I wish the school would provide lunch for my son. He has multiple food allergies. I was told I could check the lunch menu and let them know what he could eat, or I can pack his lunch every day. So I guess I'll be packing his lunch every day. He can drink milk, but not from a carton. He can have fresh veggies or frozen with no salt added, nothing canned. No bread. Last year he ate breakfast at school, but now I'll have to get up at like 5:30 in the morning to give him his pill, wait the allotted amount of time, make him some oatmeal, cook his lunch, and get him on the bus at 7. Then he can vomit all over himself on the 1 1/2 hour bus ride. Getting him ready for school is challenge enough. We have been struggling to make ends meet. If I could send him to daycare we would both work full-time. For now my hubby works Mon. thru Sat. and I work on Sundays. So our kids qualify for free meals at school, but we can't get foodstamps. But qualifying is useless if he can't eat the food. I'm just feeling sad and frustrated. I've been cleaning up vomit all morning. Surely the school will at least be able to heat up his lunch for him. I was looking forward to school starting, now I dread it. I wish they would send him to the residential school but they said they won't consider it until he's 12. He's only regressed since being in school. Lost all his language. Yesterday we found out hubby's cousin gets paid to take care of her disabled mom. Her disability is obesity. She's too big to drive herself to Hardee's (maybe she can sue Hardee's because that's how she got so fat) so her daughter is getting paid for that. I wish I could get paid for taking care of my disabled son since one of us has to stay home with him. woodsman, my son just turned 7. He never stopped spitting up since he was a baby and the docs always said he spit up/vomitted because his autism caused weak muscle tone allowing the food to come back up. Well I kept switching docs because I don't like being told him vomitting is "normal" for him and no one cared when I kept saying I was concerned he wasn't gaining weight. Got a referral to GI specialist that did upper GI scope. He was diagnosed with eosinophilic esophagits (EE) caused by food allergy. Then got referral to allergist. He never got hives but after I did a little research, vomiting can be a symptom of food allergy. So his symptoms are vomiting and a swollen esophagus. The allergist only did a few food tests. He is allergic to corn, soy, rice, eggs, and fish. No corn syrup, anything with vegetable oil, dextrose, yeast. The allergist said the vomiting should stop once his body gets rid of the white blood cells in his throat. Could take a month, or more if not all the allergens were identified. I'm still learning about this disease myself. It's just that I was hopeful the school would make him breakfast and lunch anyway since I looked at the government food service site and they can make accomodations for kids with special needs, like autism, but food allergy itself isn't considered a disability. I emailed the spec. ed. coordinator and asked about putting something in the IEP and she replied it's not necessary. I told her everyone working with Curtis needs to know about his allergies so they quit giving him Smarties and Cheerios for doing activities. Maybe tomorrow I'll just call her. I've been looking up recipes like mad, some can be modified for him. I got some organic flour, enriched flour has soy in it, and made some really yummy brownies with applesauce. DS loved them, ohhh jeeze, i feel so sorry for him, i could not imagine how that must be. Food allergies is not a disability, yea, but it sure sounds like its disableing him for the time being, thats rough. School starts in another mounth or so, perhapse thatll be enough time for him to correct the white blood cell issue, and time for u to figure out the diet that would prevent that. Lets face it, their is no way he could go to school and live a normal life like that at all, isnt healthy if u cant process the food ya eat. I hope u can find a diet that works so that when school starts he can have a normal school year, even if it takes a mounth. I just cant beleive the school cant even accomodate him slightly, seems it would make things alot easier for everybody. All i can say is, since he cant help it, in the least maby he can ride on the bus with a bag er somethin, so their is no mess... he can be discrete about it cause kids can be very cruil, but i hope by then he can get better, and obviously its hard to hide something that serious in the classroom, man, thats gotta be sooo embarresing, i hope u can identify all that hes allergic to and get him better b4 the new school year starts.
Also, that dr. thing is a load, weak muscle tone makes it difficult to hold food down. I understand their are tiny strands of muscles lining the esphogus called cillia, that is responsible for pushing food down, not everybody can do this but i can... eat upside down, the muscles prevent it going back up, fights the force of gravety, i have a difficult time beleiving weak muscle tone prevents this from occuring naturally and its a good thing u seeked a second opinion. I dont like that whole muscle tone thing anyways, they say autistic kids dont have good muscle tone, im scrawny cause i did not eat as a kid, but had i not, i would have looked completly normal, i dont know... maby some have the problem, i feel healthy, strong ect... and i hope when your sons allergies r cleared hell feel the same way.
good luck...hmmm, jeeze, thats rough, i feel bad for u and tens of thousands of other struggling familes in this country, another serious problem in the US we really need to address. Is your son belimic er somethin, i mean, that cant be good if hes pukin all the time, jeeze, im just trying to think of what i would do in your situation and its rough, hes on that bus for 90 mins!! WOW! Perhapse, and i say this as a kid who would not eat breakfast unless forced, as i would rather have slept until the bus arrived, but maby, if he gets sick after eating, perhapse send him to school without breakfast, so their is no issue on the bus, then when he gets to school he can eat whatever u prepair for him (hell obviously need special occomodations, since they usually dont allow kids to eat breakfast in class) but i guess thats all i can think of. All I can say is, and im thankful to have never had this problem like some other kids unfortunatly for them, but being sick on the bus does not help for ones popularity, heh. WOW that sounds rough. We are thinking of limiting Payne down - a dairy free/GF/CF diet and we would be in the same boat - sending it in I mean. We will already be sending in snacks and drinks that he will be allowed to have at daycare and school. Don't presume that they will warm his food - Payne's school wouldn't unless it was written in the IEP.
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