Both of us are possibly regressing | Autism PDD

One mom in my neighborhood went to a local newspaper and asked to start a support group. If you don't know anyone, reaching out to other moms with kids on the spectrum garuntees you at least one best friend.

Lots of warm wishes to you.

I just wanted to send some (((HUGS)))

Hang in there okay hun

We are here for each other on this board....
This board is a safe place to ask things, to cry ,to rejoice, because there will be all those things to come many times over ......it is the nature of the course we are on

My ds goes up and down every few days and sometimes I think he won't learn new things ever again and then he surprises me

It takes a lot of patience and trying to stay positive helps a lot
Sometimes a good cry and then pick yourself up again and keep moving forward

Keep on reaching out to others it helps so much

You are going through the toughest age. I can say being a toddler did not suit my son at all. I went through depression, hope, hopelessness, asking for help, considering a move to help my baby, accepting, just wanting a molment of silence, and a vacation.

What really helped me was going over to my parents house every Sunday. I knew I could spend quality time or drop him off for an hour if I wanted. I am still a SAHM and it can be draining. When they hit three and start school things get better, because you have a couple hours to regroup.

The good news is, even though he isn't doing the things he used to, you know he can! You can get it back. You really need to look into ABA therapy. I wish I did it from the moment he was diagnosed.

Hang in there. Everything that is happening is normal. This too shall pass.

In November, it will be 1 year since my ds's dx, so I guess I am still learning about this process (although I have a feeling, we're constantly on a learning journey).

My ds has made some great improvements in that time. But it has been brought to my attention by my mother who visited over the weekend of things that he was doing a couple of months ago, but is no longer doing, or if he is doing it, it's not where it was a while ago.

Of course when he was evaluated we were asked if he lost speech. He never had much speech, but there were a few words he was using, that he stopped using altogether. I thought that was regression. I thought it was a one time thing.

Zachary had started looking in our direction when we called his name. Now we're back to repeating it anywhere from 4-10 times before he looks our way. He had also started using some more words, but now they very jumbled and he's starting to grunt alot (in sentences no less). You might be able to decipher 1 word out of "uh ah ch eee Thoma" But he has started with a few 2 word sentences. "mommy's seat", "hi mommy", "mommy foot"

Also, when my parents visited I noticed that he called them "papa nana". He was calling the appropriate person either "papa" or "nana", but now refers to them both as "papanana" It's cute, but sad when I realize that it's just a growing list of things that he was doing and is no longer doing.

But, like I said, the 2 word sentences of a select few words and potty training (well only #1's) are new and we are doing pretty well with these.

It's also worth noting that he graduated from IE in July and isn't getting the type of services nor as much now, as he was getting.

So, will it always be 1 step forward/2 steps back? Do you think that the learning of new skills is making him forget or lose his other learned skills? Or do you think it's something else? Is there something I should do?

It was heartbreaking to have someone point this out to me. I guess I didn't see it, like someone who doesn't see him as often.

I feel like with this realization that I too have regressed. I still go through denial periods, grieving & acceptance, and then the process starts all over.

Any advice? Thanks again. Zachary'sMom39335.5134606482

Michelle

I am in the same place - yesterday my MIL pointed out that he used to make complex sounds and now he does not make them any more ( he is non verbal - she is talking about sounds )

One of the moms on the Flooritme group said her son does this too and its when his mind is focussing really hard on learning something new he seems to regress on the things he knew earler - this comfroted me though I have been feeling particularly anxious this weekend

[QUOTE=MiMom3]

The good news is, even though he isn't doing the things he used to, you know he can! You can get it back. You really need to look into ABA therapy. I wish I did it from the moment he was diagnosed.

Hang in there. Everything that is happening is normal. This too shall pass.

[/QUOTE]

That has been one of the toughest things. We have NO family or friends near us. So, if I need a break, I don't really get one, except when dh gets home.

I have never spent 1 night away from Zachary since he has been born. My parents will take my oldest child who is 6, but they won't take Zachary b/c he is not potty trained and they refuse to change a poopy diaper. While we are making progress on pee'ing in the potty, he doesn't understand the pooping in the potty concept. I told my parents that he may never be fully potty trained. I get the response, "well I guess we'll never keep him."

My dh's parents are in their 70s and live across the country. We've only lived where we are for a little over a year, so no real friends to speak of.

I seriously think that I am going to have a nervous breakdown at times and am seriously considering getting a part time job, just to have some time away for myself. (as a sub, so I can choose when I want to work)

We do participate in respite 3 nights a month. It's our only time for ourselves for a couple of hours.

OK, I got completely OT from my own post

, but wanted to address that.
Zachary'sMom39335.5481712963 [QUOTE=KajoliT]

Michelle

I am in the same place - yesterday my MIL pointed out that he used to make complex sounds and now he does not make them any more ( he is non verbal - she is talking about sounds )

[/QUOTE]

Does this mom say if it eventually comes back on its own, or does it have to be relearned?

he is bored with the way you are asking he is getting nothing out of it,he knows if you shout his name you want him to do something

make sure you are on his hieght level and catch his attention before speaking

try offering a treat when you call

He will not lose skills but will save them up and use them has he needs to

There is never closure if anyone says they there is they are wrong

we all have put our head in our hands and screamed so loud on the inside we almost burst

try alternative ways of getting his attention if after a week or so you have no joy make an appointmrnt with the pead

shell

There are times when he seems to drop back a little developmentally. But we've learned that when he's getting ready to make a developmental jump... all his energy goes into that and some other things he's already mastered seem to regress a bit. Usually within a week or two though, those things come back and we start seeing something new and really cool! (Think of a caterpillar going into a cocoon. There doesn't LOOK like there's a lot going on, but there's a big surprise just around the corner)

I just copied and pasted what the Dad wrote - he said it comes back