what is your child’s therapy plan | Autism PDD
He is in the special needs Pre K 5 days a week, 3 hours a day.
There he receives speech for 10 minutes a day, everyday.
Private OT once a week.
We are just getting the ball rolling. I am also on the wait list to start PLAY Project, which is similar to Floortime. Hopefully within the next couple of months we'll be up. We need private ST, that is next on my list if we can get the funds.
I am going to be honest so please be patient with me.At this point.
We are up to 40hr a week VB/ABA program with his therapists as his
shadow aide in typical Kindergarten. He is doing great with minimal
prompts. We are starting to take data on typical peers as well as data on
him to see how he is progressing. When the data starts looking the same,
then we will back off on the shadow and by mid to end of 1st grade be
done with a shadow.
We do speech 2x week. We will start FAST FORWARD this October and this
will be done at home 2x a day until the program is completed. This si to
address his auditory processing
We do the GFCF diet
We do have Biomeds in place with a DAn but we have been taking it
slowly and about to notch it up a bit to the next level. We do the MB12
shots.
We have just completed 40 hrs in Hyperbarics.(Hard Chamber) probably
will take a little break before doing another 40.
I do want to add social skills and Karate next year.
Wow, it's amazing to see how much therapy all your kiddos get!
Don's never had any formal therapy really, and I'm certain if he had we'd
be
further along than we are, but hey, progress is progress
Donny attended a developmental preschool (not a good one though) from
age 3 1/2 until he started kindy. They introduced PECS, but there was no
follow through at home. They were more used for labelling and as a
visual schedule - not used as a communication method. Donny received
up to 3 hours per week of ABA/VB, and a couple hours per month of OT
from the time he came up on the waitlist after diagnosis (so about half
way through kindergarten), until the end of his kindy year. Most of his
sessions were cancelled by his foster mom, and he aged out of the early
intervention program by the end of kindergarten. From the notes we got
when we adopted him, I saw that he had all of about 4 sessions with the
ABA/VB therapist, one SLP consult, and about 5 total sessions of OT,
including consult.
School provided him with a full-time one-to-one para, in a regular
classroom. There are no special education classrooms in our Province.
There are resource rooms for pullout, but they're not self-contained
classes, and there's no full-time special ed teacher. In our school system,
basically the paras are the teachers - it's atrocious really.
When Don moved in with us (early in Grade 1), he started receiving one
hour of PT/OT per month. School stayed the same. We implemented ABA
strategies and principles at home, along with visual schedules, BIP, and
PECS for labelling and requests.
Today, at 10 1/2 and in 5th grade, Donny attends school for a total of 5
1/2 hours per week, in a self-contained classroom where he is the only
student (there is no teacher on site that works with Donny) and has two
paras assigned to him while he's there. He is not getting any speech, OT,
or PT - no formal therapies at all. We still use ABA principles at home.
We also have used a behavioural consultant in the past to shadow the
aides and provide some training, and also did some psychoed testing.
I'm leaning towards getting Don some VB, but don't know who to hire, or
where to get the funds...
As for supplements, etc. we give Don a daily multivitamin and a very high
dose of CLO (1500mg/day). We did a fair amount of biomed stuff a
couple years ago to heal his gut and address some deficiencies
(probiotics, GSE, Taurine, Methionine, Zinc, Selenium, enzymes, GABA,
CalMag, etc.), and saw his physical health improve dramatically.
It's interesting to see what everyone is doing.
We are getting speech therapy 1/2 hour 1x a week, OT 1 hour 1x a month, autism consultant that comes to our home 1 hour 2x a month and a special ed teacher that goes into his preschool 1/2 hour 1x a week. He is going to a typical preschool but one of the other little boys is in the process of being evaluated for ASD.
Next week we are starting ABA 5 hours a week, which I thought was a lot until I read everyone else's list.
Tricia
My 6 year old is in a self-contained K-2 class with push-in services for speech (3x week) and OT (2x week). PT is pull out by himself or with a peer (1x week). He is mainstreamed for music, on the playground, and will start eating lunch with the typical first graders on Monday. He will also be mainstreamed for math eventually. Outside of school he gets private speech 1x a week, goes to a typical sports-themed class at the little gym 1x a week and will soon be playing sped basketball. He also has an aide 3 hrs a week who tries to help him be more social in our community. I sneak child essense in to his food whenever I can. Unfortunately he stopped drinking OJ so he no longer gets fish oil but I give him eggs with Omegas. I also stick ground flaz seeb in his cereal when possible. I would also like to start sensory integration therapy but the poor kid needs some time to relax!
My 2-1/2 year old gets 2hrs of floortime 2x a week, 2 hrs of speech therapy 2x a week and 1 hour of PT 1x a week. He goes to a typical pre-school 2x a week and if I had the means I would have an aide there with him. He will most likely go to the sped pre-school when he turn 3 in January. I also take him to a play group on Mondays run by speech therapists for kids on the spectrum. I give him fish oil when I can, B12 shots when I can and I had both him and his brother on the GF/CF diet for at least 6 mos but their was no change at all so not anymore.
Nathan just turned two. He gets 9 hours of ABA, 1 hour PT, 2 hours of OT, 2 hours of ST and one hour of dysfasia through Early Intervention. I also take him to private OT, PT, ST, and Dysfasia one hour for each per week. We are hoping with an aggressive approach we can back off down the road. So far it is working.
With Gabriel who is four, he is in a self contained preschool five full days/ He also gets one hour of ST and dysfasia per week that we pay for privately.
DS gets: Sped school 4ds/wk, reg. class 1 full day with aide, ABA-15 hrs, spch. 2hrs/wk. OT- 1/wk, swimming lesson 2ce/wk.
If money were no object, Dan doctor, nutritionist, and BCBA consultant. I would love to add SID therapy, social skills and play group. Would love 1hr speech 5 days a week and group speech 2x a week. As desired by the other moms, Autism friendly home would be highly appreciated as well.
If money were no object I'd try vision therapy, listening therapy, hyperbaric chamber. Those things seem to make sense but insurance does not cover and we still need to eat.
Concernedpa.
5 year old dd is mainstreamed and gets 40 min speech a week, 60 min. OT a week, and 90 min. RSP per week. I also have her in ballet 1 hour a week to help with some of the motor stuff.My 2 year old who just got a PDD-NOS dx today was already receiving 1 hour in home speech a week and an 80 min. separate playgroup a week. I will find out in the next few weeks what he will get with his new dx.
J- regular class and SPED. Has an aid, speech, ot, social services,behavior plan, sensory diet
T- child find with speech, ot, life skill help at home.
God's Grace goes to sped preschool 5 days a week until 1:30. She receives ST and OT there 1 X per week. She also receives both of those after school twice a week. She is on the GFCF diet, takes numerous supplements including MB12 shots. We use ABA principles, PECS and sign language at home. We are about to start the Hanen program for communication and social help.
If money were no issue, I would use music therapy, hire several to help with ABA at home several hours per day, and get Hyperbaric Oxegen dives.
Wow - pretty much what fred said! We are doing mainstream kindergarten and the school is mostly providing services.
We used to do a TON before kindergarten, but since it is all-day here - ds is just too wiped out to do anything else. We do swim lessons on Saturdays to promote coordination and upper body strength though.
We do fish oil - one capsule a day 100 mg. He eats a VERY healthy diet but I too am considering enzymes and/or probiotics after a meeting I attended the other night! All the parents are doing the diet and we just can't go there.
Ds will most likely get OT through the school and he already is getting social skills there (RDI type).
If money wasn't an issue and if TIME wasn't an issue - I would love to do a lot more. I'd like to try the diet, but just cannot fathom the expense and time it takes. I have so little extra time right now that there is just no way.
I would also like somehow to get ds extra social skills training. I would like to do PACE Place (in Oregon) - and am looking into how to do that. Their website is www.paceplaceinc.com if anyone is interested. I thought it was a scam and then I met the director the other night at this support group. Apparently, Minnesota is a "hot spot" for autism and he has a TON of clients here - I met four of them (who belong to this support group). Lots of cool stuff and he is all about stopping the "walking on eggshells" that I sometimes feel I do. He said we probably all do it and don't even realize it. Any time you make a sandwich a certain way (so the child doesn't lose it) or go down a certain street or do something a certain way - all with the subconscious goal of doing it to avoid a meltdown - that is what he is all about working on. The moms and dads that were there RAVED about it and said it totally changed their family. I know another mom (separate from this group) who just got back and is raving about it. Not to plug a commercial here (I should probably start another post!), but it's worth looking into. VERY pricey, and I would never have looked into it had it not been for going to this group. I honestly thought it was another one of those scam things - but after hearing about it and meeting the director - I do not think that anymore!
Allright, off soapbox now... Jasper attends a collaborative pre-school program- 12 typical kids + 4
special needs kids w/ their own special ed teacher and aide for support.
He receives OT (30 minutes in class+1hour in gym) ,APE (adaptive PE),
Social skills group (30 minutes), and group speech(30 minutes) every
week there.
He attends private OT 1 day a week, and yoga class w/NT kids (for
attention, and body awareness--and fun 
)
I'm looking to add a play group and gymnastics class, perhaps. He needs
some speech therapy too, for voice modulation.
I just give him fish oils and a multi-vitamin every day.
If money were NO object, I would have a play therapist here at the house
several times a week and a private in-home behaviorist to help with some
OCD behaviors.
If money were REALLY no object, I would live in an autism friendly house
with a pool and a big gym attached!
Flip - we're putting all of our eggs in the mainstream integration basket. They had two years of developmental preschool, and it was decided that the best thing for them was a sole, typical placement. They do pay some attention to their peers and generally 'go with the flow' in class, so the thinking is that just full immersion with typical kids will help with their language and social skills. It's a gamble, but we don't have much of a choice, as there aren't a lot of options for HFA kids where I live.
If money (or, more accurately, their mother) was no object, I would move to a state with better programs. I would like them in language therapy daily, focusing on language pragmatics and social skills in a group setting. I would also like them to be getting OT and PT through the school to help with their coordination and sensory issues.
For diet/supplements, I give them a teaspoon of COL daily, a regular children's multi-vitamin, and we eat a pretty healthy, balanced diet (not restricted). I'm contemplating enzymes and/or probiotics because all of this 'gut' talk does tend to make me wonder if I'm missing out on something, but their mother won't do a restrictive diet, so I'm thinking of trying supplemetns instead. Not sure if I'm going to, though - I'm not finding the information I've been referred to for reading up on these things to be especially convincing, then again, they are safe and relatively inexpensive, so I probably will give it a whirl.
Thanks for sharing, folks!
My son has 20 + hours of VB/ABA in home, 5 hours of typical preschool with VB tutor as shadow, Floortime Consultant--two times a month (and we implement the activities as a part of our daily routine), speech therapy 1 hour a week, therapuetic listening daily. (We don't use the public school in order to get an autism scholarship through the state that pays for some of his therapy). He goes to swimming lessons in a small group and we go to the park a lot. I run VB programs a couple of times a week with him and help generalize the skills he is working on.
I love the suggestion of the autism friendly house with pool and gym attached!
The plan is slightly different for the two boys cause while most see them as pretty equal I don't. I think there are huge differences between them. Nikolas is in a ASD preschool class. He has a speech therapist that is actually part of the class 2.5 days a week. He gets OT there but not with the consistency he gets speech. Andrew is in the special ed developmental preschool class. Its a good placement for him. They are suppose to go 30 hours a week, but 3 days a week I pull them out early for private therapy which consists of OT, ST and ABA. We don't really have a professional calling the shots, I do that. We have been to a dev pedi, a neuro, a psych, and I haven't really been thrilled with the dev pedi or psych here so we don't take our cues from them. I do hope to get into a dev pedi that comes highly recommended.
If money wasn't an option, I would probably do DAN. Oh I too would have an autism friendly house. Wow the things I could buy! LOL!
Flip,
C gets speech, OT and social work while he is in school. He leaves for school at 8:30 and gets home at 3:45.
Outside of school, we have speech for 1 hour 1x/week and OT for 1 hour 1x/week. This is through a private clinic where he has been going since age 2.
In addition to the 2 evenings doing private therapy, C has soccer practice 1 evening a week and a game every Saturday. (Once soccer ends it will be basketball and then t-ball).
He has homework every night, and we also spend 20-30 minutes with him working on his reading each day.
I also try and set up 1 playdate per week for him now (sometimes in the evening, sometimes on the weekend).
I don't think we could/should do any more with him. He needs some free time to just be a kid and play.
My son receives 12 hours of ABA/week at home. Also every morning for 3 hours, in a "NT daycare" an aide accompanies him helping him to generalize whatever he has already learned during these 12 hours and keeps him engaged and focus on communication . He is also seen by a speech therapist twice a month and she gives us a plan to work with him.
We work with him whenever we find time based on recommendation from a RDI consultant. We also have been trained on hanen program (More than words) so we try to implement it in our interactions. Basically at home we try to apply whatever we know including floortime activities (very similar to hanen but covers a broader area than just communications).
My son has progressed well, but we are not sure which of the above has helped him more. I personally believe scientific based interactions of the parents with the child works very well.
Daddy
After reading Cam's post about his son's therapy plan I became interested in what everyone else is doing. I know many do this or that, but what does the big picture look like?
Could you share what professionals you work with, what types of therapy your use, diet/supplements, how many hours a week at school/therapy, what type of school with what kind of supports, what you do at home with your child. Are you happy with the results? If money wasn't an issue, would you do anything differently? Since every child has such different needs I find it interesting to hear what you are all doing. We already know that what works for one may not work for another. I think it is important to hear what is working for others and to be well informed of what is out there.
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