New Here | Autism PDD

hi there candy

i just joined this week too and already i'm hooked it is so nice to be able to talk to other people who know what your going through and this place is a wealth of infomation

Dee

I'm glad I decided to join this forum, It's been hard and since I'm fighting with family at the moment, not over the dx just over disfunctional family members

Also my husband will be leaving for Iraq next month for 4 months, I really am going to need other parents to talk to. I really do appreciate the warm welcomes, anyone can PM me anytime. Thanks for listening

hey Candy26, Big welcomes to you and your family.i have 3 kids Erica 12(special needs) Carlo 5 (pdd-nos and other issuses) and Ryleigh 23mths.(nt).Well if you would like we will all be your new friends. i'm sure you will like it here a lot. it has helped me so much as my son was also dx in feb of this year. take care and remember were all here for you.mom2carlo

Welcome Candy!

I'm so glad you found us LOL...you are right it is so nice to be around or talk w/ other's who are going through what you are...its my saving grace many times a day lol...I mentioned this a while back, we need to all move to the same neighborhood or something...LOL...wouldn't that be just the best! No funny looks, everyone understands, no pressure, just lots of cool people who love thier kids and plenty of help I'm sure too! : )

Daydreaming aside, I feel it does not get easier in a sense that you won't feel those pangs in your heart when you think of what the future holds for your precious child, but it does get easier to deal w/ or as Mary said so well, is "just better managed"... You learn as you go, and before long its just second nature, I'm sure you're getting a sense of that already.

my son Nicholas is 4 1/2 and was dx w/ pdd/nos at 29mths... I'm constantly amazed by him and his progress, I was so worried at his first dx, but after lots of therapy and school (school was key for us, it just really helped him excel) he's much further along than I thought...I don't have huge expectations for him, just realistic ones I guess, every child is different, my son just became verbal, well is almost there, using phrases and verbally requesting things, not really conversational yet, but getting there...but other children are speaking very well, and maybe their child doesn't do as well in other areas that my child does...it varies so much and you want to just have this wonderful handbook or milestones to follow, but there is none...that's frustrating to me. I guess I make up my own lol...sorry to go on...I'm getting tired I think...anyway I'm really glad you found us and looking forward to hearing more about you and your family! (I'm not usually this spacey lol...at least I hope not!)

hugs!

Ali

Welcome Candy,

I have a 3 yr old daughter who is currently my youngest until march06! She was also dianosed in Feb with PDDNOS! I have found this sight to be very supportive and there are alot of helpful people on here! We are also a young cpl so i understand what you are going through we have been together for 4 yrs! If you need anything feel free to PM me sometimes it is nice just to chat with others that are going through simalar situations to you!

Tyler has been delayed his whole life. He was born premature but apparently it has nothing to do with the pdd nos. He started having seizures when he was about 4 which resulted in an MRI. It didn't tell us much, just that his brain has several areas that are underdeveloped or not properly functioning. I don't recall any of the doctors mentioning autism until about a year ago. Anyway, I had him evaluated in Chicago and am now looking for a therapist/doctor that specializes in autism spectrum disorders and am having a terrible time. I live in a rural area of Illinois and will have to travel at least 2 hours for autism specific treatment. That is fine with me, I just don't really know what to ask or to look for in treatment. The spectrum is so broad and so different for every child that I'm not sure what I'm looking for. Does anyone else know what I mean?

I have a very supportive family and our town is supportive, too. At the youth baseball games, everyone is so nice and doesn't seem to be bothered by the loudness or the lack of awareness of his space. Tyler is very sociable but doesn't know how to interact - he is happy and smiling and very friendly to people and other kids, but he tries to play and ends up pushing and hitting because he doesn't know how to play. I jsut have tow atch him very closely. He is getting quite aggressive though. Tyler's dad and I are divorced (not pdd related) and I have since remarried to the most understanding and supportive man! He has been a god-send to us. We have 4 kids but Tyler is the only one with special needs. I worry about my daughter (6) and her resenting Tyler or me becuase he takes up so much time. I try to give her special time and she is so helpful with all the kids! She is quite the little mom-but in a helpful way.

Anyway, I hope to find a lot of answers and friends here, too. Even if you have incredibly supportive friends and family it is still so important to have those who are experiencing the samething because it is so hard to understand unless you are living it.

If anyone is in eastern Iowa or western Illinois and knows of a good doctor or therapist please let me know. I am looking into Iowa City, they have a team of professionals for austism spectrum disorders to help with a plan for treatment, IEPs, etc. Is anyone familiar with this?

Thanks - hope to be talking to you again soon.

Hi Candie, welcome to the board! You'll find it's full of info, support, and great moms and dads. We're here for anything you need to talk about. Dh and I are also a young couple. We have a 4 yr old dd and a 26 mth old ds that will be getting evaluated in Sept. Look forward to chatting again w/ you.

Amber

Hello everyone,
My ds was Diagnosed with Autism in Febuary of this year, he is 3 1/2 years old and is my youngest. I have a daughter whom is 5 1/2 years old. This has been hard for the family and were just getting used to the dx, I'm not sure if you really ever get used to it though, but were trying. He will be starting school this month, and has all the tools he needs to succeed, I've been married for 7 years and dh is very supportive, which helps, were also a young couple trying to deal with this and the isolation that comes from the dx. I dont have many friends, and family are supportive to a point, so I decided to join this forum. Since I've rambled on long enough, i just wanted to say hi and look forward to talking with everyone

Candy26,

Hi....I'm Karrie. I have 3 children. 13 year old boy (adhd and ocd), 11 year old girl (NT), 3 year old boy with autism, and I am due any day with another boy. I just wanted to say welcome to the board. I have gotten so much support here as I'm sure you will too. Hope to learn more about you and yours soon. Take care,

Karrie

Thanks for the warm welcomes, It's good to talk to parents that understand and can give sound suggestions to problems. I wish the rest of society was so understanding

I was told a year ago and I don't think it is easier now, just better managed.

It is hard to find support from those who just can't understand or won't try to understand. What bothers me most is my husbands parents won't even educate themselves yet always seem to have an opinion.

I have a daughter almost 4. As she is getting older her behavior is getting worse. Not that I am complaining because she is improving in speech. I also have a 16 yr old son, ADHD and a 2 yr old son who is just in those terrible twos right now.

Mary

Hi Candy26,

Welcome to the board. I hope you find our home away from home as enjoyable as I do. we're always around for a shoulder to cry on, an ear to listen and even a good laugh once in awhile.

Candy26,

welcome my boys are the same age 5 1/2 and 3 1/2 my youngest has autism with adhd. i have been married for almost 8 years. my dh is just starting to come around on the dx. he is getting more involved and my mom has moved in for her health and for my sanity. along with taking care of my sons i have been doing child care for 5 years now to make extra money. so pretty much i dont have many brain cells left after dealing with kids all day.

i as well dont have many friends and my mom is the only family we have. my best friend went loopy on me after the dx she kept saying i was using his dx for excusing his actions. which now i am just trying to control his actions. so friend or not they are not always there for you anyway.

you will find many friends here and plenty of listening ears when you need them.

so again welcome