LOVE2FLY---- Hi Im an annoying one who goes around URGING people to take a look at www.prisms.org and check out "SMS" or Smith-Magenis Syndrome. My child had a PDD dx. from the age of 7. He is now 14 and things make so much more sense. You can actually see a geneticist and get a blood test called an"FSH" test or fish test as we term it. Your kids "sound" like mine,just look it over and see. This is a deletion on the 17th chromosome and boy oh boy does it resemble PDD/ASD/etc... trust me I know my stuff. If its nothing you identify with ,so be it. Good Luck..
Thank you both so much things are still crazy here and I have an appt to talk with a phycoligist that only deals with special kids I will definatly be talking with her in great detail about my oldest son.
As for my twins well one has an appt with a specialst who will direct me on which way to go from there, and I'll see if I like what she has to say.
I am hoping with time and regular routines put back in place all three of my kids will start improving.
Hi everyone
I haven't been here much as it is the summer and I have all three kids home for the most part, well things have been up and down from the kids losing their grandfather to their father no longer being allowed to see them (or atleast till he gets some help)
I have come here more or less because of my twins over my oldest who has PDD NOS.
He has his good moments and his bad and for the time being I am able to manage him, with the help of his special needs worker.
Right now I have a few questions about my twins my older one has been diagnosed just last week as having ADHD, I figured that this diagnoses would be what he would recive my question is I have been around a lot children and many whom have had the ADHD attached to them my question is he is extreamly emotional I do know that things affect him more greatly then the other two or at least he shows it more yet I find him to cry at everything, if one of his socks are inside out or he dropped his cookie if his toy was placed an inch out of order. He is also very tlkative yet has hardly anything to say. Is this normal of an ADHD child or could there be more to him.
As for the other twin I was told that he may have ODD as he htes being told wht to do hates rules loves to bug, yet hates being touched, hates different fabrics, is extreamly smart (they all are) yet she shows it in his play which is mainy along he will play with his brothers if they ask him yet hardly goes looking for someone to play with him.
I am wondering if anyone has come accross children like this with this diagnoses and what kinds of things have been done to help there child or the child they knew.
Also all three of my boys seem to be very much awear of their bodies and that of the opposite sex, I do not sugar coat the names of body parts I do give them there correct names. My oldest 8yrs old has discoverd that his penis dose more and that it feels different, he has also realized that his brothers also have the same body parts and has begun to explore them well the twins mainly the younger josh has had an amazing intrest in boobs. I can't take him out with out him touching someone or bras well in a store. are these acts normal.
Hey Love2Fly, Sorry about the lost of your childrens grandfather and thier father. You and the kids sound like your going thru a really hard time right now. I hope everything starts looking better for you all and everything works out and Im sure it will in time.
I dont have much advice but my son is very emotional as well. Not all the time but some days are very hard and like your son he cries for EVERY LITTLE thing! Its very frustrating for all of us. Those days nothing is right. The only dx my son has a PDD-NOS which he just got recently, almost 2 months ago. He seems ADHD at times, towards bedtime and sometimes in public and of course some days all day long! But I think thats part of ASD is what Ive been told so not sure. Do you think because hes going thru a really rough time right now thats why he so emotional? My son also hates certain textures, hates wearing clothes, certain foods, sounds, lights etc. I didnt know ODD had sensory issues too. You could get them fully evaluated and find out what all their problems are and the doctor can suggest different intervention/therapys that would be good for them. That would help give you clearer answers. Id think OT would be good for sensory (which is what my sons starting soon).
Id think the boob interest and interest in the opposite sex is totally normal but I dont think touching other peoples boobs are very healthy! Im not sure if you said he explores his brothers private parts too? Hes only four so maybe hes not fully understanding that he shouldnt be doing that and maybe has a problem with social boundaries? I know at one point when my son was 3 he started asking about my boobs and looking at them. I got alittle panicky (automatically) so I covered up from then on! He did try touching them a few times just out of curiosity but I kinda ignored it at first but soon he was repeating the word boob all day long so I explained everything to ihm and that its private and he dosnt touch anyone else private parts except his own and no one should touch his. That took care of it and I also started watching that I dont walk around nude anymore! You get so used to it you dont even think about it, for me anyway.
I probably dont have the greatest advice especially since I dont know how to handle most things my son throws at me and tend to panick when it comes to subjects like these but Im sure someone wiser and more experience can give you something useful to go on! If its unhealthy and doesnt stop you could try talking to his doctor about it. Especially if he keeps trying to touch his siblings you dont want them to have to go thru that. But Im not sure if you said he does or not. Sorry that all I got. I hope you all can get thru this tough time but It will get better, Ill keep you in my prayers
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