Welcome to the forum. My son couldn't read in 3rd grade either, and was still learning lower case letters. But in the middle of the school year, he suddenly seemed to "get it". Kids with autism seem to have this "stairstep" pattern to their development, instead of the slow and steady upwards learning curve of typical children.
Sounds like you have dealt with more than your share of incompetant evaluators over the years, people who:
- didn't take time to observe in various environments and task situations,
- didn't know see autism if it didn't fit the stereotype,
- didn't know that inattention isn't necessarily ADD or ADHD -- it can actually be auditory processing problems and an inability to shift attention,
- considered medication to be a quick fix, etc. etc.
Please tell us about your special techniques and share your experiences with us. You might try and break what you write into somewhat shorter paragraphs, so it will be a little easier to read on screen.
Again, welcome.
hi hun welcome
i am shell mum of 6 one with autism one with aspergers one with traits one with lbd and i have AS
why has your child been given AUTISM,PDD, and aspergers
they are all the same you can not be aspergers and autistic its one or the other that is very confusing to me.and pdd is all the spectrum so one of the three should have been given
have you queried this dx because most of the labals are the same thing.
and to have autism and aspergers would be impossible
that has scrambled me a bit
love shell
hello shell
glad im here.. sorry for confusing you i should have been more clear it may take a little bit. but i will try and not make it any more confusing
I have two mainstreamed asd kids. One is 8 the other 4 and yep, every parent should do what they feel is best for the good of their child.
hello everyone
Im happy to have found these message boards.. I spent all morning reading lots of these storys and i know how u all feel.. but please dont give up hope or dont think u can do it because u can.. im a mother of a 9yr old son who has been diagnosed with AUTISM,PDD,ODD,OCD,ASPERGERS DISEASE,ADHD,ADD,AND A FEW MORE,to go along with the 2 frontal lobes of his brain not developed.If u was to look at him today u would think he was a normal as could be. He attends a public school, hes well mannered,smart as a whip in his own way,able to talk with speech impediment,and a very loving tendered hearted boy. but theres a catch the school systems can not teach him or children like him, the drs. think they understand,offer u all these medicines thats "suppose to work" and a little counsling.then our school system segragates our children from the "normal" ones and places them in"special ed" because those teachers r qualified. and does it seem to work? is your child where he should b? wouldnt it b nice if we could turn to someone who had the answers or the right answers that worked .the answer that would determine if ur child would b succesful in life or not. it would be a life changing experience if i could pick up a phone and get a solution to the problem but ive been looking for that for 8 yrs now and not one "specalist" has been able to help my son drug free.I listened to all the drs,specialist,researches and took a few notes but in the end i didnt agree with what they wanted me to do. so i done the best i could with him with what i had.noone agreed with me my family,drs,schools,and yes ive had the "cyfd"involved more than once,the school has turned me in,ive had to take him in and out of schoolsand they tried to force me to put him in a mental institution and i have won all those battles for him not once was he taken away from me and it wasnt because the legal system didnt try.i never realized what i had done for my son until this past friday. i was sitting with my husband in this room, a lady walked in introduced herself and said"they some visitors in and would it b okay if they sat in on the IEP, we said sure.(the visitors was the director and "specialist") in the beginning it started out to b a IEP in the end that IEP was to b reset and the visitors was telling me how they had never heard of my techinques,my ideas,stratigies and etc. told me i would b a great advocate for these children and how they wanted me to take my knowledge, my resources,everything ive ever used ,what worked,and what didnt work for him and so forth because THEY HAD NEVER HEARD OF IT.. now i just need to get the stuff out there and i dont know how to get it out LOUD where it can b heard outside the internet. i need all the help and support i can get from people like us. i believe i can help our children,help our schools help our children,change the views of autism.Unfortunatly until theres enough funding,resources,research that can b done, our children ARE being left behind. if familys like us stick together and stand up for our children who dont have a voice we will b heard loud and clear and get these babies the help they deserve..
hello again everyone,
marcus was a full term baby when born and seemed to b a normal child he was meeting the milestones like he was suppose to until6th mthand and as a first time mom at first i thought he was "lazy" or a "little delayed" but would catch up. at the age of 1 he still was not crawling (just started sittin up) his peditrician told me he would and not to worry and he was a little chubby. soon he did but only a little.. at 16 mths he started trying to take a few steps and was succussful.also another concern i had was his hearing,i knew he wasent deaf but at the same time i would bang pans together and he would not flinch,but other times when he would turn his head toward the sound.so they done hearing tests,but they wasent sure about his hearing cause of young age.but we all agreed he can hear..sometimes.shortly there after i was sitting in a low glider chair and he walked to me fine but when he went to get down he couldnt walk. to me it looked like his legs,knees mayb his hips was out of place it just did not look right so i took him to the ER. they ran xrays,they all came back normal,but he remained to cry and he looked fine. so i got a few funny looks and a referal to a bigger hospital 5 hrs away. so we tell our story and after a cpl confused looks, the dr. says lets run some blood test and see what comes back. results came in and not much answers. so after 4yrs,lots of other drs, a cpl neuro surgeons, a few specialist,a cpl trail runs of different meds,blood test,MRI'S,ect later.i had more questions than answers.but ifound out that he was having peti-mal seizures,brain not fullly devolped.and a whole lot a maybes and what ifs..and between that time period i was put to the test. about 2 yrs into the testing, i had a few people at my door w/police officer telling me they was there to test my paint on my house, they wanted a piece of plumbing,and so forth. i had no idea..the drs office called shortley before they arrived and wanted to talk with me about results that just came in.the dr wanted to let me know that he had a toxic level of lead in his blood stream.this set of drs gave me diagnoses of pervasive developement disorder(PDD)occuptional developement disorder(ODD) (ADHD) and didnt know how severe or anything until he got older.. as he has gotten older boy have things changed and the drs.. when i would take him to a different dr on my own without "previous diagnosis" i wanted to see what they told me. and over the yrs ive moved to different states.after all the opinons,different drs,psychologist,different diagnosis,they all offered me the same thing. 1) the medicine.2) not enough research 3) we dont know. but this is what i can tell you . he is labeled as a 3rd grader, he CAN do 3rd grade math,he CANNOT read,he DONT know all the alpabet, CANT tell you the diffrence between a lower case "s" and a captal "S". DONT remember which goes own first his under clothes or pants,CANT bathe himself, CAN tell time, as a mother i CANT walk up to him and hug without asking, he DOESNT like new people,the color red causes him physical pain, and would much rather play byhimself and this is only the beginning.. (cont.)