the ingredients and adds something else.

At first I went to wholefoods and publix to try and find the brands I've never heard of, but once I knew what the pkg looked like I found most of them at Walmart. I still buy about 20% of the stuff at publix or wholefoods

Just as with GF/CF, you have to follow it 100% to see results. You will see results in 2-6 weeks depending on the child weight.

thankyou latenitr ! Im writing all these suggestions down and we are trying all this stuff at home until I put a decent menu together, then we will start pulling his favorite foods and replacing them.. (Dylan, forgive me for taking away your pancankes, oatmeal ,and grilled cheese! )

I fixed my daughter a grilled cheese sandwich tonight for dinner! I used Tapioca bread (.50 for a loaf, freeze leftovers) and soy cheese. The cheese by itself is not so tasty, but she was happy with it grilled. Oatmeal...well, sorry Dylan. I tried!

Other ideas: Hebrew Nation Hotdogs, bacon, eggs, banana chips, Progresso Chicken Rice with vegetables soup (the only canned soup out there). And if you want to make homemade chicken nuggets (easy and yummy), dip your chicken tenders in cornstarch, then beaten egg, then crumbled plain Lays chips. Fry to golden brown. I fixed these the other night and couldn't quit muching on them myself. I packed 4-5 in a freezer bag and threw them into the freezer for future dinners. There is hope! If I can do this, you can too!

[QUOTE=latenitr]

And can anyone please tell me which peanut butter is okay? My daughter goes through a jar every two weeks, and it might be a banned one. Oh gosh, what if her favorite snack is the root of her evil?!

Thanks for the input. This makes me glad that we at least have a vegetable garden and buy our beef and pork from local farmers.

[/QUOTE]

I have read that peter pan peanut butter and skippy peanut butter are okay... for some reason before I knew that I got some sunflower seed peanut butter at the health food store... It suprisingly wasn't bad...

[QUOTE=latenitr]

Hi dylansmom,

I didn't see your post before I posted mine (I was interrupted a few times with my little angel's temper tantrums). So my last post was directed to Mabel.

That's all I can think of at the moment. Good luck!

[/QUOTE]

Regarding feingold horrors (and I'm still in shock with the first one):

You may think fresh fruit is always ok, right? Well I don't know where you are from but beware: Oranges in Forida and Texas are dyed. (artificial color) They are researching California right now. (It cost me 2 months of trouble at school and almost dropping the whole diet before finding this out)

I also use Envirokids. I know Lays are OK but I have to use a different brand because my son is allergic to sunflower... (ruins the whole Lays and tostitos for me) Thankfully he can still have fritos. The other snacks I guess it all depend on the brand.

The trick with the ingredient list is: if you buy plain oil, the manufacturer has to disclose if it has TBHQ on it, but if you buy chips that use oil they can list oil as an ingredient but they are in no obligation of listing any additional ingredients on the oil because they didn't make it, so it may have hidden stuff. Cereal and nuts may have BHA or BHT sprayed in the package and they do not have to disclose it. That's when the list comes in handy

[QUOTE=latenitr]

And can anyone please tell me which peanut butter is okay? My daughter goes through a jar every two weeks, and it might be a banned one. Oh gosh, what if her favorite snack is the root of her evil?!

Thanks for the input. This makes me glad that we at least have a vegetable garden and buy our beef and pork from local farmers.

[/QUOTE]

You need to suscribe to get the list. It is more than just buying a book. The reason is because the incredients in the manufacturer's products change so often that when you suscribe they will let you know inmediately (by email) if a product changed ingredients and is not acceptable anymore. (hopefully before you buy it again). Also, they research and add about 20+ products each month and you get those updates as well. The community is very nice and helpful, and they have a forum as well. For example, the other day I went to a chain restaurant that is on the list as OK and I have been there many times with my ds, well this sunday he had exactly the same as always and 4 hrs later he was hyper and with problems at school for 4 days. So I reported it and they forwarded the "alarm" to the rest of the community inmidiately and they researched to see the problem. Aparently they added TBHQ to one of the oils....

It is not a club, it is a non profit association and the dues go to more research. They will not include a product on the list without researching it first. The first time is for one year and includes a book on how to start, school info, some recepies, resources if you are combining with GF/CF or corn free, the food list (120+ pages book), supplement list, restaurant list and mail order guide. It also includes 11 "Pure Facts" bulletins and all the necessary emails with warnings. Second year you renew you can get only the updates for much less money... or buy everything again. In my opinion the money is worth considering all the info they send. It is a serious foundation

As for peanut butter I use Jif both creamy and crunchy without any jellies or anything fancy. As of today it is acceptable.

If her favorite snack is the "root of the evil", it can always be substituted. So far I have been able to find pretzels, chips, gummy bears, lolipops "oreo like" cookies, ice cream cones and any other treat he wants. Even gum (that's for me) It is not as bad as it looks. It is hard at first because you have to figure it all out again, but so far is much easier than GF/CF.

Hope this helps

[QUOTE=latenitr]

My daughter is ADHD/ODD (no autism), but I'm here because we've started her on gf/cf and there's not much out there for kids on the diet with just ADHD. So I hope you all don't mind me joining in! She's been without dairy for two weeks, and without gluten for 5 days. It's tough to get started, but I've found some good foods out there for her. One great treat is the Edy's all natural fruit bars. We're all eating those, they're so good. She's been eating lots of peanut butter, rice with little smokies, Wal-Mart frozen tater tots, and marshmallows with chocolate chips for a special treat. And Cocoa Pebbles are GF/CF.

I'm not seeing any real change in her yet. I plan on giving this diet a month to see any results. QUESTION: How long did it take your children to show any signs of the diet doing something? I'm feeling like the dairy-free alone is not doing anything, but maybe by stepping it up a notch with the gluten-free will do something. I've also started giving her Cod Liver Oil capsules (strawberry flavored, all natural), and she likes it. We're also avoiding red dye. It is my hope to find a way to help her control her mood swings, frustration level, tantrums, impulsiveness, and the unbelievable hyperness. I would love to get her off some, if not all, of her medication. I just feel like there must be some key out there that can help me unlock the grip the ADHD has on her little body and mind (not to mention my sanity).

She also started OT for Sensory Intergration. It's also something more geared toward children with autism, but her evaluation showed some sensory issues, so we're trying it.

Ok, thanks for letting me share. I look forward to hearing from you all!

[/QUOTE]

Hi, latenitr...

I'm not a parent, just an Aunt, but during my research, I read that the Feingold Diet can help ADHD. It focuses on eliminating:

Artificial (synthetic) coloring (you were on the right track with the red dye!)

Artificial (synthetic) flavoring

Aspartame (Nutrasweet, an artificial sweetener)

Artificial (synthetic) preservatives BHA, BHT, TBHQ

You can read more about it here: http://www.feingold.org/

She also started OT for Sensory Intergration. It's also something more geared toward children with autism, but her evaluation showed some sensory issues, so we're trying it.

Ok, thanks for letting me share. I look forward to hearing from you all!

Here are some potato items taken from http://www.gfcfdiet.com

As always, read labels to verify ingredients!

*****

All Fresh Potatoes (make your own fries!)

Cascadian Farm 1-800-624-4123 www.cfarm.com
    Country Style Potatoes
    Crinkle Cut French Fries
    Hash Browns
    Shoe String Fries
    Straight Cut French Fries
    Wedge Cut Oven Fries

Idahoan Foods (800) 635-6100 www.idahoan.com/home.htm (call for store locator)
    Instant Original Mashed Potatoes
    Instant Skillet Hash Browns.

Ore-Ida Products 1-800-892-2401
Cottage Fries UPC13120 00377
Country Style Hashbrowns� UPC: 13120 00654 6lb.� UPC: 13120 00833 30 oz. UPC: 13120 00862
  Golden Fries� UPC: 13120 00258 32 oz.� UPC: 13120 00278 5 lb.� UPC: 13120 08565 8 lb.
Golden Crinkles� UPC 13120 00286 32oz.� UPC: 13120 00291 5 lb.� UPC: 13120 08564 8 lb.
                      � UPC: 13120 08572 8 lb.
Golden Patties � UPC: 13120 00080
Shoestrings � UPC: 13120 00801 5 lb. � UPC: 13120 00828 28 oz.� UPC: 13120 00829 40 oz.
Pixie Crinkles � UPC: 13120 00297
Steak Fries � UPC: 13120 01190

Barbara�s Instant Mashed Potato Flakes www.barbarasbakery.com Store locator on website

[QUOTE=45GIRLS]Thanks for the head's up, Andrew'a aunt! I had read numerous sites that said they were OK. Now I will not chance it. Do you know of any other places who have GF/CF fries? I know a bunch of them that they sell in the regular stores are loaded with gluten. Thanks again!![/QUOTE]

Glad to help, 45GIRLS. :)

Here are the current ingredients listed for Burger King fries, which appear to be Milk and Wheat-free:

Potatoes, Partially Hydrogenated Soybean Oil, Modified Potato Starch, Rice Flour, Potato Dextrin, Salt, Leavening (Disodium Dihydrogen Pyrophosphate, Sodium Bicarbonate), Dextrose, Xanthan Gum, Sodium Acid Pyrophosphate added to preserve natural color.

Taken from here:
http://www.bk.com/#menu=3,3,-1

They actually have a good allergen table on their site:
http://www.bk.com/#menu=3,2,-1

It breaks things down in terms of: Egg, Fish, Milk, Peanuts, Shellfish, Soy, Soy Lecithin, Tree Nuts and Wheat allergens.

Also, according to Burger King's site: "French Fries are fried in a fryer designated for French Fries only."

Thanks for all the info! Wonderful, and so much help!
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