Big hugs - that sounds like such a tough situation - - COuld you afford to get an independent evalautaion ? We went to a regula rpsychologist and he was able to diagnose R in two visits [QUOTE=Rhosyn]
At this point I'd request to have her reevaluated for ASD though the school system. If they refuse, I'd ask for an Independent education evaluation. Sorry, I can't think straight after reading that post in the CDC announcement thread from that board certified pediatrican.
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Thanks for the warning Rhosyn I am not going to look at the thread
"Sorry, I can't think straight after reading that post in the CDC announcement thread from that board certified pediatrican."
Thanks for the replies. I feel lousy because I think my dd hates me. I let myself get worked up in the past when she cannot answer a question so now, she hides from me. I went to get her backpack from her today and she freaked out...the note from the teacher was in there. When I asked her about it, all she said was she "forgot" about everything. However, my Mom came by today and my dd took her to her room to talk about it and shut the door.
Anyway, dd is 5. To me, she appeared most autistic at 2yrs. I didnt know what I was dealing with then so I didnt react. She started stimming with her hands when she was excited around her first b-day. She had words come in at the right time but all she did was label. She labeled and had tons of echolalia until she was three. She started talking to us with memorized phrases and eventually started using spontanious sentences at around 3.5yrs but she had a lot of grammar errors and she reversed pronouns. The pronoun thing didnt last too long, a few months so I am not sure if that is considered a red flag or not.
When she did the Vineland, she just had a huge burst in development. They noted her eye contact was good and I remember she asked where the kids were at...she was in a classroom. She appeared ok socially then. We went to Mommy and Me classes and she liked the kids and my middle son was just born. She loved being a big sister and "helping" out as much as she could. She would make statements like...Mom, look they have bubbles! They said that was joint attention and said no way to asd.
So, I dont know. I think its great she passed the Vineland too but with her language issues, the stimming and her now evident social problems, I tend to think she is on the spectrum. I do agree that she is HF and it takes some time to really see it. But, once you do, its obvious...if that makes any sense.
I am going to talk to the principal tomorrow and see what we can do. I am not comfortable with my dd getting time out for language issues that I already made clear of. To add, she was in time out three times today. What is that??? I understand if she is acting bad, I have no problems with time out but she cant be there all day. She seems to have no idea why she is there in the first place. It breaks my heart.
I also feel like crap because she is having these hard times and I seem to somehow make it worse. I cant believe she wants to hide from me. I wish I knew what I was doing...
Answering questions is easier now that he's 9 years old, but he struggled at your daughter's age, perhaps especially with questions about feelings. This issue was put on his IEP in first grade. Now, in 4th grade, discussing feelings is one of his strengths. Don't lose hope!
You're having trouble getting a diagnosis, and so did we. The first consultation we had, with a speech therapist at age 5, left us with a pat on the back and "keep up the good work." Two years and many experts later, he got a diagnosis of PDD-NOS (called atypical autism here).
The problem is, so few people that deal with children know what high-functioning autism looks like. Most parents, teachers, and pediatricians are in the dark, perhaps especially with regard to girls.
You can get a private diagnosis, but you'll have to go through the school system anyways to get help, so you might want to start there. Anticipate what they'll ask at an evaluation, and make good observations so you express your concerns clearly and answer their questions. The following checklists should help.
http://www.childbrain.com/pddq6.shtml the ever popular childbrain quiz
Diagnostic checklists from the book "Parenting Your Asperger Child":
http://printables.familyeducation.com/forms-and-charts/skill -builder/51750.html - Part 1, Difficulty with Reciprocal Social Interactions
http://printables.familyeducation.com/forms-and-charts/skill -builder/51751.html - Part 2, Impairments in Language Skills
http://printables.familyeducation.com/forms-and-charts/skill -builder/51755.html - Part 3, Sensory Sensitivities
http://printables.familyeducation.com/forms-and-charts/skill -builder/51752.html - Part 4, Narrow range of interests and insistence on set routines
http://printables.familyeducation.com/forms-and-charts/skill -builder/51754.html - Part 5 - Cognitive Issues (including mind-blindness)
Good luck with everything. I'll be thinking of you.
I am pretty down right now, I have had a miserable day
My dd, who I have suspected asd in for over 2 years and never got a dx, is starting to show some serious problems at school.
I am frusterated tonight mainly at the school district, my dd's teacher and my husband. It was about two years ago that I went to the school district because was concerned about asd. She was three at the time and she was given the Vineland. She scored within her age range and they sent us on our way. She was evaluated by our Children's Hospital later that year and after a short visit, they decided she was not on the spectrum either. I started to wonder if I was crazy, after all, my husband made me feel that way. I have been begging my husband to take my concerns seriously for years and to this day, it is all a big joke to him...I am on the internet to much...bla, bla, blaaa.
I kept hearing things from my husband and my family that she was "fine" that I was overacting and "just wait until she is in school, she will be fine..."
Well, now she is in school. She started Kindergarten last month. What a disaster it is becoming. The poor kid is in trouble every day. She cries and she hates school now.
I am more than pissed that I went to her teacher BEFORE school started and explained everything to her. My biggest concern is language. She has the vocabulary but for some reason, she cant use it. She does not make sense when she talks, she cannot explain herself. I even went to her teacher again after school started to see if we could set up some communication about dd's day because she cant tell me about it. Her teacher told me...no news is good news and dismissed everything I said.
NOW, after my dd being in trouble daily, her teacher has decided to use a time out chair. I got a note today of why she went to time out and it says dd did not respond to questions about being angry with another student. Well, she has no idea HOW to respond. This was my point all along.
DD is not adjusting well. She does not know how to interact with the kids. Her language is scripted and she scripts her teacher a lot, coming off as bossy and the kids hate it. When dd is upset, for some reason, she jumps in front of their faces and growls. She has been in trouble for this three days in a row at school. She tries to interact but now she is rejected and she seems so hurt by this.
I dont know what to do. I have another evaluation set up for her next month. I just dont understand why she is so hard to dx, I see the signs so clear. I struggle all the time wondering if its all me...but, I know signs are there so I cant be crazy???
What can I do about the school? Somebody needs to listen to me. If she passes the Vineland, I am out of luck? That cant be the only thing in my way, right??? Why is this so hard???
Now, my big question, how do I get dd to understand not to get in the kids faces and growl? This is causing so many problems. Not only does the teacher hate it, the kids hate it and now are hating her all together.
Please anyone, I dont know what else to do...
I'm sorry that you are having a hard time....this teacher does not sound helpful at all. She should be trying to work with you to help your daughter and not brushing your concerns aside.At this point I'd request to have her reevaluated for ASD though the school system. If they refuse, I'd ask for an Independent education evaluation. Sorry, I can't think straight after reading that post in the CDC announcement thread from that board certified pediatrican.