Jenny McArthy’s "recovered" son | Autism PDD
My son was one that went backwards. It took him a long time to walk, talk...then he lost them...and got them back. I do not think "recovered" is a term I would use though...since he is not cured. He just lacks in other areas more noticeably now. [QUOTE=zayzer]
Why would insurance companies pay for therapies if no one believes our kids can recover?
[/QUOTE]
That is perfectly said...so whether we actually believe they can recover or can just develop and appear more NT and for the most part indistinguishable...the only way we are going to get anywhere with this is to have ppl on our side telling there stories of recovery!
As far as the Jenny McCarthy thing I hope it is something that is accepted though, like ABA...it can't be something outrageous or odd or that might hinder the progress that has been made...but if it is accepted, more power to her IMHO!
EMerald-YES!!!! Insurance comapnies need to get a grip. Example-my health insurance will pay for me to get speech therapy becuase I have acid reflux that sometime smakes my voice hoarse, but they will not pay for it for ds, who hardky has any words at all and needs all theST he can get[QUOTE=CSS_DSM]OH, GIVE ME A BREAK! I know a child can improve with diet , meds and therapies but to say they are recovered [ like the child had a bad cold] is totally false. The child will always have some sort of problems especially when he becomes a teenager. I' m not jealous of her son's progress. I just think she's in denial.
I hope they are not paying her to be a spokes person. The money could be better spent in R&D.
I think that it is time for the Insurance to start paying more for autism treatments. If they can cover Viagra, then they should cover DAN dr's costs.
[/QUOTE]
If she says HER child is recovered who can say otherwise? SHE is his mother SHE knows her child. To say she is in denial is totally off base. Do you know her or her child? Why do you care what they pay her to be?
I agree about the insurance though. The things they will and will not cover does not make sense and we need help paying for therapies.
BUT..... my goodness it brings out the anger in others to hear the word RECOVER. What gives?
I heard the indigo children thingymajiggy is all a bit doolally rather than solid intervention? Anyone got info on their therapies/treatments?
There are some children who with intense interventions can overcometheir autism dx and in fact have the dx removed. Is this recovered? I do
not know. I also know of many children who in spite of intense
interventions make very slow progress. I personally believe that my son
some day will graduate from his services. Intense therapies work for him.
We have documented his progress. No miracles here but a lot of hard
work and long hours. I have a list of programs to try and a list of specific
providers of these programs and work through them. We can only speak
about our child and that experience. I myself was never in denial about
my sons autism.
My son did not have the regressive form of autism, I think it was present
since birth. Some parents whose children have the regressive form, have
seen their children lose words and eye contact, so maybe recovery is
getting these skills back. I do not begrudge any parent whose child is
doing well enough to lose his or her dx.They believe totally in homeopathic medicine...alternative treatment...no modern day meds.
Well, she recovered him fast since she had to take time to write the book.
Her son Evan diagnosed with autism in 2005 ... Louder than Words: A mother's Journey in Healing Autism out September 17, 2007. And, written by April 2007.
Good for her she recovered from him from ASD to a “crystal child” with angelic abilities that make him vulnerable and powerful.
All I know is when I went to school in NJ, I was quite different then when I went down their for vacation. I have really no idea what the teachers of mine expected these days, but when I told them Im a homeowner, have a nice new car, drive forklifts for a living, they seems shocked, apparently beleiveing their was no way id do much with my life, or at least be 100% independent. Not that I was like disabled or anything, I was mild HFA.
Indeed, to this day im not cured, and im sure they were watching me carefully and lisiting to how I talk, they knew what to look for, but I had absolutly no treatment, just special ed and occasionally saw a theripist maby 1 or 2 times a year if I recall.
I think some mild cases look rough in childhood but kinda snap outa it in adulthood (as good as I have done, im sure its apparent to these teachers at least im still a bit... off... and its apparent to myself everyday, as I could not handle the traffic while traveling, the chaos, and after 2.5 days was overwelmed by the desire to return home to my farmilair place to regain my routine I had lost over those days. Ya, many ppl like leaving that all behind that is the definition of vacation afterall, but i still have time off of work and ill be spending it locally. Retruning to my scedual is definatly what I need.
As for the ora, well... i dont see much, tho my dad has worked in nuclear facility's his whole life perhapse some radiation or at least radio active dust from him got on me, so id bet if someone could see a glow it would be green, hahaha.Maybe her son wasn't even diagnosed properly in the first place? Maybe he wasn't even autistic? THAT'S how he "recovered".
Also, not sure how many people are going to take Jenny McCarthy that seriously----former host of a MTV show!
Maybe her son wasn't even diagnosed properly in the first place? Maybe he wasn't even autistic? THAT'S how he "recovered".
very very possible!!!!!!
Also, not sure how many people are going to take Jenny McCarthy that seriously----former host of a MTV show!
AND playboy model!
wow, i will no longer swim the sharks! Thanks for the abundant info but too much negativity and bashing for me.I still don't get why parents get so upset when another parent says their child with autism is recovered.
It can't be because of spreading "false hope". If that is the case what makes you think the other parent isn't able to decide for themselves what to and not to believe, the way you are.
Why would insurance companies pay for therapies if no one believes our kids can recover?
NOT believing that recovery exists is too pessimistic. People whose kids do recover give ME hope. Wheather anyones else believes its false or not.
As long as my son continues to progress I am happy. Recovery or not.
I'm getting really frustrated with this thread - so I think I'm going to have to agree to disagree.AMEN...As long as B continues to progress, I'll have hope.That's the beauty in it. We can Agree to Disagree.
Opps. I already looked it up. Two very different things.
Thanks anyway!Am I crazy ? I see no difference between 'cured' and 'recovered'.
I think autism cannot be cured and "I" see cured as to be rid of an illness. I don't see autism as an illness thus it cannot be cured.
At one point in time my son appeared NT. "I" see recovered as in restoring my son to the state where he "appeared" NT. Keeping in mind that regressions and issues can happen at any time because noone knows why my son became autistic to begin with.
To recover his ability to speak
Not to cure is inability to speak
Because he did have words.
[QUOTE=KathyK]Well let me put it this way. We all agree that more money needs to be put
towards autism research. More money needs to be put towards educating
children with autism. I personally think that school administrators and
politicains are the ones with their heads in the sand. A lot of autistic
children can be helped with early interventions. I think we are at a pay later
mode. When we fail to adequately educate our children in the here and now.
What happens later? If Jenny can get the message out that her kid is doing
great because of the intense therapies that he had access to. It will get
harder and harder for politicains/insurance groups/educators to say that
intervention is not yet proven to be effective. It really comes down to
money and how it is allocated within our society. Autism parents are quite a
vocal group. A united front would be very effective in changing how money
is spent when it comes to Autism.[/QUOTE]
This is how I feel!! Let them use whatever term they want...recovered, cured, not as bad--whatever...as long as it shows that something can be done with the right treatments...make these damn insurance companies start paying for some treatment, so the ones of us that don't have millions lying around don't have to wait a year or longer just to get our child some help.
Does not seem to that recoverd means cured. An alcoholic is recovered not cured. Cancer can be cured.
I don't see recovered as cured. I still don't understand why when someone says their child is recovered some get so upset. If that child had trouble down the line then the parent will deal with it just the way they did before.
Thanks alot though. I WAS thinking about looking it up on dictionary.com. Did you find the definition on cured to compare them?
As you requested :Dictionary.com Unabridged (v 1.1) - Cite This Source –verb (used with object) –verb (used without object) American Heritage Dictionary - Cite This Source
n.
- Restoration of health; recovery from disease.
- A method or course of medical treatment used to restore health.
- An agent, such as a drug, that restores health; a remedy.
- Something that corrects or relieves a harmful or disturbing situation: The cats proved to be a good cure for our mouse problem.
- Ecclesiastical Spiritual charge or care, as of a priest for a congregation.
- The office or duties of a curate.
- The act or process of preserving a product.
v. cured, cur·ing, cures
v. tr.
- To restore to health.
- To effect a recovery from: cure a cold.
- To remove or remedy (something harmful or disturbing): cure an evil.
- To preserve (meat, for example), as by salting, smoking, or aging.
- To prepare, preserve, or finish (a substance) by a chemical or physical process.
- To vulcanize (rubber).
v. intr.
- To effect a cure or recovery: a medicine that cures.
- To be prepared, preserved, or finished by a chemical or physical process: hams curing in the smokehouse.
[Middle English, from Old French, medical treatment, from Latin cūra, from Archaic Latin coisa-.]
cur'er n., cure'less adj.
Synonyms: These verbs mean to set right an undesirable or unhealthy condition: cure an ailing economy; heal a wounded spirit; remedy a structural defect.
(Download Now or Buy the Book) WordNet - Cite This Source freed from illness or injury; "the patient appears cured"; "the incision is healed"; "appears to be entirely recovered"; "when the recovered patient tries to remember what occurred during his delirium"- Normon Cameron (used of rubber) treated by a chemical or physical process to improve its properties (hardness and strength and odor and elasticity) Merriam-Webster's Dictionary of Law - Cite This Source
Main Entry: cure
Function: verb
Inflected Forms: cured; cur·ing
transitive verb : to deal with in a way that eliminates or corrects: as a
: to use judicial procedures to undo (damage to a litigant's
case caused by procedural errors made during a trial) <subsequent
proceedings cured harm caused by trial court's error in
impermissibly allowing…statements of government witness —National Law Journal>; also : to judicially correct or negate (procedural errors) <cure a defect
in the pleadings> b : to correct or make acceptable (a defective performance or delivery under a contract) <the nonconformity would be seasonably cured —J. J. White and
Railroad S. Summers> c :
to negate (a default by a debtor in bankruptcy) by restoring the debtor
and creditor to their positions before the default intransitive verb : to
eliminate or correct a defect; especially :
to correct or make acceptable a defective performance or delivery under
a contract <the seller may seasonably notify the buyer of his
intention to cure and may then within the contract time make a conforming delivery —Uniform Commercial Code> —cur·able adjective
—cur·abil·i·ty noun —cure noun
Add to note- notice the definitions constantly bounce back and forth between recovered and cured??
WOW! It seem one of the worse things you can be in life is a beautiful and succesful woman. Throw a recoverd autistic child into the mix add in a new age religion and you really get bashed.
Shocking!
I wish I had nannys and a boat load of money for all kind of therapy. Is that Bad?
I thought she was a real mom of an autistic child. Why would she need to cash in on her child if she already had a boal load of money? This is making less and less sense.
I must add ,with many others, it appears, that it is a dissapointment to my family to see this woman making money and headlines using her son. One has to wonder if he ever had autism, or if, indeed, he is cured? I am of the persuasion there is no cure for autism. You cannot 'cure' what you do not have a solid scientific 'cause' for. oh please, this girl has nannys and a whole boat load of money for all kinds of therapy, not to mention I'm sure she gets plenty of time away from him. That's something real mothers of autisitic children don't get. She is just another celebrity mom cashing in on her child.I don't think that if I came on here saying how great rubbing calomine lotion on my child was that you would concur with that comment. What gives? You seem to not err on the side of caution. I want my child to be normal just as much as the next mom, but as mentioned before by myself and others there is NO cure until there is a known cause. You can't cure something you can't replicate...that's science.
You seem to just be stirring the pot for the fun of it. I don't think there is anything wrong with adjusting, maturing and growing in our beliefs, but I do think there is something seriously wrong when you don't critique them...meaning, you don't have to believe everything to have a goal. I don't believe that her child is either on the spectrum (mis-diagnosed - it's happened before) or she is in denial. I've been to a LOT of ASD functions and have yet to hear someone's child is cured or recovered. They act better, but still have limitations even though their dx has been lifted. I guess the question I have to ask is: Why do you seem to be promoting her and her "beliefs" so much...have you not noticed that her beliefs change?
Promoting her? I am? I never even heard of her until today. I am shocked at the anger. I don't know anything about her beliefs except what I read here. Which sounded very beautiful and positive.
I really want to see her on Oprah. I can tell you one thing. As I grow and mature my beliefs have changed over time. About a lot of things. I consider that a good thing.
I think I'm going to wait and see what she actually has to say in her interviews.Zayzer is being kind and respectful about another Mom of a child with
autism. She is also being respectful of those of us in California who may
belong to an organization that Jenny McCarthy may promote. I would hope
that if by chance my son would graduate from all his therapies that some on
this board will be happy for me. I would be for others. I would not doubt the
original dx. Lets not be in a rush to judge others. [QUOTE=KathyK]I would hope
that if by chance my son would graduate from all his therapies that some on
this board will be happy for me. I would be for others. [/QUOTE]
I NEVER said that I was unhappy for him IF he did graduate from all his therapies, however, saying he is cured is quite different from having a label lifted.
Supportive of her new age Ideas? What I read here it sounds beautiful and positive but I don't know how I am being supportive. Unless you consider my having respect for other beliefs supportive. She has even written books? You actually read them? She must be a very interesting person. Were the books autism related or just about her life?
I don't know what to say about the calamine lotion thing. You lost me there. I seem not to err on the side of caution? How do you know? I don't think I know you personally but you never know.
We already went over the cure/recovery thing and have agreed to disagree. But I don't think I ever said I wanted my child to be "normal" I don't even know what that is supposed to mean. But I would like him to recover his ability to speak and to be able to live in this world comfortably and to be independant as an adult. I want the world to be his oyster!
I am not stirring any pot for fun. That is not my style. I just don't understand the feeling of anger and envy that I feel here. And it is not my place to critique(I think I spelled that wrong) her beliefs. Especially as she is not here to defend them.
What really gets me is that you say you think her child was mis dx. Are you a dr. her childs dr. Parent often come here saying that a teacher don't believe their child has autism. They get support and people telling them how they know there child and only a dr. can dx. ect.
Sorry you think me giving my opinion is stirring the pot. Would it have been better if I had jumped on the band wagon with everyone else.
Sorry not my style.
Twinzrock,
I was replying to a comment made by Payne's mom. I don't think I have read a post from you before. Forgive me but I am confused here.Zayzer-
I had said it too about how her son may never have been dx'd in the first place. I was being sarcastic but it's hard to tell on a message board. 
Oh OK. I see. [QUOTE=zayzer]
What really gets me is that you say you think her child was mis dx. Are you a dr. her childs dr. Parent often come here saying that a teacher don't believe their child has autism. They get support and people telling them how they know there child and only a dr. can dx. ect.
[/QUOTE]
I was JUST teasing! She bugs me and in MY opinion Jenny McCarthy is NOT one to be taken seriously. People may think otherwise, which is obviously fine. We all parent differently and all try to do what's best for our child. I did like her pregnancy book but certainly wouldn't have referenced it for OB advice!
< =text/>_popupControl(); I am so sick of Jenny Macarthy. i am going to be sick if i see her on one more show. i saw her on Oprah and i couldn't believe the level of arrogance. News flash lady THERE IS NO CURE FOR AUTISM. I was offended when she said that autism meant that her real son was trap in his body. i am a mom with 3 kids on the spectrum autism is who they are. all of the quirky things they do is what make them who they are! i will not try to change them. i want them to be the best possible people they can be. just doen't help their children. Who made jenny the autism spokes person? the average everyday parent who can not afford round the clock speech and aba should be the real representatives!
< =text/>_popupControl();
so i ask all of you what do you think? let me know. i am anxious to hear what' s on your mind.I AM MOVING THIS TO THE EXISTING JENNY McCARTHY THREAD IN HERE! Tooman threads on this issue.
This one hasbeen about exhausted so if it gets too heated again we are going to have to lock it for a day to let things cool down ok?
Have at it!..., but please play nicely
Oh...it looks like someone already locked it!
I will leave it to that mod to unlock it as he/she deems fit.
Fri Sep 7, 2007 8:38 pm (PST)
Talk About Curing Autism (TACA) announces our new spokesperson for families
affected by Autism - Jenny McCarthy!
Jenny McCarthy - actress, comedian, model, mother, and author of three NY
Times bestsellers can add one more title to her name and career: TACA mom.
Her son Evan, diagnosed with Autism Spectrum Disorder in 2005, will be the
focus of her upcoming, 4th book: Louder than Words - A Mother's Journey in
Healing Autism out on September 17, 2007.
Jenny McCarthy will be making appearances on Oprah, Good Morning America,
Larry King and ABC's 20/20 with Dr Jerry Kartzinel. Jenny is promoting
her new
book about her recovered son and hoping to give much hope to parents of
children with autism!
http://www.tacanow.org/jenny/jenny-mccarthy-press-tour.htm
<http://www.tacanow.org/jenny/jenny-mccarthy-press-tour.h tm>
I'm right there with you on the frustration of "recovered" or "cured"! Ugh
She is also BLANKETING the media this month, and I think if she's claiming recovery, she'll be giving a lot of people false hope.
Does recovered=cured. I did not think so. I don't understand the anger when someone claims their child is recovered. I hope to see my son recovered one day. [QUOTE=dbcmom]Lets hope she focuses on TREATABLE then. Cureable and treatable are two different things IMO. Doesnt treatable mean you are able to improve/make better, not make it go away entirely? Lilke saying..diabetes is treatable, but their is no cure.[/QUOTE]
That's what I'm trying to get at. All of the kids who have "overcome" are still going to have some issues...just not as noticeable...or they were barely on the spectrum to begin with. There is no doubt what so ever that my son is on the spectrum, but over the past 4 years with moderate intensive trainings he has succeeded in becoming better - as have we on how to approach things with him. I'm hoping in a few more years it will be barely noticeable, but he will allows have some bumps in his road...if you catch my drift.
FOr me their is always going to be that fear, that WHAT IF I dont try this therapy,approach, vitamin...and that would have helped my child do much better???? What does Jenny or Dr so and so know that I dont? Maybe nothing...Or maybe alot. [QUOTE=dbcmom] FOr me their is always going to be that fear, that WHAT IF I dont try this therapy,approach, vitamin...and that would have helped my child do much better???? What does Jenny or Dr so and so know that I dont? Maybe nothing...Or maybe alot.
That is the thing that is so hard for me-their seem to be very few cut and dried outcomes for anything when it comes to autism.Their are so many different approaches. The bottom line is we all love our kids and we all want them to be the best they can be. My sweet little C is so smart and so loving. RIght now, I know he is trying so hard to tell us things and he is so proud when he does(and so am I!!) It just breaks my heart when I dont know what he wants and he cant tell me
[/QUOTE]I think that is where I've stated before knowing what causes it would help "fix" it. Sorry for that term, but couldn't think of something more - appropriate. I used to be that way about therapies...until all the hub bub about chelation...I had one mom at one of my groups singing its praises - and then a couple of kids DIED because of it. I vowed at that point that if a therapy could be unsafe I would not TRY it or even think of trying it. It is true we all want our kids to grow up and have a "normal" existance and not get picked on and worry about aides in the class, supports, IEP meetings, medication management, doctors/therapy appts. IF it is any consolation to you - you're child might not understand you...but they understand that you love them. They might not be able to show you or say they love you, but they do.
I can't wait to hear her story! I don't know her but I will be finding out about what she did.
I found this on wikipedia:
In June 2007 Talk About Curing Autism (TACA) [2] named McCarthy as spokesperson. Her stated goal is to educate the public that autism is treatable. She will be participating in fundraisers, online chats and other activities for the not-for-profit organization to help families affected by autism. Her first fundraiser for TACA, Ante Up for Autism [3], is scheduled for October 20, 2007 in Irvine, CA.
Well, if her son has overcome his autism, that's great. I'm very happy for her and for him. It will be interesting to hear how she did it, or how his development looked. He isn't the first kid in the world to leave the spectrum, clearly it does happen. We sometimes seem more enthusiastic about people getting a dx than about them leaving the dx behind. A bit odd really Lets hope she focuses on TREATABLE then. Cureable and treatable are two different things IMO. Doesnt treatable mean you are able to improve/make better, not make it go away entirely? Lilke saying..diabetes is treatable, but their is no cure.Well let me put it this way. We all agree that more money needs to be put
towards autism research. More money needs to be put towards educating
children with autism. I personally think that school administrators and
politicains are the ones with their heads in the sand. A lot of autistic
children can be helped with early interventions. I think we are at a pay later
mode. When we fail to adequately educate our children in the here and now.
What happens later? If Jenny can get the message out that her kid is doing
great because of the intense therapies that he had access to. It will get
harder and harder for politicains/insurance groups/educators to say that
intervention is not yet proven to be effective. It really comes down to
money and how it is allocated within our society. Autism parents are quite a
vocal group. A united front would be very effective in changing how money
is spent when it comes to Autism.I agree Norway Mom! I agree...I hate that she is "the face" and is claiming recovery. Why can't we have someone who is a regular joe-shmoe be "the face" who lives it everyday. Inspite of the hype, Jenny McCarthy is a Mom who wants to help her child
overcome his autism. Does it matter how she did it? She raises money
for the cause and helps with autism awareness. I bet you that all of us
have pretty different views on specific treatments for autism. I have
attended a lecture given by Dr. Kartzinel and found him to be very
knowledgeable.
Yes he does promote the biomedical approach. He too is a parent of a
child with autism. I know of a lot of parents who swear by Dr. Kartzinels
protocols. When all is said and done, we as parents do what we feel is
best for our own children.
I will be very interested in how she "recovered" her son as she has access
to a lot of money and resources that many of us will never have. I
personally think that you can "graduate from services" and do well
without supports. I think that is the goal for many of us.
Doesn't anyone care about our kids? This isn't about curing or recovery or any hoo doo. THIS IS ABOUT LEARNING AND EDUCATING MY CHILD. No one can do it properly, and poor Allegra and others who have no laws protecting them. Who is helping these kids? I am sick of celebrities with all the money to do whatever hollywood quick fix there is and CAN and DAN and all these organizations that raise money for what? Have I seen a penny? My SD? It is starting to make me sick. We all use our own resources here and do the best we can. Here's to the unsung heroes. All the moms and dads on this board who have stayed up endless nights and changed endless diapers and said that phrase a million times and reads books upon books and keeps up with school and therapies. All the teachers who deal with administraters who only care about money and pay out of their own pocket for school supplies.
Okay I could go on forever, but where's the media for all these injustesses?
Yes, but I think the dispute (for me is) that she "recovered" her child not improved - I want to know what therapies she is doing - there is nothing wrong with promoting one that works for your kid...but "curing" and "recovering" is WAYYY too much FALSE hope for the general population. My dh even said look at Dan Marino's kid - he was cured! I said there is no cure now...maybe in the future...I said that kid has issues they just aren't as blatant as they were. Also, I will bet that we as parents will be getting a lot of - well, why don't you do what Jenny McCarthy did and "cure" your son? Yup, I have millions of dollars and nannies and endless amounts of resources at my fingertips. I am interested to hear what she has done - but concerned as to how the general popluation takes it... [QUOTE=MiMom3]It is starting to make me sick. We all use our own resources here and do the best we can. Here's to the unsung heroes. All the moms and dads on this board who have stayed up endless nights and changed endless diapers and said that phrase a million times and reads books upon books and keeps up with school and therapies. All the teachers who deal with administraters who only care about money and pay out of their own pocket for school supplies.
[/QUOTE]I agree.
Bravo to the parents that aren't afraid to look this in the eye and get out there to advocate for their kids! Once you set a precedent in your SD it DOES help another parent trying for the same thing - that's what I tell the other parents here in SE Florida. There are some parents that would much rather let someone else deal with their child and bury their head in the sand...our board is full of parents that DON'T do that. BRAVO!!!!!You can't CURE when you don't know what CAUSES it. Cause - Effect. I think preschoolers have gotten that why can't the media?
Elle22 had posted the promotional schedule on a different thread. Jenny McCarthy is appearing tomorrow on Oprah. I plan to watch.
From my own personal experiences with my 2 kids, the only thing I know for certain is nothing is certain. What worked for one did not necessarily help the other. Even though I had an idea of who to call and what to do when it became obvious my youngest was on the spectrum, I really felt like I was starting from scratch. He was a different kid with different issues and a different diagnosis.
I appreciate Ms. McCarthy's efforts to increase awareness. I just hope people don't watch her and think HER way is THE way. Every child is different.
[QUOTE=zayzer]Does recovered=cured. I did not think so. I don't understand the anger when someone claims their child is recovered. I hope to see my son recovered one day.[/QUOTE]American Heritage Dictionary - Cite This Source
v. re·cov·ered, re·cov·er·ing, re·cov·ers
v. tr.
- To get back; regain.
- To restore (oneself) to a normal state: He recovered himself after a slip on the ice.
- To compensate for: She recovered her losses.
- To procure (usable substances, such as metal) from unusable substances, such as ore or waste.
- To bring under observation again: "watching the comet since it was first recovered—first spotted since its 1910 visit" (Christian Science Monitor).
v. intr.
- To regain a normal or usual condition, as of health.
- To receive a favorable judgment in a lawsuit.
[Middle English recoveren, from Old French recoverer, from Latin recuperāre; see recuperate.]
re·cov'er·a·ble adj., re·cov'er·er n.
Synonyms: These verbs mean to get back something lost or taken away. Recover is the least specific: The police recovered the stolen car. "In a few days Mr. Barnstaple had recovered strength of body and mind" (H.G. Wells).
Regain suggests success in recovering something that has been taken from one: "hopeful to regain/Thy Love" (John Milton).
To recoup is to get back the equivalent of something lost: earned enough profit to recoup her expenses.
Retrieve pertains to the effortful recovery of something (retrieved the ball) or to the making good of something gone awry: "By a brilliant coup he has retrieved . . . a rather serious loss" (Samuel Butler).
(Download Now or Buy the Book) WordNet - Cite This Source freed from illness or injury; "the patient appears cured"; "the incision is healed"; "appears to be entirely recovered"; "when the recovered patient tries to remember what occurred during his delirium"- Normon Cameron [syn: cured] Merriam-Webster's Medical Dictionary - Cite This Source
Main Entry: re·cov·ered
Pronunciation: ri-'k&v-&rd
Function: adjective
: no longer sick <a fully recovered patient>
Payne's mom there is a thread in the parents section where a parent read her book. She used DAN and ABA and OT if I remember correctly.
I don't see another parent's child having success with therapies as setting me up for failure.
If someone came up to me and said "That Jenny woman cured her child why can't you?' I would say that I can't afford the therapies she used but if you would like to make a dontation may the check payable to "insert name here".
Or I could tell them with autism there are no gaurantees no matter how much threapy you get. Maybe give them a few web sites to check out to educate themselves.
To those of you who care, I would like to put in my two cents worth. By the way I am Heidi N's husband... a growing believer. I have been and remain skeptic of many things. I guess I am just my wife's devil's advocate. After a while you start to think that your wife has read too many websites and is beginning to become a conspiracy theorist. Here is the long and the short of it people; what my wife does works. I am not saying that what she does or not does is "The Answer". What I am saying is that as my wife's personal skeptic, I see real live results.
Starting with our oldest: he is 15 and has not been in regular mainstream school in his entire scholastic career. I am in the military and have spent two tours in Iraq. When returning from my last deployment, I came home to a 15 year old I didn't know. This was not the same child that I left a year ealier. Don't get me wrong; he was not cured, but he was not the Aspergers teen I had left before. You have to understand... in the 8 years my wife and I have been married, this kid was never "normal". He could not make it in regular school. We had "experts" tell us they could give him psych meds, but he would never get better, just adjusted. I was in the world of the blind believers in the medical world. My son was on psych meds that numbered too many to count. Each time the doctors would prescribe something and tell us, "We'll see how he does on this one." He would get better for a short period and then lapse right back. Psych meds are like giving a band-aid for a sucking chest wound... it might cover it up but it is still there and it's not going to get any better. Our son is not cured by any means and is reliant on his supplements, but Heidi doesn't have to "up" his dose to keep him on an even keel. He also is 100% perscription med free and in regular school this year for the first time in his life. Don't get me wrong, it's not easy on him, since he is socially behind because of his affliction, but he is quickly moving up and doing well in school. From this man's perspective: a miracle.
Our second miracle: our adopted daughter. She came to us as a foster child that was with another wonderful couple a few years younger than us. This couple could not control her and had to give her up. She came to us. If God had not brought this child to us, I promise you all she would have ended up in an institution. Heidi got her a few months before I came home from my last tour in Iraq. I would talk to Heidi on the phone and she would tell me of these horror stories of having to pick our daughter up from school because of her out of control behavior. We finally pulled her out of school, because Heidi would move one step forward with her behavior at home and she would move two steps back at school. She was a foster child and it took an act of congress to allow us to do anything but perscription meds, because Lord knows the doctors know better than us. To make a long story short, we suffered through until we adopted her; and suffer we did. And now the rest of the story: she is in normal school, with only a few behavioral problems; no more than any other 5 year old in kindergarten.
Here is my laymen view of all of this. I don't know what will work for your child. Neither Heidi nor I profess to have all the answers; but she does have some. This woman is one of the most driven people I have ever known in my life and I thank God for bringing her to me. She completed her Bachelors while raising two kids; one being Aspergers, while she worked full time. She finished her Master's degree while I was gone to Korea. She did this while she was pregnant with our 5 year old. She didn't take the doctor's word for it when they told her there was nothing we could do for our 15 year old.
What we do and what Jenny McCarthy has done is not the definative answer. As Jenny said, "One size does not fit all." That applies to vaccines and possible treatements for Autism. For those of you who want to make your children better, keep the faith and keep trying.
For those of you people who want to be nay-sayers and whine and cry and tell her and Jenny McCarthy that what they have is bunk and doesn't work, then come to my house and give my daughter a piece of bread milk and then spend the day with her. I promise you you will change your mind.
God Bless and Good luck!
I am happy that you all found something that worked for your children, truly I am.
But disagreeing with your approach is not whining and crying, fwiw. Nay-sayers, perhaps. I have as much a right to say "Not for us" as you have to say that it was a miracle for your children.
I am not comfortable with the bio-medical approach, and I dislike the insinuation that I am not doing everything I can for my child if I choose not to pursue chelation therapy, or probiotics, or a GFCF diet...for whatever reason it may be. If it works for you and yours, that's great, and I'm happy for you and your kids, and I mean that sincerely. Not using those approaches does not mean I do not want to help my child grow, mature, and learn to cope with the world around him. I wish you wouldn't have phrased it the way you did: "For those who want to make your children better, keep the faith and keep trying." That doesn't come across in quite the way you intended, I think. I can't imagine any parent of an ASD child not wanting to help their child. Many of us work just as hard as your wife does, you know, though I admire her ability to perservere. This is one of the most important things any parent of a special needs child needs, imo.
But your family's approach is not a miracle for everyone, even those who try it, as you yourself noted.
Good luck, and I hope your son and daughter continue to progress, grow, and be happy!
I read Jenny's book. Some key things I'd like to point out.
Her son had a major, major seizure episode at age 2 after which he apparently lost many skills, including language. When Jenny looked back, she saw in hindsight some autism red flags prior to age 2, but she didn't know what they were at the time.
After much misdiagnois, poor doctors and major runaround (being a celebrity didn't really seem to make anything any easier) she finally got the autism and epilepsy dx. She tried many of the therapies we have all tried (ABA, GF/CF diet, etc.).
Her son had a severely compromised immune system, the doctor described it as similar to an AIDS patient. When her son was put on an antifungal medication, there was a dramatic decrease in his ASD symptoms (dramatic language and social improvement, no more toe walking, better attention) and increase in skills. When her son was retested, the women from the state department said: "This isn't autism anymore. I don't understand what happened. We have never seen a recovery like this. What happened?"
That is apparently where the "recovered" word came from. She says at the end of the book: "Now in no way was Evan perfect in the eyes of parents who had typical children. He would still repeat words a few times and flap his arms, but he was no longer stuck in the world of autism. His bloated belly was gone and his allergies became less severe." She also contines to get him therapy and continues on the GFCF diet. She also keeps him on the probiotic. Her son still likes to watch the ceiling fan, and still flaps sometimes.
It sounds like her son went from having some traits, to being moderately to severely affected to being mildly affected again. I know that many have issues with the word recovered and the connotation it brings. I feel in this case she is using the word (rightly or wrongly) to describe the dramatic progress her child made and that she is not claiming he is "cured."
Anyway, that's what I got out of the book.
It probably would have been better if we had all watched Oprah and read her book before debating this so much. Is there any time it is too late to do these things? I keep hearing about tht window of time.Yes that window scares me. I give proEfa and am wondering if cod liver oil is better?
What is a good digestive enzyme?
We do the epsom salts baths a few times a week. Is that often enough?
I don't think so. I started my son at 14, by 15 he was in regular school with no modifications. I started my other children much younger because they were younger when I started learning all this. The younger, the quicker, but I would try on a 40 year old or 80 year old if I had a relative like that. Well, actually I do, but she lives in another state. She is my sister-in law, but her parents put her in the system at age 5 due to her out of control behaviors. They no longer have parental rights but do visit her every other weekend. I wish I could treat her.
Heidi
I saw Jenny and Holly on O's show. They were both passionate, articulate and very relatable. I was impressed with them. I dont know how I feel about all the biomed stuff, but it doesnt sound like Jenny did anything kooky, Also, she stressed that he is not cured, he is in recovery and always will be.Ok, take him off of all dairy and wheat, barley, rye, no MSG which is in almost every processed food and non-organic foods. Its even in some organics, but don't worry about perfection, just get it close. No sugar substitutes. Eat as much organic as possible. Absolutely no Unorganic apple products, and no UNorganic corn. No corn syrup, no soft drinks, no artificial anything, no preservatives. Orange juice is a problem for many, causing diarrhea.
This website talks about foods:
http://www.truefoodnow.org/shoppersguide/guide_printable.htm l
Stay on this diet for at least two months after he becomes symptom-free (some say forever). Do not give him milk one day and say "I see no difference", it must be ok". He must be on this diet no matter what allergy tests say or his behaviors. There are many places on the web that talk about unreliable allergy tests. Behaviors change up and down as they are getting well. It takes weeks of being off of a food before their body gets rid of its toxins in an appreciable manner, and damage is being done by these foods even when no immediate reaction occurs. Chocolate is a no no unless organic. Most chocolate has corn syrup which is genetically modified with live bacteria and viruses. Read about genetically modified food, you will never eat it again. Watch the movie, "Supersize Me", you may never eat fast food again. We haven't.
Cod liver oil is currently the most popular essential fatty acid (EFA). It is necessary to have EFA's. I have seen one child talk clearly 24 hours after being given cod liver oil. Give it daily for at least a year. Most say a tablespoon or about 5,000 IU of A is the correct amount.
Vitamins and minerals will definitely help. Methyl B12 powder or liguid, and buffered Vitamin C are considered very helpful. Now note, these things work over time. They need to be given for about 6 months or longer.
Epsom salt cream is considered very helpful by many who have tried. This also needs to be given over time, at least a year.
Ridding pathogens are the number one thing to make these children well and quickly. What I have found is that the herbs are the quickest and cheapest and get great results. The sun also works quickly and cheaply.
For my family we use milk thistle, ginger root and turmeric and Vitaklenz and Mindlinx (probiotic) for great results. Other people say they like lysine, olive leaf, and grapfruit seed. I never used those because I didin't have to. I used mine all at the same time. Going in the sun in bathing suits, show a lot of skin and get a liittle color, daily also worked immensely. Sometimes, if you get your child in the sun everyday for long periods, you even get cures. Yes, I have two relatives this happened to (one with ADHD symptoms and one with Bipolar symptoms).
Note, that psych meds can be very dangerous to come off of. Don't take your kids off of them cold turkey; see a doc if you decide to do that. Also note that the herbs I mentioned will interact with the psych meds, most likely making them not work. My now 15 year old used to be on numerous psych meds, just to let you know.
Digestive enzymes are imperative and will most likely have to be given for a year or more. Some just give their kids supplements that make them produce more bile. I haven't done that much but heard it works. I would say also give digestive enzymes because it helps digest the coating of the pathogens to kill them, and also helps keep toxins down from undigested food floating around in their bloodstream.
Note that some say 90% of children with autism are testing positive for lyme. I believe that because I have seen that on forums often, where parents talk about miraculous recoveries after getting their child treated for lyme. See this website:
http://www.publichealthalert.org/March%2007%20PHA.pdf
Note also that I read all over the place about children with autism having low immune systems because they are overridden with pathogens. That is why ridding them makes them well. That is why they can't detox toxins nor handle vaccines. There are many herbs and supplements that increase immune function, specifically NK and CD-57 cells. Those are the ones that appear to be most low. They say the children are too weak to fight off additional pathogens, and so rather than getting sick, the pathogens just goes all over their body, doing much harm. Many talk about getting well by taking bovine colostrum. I have not done that. There are many things that rid pathogens and build the immune system, but I have only done a tiny fraction because that is all it took for us.
I hear of people using homeopathy, zappers, muscle testing, etc. There are so many ways to reduce pathogens. Some even say that taking the correct antibiotic like those for lyme disease, have done miracles for them. I also hear chelation works, but like homeopathy, it takes a while. Herbs is what I am seeing that works the quickest. The fact that the child's immune system is worn down is the common denominator, the exact pathogens and toxins differ for each child. Thus, each child may need treatment a litttle differently. But know its pathogens and toxins thar are overloading his body, making him sick. There are hair tests and DAN docs and all kinds of state of the art diagnosing computers (by naturopaths and chiropractors) out there that can help you determine more about your child's needs. What I mentioned previously worked on all of my kids, myself, and my girl that I adopted. Thus, I only did testing on one child, just to go through the experience, meaning I didn't have to know exactly what toxins and pathogens my children had to make them well.
Most of the fancy testing you described is not going to show problems most of the time for these children from what I have read. The PET scan is the one to do. Also do a CD-57 test. Stomach testing is helpful sometimes, but is also inaccurate much and doesn't catch many things. Lyme testing is helpful, but often innacurate.
Chiropractic will help, but is not the answer in itself (at least most of the time, there is always exceptions). At this point, the only one answer I have found is lyme antibiotics. Some people get quick relief just be doing the lyme antibiotics. But know that lyme disease is a puzzle in itself, with each person being affected differently.
There are tons of websites I will give to you if you asked which specific subject you want. A good place to start is www.autismresearchinstitute.com . Note that I only did a fraction of what they recommend and used herbs I learned about from other websites and books. There are lots of books out there that mention many ways to help your child as well. I am quite busy, but will try to answer questions quickly.
May Jesus lead you down the road of healing. May you smile and cry tears of joy when your child spends 20 minutes in the mirror combing his hair, or fusses at you for forgetting to wash his favorite shirt, or gets a scratch on the car he drove home for school. Without faith you have NOTHING. You must first believe.
Heidi
I am apalled at some of the posts I am reading. My kids all went from disabled to normal. I even adopted an autistic child who is now normal (after only 7 months). Why are you wasting your time with anger when you can be learning like I did to make your child well?
The fastest way is herbal antibacterials and antivirals, digestive enzymes and probiotics and no genetically modified food, which is 70% of all foods, and especially no wheat and no dairy, and only organic as much as possible. Research this to get it correct.
People either get mad at me when I tell them about my children or ask me what I did. I guess each person has a choice to make. As far as Jenny McCarthy goes, praise the Lord that she spoke the truth.
Oh yes, I am writing my book too, and I will include in there a section on why some parents are not ready to help their children.
>>Why are you wasting your time with anger when you can be learning like I did to make your child well? The fastest way is herbal antibacterials and antivirals, digestive enzymes and probiotics and no genetically modified food, especially no wheat and no dairy, and only organic as much as possible. Research this to get it correct. <<
In my opinion, it is posts like these that should nto be allowed on here. Where is the Moderator? These posts can only hurt people, Mr. Moderator. My family and I invested everything we had and did exactly what is listed here, plus several other 'cures' and my only son is as disabled as he ever was.
Ma'am, all you are doing is judging and hurting others with this.
If that was the "solid" answer there would be no more autistic kids...it would be CURED because they would have figured out that it is ALWAYS a gut issue...but it's not. The GF/CF diet DID NOT HELP my son in the least.Ok, I will help you personally. You tell me everything you want to tell me about what you tried. Every time I offer to help someone here, I almost never get a reply. But, there are other forums where that is all they do is talk about what works. Forums like this are for beginners trying to figure everything out. I understand that. But, what do you have to lose by telling me about what you have tried and are currently doing? You can email me personally of course.
Heidi
I have nothing to hide about my treatments so I will post here:We have tried 1:1 and group example behavior modifications (ABA, play therapies), going with no milk by itself then the GF/CF diet, Fish oil, Flax seed oil - basically a slew of vitamins/minerals in various assortments & concoctions, antipsycotics, SSRI's, anticonvulsants (he's epileptic too), mood stabilizers, etc. We do everything by themselves and in combinations with others too.
He is getting better but not because of any one thing...it's been a combination of maturity and behavior modification techniques, with medications & his communication skills have improved so less hitting/kicking to communicate.
He eats a lot - we limit how much of things he eats ( ie treats for rewarding behaviors, no caffeine, limited chocolate - the dark choc. he is not allowed to have at all)
We've had CT, EEG, EKG, MRI, Spinal Taps, Metabolic Panels, Allergy Tests, etc done.
Our next step is chiropractic intervention...I've heard that it has helped others...it has helped my grandparents quite a bit...and since Payne is still toe walking...maybe?
That's all I can think of off the top of my head.
Kenneth, Heidi's post does belong here. Just because you don't agree with it is no reason to remove a post. There are all kinds of post I'm sure we all dont agree with but we are not trying to have them removed.
This is the Update and SUCCESS section.
Answer 1: I don't know about proEFA. Nordic Naturals is the most popular brand.
Answer 2: For the record: Turmeric, Ginger Root and Milk thistle are just about .00 each at your local Walmart.
Interesting, Heidi. Thank you for the tip!Don't worry, kenneth. It bothered me, too. But Heidi has a right to post her opinion and what she believes has helped her kids, and other people want to know about it, too.
Just don't sweat it. I can't afford to do those things, (and some I wouldn't do regardless) so I guess I'll just have to stick with what we've got and hope for the best. :)
She did say on Oprah that it is something they will always deal with, there will always be bumps in the road, she says recovered, but by listening to her talk I think she really means recovered in the sense Sarah is recovered, I don't think she really means cured boom its gone just like that. She knows this is a life long thing, that is what I took away from it. And if you watch him he does well but if you know what to look for you can tell, even in that short clip. Maybe improved would be a better word. She hasn't stopped the therapies I don't think, she was talking about play therapy.