has autism OR is autistic ? | Autism PDD

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DID YOU KNOW that in israel the word autist (autistic) is used in the same spirit  that 'retard' is used in the US? So it doesn't really make much odds how you say it. I hope that trend doesn't catch on, but I fear it is beginning to.

 

 

I never really gave it much thought.  Sometimes I say he has autism and sometimes I say he's autistic.  I tend not to get my panties in a bunch if someone says it another way.I just want to point out that if you all look to the top of your screen--we are in a room for parent's of autistic children...hmmmmm.I always say my child "has autism".

"Retard" is a disability-hating slur, "autistic" is a legitimate adjective describing a person whose brain functions have certain characteristics  ...it is the baggage that ought to be addressed, not the grammar."

GTTO -

 


I think whatever term you feel comfortable using should be accepted by everyone. 

I have a slightly different perspective since my son's main problem is a childhood epilepsy syndrome (LKS).  He has a huge amount of autistic tendencies which are directly attributed to his epilepsy, so I would never consider him autistic, but rather a child with autism. 

Having said that he was initially diagnosed with autism, which was quickly changed to atypical autism (pdd-nos).  Since then he's continued to have many  regressions and we were finally given an additional diagnosis. When out in public and he is behaving oddly (which is often), lately I've just been saying he's severely disabled.  In his case it's the easiest explanation.  Although with all his additional issues, we get less and less questions, since it's obvious something is very different.

Okay, after writing all that, I'll get back to what I first wrote and that we should all just use the labels that make us the most comfortable. 

 

[QUOTE=autumn]The first confernence I ever went to after dx stated that it is insulting to say 'he is autistic' - in line with saying 'he is crippled' to a handicapped person.[/quote]

I wonder though who thought that idea up.  It sounds like one of those ideas that gets propagated everywhere in this field because it's a lot easier to change language than to actually change how one treats a group of people. 

Of autistic people I know, only a few prefer "person with autism" (and even fewer prefer it strongly), many prefer "autistic person" (and many of those prefer it strongly), and many are indifferent either way.

[quote]Calling someone autistic is considered a derrogative remark in 100 % of the conferences and books I have read.[/quote]

You can't have read a whole lot of books by autistic people, then, or seen a whole lot of conference speeches by autistic people.  Most of the ones I know are either indifferent or have some preference for saying they are "autistic people".

The idea that it is derogatory to refer to me as autistic is far more offensive to me than the idea of being referred to as autistic.  It says there is something so awful about being autistic that the very word (which describes a significant part of how autistic people's brains work) is derogatory.  It says that unlike the word woman, or brunette, or American, all of which also describe only one aspect of the person, there is something so awful and degrading about simply being autistic that it has to be semantically separated from "person" as far as possible, to remind everyone that an autistic person is still a person.

So I don't find either "autistic person" or "person with autism" (or "an autistic" or "an autie" for that matter) derogatory, but I do find the notion that "autistic" is a derogatory word pretty derogatory.  It says that there's something derogatory about the way my brain works.

"Autistic" is by the way not in any way equivalent to the word "retard" which is almost always an insult (in disability contexts anyway, I'm not talking about the meaning as a verb), and should not be compared to it.  "Retard" is a disability-hating slur, "autistic" is a legitimate adjective describing a person whose brain functions have certain characteristics.  "Cripple" I've seen used both ways, but it's one of those words that only people in the in-group can use on themselves generally.  "Autistic" is not equivalent to "cripple" in that sense, it is not an insult and it is almost never a derogatory term, and anyone can use the term, not just autistic people.  So it isn't comparable.  Autistic is a neutral term, if it has negative baggage to some people then it is the baggage that ought to be addressed, not the grammar.
I've never thought about it.  I tend to say that C "has autism."  I guess I just started talking that way and it became habit.  I don't get offended if anyone refers to him as autistic.  To me it's just a semantics issue.  If someone says "Kristy is a blonde" v. "Kristy has blonde hair" it's all the same to me.I guess I just leave it at whatever comes out of my mouth at the time...for
so long, we'd say she had "autistic features" until we got the dx. A doctor
told us that--we weren't offended then by it, never took it to mean
anything negative (as a slur etc.). I guess I try to base a lot of my
decisions w/ my dd on what I have learned from older (adult or teen)
autistics (aka auties) & aspies...and yes, all of the ones I've come to know
prefer to be called by those descriptions than anything else.

Perhaps the word "retard" became a slur over the years because early on,
when the term was commonly used to describe someone w/ cognitive
disabilities, the public treated those people like degenerates, third-rate
citizens, locking them up, & not giving a damn about them. Perhaps if we
start to embrace the word "autistic" & take it to mean, as gtto said, "a
person whose brain functions have certain characteristics" then it will
never become a slur word or have a negative connotation.

Maybe society will start thinking differently about autistics, let's worry
more about helping our kids & the autistic adults. Let's pour money into
better education (for students & the public), vocational programs, career
training, public assistance, etc. Open up the door to acceptance for
autistics. IMHO, I think it's some of these charity groups who are quickly
& very loudly making "autism" & "autistic" a dirty word. Parents hear the
diagnosis of "autism" & they think their world is over, because of some
horrid film clips they saw on Oprah.

Okay, off my little soapbox, I hope I didn't offend anyone. I just am very
passionate about what my dd's future will be like, how society will accept
her, & what opportunities will she have. Discussions like these remind
me of how very far we have to go...

Hi everyone

First of all, I'm sorry if I offended ANYONE, that was never my intension, it was just me thinking out loud

Mona, Grandma to Devin  3yrs ASD / SID

Hi Mona! You didn't offend anyone!!! We just like to debate here...lol!
Seriously, you did absolutely no harm, ask ANY questions. This topic is
something I imagine A LOT of folks on here pondered. You are a great
Grandma, to be here, getting advice & doing all you are doing. Keep it up!!!
And, welcome to the world of autism! Or is it the autistic world??? LMBO!

QUOTE <<DID YOU KNOW that in israel the word (autistic) is used in the same spirit  that 'retard' is used in the US?

Yes, this is true. Also, any autism association will tell you people first - Austism Society of America, National Autism Association, Defeat Autism Now, Cure Autism Now, etc - first note their names are all AUTISM, not 'autistic'. Next, note that it is at their conferences of multiple thousands of people that this 'people first, use autism, not autistic,  is heard.  Lastly, NOTE that all of our children are 'ASD ' is AUTISM SPECTRUM DISORDER, not 'autistic'.  :)

 

Dude, how did I miss this thread?

Just wondering... it's not the end of the world, really.

I think "autistic" or "has autism" is equally effective. By that point it's just a matter of semantics and sensitivity. The definition is essentially the same, as are the characteristics of the subject being described. It's really just all in how you view it at a personal level. I personally see no difference between the two other than their part of speech; "autistic" is the adjective form, and "has autism" is the verb/predicate nominative form. So it really just depends on how you prefer to construct your sentences. stickboy2639324.6501967593

[QUOTE=emerald_521]I just want to point out that if you all look to the top of your screen--we are in a room for parent's of autistic children...hmmmmm.[/QUOTE]

 

I noticed the same thing when I read this topicI agree wholeheartedly with what gtto has said. In my courses "people-first" language has been DRILLED into us. I failed a paper because I used the terms "autistic children" and "cognitively disabled students". It's a very interesting topic indeed.

I don't think people who have diabetes are offended by being called diabetic. I know I have anemia and have never been offended by being called anemic.  However, I was raised with two severly mentally retarded and blind uncles.  If anyone ever asked what was wrong with them, I said they were retarded and blind. By the way, I often sat with them when my grandmother and mother would grocery shop.  I had friends who would come over and help me as well.  I was never embarrassed by them or what DX they had.

I am not embarrassed by my son's autism.   I love him.  He has autism.  He is autistic.

 

the other side of the coin -

My son IS sweet loveable affectionate rigid smart and HAS a sense of humor. My son IS gorgeous, likes the kitchen, and IS a daddy's boy. My son HAS autism, HAS big brown eyes, HAS his daddys smile, and IS a precious child of God. My son IS very special, IS charming, HAS a great laugh, and IS a sweetheart. My son HAS autism, he IS not autistic.

I agree with gtto and bullet.

Just another point, even though so many good ones have come from this already, I still want to say that my son has epilepsy...he is an epileptic and when I have talked to people about his epilepsy and have said "he is an epileptic" I can't ever remember anyone walking away from that conversation, thinking that is all there is to Mason...they know he is so much more, just it IS part of him.

 

[QUOTE=gtto]

The idea that it is derogatory to refer to me as autistic is far more offensive to me than the idea of being referred to as autistic.  It says there is something so awful about being autistic that the very word (which describes a significant part of how autistic people's brains work) is derogatory. 


"Autistic" is by the way not in any way equivalent to the word "retard" which is almost always an insult (in disability contexts anyway, I'm not talking about the meaning as a verb), and should not be compared to it.  "Retard" is a disability-hating slur, "autistic" is a legitimate adjective describing a person whose brain functions have certain characteristics.  "

[/QUOTE]

I AGREE!

Mary

 

trains_R_us39324.7284953704

Hi Mona,dont worry ,you did not offend anyone,We all like a good debate!!

It keeps us sharp for all the ,Drs, teachers , workers we need to "debate "all the time ,to get our kids with Autism  or our Autistic kids what they need.(I use both).

God bless,Linda

 

What I say depends on who I am saying it to. I usually say "My son with autism" or "My son, who lives with autism" in conversation, but I use "Autistic child" when I need to make a point to someone.

We were flying across the country recently, and at the airport I needed a gate pass so my sister could help me in the terminal until the flight boarded. I used the "Flying alone with an autistic child" b/c I didn't want to explain my life story to the ticket agent, I just needed the pass so we could get food for a melting-down 9-yr-old, who desperately needed lunch before we took off.

I try to educate people on the reality of life with autism when I can, but sometimes you just gotta get a double hamburger Happy Meal 10 minutes ago.

Whne I am working I use people first language. I also use people first when talking to other professionals that work with my son.

However, when I am talking to my friends I say Aiden is autistic because it is so much a part of who he is that i cant seperate it. I am also very pround to have an autistic son.

 

Personally, I don't view autism as a medical diagnosis or an invading disease, which is what the "my child has..." terminology implies to me.  It is an integral part of who he is, just as his red hair, gender and race is.

So... I usually say my son is autistic if it is necessary, just as I say I am a redhead, or I am of gaelic descent.  It is simply another part of the human rainbow.  It is simply one of many manners used to identify, but not define him.

If he ever decides he's offended and lets me know, then I'll change what is said.

Way back when the boys were babies and first dx I would always say "has autism" and would get really upset when people referred to either of them as "autistic."  Well as time goes on, I really don't care anymore.  I say it either way and it no longer stings when others say it.  Maybe it comes with time and acceptance?  I don't know.  To me they both mean the same thing and neither are offensive terms.  I really think people spend to much time over PCing things.

Just yesterday I said he was autistic .

 

We were at Walmart and he was making some high pitch noises.  One of the co-workers came over with the biggest smile and said to my son we dont let wild animals in here you sound like a moose in heat. I knew the guy was being funny so I didnt take it personally at all. I just told the guy that he was autistic and he has some intersting sounds at times.

I feel like it doesn't matter what we call it...eventually some forms of society are going to make derogatory remarks......regardless.   I say what comes out of my mouth at the time it's needed.  Sometimes that means that my son was diagnosed with Autism....or Autistic. 

Karrie

I have most often used "he is autisitc" to describe J.  I never even thought that could be offensive to anyone-- I sincerely appologize if I have offended anyone.

I'm sorry, but I didn't know!!!!!

 This is one perspective.

 http://web.syr.edu/%7Ejisincla/person_first.htm

Phonetics???  I have thought of this often and both perspectives have a lot of validity. 

I am truly brainstorming here, as I really have not formed an opinion, but one thought was...being something (is autistic) seems a more "permanent" stement of fact, wheras has something (has autism) seems more temporary, or that it will change???  maybe? 

The PC way to express this is by using People First terminology.  That means that someone is not their disability.  They are THEMSELVES but the HAVE a disability.

My child HAS autism.

Personally, though, I don't really think it matters.  If my child couldn't see, I would say, "My child is blind."  Not "My child has blindness."  JMHO

 I say "is autistic", in the same way I'd say that Tom "is a redhead". It's not absolutely everything about him, but it's significant enough to be a part of him that can't be separated.

The first confernence I ever went to after dx stated that it is insulting to say 'he is autistic' - in line with saying 'he is crippled' to a handicapped person.

that was years ago and since then multiple times I have heard and read 'people first' - a person 'has' this or that, it does not define the person.

I have CP, I am not a cripple.

I have cognitive disfunction, I am not a retard.

I have autism, I am not an autistic.

Calling someone autistic is considered a derrogative remark in 100 % of the conferences and books I have read.

But to many autistic people it is not considered offensive, it is considered a significant part of who they are. If someone says they prefer for themselves to be known as a person with autism then I will call them by that terminology, because that is their choice. If Tom ever says to me that is how he wishes to be referred, then that is how I shall refer to him. But those (and I count myself amongst them) who wish to be known as autistic rather than a person with this deserve to have our personal choices accounted for. To deny somebody the right to label themselves as they see fit, to claim that one terminology is insulting whilst failing to grasp why a person should wish to refer to themselves in such a way is erroneous.

 

bullet39324.2803240741I usually say "slightly autistic"  and that's because he does not have an official medical diagnosis yet.  Even though the school has him labeled with autism.  I believe he has autism, or aspergers, but until I have an official medical diagnosis, I don't feel like I can actually put that label on him myself.  The same with my daughter.

I still say I have a child with autism..it is very hard for me to say "she's autistic" although I have said that before but it is more painful in my gut to state that for some reason..not sure why??

 

Hi there, I have a question.

When you tell someone your child has autism, do you say...

My child has autism?

or do you say , my child is autistic?

the reason I asked is, my sil and I were talking, and he said  Devin has autism, he is not autistic! he went on to explain why he says that. He said  that would be like saying someone with cancer is cancerous. He said Devin is my son who happenes to have autism

I never thought about it that way

Grandma to Devin 3yrs  ASD/SID

I always say my son has autism.  I never say he's autistic.  He is person, not a diagnostic term.  I like your SIL's analogy.I like the analogy too! I have slipped occasionally and said ds is autistic, but usually I say he has a mild form of autism.

I've wondered this too.  I still have a hard time saying either one.  For some reason saying "he's on the spectrum," is easier for me to say.  I have no idea why. 

I say both, leaning towards Lachlan has Autism 95% of the time....but usually in cases where I am really frustrated or people just dont get what is going on I say he is autistic.I say Sharlet is autistic.  I feel it's as much a part of her as her beautiful eyes and dark hair, not a separate entity.   I'm proud to say it.

[QUOTE=gtto]
I'm a woman, and that does not define everything I am, and I am more than the sum of female body parts, but nobody ever makes me call myself a person with womanhood.  Therefore, I see no reason to avoid calling myself an autistic person.
[/QUOTE]

Thats an interesting take on it.. I especially like it because it shows to me that there is no shame in being autistic / having autism.

Mary

trains_R_us39323.9904861111

I say both...wow I guess I never thought it could offend someone...sorry to anyone it might have offended. 

But I do like Gtto's explanation!!  Thanks.

I usually say I'm autistic.

This is because:

1) It's shorter and easier grammatically

2) If people have that much trouble understanding that autistic people are people, they're not going to suddenly be enlightened when referring to people as 'people with autism'.  I'm a woman, and that does not define everything I am, and I am more than the sum of female body parts, but nobody ever makes me call myself a person with womanhood.  Therefore, I see no reason to avoid calling myself an autistic person.
It is actually stated in the DSM, that all clinicians should use the more
neutral language when refering to people with any dx.
Saying someone is schizophrenic is too depersonalizing.
Saying a person with schizophrenia implies there is more to that person than
the dx.

Whether or not it offends people, I think it's good to get in the habit of
acknowleging someone's humaness in any little way you can. Language can
be a surprisingly powerful agent of change
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