REGRESSION | Autism PDD

Welcome to the board Michael Joey is truely blessed to have a dad like you!Joey is lucky to have you for a Dad and you are lucky to have Joey for a son! His mom is missing out but maybe one day she'll be stronger, but until then keep up the great work!THANK YOU ALL FOR YOUR BEST WISHES! JOEY MOM HAS LEFT TOWN AND MEMBERS OF HER FAMILY ARE TRYING TO GET HER TO THERAPY,AS I HAVE IN THE PAST,BUT SHE HAS TO WANT TO CHANGE AND QUIT BLAMING EVERY ONE ELSE FOR HER UNHAPPINESS. HER AUNT TELLS ME THAT THIS IS A PROBLEM FOR MOST OF THE WOMEN IN HER FAMILY.AS FOR JOEY AND I,ITS HARDER BY OUR SELFS BUT MUCH LESS COMPLICATED.HIS SLEEPING SCHEDULE IS STILL BACK WARDS FROM WHEN HIS MOM WAS IN TOWN.SHE STAYS UP ALL NITE AND SMOKES AND EATS AND WATCHES TV.IM HOPING SCHOOL STARTING WILL HELP HIM RETURN TO REGULAR HOURS.HE IS SO FULL OF ENERGY AND HIS SYSTEM SO SENSITIVE TO WHAT HE EATS OR IS EXPOSED TO.EVEN THOUGH ITS A CHALLENGE EACH DAY IT IS ONE I LOVE AND FEEL PRIVLIGAGED TO BE HIS DAD.I PRAT EACH NITE FOR JOEY AND FOR ALL THE CHILDREN IN NEED AND FOR GOD TO HELP ME BE A BETTER DAD TOMORROW THAN TODAY. GOD BLESS YOU ALL. MICHAEL

Joey is so blessed to have you as his daddy :) Forget about mom for now and focus on Joey. If all she does is what is in HER best intrest, then it would be best for Joey if she is out of his life until she gets the help she needs. Maybe that will give her a push to straighten up. I am sure you already knew all of that though.

Keep coming to this board for encouragement. It sounds like we could learn a lot from you on how to fight for the services our kids need, you are AWESOME!!!!

God bless you for being there for your boy. I am so sorry his mom can't deal with this. Mostly for him, but also for you. YOu are such a great dad. Let us know how it goes in your son's new school.

AS A SINGLE FATHER OF A AUTISTIC SON I KNOW IM THE EXCEPTION,JOEY MOTHER JUST CANT STAND TO BE AROUND HIM FOR VERY LONG,SHE IS STUCK BEING THE ETERNAL VICTIM ,AND DISLIKES OUR SON FOR MAKING HER FEEL BAD,SHE HATES ME FOR FINDING SO MUCH JOY WHERE SHE FINDS ONLY SORROW.JOEY JUST TURNED 10 AND WE MOVED TO TAMPA FOR A NEW AUTISM CHARTER SCHOOL,FLORIDA AUTISTIC SCHOOL OF EXCELLENCE.WE CHOSE A APARTMENT CLOSE TO THE SCHOOL SINCE I HAVE TROUBLE DRIVING,FRIDAY ,3 DAYS BEFORE SCHOOL STARTS THEY TOLD ME JOEY WILL HAVE TO ATTEND A CAMPUS ACROSS TOWN,SO A NEW BATTLE BEGAN,I CALLED THE NEWS PAPER,MY SENATOR,THE SCHOOLS MAIN OFFICE IN TENN. THEY HAVE CHANGED THERE MINDS AND MADE ROOM FOR JOE.I AM USED TO FIGHTING FOR JOEY EDUCATIONAL RIGHTS,BUT DID NOT SEE THIS COMING.POINT BEING ETERNAL VIGILANCE IS NEEDED FOR OUR CHILDREN TO SURVIVE AND GROW IN THIS WORLD,NO DAYS OFF AND TAKE NOTHING FOR GRANTED.
IVE TRIED TO SOME HOW FIX JOEY AND HIS MOTHERS RELATIONSHIP SO MANY TIMES IVE LOST COUNT,THIS LAST TIME IVE GIVEN UP,HE REGRESS SO MUCH,AND ITS HEART BREAKING TO SEE HIM TRYING TO GET HER ATTENTION AND HER IGNORING HIM OR JUST PUSHING HIM AWAY.THIS LAST TIME HAS SET HIM BACK A YEAR IN SPEECH AND BEHAVIOR.LOVE AND DEVOTION TO GOD AND MY SON KEEP ME GOING EVEN THOUGH THERE SEEMS TO BE TROUBLE AROUND EVERY CORNER.THEY JUST TOLD US THE GUY FIXING OUR CAR TOOK THE MONEY AND LEFT TOWN AND WE NEED A NEW TRANSMITTION,1400 $ ,JOEY WOKE EARLY TODAY 3 AM AND THE FRIDGE IS OPEN AND ALL OUR FOOD ON THE FLOOR AND THEY CANCELED OUR FOOD STAMPS BECAUSE THEY FINALLY ORDERED CHILD SUPPORT PAYMENTS FROM HIS MOM SHE MADE ONE AND LEFT TOWN. IT NEVER END ,BUT I WILL NEVER QUIT.I WORRIE FOR JOEY AS IM 50 AND DISABLED FROM BEING HIT FROM BEHIND BY A SIMI TRUCK.BECAUSE I AM SUING LIBERTY MUTUAL NO ONE WILL UNDER WRITE A LIFE INSURANCE POLICEY.SO I TRUDGE AND NEVER FORGET HOW GREATFULL I AM TO BE JOEY DAD.
MICHAEL

Wow sounds like things are rough for you right now. I'm in Tampa too. Getting things here in Florida is a bit of a fight, its here but you have to be on top of this school district, they like to pull the rug out from under me too. So sorry his mother is acting like this and it has caused regression, has she completely left town? I would say she needs some type of counseling, but if she's completely gone and refuses to get counseling that won't help. Glad you got the school you needed and hope things get better for you.

ETA: I went and looked at the website for that school, I have never heard of it, it looks like a great school. I didn't think any schools here offered ABA, I will keep that school in mind. Nikolas is attending an ASD classroom, they use to be all in one school but they have moved them all over the city to bring the classes closer to the kids. I am very excited about it, they have a lot more than the regular special ed classes.

Linda1156739313.2107175926

I have a son Joey thats 11 years old at FACE (chelsea). I can't even get them to return a phone call right now. Your right, we just keep on going to what we need to do. Hope we can meet up soon. Maybe our Joe's have the same teachers.

Without Joey's mum here to put her side of the story across I shall not judge her. But I hope you find this board useful Michael.Good Luck Micheal. There are a few of us Dad's on here, but I don't think that any of us guys are fighting as much adversity as you are... A LOT of the Moms are in your situation however. God Bless You and Joey.Just wanted to send you a GIANT hug !

Michael,

Welcome,

Your story was very inspiring and heartbreaking at the same time...you are a wonderful dad and your son is so lucky to have you on his side:)

I truely believe in you get what you put into this live and what goes around comes back at you...I would put my energies into your son & I hope you find many blessings and gifts in this world:)

THANK YOU ALL SO MUCH! DIDNT EXPECT SO MANY TO REPLY,ITS VERY NICE.IM STILL GETTING THE HANG OF HOW TO USE THESE BOARDS MY SELF SO IM NOT SURE WHAT GETS THRU,I THINK IVE GOT IT NOW THOUGH.BEING ALONE IN A NEW CITY ITS VERY COMFORTING TO KNOW YOU ALL ARE OUT THERE,GOD BLESS AND THANK YOU AND ALL OF YOURS I DONT KNOW HOW MUCH I HAVE TO TEACH ANY ONE,MY STRADIGY IS SIMPLY NEVER BELIEVE ONE PERSON ,NEVER GIVE UP,KEEP A OPEN MIND AND OPEN HEART,AND KEEP TRYING.EVEN THOUGH SET BACKS ARE HARD AND I KNOW ILL GET DEPRESSED,I JUST LET IT WASH THRU AND LET MY SON AND GOD HEAL AND REINSPIRE ME. I JUST STICK TO THESE THINGS AS THEY ARE WHAT MY PARENTS AND GRAND PARENTS PASSED ON TO ME. THAK YOU ALL
GOD BLESS

Sounds like you have a great attitude. Like others have said, your son is lucky to have you. God chose you for a reason. Keep up the good fight. From one dad to another .

We are all here for eachother so welcome.

John

thanks to every one !joe finally got to school today.there are still transportation issues with his new school.his regression is only temporary and caused by all the changes he gone thru.the school wants to move him to a different class and its sad because he was doing so good at schools beginning. I hope I can get him back to his happy place and he excells at his new school.
I worrie about his diet . he is very picky.now that its just him and I maybe ill be able to make some changes.he has developed a limp ,and a hitch in his step.he also has stomach problems.his old dr. wants him checked for a hernia.I read a artical in contemporary pediatrician that said autistic children are being discovered to have vitamin deficiencys ,especially C.it is near impossible to get joe to take any type of pill or liquid meds or vitamin. If he dose have a hernia its probably from resteling him trying to get him to take a pill.i had a friend who was a nurse tell me i just needed to know yhe correct wat to get him to swallow the pill.she is a mother of three and came over to our house with her 17 year old daughter.they gave up after 15 minutes.they could not believe joes strength .I use transdermal lotions for vitamins ,but no C supplements are available.idiosyncratic eating habits along with severely orally defensive make it hard to get him the proper nutrition. Im giong to try and limit the food supply and hope he will get hungry enough to eat fruits and veggies but am waiting till things at school settle down.do lots of your children have simmilar eating disorders? has any one over come any of these issues?
thank you all again for being there,it really helps!
michael

My son Jason is the same way...so far, we haven't had any luck trying to expand his diet much. If we get lucky, he MAY eat something he's not eaten before, but we can never count on him eating the same thing again, anyway.

So far, we've relied on a good multivitamin, as he is a healthy weight/height for his age. I'm keeping an eye on it, though.

Hopefully someone else may have some advice, though I will ask: have you looked into a feeding team? I've heard of them, but I bet there is someone here who can give you a much better run-down on it than I could. Maybe try starting another thread topic on this!

Good luck!