UGH...opinions on this please--sorry long | Autism PDD
Yesterday we went to WEAP (wisconsin early autism project) as a recommendation from Mason's spec. ed. teacher...this is one of several places that does ABA therapy in our area. We are on a waiting list to receive ABA, and his teacher recommended that I see them in hopes of finding some things to help Mason until his waiver slot goes through.
I'm going to try to keep this a short as possible, so I hope it's not confusing...Mason was overstimulated the second we walked in the door. Once we got to the playroom he made his way through all the toys in a matter of minutes...he instantly became bored started stimming...mouthing everything in sight, rocking intensely...after awhile of trying to engage him, calm him down, he just became worse...he started crying and eventually screaming, kicking, throwing himself around...I explained that we have been having a lot more of this behavior lately with the start of school etc.
He goes on to tell me his recommendations...he says PPD is apparent, but feels there is more serious things going on...he tells me Mason may be bipolar or have psychosis...(I will mention that first he was lecturing me on stern discipline, strong routines, consistancy between school and home, mean while I'm confirming that we do ALL of that with Mason...almost felt like he was going to go down the road that Mason's behavior is my fault.) He is explaining a little to me about meds and I told him (for the second time because we discussed this earlier) that we are seeing a psychiatrist and we are working with meds. He then goes on to tell me that he feels this is out of Mason's control, and that he feels Mason would benefit from being committed to a psychiatric hospital!! At that point I was upset, crying myself, and just had to get out of there. As we were leaving he tells me that if I don't consider this, I need to find a psychiatrist that is going to be very agressive with Mason's medication.
I talked to my Mom, dh, even my sister (who works in a psychiatric hospital) and PM'd a few people on here...we were all pretty much on the same page when we thought that was a ridiculous recommendation. I started feeling a little better about things.
Fast forward to today...I meet Mason's spec. ed. teacher at school, she asks how things went, I tell her and she didn't look all that surprised. She then goes on to tell me that she can't ever make any recommendations like that, but wanted to tell me that she has worked with a couple of children that have been through this and it helped tremendously...2 of them were able to come back to school in mainstreamed classes with minimal aide and help.
So now, once again, all the second guessing is coming along! Am I sugercoating how bad it really is with Mason...am I pretending it's not there? I know things are rough...and I say rough, but some days it's horrible...I know that...but there are so many things going on here...his seizures have been coming back, we are doing a med switch starting tomorrow...he's in a new school with a whole new team...and now on top of everything else...his teacher who is pregnant, went into early labor yesterday and will be on leave from now through x-mas break...another change for him! I'm sure they are taking all of this into consideration, right??
Am I not looking at this from an outside view, because Mason is my son? I want to do what's right for him, but I just can't imagine doing this, kwim? I'm just tired I guess...I know this has been a difficult ride...I mean we keep going from doctor to doctor, because no one seems to know what to do or how to help...they recommend so and so, and so and so recommends someone else. Is this a sign that things are that bad and no one has said it until now??
I'm just at a loss, completely shocked, tired, sad...I know there are a few of you whose children have been placed somewhere...how did this decision come about? What did you try before you decided this is what was needed? What kind of placement are we talking about?
We see his psych today after school...I'm am definitely going to talk to her about this...she has NEVER even said this could be a possibility down the road...NEVER!! But now I'm afraid to even bring it up to her, in fear that she might on the off chance agree with them.
Sorry this is so long...thanks to all of you that made it this far! Like I said, I'm just shocked that this is even being mentioned, and have this horrible feeling in the pit of my stomach now. Thanks for listening and letting me get this off my chest. Take care all!
Niki - Huge hugs here...what a difficult rollercoaster to be riding on!
One thing I've noticed over the past year (and our boards reflect it) is the proliferation of medications being "pushed" (and yes, I might get flamed for this!) by both the medical profession and our educational system to deal with the various issues and behavior our children on the spectrum exhibit as the awareness of autism and other PDDs has expanded. It's that "have a pain, take a pill" mentality.
Considering that there are no medications truly recommended for ASD, I find it appalling. I am not saying that cocomitant disorders occurring in our children which are treatable with medication should not be; however, it appears to me the first suggestion offered these days is medication, whereas it should be the LAST. Behavior therapies, sensory therapies, simple time and patience (and boy! I know that one wears thin!)...our children deserve our best efforts through all of those resources first before turning to medication.
Our educational system does not focus on the strengths of our children, but on their deficits - the same with the medical system. Oftentimes, professionals who deal with seeing the same "negatives" day after day become jaded and cynical, and actually begin to be biased towards the worst case scenario from the start. It sounds as if you've come across more than your fair share of those. And no, I don't think that the professionals you've discussed have looked at the overall picture of the enormity of the changes your son is coping with right now - normally they don't. Nor do they always take all the sensory issues (lights, sounds, activity, etc.) our children face into account either. As a parent, you see his strengths as well as weaknesses, so you have a more balanced picture of your child. Trust your instincts.
Since you have a trusted pysch that hasn't mentioned this before, then speak honestly about it with her and get her honest assessment. This is a person that has been working with you and your child and, as you pointed out in your post, hasn't mentioned this possibility before - I'd trust them over the others. Also, given that allergies often exhibit behaviorally rather than physically, checking for hidden allergies would be something to definitely consider.
Wow - he seems way to young be even talking about putting the poor kid into an institution. Hopefully, you'll get some sensible information from his psych. Keep us informed. So sorry to hear you're going through this.Nikki,
All I can say is" How dare he say such a thing to you'! You have been wait
listed for how long from ABA? Well maybe if he had ABA 3yrs ago he would
not be having all those behaviors. It takes many professionals and lots of
testing, and exhausting all medical and behavioral interventions before
someone can actually say that. He is your child, you are doing everything in
your power to get help for him. Comments like that is not helpful, it is
damaging at best. I would get his name and never have him work with your
son.Niki, sending hugs to you. I am SO sorry for what you went through at that
appt, sounds like the doc was rather abrupt. I can't imagine what you are
feeling right now. I hope the psych today will have some helpful alternatives
to help Mason. I agree with what everyone else says, and I really think there
are other options out there. I'm saddened that the school is seeming to be
so quick to push for institutionalization too. With all the changes at school,
plus the meds, & his seizures...they need to give him a lot more time.
Again, please know I'm thinking of you, and will keep you and Mason in my
thoughts.
I firmly believe you have to rule out all medical issues. My son did not act 'right' until he had tubes put in his ears. He is probably having a hard time. Fall is always the hardest. Change of season can make our bodies feel different and school starts with new expectations. I would ask a doctor to see my child more than once to tell me anything about them. Especially in the home envioronment.
Agree with everyone too young!
I know we talked about this last night. Several things bother me. First of all, Mason is in a brand new school - right? He is also in a first grade classroom, even though you felt he should repeat Kindergarten. How are these things affecting his behavior?
He has seizures and meds are still being worked on. You are also looking into the possibility of bipolar. How are all of these factors influencing his behavior?
Mason is not injuring himself.
The doctor at WEAP spent about 20 minutes with Mason before rendering his opinion. Mason had never been to this office before, and the doctor had never met him before.
None of the doctors Mason has been seeing over the years have ever recommended this, or told you it might be something you might have to look into at some point.
I'm still scratching my head. If you're going to see one of Mason's doctors today, I would bring it up just to get another opinion.
((((HUGS)))))
My heart goes out to you
I have known you on this board for a while and I feel you are a VERY sensible person - I dont think you are sugar coating anything at all
I think you are on the right track and this specific teacher and this psychiatrist are the ones who need help
Please follow your instincts - these folks are professionals but they are seeing Mason in situations which probably bring out the most scared Mason - his stress response
Only you know him fully well - follow your instincts
Unless he is harming you all or himself - I dont understand why a hospital could be better under any circumstances
Im not sure if you knew this :) But there's a number where you can call and check up on the status of how far along you are on the waiting list.
Katie Sepnieski,Children's Services Specialist, Bureau of Long-Term Support Phone (608) 267-3377. She gave us the exact date he was put on the list and his number. They're currently taking 4 children a week
I just called last week and we still have aLOONG way to go :(
Thanks again all...I was thinking about going to his appt...I was afraid to bring it up just because I didn't want to hear those words, from yet another person...but like Anamcara just mentioned...we have a good relationship with his psych, I can talk to her, and she has never mentioned this before, so I'm a little more positive that she is going to think along the same lines as everyone else in my family and on here...that just isn't where we are at with Mason.
He does have a sensory diet in place...we do a lot of things from deep pressure and weighted blankets, brushing and some other things like shaving cream play...he also does this thing called run and bump where they let him play in the air trampoline thing and kind of run and bounce off the walls, lol.
I was talking to another Mom and she gave me some really good suggestions on how to help Mason understand his emotions and start to deal with them...like doing a role play with the family and have them get angry and instead of throwing things or himself around grab his squishy ball and lay down in his "safe zone." which in our case is his bean bag chair.
I know he is aware of what mad is, he just doesn't know how to control it. And the littlest thing can set him off...I can for the most part still handle him...he is getting to be quite big, he weighs close to 60lbs now...so removing him from the environment is getting a little hard especially when he is lashing out, but I can still handle him...I don't know how to stop or fix it, but I can keep him from hurting himself and others yet.
I guess I just went into panic mode when I heard it for the second time today. But in my heart I know it's not an option, so I need to forget them and just keep working to find what is going to help Mason.
Thanks for all the help everyone!! I will update after I talk to his psych this afternoon!
Thanks Mishy...I didn't know about that...I'm going to call and just see, but I'm sure we are still pretty far away.Niki, We went to Weap last year. I have lots to say about it but would rather talk or pm you later. I would take it all with a very big grain of salt. Did you see Dr. Sallows? Have you thought about getting the services through ids also in Madison. Gotta run now, Have new school therapists coming soon. I will pm youAbsolutely agree with everyone else especially zayzer, 6 years old is way way too young. I have had some things said about the boys by drs who see them 10 minutes and are sure they have all the answers and will absolutely not listen to a word I say. I definitely take those drs with a big grain of salt. Talk to the psych today, see what her opinion is, and yes he definitely needs time to adjust and for you and the psych to find the right meds, it might not need to be aggressive at all, that should be up to you and the psych. The school wanted to give up on Nikolas too, I found a different school, it and that teacher has been a godsend, Nikolas is a totally different boy. I would love to send his school reports to the old teacher who had totally given up on him.
He then goes on to tell me that he feels this is out of Mason's control, and that he feels Mason would benefit from being committed to a psychiatric hospital!!
NO NO NO, that's what I have to say! I do not have experience with low functioning, but there is NO WAY I would institutionalize my 6 year old unless my other children's lives were at risk. NEVER NEVER NEVER. Why can't they do outpatient? Could you stay in a hotel and do outpatient so that at least he knows he goes with you in the evening? Just had to throw my 2 cents, I think everyone on the board knows how strongly I feel about institutionalizing anyone, especially kids. I think that the BEST environment for people is with their families whenever possible, and not removed from their parents. Just look at the book, "A Beautiful Mind" where John Nash cured himself of schizophrenia AT HOME after all the institutions and electric shock therapy had failed. OK getting off my soap box, please dont lynch me. Yes, i dont have experience with this but I DO KNOW in my heart what is right & wrong to me, and putting a child in an institution, unless it is a VERY VERY life threatening situation, is just plain wrong to me!
Wow I cant believe how that person was to you there. We had a girl evaluated our son and she seemed so nice.
I'm so sorry you had to go thru that.
Dear Niki, I
really feel for you. When my son was younger, he used to throw terrible fits,
and I wondered what decisions we would have to face if he grew stronger than me
before his ability to learn some degree of control developed. I see that your
son is 6. Some six year olds are rather big and strong, is this the case for
your son? Sometime after my son turned 7, we noticed that during the temper tantrums
he was not using 100 percent of his strength and power to fight with us. Up
until then, he had been 100 percent in - kicking, hitting, biting.... This was
a major turning point for my son (and for us). We knew that he could eventually
learn to control his rage. Had this not happened, we may have been in your
shoes. For me, the decision about placement would come down to two things: 1) could
I physically handle my sons tantrums (could I keep him and the others around
him safe while he was raging), and/or could I predict when the tantrums were imminent
in time to get him to a “safe” place before he went full blown, and 2) could the
special placement do a better job keeping him safe, and also help him learn to
control the raging.
If you can
still “handle” your son, my advice would be work with the meds and see if there
is improvement. If there comes a point in time where you fear for the safety of
your son, yourself, or others because of your sons size and strength, and the meds aren't helping, its time
to consider placement.
Niki, if his seizures are not under good control they could cause behavior problems. My son went through metabolic testing and it was HARD 24 hr uring catching stool tests blood tests. He does have a carnitine deficiency and that is being delt with but he has reflux and things got better when that was delt with he has constipation problems and that had to be delt with. Sensory issues, does the school have him on a sensory diet. Medical dr., psychiatrists, OT, school could have him observed by a BCBA. They all need to look very deeply in to all the options, tests review of sx before they even consider putting a child in the hospital. When my son got impacted we did not know what to think about his behavior it was abosolutly out of this world and not once did he indicate any pain in the abdominal area. We begged for a refferal to a gastro dr because he had, we thought, diarrhea. Ended up being impacted and when that was taken care of and got him on meds for his reflux he got better. I guess I'm trying to say anything could be causing this. Sensory issues is a big one too.
Some meds can make behavior worse. Maybe his meds are all wrong. If you have a good psychiatrists working with you, then you will figure all this out soon enough. Have a medical dr. check him out really good also. Tell him you want everything looked at to make SURE your son is not in any physical discomfort. DR. will try to dismiss my son at time when he is behaving badly. I have to insist they look at everything.
My son is 6 also. There was a summer that we just had to put him in the car and drive around for hours to calm him. I know what you are going through. We are in a good place right now. I don't know how long that will last. He got much clamer when we added Pro EFA to his diet. I could see a difference in about 2 weeks but at the end of 2 months No meltdowns no aggression.
You are not alone. Hang in there. It WILL get better. You WILL figure this out.
I wanted add that my son also takes probiotics, culturelle, because of the many antibiotics he has been on since 6 months old had messed up his system. He had sinus infections and ear infections that were eliminated by having his adenoids removed.
If we stop the culturelle for more that a few days he gets really fussy again so I know they help him feel better.
I used to work in a psychiatric hospital (adults and kids) and I can't saythat I found it a good place for kids for adults with developmental
disabilities unless there really is a danger of hurting self or others or a
psychosis that needs adjusting with meds.
You could call the kid's unit of the hospital they are talking about and
see if you get one of the nurses to tell you what they would actually do
for your kid. Find out if there would be an attending doc who has a lot of
experience with pdds because in my experience they don't and they often
medicate very inappropriatly. There is also not that much consistency
with a different staff every 8 hours (often with very different
expectations), different patients around him and roomchanges. In my
experience a lot of psychiatrists (and psychologists) are very quick to
offer meds and hospitals even if it is not the best solution - it is the tool
they have and their frame of reference.
Why do they feel he is having a psychosis? What do you think? I have read
several times that a doctor should be really careful making a decision
basing on seeing a kid with pdd in only one environment one time. My ds
is a mess at the docs office and if the doc would see him in a familiar
environment or at our house he would come to very different conclusions
(not necessarily the right one either).
I do not know your ds and it is not my decision but trust your instinct as
a mom . Listen to any advice but go with your best judgment. If the doc
sounds like he is not listening and does not seem to get the picture on
your son then take his recommendation with a huge grain of salt.
HugsNiki sending you some hugs. It sounds to me that you are a terriffic mom who loves her so to pieces. I am trying to hold off as long as I can with meds for Brendon, but I can see that the school system will probably be making some recommendations about meds. Brendon is a "wanderer". He can sit and attend for up to 15 minutes at a time, but when his attention is broken...he's wandering around the room without a care in the world. When they try to get his attention again, he's a fighter. He will pull hair, press his forehead into some part of your body, or just swing arms and legs to try to get away. Good luck and I hope things go well today.
No, he needs some time to adjust to the changes. Some time to get his meds right and he needs a good Dr. Maybe Metabolic testing or someone needs to look into ANYTHING physical that could be going on.
If you can handel it at all or get any help at all at home keep hanging on. Don't put your son in a hospital at age 6. That is too young. I am so sorry. But these Drs. and the school need to explore every other option before they even reccomend something like this. Have they checked for food allergies, gut problems anything.
Oh, Niki, my heart is just aching for you! I wish I had some sensible advice for you, but all I can do is offer my support.
Doctor after doctor...how frustrating and sad. Perhaps Mason's psych will be able to shed some light on this for you. I wish I could help! :(
thanks guys...no we haven't done any kind of testing...the only testing we had was a few years ago...genetic testing. should I call his pediatrician and ask for these? He does have regular blood tests with his seizure meds...they check valproic acid levels, cbc, ast and asl, I think that's the testing initials...I should know by now I seen those words every 3 months for 3 years...would metabolism problems show up in this I wonder?
I just thought 6 yrs old was way to young to be thinking this way...thanks for confirming this zayzer!
I know these episodes that he is having seem to come from nowhere and once they come on they last for hours! But I can still handle it, I can still cope with them...and right now I want to try and try and try until I help him...I know I need help with it, but I want to be a part of it, I don't want to let him go and have others deal with it, kwim? I am just beginning to wonder if school is already losing hope.
I hope I don't offend anyone that has gone the route of placement...I just feel Mason is way to young for this...I don't want to give up hope, that we can get him the right meds and learn to calm himself etc...I just feel like a psychiatric hospital seems like all hope is lost, maybe I'm wrong!
I'm so sorry you had to go through this. I wish these doctors would realize that this child is your precious son not a thing. I think they forgot that we have emotions here and love our children. He was a little harsh. I would have a second opinion, while continuing to find out everything that is available to you even contacting the hospital just to get all the information so you are more informed, not that you should put him there. I definitely would not put my child in there either. Good luck with everything!I'm so glad you were able to talk to Mason's psych today and get an opinion from someone who actually knows your son.
I agree that ABA could help Mason a lot. The changes in my son are quite astounding. I know we're in different parts of the state, but I can ask the people working with my son for recommendations if you want. PM me any time.
Mason just went to hang out with Grandma, I'm so lucky to have my Mom live right across the street!
So this is what his psych said...first and foremost, Mason DOES NOT need to be institutionalized! I asked her to give me her honest opinion on whether or not she has ever thought this was ever even a possibility...and she started from the beginning...she said the first many times she saw Mason it was mostly observation...she read me her thoughts--ADHD-NOS, MOOD DISORDER-NOS (she explained that is along the lines of bipolar) PDD-NOS...she went on to explain to me that she had added all of the NOS's to her initial analysis because Mason has brain damage. So to her Mason has ADHD etc, but not necessarily for the same reasons or quite the same as other children...so these symptoms and traits are there, but could possibly be caused from the brain damage...this does not mean they shouldn't be treated the same way, but it is a possibility that what works for some or most, will not always work for Mason...but we still have to try...and NO, any type of hospitalization has never crossed her mind with Mason. She said the same things as you guys, that he would need to be seriously harming himself and/or others in order to consider that, and for the most part Mason doesn't do that...he will bang his head, but it's not very frequent...he does throw things, but not with the intent to hurt others...he is acting on impulse...so we need to find the right way to show him to control those impulses, control these mood swings, etc...she does feel that Mason needs medication to help him achieve these goals, but I don't disagree with that...I've come to the understanding that we do now needs these meds to help him...it took me awhile, but I am comfortable with that...and with time we will find what works.
She said it was ridiculous for any dr to see Mason for the amount of time that he did, and with so many other circumstances and recommend hospitalization...I'm so glad she told me this...it really eases my mind...we talked quite a bit on what types of things I can do with Mason...she actually asked me if I would sign a release to allow her talk to Mason's teachers and OT personally...I said yes...so she wants to talk to the OT about what calming techniques she is using and has tried with Mason...she also feels Mason needs ABA now. So she wants to talk to his spec. ed. teacher about seeing if there is some way we can include it in school and if not how we can go about getting it for him ASAP. She said he needs to learn how to be taught...and right now he doesn't understand that and she feels that is where a lot of his frustration is coming from...it starts the moment he steps into school because he is forseeing what is coming and it is upsetting him. And because he doesn't have that control over his moods and anger it is becoming an all day and night anxiety for him...he doesn't understand that he can learn, he doesn't understand that it can get easier for him (with every aspect of his life, she said) and that is why it is so easy for him to just get frustrated and lash out...at least then he doesn't have to deal with the expectations put on him. So she said she believes ABA will help him learn that he can...because they start so slow and make it easy for him to learn...I haven't researched ABA all that much, because we were so far from having that, but she is correct about this, right?
Wow, once again I am writing a book, lol. Thanks all for all the support you have given me...I let my emotions get the best of me when it involves Mason (well all of my kids!) but especially Mason. I hear things and I panic, I worry and worry and worry! I am always second guessing myself, but in the end I know I'm doing the right thing...I just need to get over that second guessing myself thing!! Start trusting my gut!! Thanks again, everyone! I don't know what I did before this board...I'd be so lost right now without all of you!!
Gosh, hope it gets better.
I will add that my son takes weekly OT. His previous instructor is amazing. I can't say enough good stuff about him. But since he is also the owner, we eventually had to move along to an intructor he was bringing in so he could run his business. Ok I was fine with that. but ds did'nt think it was fine. For 3 months now he's fighting OT all the way, from stimming to not co-operating and driving the instructor nuts.
The instructor has come to us more than one time frustrated "you have to talk to him about how he behaves here!" But guess what, he is the one who is supposed to be in charge, if he dosn't have command over my child how does he think I'm going to get it for him during his sessions? The new instructor and I had a talk recently that I hope will help, we'll see.
Niki,
Seeing your kid for 20 minutes and suggesting an institution - for a 6 year old? Trust your instincts, find another doc and keep searching until you find someone that can help. My mom has a complicated medical profile and she went from doctor to doctor for years, everyone saying something different, a prescription here, a prescription there, but no realy progress. Finally, 3 years ago she found a good doctor for the 1st time in her life and it has made the world of difference in her life. There is someone out there, I just wish it wasn't so difficult to find.
Not sure where you are in Wisconsin, but you could broaden your search and see if there is anyone out of Children's in Chicago that can evaluate Mason.
The only scenario I could imagine for putting a 6 year old in an institution is if he was agressive to the point that you feared for the lives of other children in the family (that story posted a few months ago where an ASD child threw a toddler sibling down the stairs comes to mind).
So sorry you are going through this. (((HUGS)))
I have to agree with everyone, if you like your Psych and are working closely with them. Mention it to her and see what she says. No matter what is is ultimately your choice. Personally, unless I thought he was going to cause serious injury to himself or others would I even consider something like that, and then, I would say wouldn't you start in a day type program that is kind of like school but more intensive? I can't believe that an institution is the right place for a 6 year old.
Emotions come on strong and are very hard to handle for some kids. Coping mechanisms are what you need not someone saying "put him in a hospital"
Niki,
I don't know what to say so I will just send you a big ((((((HUG)))))))) I can't imagine how you are feeling and I wish there was someting I could do for you. I hope that this all works out for the best. Take care of yourself and keep us posted..
Hey Niki, I already pm'ed you but had to comment on this! That doctor dosnt know what hes talking about and im glad you talked to Masons psych. She knows him and she would tell you if anything. I still cant believe he is an autism specialist! You are a great mommy!
That psych sounds like a great Dr.! Her talking to the teacher and OT personally has got to make things better for him. Things will be much better soon. You're a great mom.
Mason has got to be one of the most handsome boys I have ever seen! My son loves Super Mario Bros. too.
Hi Niki
I wanted to tell you a story about my cousin, Cathy.When she was a teenager she was dx with bi-polar. She had major fits of anger, completely out- of-control rage, followed by extreme highs. Her Drs gave her all the typical meds, and none worked for her. She is now in her thirtys. She was so in need of help she wrote to the Dr Phil show. She appeared on a show about bi-polar, last season. Dr Phil sent her to Denver for a state-of- the -art brain scan, which to our surprise showed brain damage! All the Drs she had seen over the years never found this out, they took the easy way out and just assumed that what the other Drs dx was what was wrong with her.She is now on the right meds, and is functioning much better, thanks to Dr Phil, and his caring.
The point to all this is, if we, her family had pushed for more tests, more Drs with their own thoughts, maybe she would have had a better life.
So I applaud you for trying every thing to help Mason
Mona , Grandma to Devin 3yrs ASD / SID Shesh! If I could count all the times Sarah had total meltdowns in new places.. and screaming tantrums for hours on end...but time and ABA all but cured them. I would be livid if someone told me what you were told...ridiculas! I think meds help many kids but to generalize this one episode and make those assumptions is absurd!! Many kids lose horrible inappropriate behaviors with nothing more than time, consistency and ABA that specializes in behaviors...and no drugs! Best of luck! You guys are the best! Thanks for making this so much easier to deal with and understand!! Mona, your story is very inspiring...it really makes me beleive it's never too late for anything! I hope it doesn't take as long as it did for your cousin, no offense obviously, but am soooo happy that she was finally able to find someone to listen to her and help her the way she really needed! Thank you so much for sharing this with me! And
Thanks all! I really would be lost without all of you! I can't express just how much this place has helped me with everything that has been going on! But I have a feeling you all know exactly how I feel.
Also, is your O.T. from the school? If not, Adam's OT went to school and talked to his teachers and saw his room and made suggestions to help him with sensory stuff during the day. I don't know if Mason is ready for that yet, but when he is it may be good to have everyone you can involved to make his experience a good one.
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