well we survived... | Autism PDD

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by the skin of our teeth,sorry not making alot of sense here we have been away for a few days always fun,not.Found out that jack loves crazy golf and was soooo well behaved while we played it was a joy to see.Katie however was a different story having a week to really watch her opened my eyes big time(katie is just starting assesment for ASD)i swear in some ways she is more autistic than jack she has frigtened the life out of me more than once we always knew she had issues with safety but good lord i hadn't realised how poor her sense of danger is no matter how many times we told her not to go into the water alone she didn't stop i mean the water was freezing and she nevr complained just kept right on going,On the funfair rides i wasn't having heart failure she'd be hanging over the sides trying to stroke or kiss the ride i'd be watching with heart in my mouth.Her obsession with stuffed Animals is also out of control we came back with yet more of them we already can't see her bed for them chnging her sheets is a nightmare.I certainly had my eyes opened this week i can't believe i have been so blind for so long i really feel like i have let her down but she is so quiet and happy to make her own entertainment and happiest in her own company jack been so demanding we have left her to her own devises far too much i see that now.

 Jack however has  regressed slightly in has much has biting has once more reared its ugly head,that and eye gouging not fun he is stressing about starting his new school he now reacts everytime someone mentions school all he says about it is "not go a school" but follows it up with some kind of undesirable behaviour.Eating is just not happening he just will try nothing other than his few(very few) chosen food none of which have any nutrionally value at all we see dietician next month and scared that he is going to end up with a NG which we really don't want

sorry i'm rambling here it has been a long week and sleep has been very little i just needed to get that off my chest feel free to ignore

 

Dee

I do hope the next week and even the next month goes more smoothly for you.  It is really hard dealing with two kids on the spectrum.  I know I am constantly having to make sure one kid doesn't get too much attention over the other kid.  That happy medium is hard to achieve.  Both of mine have safety issues so don't feel by yourself.

Tammy

thanks for that Tammy

 

doesn't help that my oldest boy has what they refer to has "social issues" and i nearly came top blows with a neighbour over him on friday not pleasant but they do do say it never rains but it pours

thats what we have been saying to ourselves for the last couple of years "she is mimicking jack" but the school holidays has shown me that she is not i just hope we haven't left it too late to help her.I also have concerns with her hearing and am going to get that checked out.

could you not ride the ferris wheel with him?if they will allow you it is better than standing at the side with your heart in your mouth watching them

thanks for the reply

Dee

Hi!

I just lost my entire post cuz of popup blocker.

I can't even fathom going through this with more than ONE child!  Just dealing with AJ drains me.  Don't be so hard on yourself!  You are a GOOD Mother.  You noticed "something" out of the ordinary with the other one, and I am sure you will get her tested, too.  To me, that is the best thing anyone could do for their child rather than sit in denial and not do anything. 

We are taking AJ to Six Flags sometime next week.  His Dad thinks he can ride on the baby ferris wheel.  However, I don't know if that is such a good idea cuz I don't know that he will stay seated.

Anyway, you already know testing is the first step to Early Intervention.  Who knows, perhaps she is just mimicking your other child. 


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