Nina | Autism PDD
Hi everyone, I had the first formal EI appointment for Nina today and we did the formal developmental checklists to confirm Nina qualifies for services. She needed to have impairments in 2 or more areas on the ASQ developmental checklist.
Her scores were as follows
Communication score: 5 out of 60 which shows severe impairment (the cut off for normal range being 34.5)
Gross Motor: 60 out of 60 showing no impairment
Fine motor: 30 out of 60 showing very mild impairment (the cut off for normal range being 30.6)
Problem Solving 50 out of 60 showing no impairment
Social: 15 out of 60 showing moderate impairment (the cut off for normal range being 26.7)
So from here we will be getting the ball rolling because we do formally qualify for services and Nina is officially suspected as being on the autism spectrum, obviously these tests do not even factor in her stereotyped/repetitive behaviors, sensory seeking and unusual play habits. With those added to the impairment in communication and social impairment it's looking pretty likely she will go on to get a dx of ASD. She will have the M-CHAT in 2 months time and if she fails she will be evaluated by the same team that dx Sharlet when she turns 2 years old in May 08.
The most obvious things noted were,
no pointing, not looking at mum when asked "where's mum" no animal noised or words other than "YAY" , Not pointing to objects in a book when asked "where's the", not "showing things", not completing very simple requests such as "where's the ball" not trying to get attention when needing help.
There were many others and as I said the tippie toe walking is becoming very noticeable and so is the sensory seeking and attachment to non toy objects.
anyway, thanks everyone for your ongoing support and concern for Sharlet and Nina and myself ((((HUGS)))) to you all.
One last note, my husband is having his first appointment in the process of formal dx of Aspergers next week YAY! The autism consultant knows, I know, his family knows and he knows that he has it, now we want it formally because he needs support as he is not functioning at Uni or at home, so wish us luck. We are going away this weekend so I will talk to yall when I get back and post pics :)
Allegra, I'm happy to hear that Nina will be getting proper interventions.
(and your husband is on the road to getting some support, as well.
But, whew, what a lot to deal with. You are in my thoughts. 
Now you've gotten that evaluation step behind you, and can move on down the path. I hope it's a smooth one.
Does Nina point to objects in books and do some of those other things at home? Or did you feel her behavior in the evaluation setting was consistent with her behavior at home? Just wondering.
Have a good weekend, and good luck with everything.
hi hun
all the best with your daughter
and husban
i only got my dx a coouple of years age
i never knew my family i was i and out of childrens when i was little so i could not ask anyone what i was like
but the struggle i had was unbeleiveable knowing something is wrong but not knowing what
beinl labled crazy,looney and nut case of course lorna wing did not translate papers untill the 80s and that is when i was small childhood scitzaphrenia they alled me has a chid.
and gettig the dx 35 years down the line does make you breath a sigh of pure relief of years and years of ridicule
god bless your hubby and welcome to the officia; world of the aspie lol
shell
Nina wasn't at the evaluation, it was all paperwork filled out by me and referring to notes taken at observations in our home. Nina is not even close to pointing to objects in books, following a simple direction or looking at mummy when asked "where's mummy" etc in any setting.To qualify for EI funding she didn't need to be there today, but she has been observed at home many times by the autism consultant who did the paperwork today and she has taken many notes on Nina over the past few weeks.
At 18 months when the MCHAT is done, there will be much more formal observations and more questionnaires.
Enjoy your time away. Please get back to us soon. Your eldest daughter is without any ASD, correct? Perhaps Nina will eventually follow in her footsteps. Not pointing and not speaking are huge red flags, as you know. Great that you were able to hop on this asap. Sounds like Nina has a far milder form of autism than Sharlet does. Let's hope.Thanks Tzoya,
Astra is not ASD, but she had a different father. I think by the time she's two, maybe two and a half, you'll know for sure one way or the other. I hope the MChat lets you know one way or the other.Glad to hear the process is underway. You are a great mom for getting the ball rolling and paying attention to the signs. I wish you luck and hope that since it is so early the prognosis will be better.
Awesome - you are so ahead in the game
One of my wise friends who has a kid with DOwns said -
A diagnosis does not change your child - it just opens the door to the services that will help him be who he needs to be
Hugs Allegra -hope you have a fabulous weekend
Allegra,
Glad to hear the both Nina and dh will get the help they need. You're doing all the right things and while it's alot to handle, the fact that you're so on top of it all will make all the difference.
Kajoli is right.
You have a lot on your plate, but the foresight to get help ASAP, which will make all the difference.
And yes have a GREAT weekend!
You are definately on top of things.
I hope you have a fantastic weekend with your DH!
Hi AllegraKudos to you for jumping on this so early!!! Hopefully with the services Nina receives, things will start to change for her!!! Great job!!
nakama
Allegra hugs for you and your sweet girls!
Hope you get a really enjoyable time away
Have a wonderful week and take lots of deep breath. You are so on the
ball with getting everyone the help they need.
I can't wait to see the pictures!You are in my thougts as well....you sound like a great mom who has a lot on her plate....I hope you get the services and answers that you need.
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