Going Crazy..need to vent | Autism PDD

This forum was a blessing to find! I get more therapy from reading all of your great stories than I do from my bi weekly therapy session. So I thought I could just get my issues out here rather than pay a 20.00 co pay!

We only have 2 more weeks before the big day of diagnosing! I am so scared they are going to tell me that my son does not have autism. I know this sounds bad but what else could it be? We are already considering putting my older son who has issues in a smaller school setting since public school is not working. We moved to Iowa to get away from the big private school bills. However, if your child is not normal than you are toast and 2 steps from either going bk or racking up another credit card to pay for another therapy or private school, or another medical fee!

My son with possible autism is getting worse. His voice is so loud! He says close 50x's when a door closes. Getting a break during the day is impossible. If I put him up in his room for book time he repeats words over and over again not to mention there is a huge possibilty of waking up my 5 month old. If he watches TV he repeats everything he sees more than once at a very high tone. I am glad he is speaking but it is all rote. I will call his name 10X's and he will not answer however if I say Carter say mommy....he says "say mommy". He is such an amazing child however, the repetitive behavior and resistance to try anything new is really taking a toll on me. My husband and I are at our ends trying to find ways to manage life and still stay sane.

Ahhhh that feels better.  

 

 

 

 

Sending you a GIANT hug - I think you are amazing to be taking care of three kids - that is a lot of work and energy

Pour yourself a glass of wine :-)

Good luck to you, just sit back and try to relax a bit. Like KajoliT said...pour yourself a glass of wine!!

THings will be ok, however things come back..
  and to you!!

Something to make you laugh.... last year in preschool my son (the King of Echolalia) went thru a VERY LOUD period.   In school, they kept trying to pipe him down by telling him to use his "inside voice".

Well, we were going into the library to return books and I reminded him before we went in that we need to use our inside voice.

The minute we walked in the door, he startd yelling "INSIDE VOICE!  INSIDE VOICE!!!" over and over and over again.  This delighted some of the old patrons.

I can laugh now, but it wasn't so funny at the time.

And as a ray of hope:  In our case, both the volume and repeating are getting under control.  My son is 3 1/2.

Hope you gets some answers soon, waiting is so hard on the parents, but it does sound like you are on the right forum. Try to keep busy. Let us know when you find out.  Hang in there -- it is a rough roller coaster, isn't it???You're not going crazy.  What the heck, have two glasses of wine!

Glad you found us:)

 Write down all your son's sx's when you take him to get evaluated..they will be more able to diagnose him when all the sx are in black and white...I made 2 copies~one for me while I was there and one for the doctor to look at..I was so afraid she would display no signs and be told to wait another 6 mos. when I knew in my heart she was on the spectrum. 

Hopefully the new school will address his needs and get him some good services:) Check into ABA for behaviors..it is a wonderful therapy for putting some behaviors to sleep for good:)

Best wishes!

Thanks guys...yes the fear of him not showing his true colors will be there. We were thinking about recording him as well. Thanks for the library storey! That has already happened to us while out to dinner. He likes to say BOO...and if we do not say AHHHH right away than he repeats himself until you do! He makes me laugh though.

 

 

You'd be crazy if you weren't stressed out beyond belief.
And I agree this forum has been a lifesaver for me too. I stopped going
to my nitwit psychologist who had no any answers to question about
autism and no support to offer.
I think it takes a long time to wrap ones head around what it all means:
who is my kid, what will his future be, what kind of parent do I need to
be, what can we do for him, schools, treatments - all of it is like landing
in a parallel universe with different rules you have to figure out asap. Six
month after the diagnosis I feel like I am getting the hang of it but there
are still many times where I feel like someone has hit me over the head.
And your little guy is 2 and he will be able to make tons of progress and
has parents who are-on-the-ball. Thanks...yes I think we are on the ball however, we fall off of it. If I could have one wish granted it would beable to have the morning anxiety taken away. Not knowing how each day will end up is the worse of it. Some mornings he screams and some he wakes up in a ball of joy. If I could figure out what causes it, it would make a world of difference. Thanks for your support!
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