A realization that no denial could refute | Autism PDD
I just thought that he was smart when he started to spell out words with blocks around his second birthday, well before he would talk. He didn't start to say multiple word sentence strings until he was almost 5. I now know that he was smart, but he also was under the autism spectrum due to his developmental delays. I never really did the grief thing cause I felt that he would get to be more comfortable with the way that the world was spinning for him. I always try to be optimistic in regards to his development, but I get down when he just doesn't seem interested in what is going on around him, this fortunatly isn't too often anymore. WOW!!! I think that's amazing!!! It means that he pays attention to detail, and is quiet aware!! I don't know much about hyperlexia, but I know a couple of kids who have autism/hyperlexia, and they are very high functioning
. They are about 8 year old now, and mainstreamed for most of the day at school. They are a little quirky, but no longer exhibit stims, they are verbally expressive, and really smart, academically at or above grade level.
I hope that gives a little lift to you.
chin up!!
nakama
WOW! Well that is FAR nicer than finding out due to a meltdown episode, over being redirected from constant stimming or something ...
Seriously. I vacillate constantly over whether T is or is not ASD, or how severely ... SIGH.
And MamaKat's developmental staircase thing yesterday definitely put her back on.
I make myself DIZZY.
Yep...sometimes good things can bring autism home. And hyperlexia can evolve into a good thing. But that doesn't mean that it didn't act as a stake in your heart. This pain will subside the day denial is truly no longer on your radar screen. It's hard to know when that will be. But when you've FULLY accepted autism, you will see the good things as good, not reminders of what you wished weren't there. (((HUGS)))
Thank you all for all the kind words. I will move on and be happy for the skill, I just need to greive the realization sometimes. I am so glad that I have you all.
Supermom, you hit the nail on the head!
[QUOTE=supermom_97] I know how you feel, it's hard to look at the glass half full allthe time. I've been going through those same feelings for 4 years now, there are times he seems so "normal" but as soon as that thought comes something happens to make reallity set in again. In the beggining I wasn't too upset about the dx because I knew there was something not quite right about my son, it was almost nice too have somebody figure out the pieces of the puzzle, and at least now we knew what to do to help him, the problem lays in the other people of the world. You see me son is hf so alot of people don't belive it or think I'm making an excuse for him, so they lead me to sometimes think like them, then we have a melt down and I come back to reality, it's just up and down all the time, and I'm sure those feelings will never go away i just have to find away to cope. One way I deal is this board it is my light at the end of the tunnel. Asd is not the end for our kids, I promise. & ;nbs p;
http://www.hyperlexia.org/hyperlexia.html
I would definitely take it as a positive thing.
Its so offbeat that sometimes an achievement will send our spirits spirally downward, but I guess that's just what comes with autism. I'm sorry for your sadness. Just try to embrace this little piece of the disorder as the silver lining, if you can.
Listen, if he can spell and read a bit now, then later when his hands are ready, he can be taught to type. There's a gal on the boards who is autistic and was considered pretty profound in her disability at one time in her life. I believe that in person she is nearly non verbal. Oh, but to read her words!
She gives wings to my hopes for Cole! She is eloquent, witty, and very compassionate. In a million years, reading her voice, you'd never think she was autistic because she communicates so very well. I believe that for kids who are into words, albeit written ones, the future is bright. Very bright.
Hugs.
My Sarah is hyperlexic and did this too before age 3..she would spell out "Old Macdonald had a farm" with blocks and "Mary had a little lamb" .. I would be home alone with her and freaked out thinking someone else was in the house!
IT is a gift and one that will help bring him so much progress! I would use this as much as possible and to build his receptive language up..and then his expressive language. We made social stories for every single thing including social and she internalized written word so much more to memory than verbal words..put on closed caption on TV and take advantage of his gift..there is a new book out called "when babies read" that just came out this year..I would get it :)
This skill is one of her savant skills and she tested at 6th grade level at 5 years old....with all the other things like social skills so hard it is nice that some things are really easy for our kids..she picked up numbers very easy too and handwriting:) Good luck!
I think you have to let the tears come every once and a while and that's normal. At the same time, recognize his gifts and use that to your advantage.
My son did this too. He is 3 1/2 and can spell over 100 words and is reading. What we have done with that is used that to our advantage to help him learn language and other skills, using the written word as cue.
I know how you feel, it's hard to look at the glass half full allthe time. I've been going through those same feelings for 4 years now, there are times he seems so "normal" but as soon as that thought comes something happens to make reallity set in again. In the beggining I wasn't too upset about the dx because I knew there was something not quite right about my son, it was almost nice too have somebody figure out the pieces of the puzzle, and at least now we knew what to do to help him, the problem lays in the other people of the world. You see me son is hf so alot of people don't belive it or think I'm making an excuse for him, so they lead me to sometimes think like them, then we have a melt down and I come back to reality, it's just up and down all the time, and I'm sure those feelings will never go away i just have to find away to cope. One way I deal is this board it is my light at the end of the tunnel. Asd is not the end for our kids, I promise. &nbs p; to you!!!!!!!I would be THRILLED if Rohan did that - looks like you have a SUPER smart kid
((hugs))
Guess what? Your child is amazing and gifted! I see a future of hyperlexia maybe? Maybe a savant ability will come around!
I just think children/adults with those abilities are absolutely incredible and extremely gifted!!
I wish my kid had some far out ability---like Bill Gates!!!!Yes, I know denial. My ds does mostly well at home and I think maybe
I understand. The tears come and go. Let them come for now and when you feel better, get going again.
I wept those first few weeks after DX, and now feel like I am going thru it again. It doesn't change anything, but just feelings. Thought I would share.
he's just quirky. But then I see him completly melting down in class I have
to accept that there are issues way and beyond quirky.
But you know what - your ds can spell! I know this skill comes from a
disorder you'd rather not have him have but it is still a wonderful skill. I
figure if I get to grieve about the things that will be hard for my kid I
also get to be proud and thankful for the strength that autism can bring.
Way to go Christian!
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