Iam Ready to lose my marbles! | Autism PDD
Thank you for all the post and things will get better hopefully for all us!
Thank you toyza............I have been reading the post and you have some great information that helps us all.
hugs to all!
tanglewood67
No advice for you, sorry
Just big hugs, I am so sorry you have to go through this, I wish there was something I could do to help!!
I know what you are going through. My son just got diagnosed with ASD PPD-NOS last Friday and I am still adjusting to what it entails and doing my research and getting more and more depressed with each website I visit. His father is acting like an idiot, so it's all on me.
Anyhow, I have an appointment with a pedi neurologist next month for a second opinion before I accept it all. Unfortunately, services her are extremely limited and I may have to uproot my family and relocate all together, find a new job and the whole she-bang.
Mateo has been going to the same pre-school since January. He just got "promoted" to K-4 which initially had two classes of 12 students each, but since all of the parents wanted one particular teacher, so they combined the class. The teachers are unhappy, the kids are bunched together, and Mateo cries and screams every morning when I leave him there. It tears my heart out as I feel like such a bad parent. And, even though he tells me that he's not going to cry, he does. They tell me that he stops a few minutes after I leave and he is happy and playing when I pick him up in the afternoon, but every morning is emotionally draining.
When school frist started 4 weeks ago, I was on vacation and honestly kept him home several times a week because the days that I would drop him off, I would stay in the classroom for hours sometimes and he still never wanted me to leave. It's heart-jerking.
Now he doesn't want to go anywhere with anyone but me. He won't go to the store with his older sister (she's 17) and I had to spend more than an hour convincing him to go and spend the day with his dad this past weekend.
I'm waiting for the second and possibly a third opinion before I accept this. That may be wrong to stay, but I don't know if I can do this by myself.
What is the FBA and BIF? Can you tell me more about the Sensory Integrated Dys?tzoya
yes I understand exactly what your saying. She is getting a full OT eval, plus a PT screening. I dont have any issues with her school.
Iam a single Mother, her father is out of the picture because he sexually abused her on top of all her other problems. I am doing this all myself with no help at all.
When I mention Normalcy I t would be nice just to paint my toe nails but I would have to do that at 11:00 in the evening and frankly Iam burnt out.
Yes the journey is different and it has not stopped since the day she arrived. Iam doing the best I can and I do believe I do a dam good job. Most people I know would have given up and threw in the towel. Not me, Iam a fighter and I am a ten year survivor of Breast Cancer.
My daughter and I have had are plate full and we will keep on fighting the battle. Some days we do have bad days and today is one of them for me.
Thank you for the advice and enjoy your day!
I have been doing this for 16 years. My son was born in 1991 when there was really NO info about PDD-NOS. I survived by connecting with other moms who are facing similar issues. We are STILL in touch. In fact, I just went to the wedding of the son of one of these moms this past summer. He did not have autism, but he had lots of school issues, LD and severe ADHD. It was a true inspiration to see him truly become a man!
I am lucky because I have a great husband, I could stay home with my son when he was young (tho I'm about to start a job) and I had these WONDERFUL women to network with. I met them in the support group at my son's preschool and, when our kids aged out, I welcomed these moms into my home once a month to continue the support group, privately. We just stopped monthly meeting last year after 10 years! However, we are all friends now, so we still meet informally when we have time and many of our kids have become friends. I heartily recommend getting involved in in-person support groups. I got the MOST important other information from my fellow moms -- long before there were internet forums like this to help.
BTW -- I believe I've painted my toenails 2 or 3 times since my son was born, and NEVER until he reached at least age 15!
Another good thing to do is speak to the social worker at your daughter's school. Ask about how to get in contact with respite services. There are a lot of grants out there for free respite services for parents of kids with diabilities. You just have to hook up.
Keep us posted.
Have not posted in a week due to moving and school starting. Gina entered 1st grade and she is crying every morning. She has been in school for 3 yrs and I thought by now the crying would pass. She has an IEP has wonderful teachers and that is the reason I moved.
I brought my daughter to a neuro phych and I received the report of PDD, ADHD and possible Aspergers. I went to her pedi and said he will not precscribe meds for ADHD until I bring her to a pediatric behavioral physchatrist that will get a firm diagnosis. The report from the neuro indicated that there could be to many things that can immulate AdHD. It also stated possible auditory hallucinations? God knows what that is. Iam just at my wits end!
Now we have an appt with the physchatrist october 9 th and this should be the last doc. I have done everything theres nothing more I can do. I just want to get some answers, not maybe it is this etc. So hopefully with the next physchatrist we will get somewhere.
This morning was herendous my daughter got up and cried for 2 hours and begged me if she could stay home. I gave in because frankly I am sure the school would have probally called me. She promised she will go tommorow. I was very firm with her and said yes you will crying or not! She says she missing me and I just thought she would get over this.
sorry for venting but I have just had it with this crap and school has been like this since she has started back in preschool! I understand she has issues, but issues or not she has to go to school! Iam also upset with myself for my child manipulating me and I gave in!
I feel like Iam the only one going through this, least in my circle of friends and family. Iam the only one and all I hear is what I should do. They dont live with this and have no clue it is a battle everyday because you never know what issue is going to arise with Gina. Thanks and I hope I she will stop crying-tonight is back to school night. Iam sure I will hear all about the cyring, it is nothing new to me but it is tiresome. I feel like a parrot lol i repeat myself and have to go through the hole spiel over & over. Then we have another IEP October 9th- too much chaos I JUST WANT SOME NORMALCY like everyone else I know! sorry again I had to let this out! I feel better now and wish me luck for tommow morning! I will be praying tonight!
When you say you have an IEP Oct., I'd immediately ask that an FBA and BIP be done before the meeting. Search here to find out what those are. The school is responsible for helping your daughter develop good behavioral skills and coping mechanisms. YOu might also ask for a full OT eval, including for Sensory Integration Dysfunction so that she can get intervention in that way, too. About " I JUST WANT SOME NORMALCY"...got news for you. The day your daughter entered this world was your last day of "normalcy." I'm not saying taht your life (and hers) won't be good, but your journey will be a very different one. When autism enters a family, it changes the family. Hallucinations can affect any of the senses including sight (visual hallucinations hearing sounds of voices (auditory hallucinations) or other senses (e.g. taste hallucinations. Hallucinations can occur from many causes, ranging from causes such as hallucinations from a high fever (esp. in children or the elderly), various types of drug useor intoxication, brain disorders (e.g. epilepsy), or from delusional disordessuch as schizoprenia (and variants of these disorders). Many causes are possible and hallucinations of any kind need immediate professional medical assessment. when you go to your appointment tell them you are not leaving unless they give you a concrete diagnosis If there is ever any term used here that you don't understand, just press the search tab at the top of the page, then type in the phrase or word. I don't want to be flip, but so many of us have posted the definitions of many, many terms, that you'll get your answer faster and we won't have to keep reposting. It's just a good trick to remember. Now, for the answers: FBA = FUnctional Behavioral Assesment BIP = Behavior Intervention Plan Sensory issues -- too long to go into here, but you can read THE OUT OF SYNC CHILD or ask the OTIntroduction: Auditory hallucinations
I don't have any advice because I have not dealt with this situation before but I'll certainly say a prayer for you.
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