just curious what services are like in Oklahoma. specifically the Tulsa
area. what programs might be available, medical services, financial
services, etc.
I also live in the Tulsa area and was looking for any resources I could find...If you can help please reply.
Im not in Oklahoma but here are some links that might help....
Waiting list/ first come, first served. No disqualification from HCBS due to severity of need.
Oklahoma Medicaid: http://www.ohca.state.ok.us/
Oklahoma Developmental Disabilities Services Division: http://www.okdhs.org/ddsd/
Special Needs Advocates & Attorneys
http://www.education-a-must.com/aalistnz.html#OK
National Association of Protection and Advocacy Systems, Inc
http://www.napas.org/other%20pages/Contact%20your%20P&A/ oklaoma.htm
National Respite Locator Service
http://www.respitelocator.org/searchStates.asp
http://www.respitelocator.org/locatorsearch/searchpage.htm
Oklahoma State Resources
http://www.autism-pdd.net/links/oklahoma.html
ALSO
Yellow Pages for Kids with Disabilities
http://www.yellowpagesforkids.com/
Special Education Rights for Parents and Children
Support and Advocacy
Autism Resources
National Respite Locator Service
National Respite Network
About Head Start
National Service Locator
Special Needs Advocate and Attorney Directory
Special Education Resources Directory
Missouri Autism Project Registry
Federation for Children with Special Needs
"A coalition of parent groups representing children with
a variety of disabilities. The federation operates and
coordinates information, advocacy, and training."
1-612-827-2966
Help for Children From Infancy to Adulthood, 6th Edition
"A national directory of more than 1,000 resources to
help children, including sections on children’s health,
mental health, and mental retardation, and children
with disabilities."
1-800-343-0686
National Parent to Parent Support & Information Systems, Inc.
"Supports, strengths, and empowers families through
one-to-one parent contacts."
1-800-651-1151
Pen-Pals Program
"Pen pals are designed for children 5 to 18 with a
chronic illness"
1-201-361-7366
| Internet Resources |
| for Families of Children with Disabilities |
Autism Resources - Specific Issues
National Dissemination Center for Children with Disabilities
Recommended Resources
Autism Spectrum Disorder Resources
Autism Resource Links
Resources for Families
- First, talk with your child's doctor or teacher if you have questions or concerns about how your child is developing.
- There are many federal and federally funded resources for learning more about ASD. The "Where can I go to learn more about ASDs?" part on the Information Center's "About Autism" page has links to ASD information from the National Information Center for Children and Youth with Disabilities, the National Library of Medicine, the National Institutes of Health, and more. [Go to the "Where can I go to learn more about ASDs?" information]
- The National Information Center on Children and Youth with Disabilities (NICHCY) has put together resource sheets that list key programs in each state for children with developmental problems and their families. The lists include state agencies serving children and youth with disabilities, state chapters of disability organizations and parent groups, and parent training and information projects. [View the NICHCY Resource Sheet for your state]
You can also call NICHCY at 800-695-0285 to talk with a staff person about your questions or concerns or email them at nichcy@aed.org.
- Every state provides education services for children who have developmental problems. These programs can start right after a baby is born and last until a young adult turns 22 years old. You can find out more about these programs from the following resources:
- U.S. Department of Education (DOE)
The DOE has written a guide to help parents, teachers, and education agencies put Individualized Education Programs (IEP) in place for children (including preschoolers) with disabilities. [View "A Guide to the Individualized Education Program"]
The DOE Web site also has an article on parents' rights and responsibilities in the special education process. It includes suggestions of ways parents can have input into their Individualized Family Service Plan (IFSP) or their child's Individualized Education Program (IEP). [View "Rights and Responsibilities of Parents of Children with Disabilities"]
- National Information Center on Children and Youth with Disabilities (NICHCY)
NICHCY has written a guide for parents on how to get early intervention services for children ages birth to 3 years and special education services for children ages 3 to 5 years. The guide is available in both English and Spanish.
Another NICHCY publication answers questions and concerns that parents, teachers, and others who work with children with disabilities have about the Individuals with Disabilities Education Act (IDEA). IDEA is the federal law that supports special education and related services for children and youth with disabilities. This publication is available in both English and Spanish.
NICHCY has also written an article on the educational and civil rights of children and youth with disabilities through age 21 years. The article focuses on IDEA, Section 504 of the Rehabilitation Act of 1973, and the Carl D. Perkins Vocational Education Act. It is available in both English and Spanish.
- Financial help may be available for health care.
- Children's Health Insurance Program
Each state has a Children's Health Insurance Program that provides free or low-cost health insurance for eligible children. The Insure Kids Now! Web site has basic facts about these programs. It also has links to every state's insurance program for children, where you can learn who is eligible for the program, how to apply, and what services are covered. Information is available in English and Spanish.
- Medicaid
People of all ages who have disabilities may be eligible for health care coverage through Medicaid. Each state runs its own Medicaid program. The Centers for Medicare & Medicaid Services Web site has general information about Medicaid, including who is eligible and what services are provided. It also has the Web address for each state's program. [Go to the Centers for Medicare & Medicaid Web site] [Find the Web site for your state's Medicaid program]
- People who have an ASD may be helped by using assistive technology (AT). AT is any item that helps people do things in their daily lives. Examples of AT devices include a keyguard that helps children find the right keys on a computer keyboard, a simpler remote control for a TV or stereo, an adapted mouse that makes computer navigation easier, switches that help children play with toys, and talking books.
- The National Institute on Disability and Rehabilitation Research (NIDRR)
NIDRR funds state projects that work to help people of all ages with disabilities get access to AT devices and services. [Find the NIDRR assistive technology project in your state and visit the project's Web site]
- MEDLINEplus: Assistive Devices
MEDLINEplus is an online service of the National Library of Medicine. It is designed to link users to information on specific health topics including assistive devices. MEDLINEplus brings together information from many sources and is updated every day. The site includes general information about assistive devices, plus links to information about funding, research, specific conditions, dictionaries, organizations, statistics, and children, teenagers, and seniors. Some information is available in Spanish.
- Possible new treatments for people with ASD are studied through clinical trials. ClinicalTrials.gov is a Web site run by the National Library of Medicine that has information on studies funded by the National Institutes of Health, other federal agencies, and companies that make drugs. You can find out what studies are being done with people who have an ASD, including who is doing the study, what the purpose of the study is, who can be in the study, where the study is being done, and how to get more information about the study. [View list of ASD-related studies at ClinicalTrials.gov]
Adapted from information provided by the Centers for Disease Control and Prevention