Ever felt so alone??? | Autism PDD

Gosh yes,

As the child ages and his peers are coming on leaps and bounds socialy and he isn't, other people tend to come round to the idea that something is going on after all.

[QUOTE=horizon]

Gosh yes,

As the child ages and his peers are coming on leaps and bounds socialy and he isn't, other people tend to come round to the idea that something is going on after all.

[/QUOTE]

Exactly!!! This kid just turned 2! Look at all the valuable time that will be lost just because they all have their heads in the sand. I just want to scream at them!!!

My way of dealing with this is, I am his mother and i think there is a problem and i will do everything in my power to find out what it is and get him the help he needs, I will do this with or without the help and support of my husband or other family members. In the process i will hope that my husband comes around and i will encourage him to do so. When i comes to my children, all of them, I do what i think needs to be done based on what i know. My husband is a great father to our children but sometimes oblivious to what drives them.

best of luck to you with this, I know how you feel.

My son's day care suggested he had some sensory issues and would benefit from OT to save probs in the future. It was effective enough in getting us moving.

You are seeing him around other kids and have the benefit of experience that the parents prob don't. Keep it gentle

But that's why I try to get advice from you all-- because you can inform me on what "works" best when it comes to these kind of situations.

Thanks- Keep it coming, Please!!!!

melomo8339336.5399074074YES!!!!! I KNEW something was wrong, and from everyone I told (from drs to family to DH) I got the same thing. They're boys. They're twins. They were premature. They will develop a little slower. Just keep doing what you're doing they're fine. Well they weren't fine and it helped feed into my denial. I also thought the "system" cared as much about helping my kids as I did. WRONG! Its all about money and who yells the loudest. My boys were 75% speech delayed and I just finally got them speech therapy, finally found a dr who would back me up, and they are 4.5! School really failed them until this year. And I'm the mother! I can't imagine seeing all this and being the daycare provider and having less control over the situation! Unfornuately, if he is autistic, syptoms don't usually improve with time and without intervention, they normally get worse and as already stated he is going to fall further and further behind socially. The good part of that is they won't be able to hide their heads in the sand forever, the bad part is he is losing valuable early intervention time. I think that statement about the daycare who suggested maybe benefitting from OT is a good idea. That sounds like a very gentle way of saying it. I'm surprised he isn't already getting OT if he was supposedly evaluated. Whatever you do don't say the A word.I guess I can just say what I wished had been said to me by the teacher who I realize now knew he had autism 2 years before diagnosis. I wish she had said the "a" word--it would have scared me enough to act. I wish she would have been specific about the behaviors that she saw that were red flags for autism. I didn't know anything about autism, so the vague things she told me did not register. I was so on a different planet from thinking that my child had autism that things that probably seemed like not so subtle hints--really flew by me. I wish she would have given me a brochure about autism and told me the things she was seeing...
Nowwhat

Time always tells the truth.

But, yes, it is a lonely walk at times.

Before there ever was a dx for your child/children, did you ever feel like you were the only one who noticed the signs of autism in your child? Or feel like no one was on "your side" or didn't believe you?

How do you overcome all this and basically prove that what you see/saw IS something to check further into???

It's not that I "want to be right", but honest to goodness, there IS definately something going on with this poor child and it infuriates me to know that nothing is being done to help J. Why must we all have such difficulty in getting a diagnosis? Heck, why must we struggle to even get referred to get a diagnosis?

Tell you what I did... Started a computer Word file and just kept typing anything "quirky" that I noticed Paul was doing. No real organization or timeline, just kind of a list. Then I noticed trends and put them into categories. Putting this data in the pediatrician's face (after switching, that is...) in writing helped tremendously!!

Still, the waiting list is long for services. But they will happen when needed. Read and try all you can on your own until you can get where you need to be.

Most importantly - trust your GUT!!!! I was determined to find out what was wrong and bucked literally everyone around me (even hubby for a while until he came around) Trust your instinct and nobody knows your child like you.

Best of luck and hang in there. This is so hard. Been there, I know

Everyone tells me now it is as apparent on the nose on your face what his diagnosis is. From his teachers, his doctors ... Nobody said it to me 2 years ago ... and I had no idea autism was anything other then how Rainman was portrayed in the movie. My mother had gently suggested it a few years ago, but I just shook my head and said he is affectionate ... couldn't be autism! Dumb girl I was. I missed years I could have gotten him more therapies.

Never have I wanted to be more wrong about something, but I wasn't. I knew, from infancy, I always knew. Others made me doubt along the rode, but I always came back to knowing.
Copyright Autism-PDD.net