Sedation for MRI was awful... | Autism PDD

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It doesnt matter what they give my son, everytime he wakes up, he is fighting mad, pulling wires, jumping off the table, etc. And my son remembers each and every hospital. When we drive by one of the ones he was at, he says that they are "evil places". He is 11 now and has not been in one for the past two years.

He started all the testing and retesting at them under sedation when he was 3 1/2 years old.

He remembers something about them.

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im sorry to heart about yours and sharons and your sons terrible experiences its heartbreaking to read

i wanted to make a statement though from an autistic perspective

its sad he remembers that experience it is truely sad that any autistic kid has to suffer with bad memories/experinces

they have it hard enough as it is as we all know.

Im sure he does remember everything as do most kids that have these experinces the mri and being hurt in those places are very hard things to think about

and its not an ordinary experince so it does register as a bad thing afterwards

god knows i have a terrible phobia of mris

and i would imagine in some ways they would still be alittle angry at their parents for having to go through that to me that.

to me that anger and grudge makes sense and i find

its kind of natural in my opinion for an asder who doesent understand nts reasons for things or think like an nt to be confused or mad over an nts reason for something they dont get or want or understand and this dosent just have to do with mris this can have to do with anything in day to day life.

i still hold a grudge against my mom for my mri expereince

we remember things that no one would think we would
trauamtic experiences can be remembered for a lifetime

sometimes i think

and can be seen again in an autistics head like a film projector during times of duress

i personally will never forget my horrible experince with mris at 13 sometimes these days when i get bothered thinking about it i have to have a few beers to calm down as the stress can really make my blood pressure go through the roof.

sorry to hear about your experience i can honsetly say ive been down that road its a horrible one

i wont tread again or if i have kids force them to go down if i can help it.

omg. How incredibly awful for everyone involved. :( We had an awful time when I had to take my son in for testing for a seizure disorder. It was like he had superhuman strength and two out of the three nurses we had were useless. Thankfully, one was fabulous. Big tight hugs to you and your son.

T reacted coming up from Nembutal, like that. It WAS awful.

Glad it is over with for him, and (since he probably does not remember) for YOU.

Gorgeous kiddoes, BTW!

He started all the testing and retesting at them under sedation when he was 3 1/2 years old.

He remembers something about them.

Well, Christian had his MRI on Thursday. I received a call from a nurse at the hospital the afternoon before with prep info for sedation. I was informed that Chris will be sedated by IV and not Chloral Hydrate as I was first told. I withheld food and drink from midnight and arrived at the hospital at 9:00am. Two hours later we were still waiting. By this time Chris just wanted to leave especially after the Peds doctor came to see him and it was a man. When it came to putting in the IV it was major drama and distress. He fought them with every ounce of his being and got wild when a male nurse came to hold him down. He was saying things like he doesn’t want to die and go in the ambulance and coffin. I felt so bad for him but he was so upset. So, then it came to giving the sedation - Phenobarbital. He screamed when the nurse injected it and she said that it does burn/sting so she flushed it with saline and another nurse was rubbing his arm. The nurse gave him 40 mg more at 11:15am, he screamed from the burn again and the nurse flushed again but it had no effect except he was a little spaced out but still moving and talking. 10 mins later the nurse gave him 20 mg more, still not sleeping but quieter and he starting rocking his head from side to side and moving his arms and legs. 5 mins later he got 20 mg more, still awake but now head and limbs are thrashing all over the place and he had to be strapped down. I am getting really upset at this point and the nurse tried to reassure me that some ASD children have this kind of reaction so 5 mins later, he got another 20 mgs and he finally went to sleep.

The MRI was done without event and then the nurses tried to wake him up in recovery. Well, who told them to do that? He went ballistic. I swear he had the strength of the incredible hulk. The nurses took him off one bed, put him on another with higher rails and restraint straps. He was spitting, screaming, kicking and creating such a raucous that he was moved into another room with steel infant crib. He had four nurses holding him down. His poor arm was red where they tried to cover the IV so he wouldn’t pull it out.

This went on for 2 whole hours, I kid you not. Then the nurses took him out of the crib and put some blankets on the floor and put him on the floor. He tried to stand up but he couldn’t the nurses said he was like a wet noodle. They fed him apple juice in a syringe and said the sugar should help regulate him. One of the nurses said he should not be given Phenobarbital in the future. I felt awful as a mother and thank goodness his dad didn’t come. He would have knocked someone out I’m sure, though there was no way anyone could predict this would happen.

Has anyone else’s child had this reaction? I am waiting for the results, though I am sure it will be normal.

My son does awful with choloral hydrate. So bad we have to list it as an allergy per neurologist instructions to be sure he never gets it again. When he had his adnoids out and tubes put in they gave him versed, thats what it sounded like, before the iv sedation to calm him it worked like a charm. The nurse also told me that med won't let him remeber the stressful situation.

You posted a few months back about that death obsession, didn't you? I didn't make the connection until now. I'm so sorry that the MRI was so traumatic for both of you. Hang in there.

Hi NorwayMom,

Yes, I did post about my son's obsession with death a few months ago. It hasn't gotten any better and I feel just awful.

No maatter what's on TV, if there is a hopsital or ambulance in view he asks who's dead. I was watching some of the Princess Diana specials on TV and of course they showed clips of the flag drapped casket and he went on and on about opening her eyes. The news is worse and I watch a lot of it and in recent days there's been a lot of pic of Anna Nicole Smith, for some reason he asks a lot about her. Why I haven't a clue!

Oh my, poor mom and poor boy! My son felt scared before his MRI too but nothing like that because he was so drowsy.

Does he remember it? My son's sedative had the welcome side-effect of amnesia.

What was the purpose of the MRI? (We were told everything was normal, but never really found out what they were looking for).

Heck yeah, he remembers it. He said yesterday "why they want to hurt me like like, what did I do". I tried to explain that he needed to get some medicine so that they could take a picture with a special machine. He doesn't really understand and he still has some residue of the IV tape on his arm which he won't let me wash off. Guess it's still a little sore He doesn't remember the actual MRI though. Christian NEVER forgets bad things that happen to him, espeically medically related. He remembers all 3 hospital stays in his short 6 years (2 for rotavirus, 1 for swallowed battery). He was asleep when the helmet went on his head and he looked pityful in the machine. The MRI was done due to an ASD dx and frequent headaches which the pedineuro believes are migraines. It was just to make sure there are not other issues going on in the brain.

What makes it worse it that he associateds hospitals and ambulances with death. It was awful when he told the nurses he didn't want to die and go in the ambulance and coffin. I seriously think my son needs pyschological counselling for his fear/obsession with death.

Just an overall bad experience that hope no other child has to endure.

I will need sedation to do another MRI or be

The technician put my Irlen glasses on when he realized I could not respond to him after the test. That really helped and my first thought was how do children survive this and 'specially special ones.

{And I do not tolerate sedation.

Hayden just had an mri last month and it didnt go that great, altho compared to your sons experience it went much better. We tried twice and both times hed wrestle and scream like we were tryin to murder him so finally the 3rd attempt was under anesthesia. They shot something up his nose and that calmed him down alot because at first he was going crazy till then. But it was after comming out of the anesthesia when the real problem started. He cried uncontrollably, screamed, hit and was basically going crazy for literally at LEAST an hour! I was seriously concerned that something was wrong but my mother in law said that my little sister reacted the same way comming out of anesthesia and eventually he fell asleep for hours. I hope we never have to have anohter mri (or eeg for that matter!) again.

I feel so bad for your son, he must have been terrified! I understand about being thankful his father hadnt been there, my husband would have wanted to punch someone out as well (which is what he wanted to do when hayden had his eeg done)!

Also my son constantly talks about death too and asks alot of questions which I HAVE to answer even if I dont know the answer to or all hell will break loose. Not sure why hes so curious about it and I was worried at one point but lately it hasnt been so much. Maybe you could ask his doctor about it if its a problem for him? By the way your kids are totally adorable!

I hope the mri results are good ones!

I hope he doesn't resent me for these bad experiences. I have had a few MRI's in my life. IOne was in a closed portable (sits outside the hopsital in a portable) and it was awful. The room was freezing and dark and I just freaked out. The tech had to stop and I had to reschedule at an Open MRI center. Wasn't that much better either.

I cant really say but i if had to guess and you wanted my honset opinion then yes i think there is some resentment.

that was a pretty intense story

i dont know your son though im only speaking from my perspective and im sorry to sound brutally honest thats not my intention

but you did ask that question so im trying to give you an honest answer

but being autistic sometimes im to honest for my own good sometimes so sorry for that dont meant to upset

(this is a VERY sensative subject to me i just want to try to help you see how we think its not like an nt in any way i can gaureentee you)

but if that happned to me and something like that did happen i would remember it my whole life.

i can gaureentee he holds a grudge

i didnt talk to my mom for a LONG time after my experince and grudges are very easy to hold on too if i were you i would pay him off with a toy

and avoid that again in the future.

id bet he feels very betrayed right now i think he needs your help on dealing with alot of this that he cant process on his own yet.

the death thing i find disturbing im 21 and have been thinking alot about death myself lately every now and then though its scary to think about

so strange coincidence you might want to take him to see someone this could be signs of a serious problem

good luckRainman39330.8015740741

I have seen alot of kids freak out on Fentanyl. Esp ADHD & Spectrum kids. If my son gets a procedure, I always have a good talk with the Aneth= DR. or Nurse -- and they usualy determine to bring him out very slowly.

My Dr. actually told me this was the time to cut his hair. Best hair cut he has ever had:)

I suddenly remembered that I ran across an article on autism and anesthesia several months back. It is written by an anesthesiologist who is herself mother of 2 children with autism. It has a section for parents and a section written for anesthesiologists.

http://www.autismwebsite.com/ari/info/kirz.htm