How do you know what "YOUR" Child needs? | Autism PDD

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My guy has always been very go with the flow and I am not a person to
keep much of a routine. He always transitioned so much easier than any
of my friends kids. I was completly stunned to hear that he has
problems with transitions in school. But I think it is pretty common that
asd kids do very differtly in different environments. My son is pretty easy-
going at home but he has been having a very hard time in school. Other
kids might be no problem in school but have massive tantrums at home.
It has to do with many things :different levels of visual and auditory
stimulation, situation-dependent learning, structure provided,
expectation levels. So I would not discount when your preschool says that
he has problems with transitions, it is quite possible.
My son has seemed more impaired as he got older. Not so much that he
regressed but his peers progressed faster.Especially his social skills are
noticable behind his peers. Things that still fall in normal range at age 3
do really stand out at age 7. My son was an easy toddler and
preschooler, always cheerful and up to try anything new. People would
say that they wished their kids were like mine. My son is seven now and
at this ag he is harder to parent than his peers. I am amazed when I see
how other seven year olds key into the environment and can be trusted to
do things. My son has at times an amazing lack of common sense and I
always have to keep an eye or at least my mind on him. I have a feeling
that gap between him and his peers is going to grow as years go by. Thanks for the reply.

He does not get upset when I wont do the scenarios. He just moves on, if I don't give him the response.  Breaks in routine do not seem to upset him, althought his teacher at Head start claims he has a problem with transitions, but I don't really agree.   Just beacause he is not used to the routine of school they seem to think that.  (It's only been 2 weeks)  The problem is, that he is not used to routines whatsoever because at home there really is no routine.  Every day is different as far as my schedule so he goes with the flow.  What really seems to upset him is when he tries to do something and it wont work he gets VERY frustrated and will start slamming for example the train tracks if they won't connect the way he wants he starts slamming them. He doesn't reaaly have tantrums too much.  I was horrible with tantrums as a child and I am not ASD...so I don't read into that too much.  What concerns me most is that although at 3 now his conversation limitations are subtle, but will it become more noticable as he is older??
Thanks for the reply.  My son was evaluated initally by Early Intervention and then refered to a hospital and evaluated by them.  Early Intervention thought he was Asbergers and the hospital pediatrician said PDD-NOS, however neither one of those entities had any action plan whatsoever. (discouraging...)  He has yet to receive even 1 speech thearpy session.  I am hoping to find another parent out there whose child has similar autistic symptoms as my son, to offer me specific suggestions on things they have had success with.  ie GF/CF diet toxin elimination speech therapy special schools...etc.  I live in the Boston area.
For more specifics on my son's symptoms:

He was able to count to 10 at 12 to 15 moths old
He knew the entire alphabet by 2 years(including recognizing the letter visually)
He memorized evry brand logo, store logo, car brand logo, tv channel logo.  This started before 2 years old.

He is a little hyper and is not able to sit still for very long.
He has a hard time following directions.
He headbuts and hits himself and others for no apparent reason.
His is able to communicate his needs, but says things they way I would say it in the situation ie: "Are you hungry?" instead of "I'm hungry."
He likes to repeat the same scenarios over and over ie: He takes me to his room and says.  "You have a nice room."  Then he sits by all his stickers and says "You have a lot of stickers"  Goes to his bed and says " Do you like that cars bed"  He feels the need to repeat this more than once daily.
His teacher claims he has sensory issues but I don't notice that.  What does that mean anyway??

Anybody relate to these autistic symptoms??

Your son sounds alot like my Jacob.  The only therapy he's receiving right now is ABA, and yep...I'm a do it yourselfer and finally comfortable enough that I know enough to actually talk about it on here.  Let me go back a little and I'll explain how this came about.  My oldest son was diagnosed with classic autism, and I didn't get a little pamphlet that said "What to do Next".  I enrolled him in school and I joined these forums.  I first heard about ABA here on these forums.  I divorced my ex husband and moved back in with my parents.  We didn't have a custody arrangement at first and I was afraid my ex would kidnap B from school if I sent him, so I started looking for different routes we could take.  I got a neurologist to approve speech therapy and found a therapist thorugh a home health agency who would come to our house.  I thought what she was doing was just speech therapy, but it wasn't.  I turns out that was ABA.  When we lost our wonderful speech therapist due to moving, I continued with Brendon using the methods she'd used.  They worked.  All during this time I kept hearing about ABA and how it really works with these kids.  One day I pm'ed one of the do it yourselfer moms on here and asked her if I could see her son's ABA charts so I could learn to do it myself.  It turns out that I already was doing ABA with my kid and have been doing it myself since January of this year.  Now my youngest son has a diagnosis.  He's been in ABA since I first suspected something was up.  He's really progressing with it and is to the point now that's he's picking up new skills quickly.  OOPS...sorry this turned into a mini essay. 

ETA:  I'm saying ABA is a standard "next step" for some.  There are some other great therapies out there, but I don't know enough about them to be able to give any advice.

Rhosyn39355.3117361111The headbutting and hitting himself and others are signs of sensory
issues. An occupational therapist who works with sensory integraton will
be able to provide treatment for that. I have also always asked therapists
to include recommendations for home and school into their reports and
have gotten somee hepful advice that way.
Your son would also be able to profit from speech therapy. There is much
more to language than vocabulary and pronounciation and it sounds like
his expressive language is ahead of his receptive language. Speaking in
short and concret sentences will help him comprehend what you say.
Questions might not be in his comprehension yet but you could start by
phrasing questions for yes or no answers. For exapmle ; Do you want a
bagel? instead off 'What do you want for breakfast? You might have to
prompt for an answer at first.
Your son also shows a pretty typical rigidity of repeating scenarios and
prompting you on what to do and say. Does he have tantrum when there
is a change to the scenario?
My ds is and has always been very friendly with strangers. Not all kids on
the autism spectrum are withdrawn or show little interest in others -
many will show social interests but not always appropriatly so.
Overall your son seems to have many things that are quiet typical of kids
on the autism spectrum. And he alo sounds very bright and engaged,
There is lot you can do with that and your son will make a lot of
progress.
Your local autism society would be able to give you recommendations as
to what therapists are available in your area.
I found the first six month after the diagnosis are the hardest. I worried
so much and I was no longer sure how to understand my son.I knew he
needed help but finding out what and where and how was so confusing
and overwhelming. I read everything I could get my hands on and talked
to many many people in my area about what was available and how to
access it. And places like this board were hugely helpful for all the
support and wisdom it offered. You will come to a place where you will
know your kids needs and how to help him. Keep coming back and ask
us anything you can think of, someone here always has an answer or can
at least offfer support. You can also do searches on this board , for
example for book recommedations and you will find a wealth of
information.
WelcomeHello All,

I am new to the forum.  My son Evan is 3 and was diagnosed in June with PDD-NOS.  I initiated the evaluation, because his memorization skills were so exceptional I thought it was abnormal.  I also noticed that if you ask him a question he doesn't answer.  Besides that though everything was developmentally on target.  He makes eye contact he is VERY friendly and initiates interaction with everyone, even strangers in the street.  His vocabulary and pronounciation is above average, although his speech is usually mimicky or in the form of a question.  He is in the process of being evaluated by the public school and is attending Head Start.  I don't have much faith relying on their opinions and or action plans.  How am I supposed to know what MY CHILD needs?  Any advice??  Please help.


If you have the resources, I'd recommend a private evaluation.  We did that this summer with a private neuropsych.  Our insurance actually covered it.  She gave us a 12 page report that included 3 pages of recommendations.  For the most part, the recommendations were in line with what the school was planning for this year, which was comforting to hear.
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