I think my son just had a seizure he woke up told me he was cold (he only sleeps in pullups and hates blankets-) i gave him blanket an put my arms aorund him and almost fell alseep and i felt the bed shaking so when i realzed i wasnt dreaming i looked at my son whos back ws facing me and he was shaking and i peered over him and hes arms were bent at the elbow and fists clenced tightly and his eyes (from what i could make out indark) looked squeezed shut bu talmost like they were a crack open too and i just watched thinking omg is he having a seizure?? Then he stopped and a few sec latr yawned and stuck his fingrs in his mouth and that was it he was crashed out already. I looked up what to do and says i should call my doc inmmorning but i am soooooooooooooooooo worried! I know no ones going to email me at 3 in the morning but it feels wrong to sleep and i cant! Any input would be great thanks!O ya it all lasted very short at least 15 sec or so.
tzoya, he does have an mri for this saturday in vegas were going to but that was already schedule after his eeg last month. This would be his 3rd seizure and they are so spaced apart that i dont think hes worried about them at all, altho i believe he may be having small little absense or subclinicals but when brought up doc didnt seem concerned at his followup and afer eeg test result were reviewed on july 11th.
Wow 60% thats alot of kids, i know i heard 30% and thought that was a lot. Id figure it would be an emergency but all the doctors i ever talk to about it dont seem worried about it so i dont know??? Its frustrating!
I felt him to see if he was feverish and he didnt have one. I called my sons neuro first thing in the morning and spoke to his assistant and told her what had happened. She asked if he was on meds which he isnt. She said shell tell the doctor what had happened and that hell probably just tell me to watch him to see if he has anymore. I havnt recieved any calls from them since i talked to assis. this morning so im alittle frustrated. I guess they want me to wait till he has a full on arms and legs flailing seizure where he hurts himself?! I dont think hes thinking about doing an eeg to see since he hasnt even called me back. We do have an mri this coming saturday tho which was already scheduled. Also the eeg he just had done on July 11 was only 30 minutes when they said it was going to be an hour (which i thought that was short!)
My son seems fine tho and theres been no more activity so hopefully there wont be any more. Thanks everyone, i know i was freaking out last nightPayne started with febrile seizures at a year old and they "evolutionized" to complex partial seizures...it took me a ER visit to Children's Columbus, an ER visit to Nemour's in Jax and the head of neurology there to get a dx - BTW his ped told me I was crazy he was just constipated and frustrated. The head of neurology had EEG and MRI done the same day as the appt...called me into his office within a few days...looked at me and I said - well am I crrrazzy? He said no and we're going to medicate him. I don't think he's done any harm to himself and I want to keep it that way. So - Payne's been medicated for YEARS and I refuse to take him off of the meds for it - they are also used as mood stabilizer for him. The dr also warned me that some of his other meds might lower the seizure threshold making it more likely that they'll come back. A risk I'm not willing to take. My dh and I both have seizures (it runs in my family - hypoglycemia) DH didn't start having seizures until he was in his 20's.
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