Anyone seen a pretty severe language disorder work itself out? My dd has disorder language 4.9. (dx mild hfa-I feel she is more pdd-nos) She has trouble with academics. I cant describle why but I feel that she at least has a normal IQ. She desires to be social and seems like an NT girl who just seems to "not get it" alot of the time.
Anyone have experience with a girl like this? People (professional and school) tell me her prognosis is good-I didnt even ask them what they meant. Usually they are sooo nebulous. One doctor said I should prepare for support for her during her school career and if she doesnt need it "great"-huh? could that be any more broad or noncommittal?
wanting to know if you have any input
My daughter did not talk at age four, she said 1 word here and there. Maybe 2 words together. She got pre-k with speech therapy and other therpay. She started to talk at age 5 (say 4 words) and she can say sentences at age 6. She still has therapy. I've been working with her since she was a baby 1 hour to 4 hour a day at home. I read to her and A-z from birth to 6 yrs. 6.4 years now words, writting and spelling. She can read basic books on her own, learned to do this summer. I bought her the bob book sets at amazon.com
She was marked as developmental delay with speech disorder at age 3.11 year old. She has sensory intergration disorder found that out at age 5 yrs old and she has been showing signs of pdd/aspergers since birth. I'll know it Sept which one she has. They told me her IQ is normal but because of her delays they can't get her actual IQ score. They said it could be a lot higher. Don't give up
You are describing my dd. She is 5 now and her main issue is speech. Other than her speech issues and a finger stim she has had for years, she appears NT. She is very smart and I was told her IQ may be higher than "normal." But, I am waiting this one out, for the reasons she does not "get it" either and I can see her struggling to learn. So I dont know...
She is not dx'd with ASD. I have wondered for years about it though. She has been seen by "professionals" and they have decided not to dx based on her lack of social deficits. I put her in a mainstream preK to test her social skills out and she did make friends but I still worry about her keeping friendships as she ages.
Her speech is all over the place. She had first words on time but she did not progress with communication until after she turned three. Before three she only labled things and had endless echolalia. She seemed to learn language through memorizing and repetitive questions and conversations. At five now, she seems almost NT but her pragmatics are an issue and so is her grammar. She cannot "get" past tenses and sentence structure. She is not shy by any means, she will talk all day if you let her. She can have a back and fourth conversation but it does not always seem natural to her. I would say she improved most between the age of four to five. She has had very little therapy. I tried to get her therapy through our school district but they denied us services because she can pass a speech and language test. We hired a private speech and language therapist and she did very little for her. She told me that my dd didnt need one on one help, she needed to be around other kids. Preschool worked out very well for her but I do not think it was enough and I still worry about her. Time will tell though for her. If she is asd, she very much fell through the cracks. I worry all the time that asd will become very noticeable with age and it will be too late to help her.
amberwaves
does your dd appear nt to the casual observer? is she now doing age level academics. How hard was it for her to get academics? Is her speech NT now or does she have pragmatic issues.
The more language my dd aquires she definately has pragmatic issues-I think this contibutes to her "not getting it"
watching her during the day she seems to be age appropriate. She can make her own sandwich and clean up after her self!!!!
thanks for your information!!!
She can't open lids, zip, turn door knobs, pour a glass. For a sandwhich I have to open every thing and get everything out. She can put the 2 pieces of bread together, meat on it that's it. Clean up I have to tell her what to do and watch her clean up. She is not age appropriate, around 4 yrs. She is 6 year old.always worried: that should be my name
my dd seems typical too, until she opens her mouth. She has friendships now but I see her peers notice something "up" I dont think peer relationships will last much longer.
I too worry about the future constantly. Her issues arent fading like I thought they would.
There is obviously a way your dd learns since she makes things like a sandwich so she gets something and the question is why not academics. My 9 yo is pdd-nos and has a hard time with typical academics.
Your dd may be very visual or a haptic learner not generally the teaching method. Or even aural (musical). She may also have some sort of "verbal dyslexia" that makes it difficult for her to process verbal information. And, she may do better with text input/output or visual representations or through manual manipulation of 3-d objects.
I would suggest you get the ABLLS done if you haven't as well as, IQ and other psychological testing to identify her strengths.
Foxl- thanks. I am a huge mulitasker. Doing on thing at a time bores me silly and I can only get things done when I am doing several things at once.
Hi Fred I will keep you posted on my dd, and use you as a sounding board. I wonder if "pretty good" and "good" are the same
My question is this: I am a worry wart that always wants a crystal ball to see what my dd will be like- I pop in from time time and ask this question. I was due to ask it again as her fifth birthday is coming up and it was the line in the sand I had drawn in the sand by when she would be "recovered"
I am also trying to identify the what exactly is tripping her up so I can attack it so that she will gain more skills. I keep hearing REPITION REPITION REPITION but I dont think that is all there is too it. I am convinced there is APD and a visual perception disorder mixed with some fine motor delay that are contributing to the delays in language and academics.
Thanks for listening
thanks soo much that is VERY useful info. I will be googling alot of the learning types you have mentioned, as well as the test
I should mention that she needs verbal prompting for sandwich making and clean up-I am just soooooo happy she is tuned in and complies!!!!
Since I am not familiar wit hthis term thought I would post ... http://www.teenhealthcentre.com/articles/publish/article_176 .shtml
Sounds FAMILIAR! I call it "multitasking ... " I know it is not the same thing.
HAPTIC- Haptic learners are people who have a hard time sitting still while studying. They sometimes pace around, or may need to have the TV or radio on in order to concentrate. They are always finding themselves distracted. It may not sound like it, but this type of learning is just as effective as the other two, you just have to adapt to it and find a way of studying that suits you. Fighting against your nature will only make it worse! Haptic learners need to make studying a physical activity. You can try standing or pacing, chewing gum or exercising. Studying is more effective for a haptic learner if colour is used. Highlight all the most important passages in your textbook and notes. You need to vary your activities. If you feel your brain getting “clogged”, find something else to do for a few minutes to keep your mind from wandering. Try skimming over your notes or a chapter in your textbook to pick out the most important points.
pinkquinn,
Everyone seems to have more context than I do regarding your daughter, but I will tell you that my daughters are nearly the exact same age (about a 2 months difference) so perhaps I could be a sounding board? I just don't understand the question you are asking.
My daughters also have autistic disoder (not PDD-NOS), but are considered at the milder end of the spectrum. I have also been told that their prognosis is pretty good. Their language is both atypical and delayed, probably more the former than the latter (thought that's a fairly recent development). They test in the low-normal range on standard language tests these days, but they have a lot of trouble with social language, conversation, pragmatics, etc.
They have no "friends", though they reported played nicely with the other kids in their preschool class (at least at the second half of the year), and occasinally initiate play with typical kids when out and about.
They have no obvious problems with pre-school level academics at the moment.
I wish I could offer you more advice, but if you respond to this, let me know if there are any notes you'd like to compare.
alwaysworried:
yes she recieves speech therapy one on one and she was in a laguage based preschool especially for verbal ASD.
It seems like I am going to need to be doing most of the therapies myself too-and I dont know crap. I guess I am going to start reading alot of books. I am especially interested working with visual perception since I am convinced that in academics this is the crux of the problem and then tying it in fine motor therapy so she can start writing.
Its a long lonely journey, with lots of reading, thats for sure.
ozzie-rozzies
who administered your ABLLS?
You can generally get child psychologists to do all this testing we had ours done through the school board child psychologist but we ended up waiting about 18 mths.
Rozie and Ozzie are in an autism program that has a child psychologist who oversees their ABA therapy; they would be able to administer the ABLLS testing too. Any certified Child psychologists will also be able to make recommendations for supports or devices too and carry the weight of doctors ...since they are doctors.
I'm not in the US so I don't know if it's available through your school boards or if your can be reimbursed by the school or insurance. Tzoya may know.
pinkquinn -
Do you have your dd in speech therapy? I am curious because it was so hard for me to find help for my dd. I am basically her therapist and most of the time I have no idea what I am doing:)