I really am hoping that I can find out what is going on soon. This is driving me absolutely nuts not knowing what to do. I feel like I am grasping at straws with this. One doctor tells me that they think it all has do do with his lack of speech and then another doctor tells me that they are pretty sure it is a form of Autism. And then all the things that I have read on Autism well Grant has alot of it but not all. I just want to be able to help my son and I do not think that is too much to ask. Sometimes I just feel like giving up but I know that I have got to hang in there for Grant.
Wow Janine so sorry about what you are going through. You sound so lost and frustrated! I wonder why some people can take a child w/ mild symptoms and get a dx at 2 yrs old, and others seem to have symptoms of asd also and can't seem to get dx'd for the life of them. Is it just diff states, diff criteria used by diff specialists, what? I really hope that you find out what's going on soon, Janine, and that you can get closure. Best wishes to you.
Amber
No, not of autism, specifically, but siezures and the like. I think there is some research being done that may provide guidelines for looking for ASD with the use of CT or MRI.Too sum it up in two words: too inconclusive. Eeg's show seizure activity. MRI's, cat scans, and the like are too inconclusive. Jeffrey has had an eeg because he has seizures, not because he has autism. Gabe has not had any of those test done. MRI was never even suggested. And even the open ended MRI's are noisy, in my opinion. When I had the open MRI done on my knee and shoulder I was told some people take a nap while they are doing the test. Okay, the machine sounds like a jack hammer, how can you take a nap with that noise going on? I have had a closed MRI and was even sedated for it. They gave me valium, which had no effect on me whatsoever.
Some MRI's on kids on the spectrum come back as normal. I know my kids neuro believes the less intrusive the test the better off it is for the kid. Now true Jeffrey might have to have another EEG done but they will definitely have to sedate him for that, just like they did with his first EEG.
Tammy
do MRIs and EEGs actually show signs of autism? it was suggested that we have them done when my daughter was 19 months, but i never went through with it and we got our dx anyway. maybe its something i should look into? what do they show, in regards to autism? This is just all so frustrating for me, I feel like I just want to pull my hair out sometimes. I feel like I have been tring forever to find out what is going on with Grant. Well he will be 5 in November and I have been trying pretty much since he was born. Grant has gone through testing to see about autism or adhd or both and that came back inconclusive. THat test was done about a year ago. He was seen by specialists at the University of Washington in Seattle and they said they could not rule out Autism but just said he was globally delayed and MR. He had a ct scan and that came back normal. I just know that there is something there they are not detecting. We just had to get a new pediatrician again and I think I am going to maybe ask about a EEG or a PET scan. I just don't know what to do when he sits there and kicks and screams and I have to just let him scream half the time. When he gets mad like that he beats on his brothers. I know I am rambling but I just needed to.